Public Involvement in Research Impact Toolkit @PIRIToolkit
Account for PIRIT, a free resource to help you plan meaningful public involvement in research, track and demonstrate the difference it makes. Cardiff University, Wales, UK. Joined December 2022-
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TAKE & SHARE OUR SURVEY to help us better understand who is using PIRIT, how, and if it’s providing value to users in the way that we hoped. app.onlinesurveys.jisc.ac.uk/s/cardiff/piri…
The webinar is now available at healthandcareresearchwales.org/about/events/f… @ResearchWales @theWCRC @MCPCRCCardiff
The webinar is now available at healthandcareresearchwales.org/about/events/f… @ResearchWales @theWCRC @MCPCRCCardiff
2 years, 1600 downloads. That’s something to celebrate. Happy Birthday @PIRIToolkit ! @MCPCRCCardiff
2 years, 1600 downloads. That’s something to celebrate. Happy Birthday @PIRIToolkit ! @MCPCRCCardiff
Hooray @PIRIToolkit is two today! Thanks to everyone across the globe who has downloaded PIRIT. Our user survey will be shared soon. @theWCRC @MCPCRCCardiff @alishaannnewman
>150 signed up for tomorrow’s @PIRIToolkit webinar! A link to the recording will be shared for those who can’t make it. For those who can, see you tomorrow! @MCPCRCCardiff @theWCRC @ResearchWales
>150 signed up for tomorrow’s @PIRIToolkit webinar! A link to the recording will be shared for those who can’t make it. For those who can, see you tomorrow! @MCPCRCCardiff @theWCRC @ResearchWales
If you have any questions about @PIRIToolkit, you can submit them in advance to be answered during the webinar. See you there!
If you have any questions about @PIRIToolkit, you can submit them in advance to be answered during the webinar. See you there!
It’s great to see @PIRIToolkit featured on the new impact and evaluation page :)
It’s great to see @PIRIToolkit featured on the new impact and evaluation page :)
It was great to meet so many people who are passionate about meaningful #publicinvolvement at #SAPC2024. Some important conversations about proper planning and costing . Our free Planning Tool is a great place to start: cardiff.ac.uk/marie-curie-re…
So much knowledge and enthusiasm for community partnerships at today’s @BristolUni public involvement and engagement showcase. Thanks all for your interest in the @PIRIToolkit
The @PIRIToolkit is being used to track the impact of public involvement across 6 work packages in the serenity project. We’re looking forward to seeing the results in the next fantastic poster @DrMichelleEdwar :)
The @PIRIToolkit is being used to track the impact of public involvement across 6 work packages in the serenity project. We’re looking forward to seeing the results in the next fantastic poster @DrMichelleEdwar :)
We’re at #WCRC24 conference today talking to delegates about #publicinvolvement in research and its impact. Come and talk to @PIRIToolkit !
Public contributor and @PIRIToolkit team member, Julie Hepburn, talking about this successful partnership project between @theWCRC @MCPCRCCardiff and the public. #WCRC24
Team @PIRIToolkit are at the #WCRC2024 conference today. Come talk to us about #pulicinvolvement in research.
Team @PIRIToolkit are at the #WCRC2024 conference today. Come talk to us about #pulicinvolvement in research.
A great case study showing @PIRIToolkit in action and the impact of the involved pubic in the @StudyCobra
A great case study showing @PIRIToolkit in action and the impact of the involved pubic in the @StudyCobra
✨Celebrating 1 year of the @PIRIToolkit !✨ The Public Involvement in Research Impact Toolkit is marking its one-year anniversary since its launch at the @mariecurieuk conference in Feb 2023. Find out what has been happening in the last year: 👉tinyurl.com/3ywv325b
🎉Join the PIRIT Party! Launched a year ago today, and what a busy year it's been! Find out what we've been doing👉tinyurl.com/3ywv325b @NIHRinvolvement @ResearchWales @theWCRC @MCPCRCCardiff @HRA_Latest @CUmedicengage @MarieCurieEOLC
Joint the #PIRIToolkit Party. We’ll be celebrating one year since the launch next week! Check out the toolkit and watch this space for updates.
Joint the #PIRIToolkit Party. We’ll be celebrating one year since the launch next week! Check out the toolkit and watch this space for updates.
Are you interested in completing a micro-credential in #ppi? Our #DigitalBadge in PPI in researchers is open to all researchers within and outside UCC. You can take the course in your own time, at your own pace. Available here: shorturl.at/hxyE1 #ppi #publicinvolvement

Francesca L 💙 @PPI_poppet
3K Followers 5K Following Research Co/ord & Public Involvement Lead Health Workforce &Frailty, UoS;Occasional guest lecturer. Mum of 4 incl adult twins with Down’s.Views my own,she/her
MsElsie @elsie2502
145 Followers 832 Following Passionate about making a tangible difference for the underserved and marginalised. My opinions are my own.
Maria João Teixeira ... @mariajoaoresend
129 Followers 936 Following RN, CNS, MSc, PhD NIHR Senior Research Leader Programme: Nursing and Midwifery, 2023 HEE ICA Post-doc bridging award 2022, Visiting Lecturer,LSBU.
Rachel Turner @rachlizturner
32 Followers 208 Following
David Abbott @davidabbottbris
4K Followers 5K Following Peace and peonies. Also dog, views, cake, Social Policy. He/him 🏳️🌈 🏳️⚧️ 🇮🇪 🏴✊🏿
Erin Stella Sullivan ... @ErinSullivanRD
1K Followers 4K Following Lecturer in Nutritional Sciences @ KCL - Oncology & Body Composition Researcher - HCPC/CORU Registered Dietitian - Former IRC EPS Postdoc Fellow *Views my own*
Niamh Quann @NiamhQuann
355 Followers 534 Following Senior Clinical Research Manager - Renal @UoLCVS. REC Member & REC Mentor. Waterford native ☘️
Basma Issa @Basmaissa81224
1 Followers 47 Following
Mary Newburn @MaryNewburn1
5K Followers 3K Following Mary Newburn Consulting - project management; facilitator; service user involvement; maternity services; research. Interests: Aspergers, cancer, mental health.
Lucy @Lucy04694533
28 Followers 141 Following
Sandip Nandhra @SandipNandhra
2K Followers 3K Following Vascular Consultant and SCL @UniofNewcastle | @VascResesrchNet | @ForumRSM council | Northern Vascular Centre, Freeman, Newcastle, U.K.
Anthony @T0pgeeks
743 Followers 7K Following Freelance Programmer 👨🏽💻 | Tech Bro 💻 | Computer Geek 🖥️ | Lover of Code 🔥 | Problem Solver 🧠 | Digital Creator 📲 | Innovator 🚀
Huw Morgan @Huw_Morgan_PhD
4 Followers 41 Following Post doctoral cancer researcher & molecular biologist at Cardiff University | Passionate about translating lab innovations into real-world impact.
Gargi Naha @naha_gargi
180 Followers 710 Following Yr-2 PhD| Emergency Asthma care• Intersectionality•Sex & SES• CYP| 🪧Intersectional feminism advocate|🩺IMG|💭My views| 💗🇮🇳
Ciara Hulton @CiaraeHulton
15 Followers 186 Following
Abhaya Vadlamudi @abhayavadlamudi
4 Followers 47 Following
Michael Bahrami-Hessa... @mikebahrami
434 Followers 956 Following Microbiologist turned Community Engagement & Involvement professional in Global Health (🇧🇯 🇬🇭 🇮🇳 🇲🇽 🇳🇬 🇷🇼 🇿🇦 ). All views own. He/him. 🇵🇭 🇬🇧
Dr Sophie Reale @SophieReale
512 Followers 759 Following Snr Research Fellow. Complex intervention development, behaviour change, implementation, process evaluation, prostate cancer. UKSBM Cancer SIG co-chair. Runner!
Renata Poole @iheartcymru
568 Followers 884 Following Welsh Clinical Leadership Training Fellow 2022/23 | Dysgwr Cymraeg 🏴 | Principal Pharmacist Clinical Trials
Health and Care Resea... @ResearchWales
7K Followers 853 Following We promote & support health & social care research in Wales to improve the lives of patients, people & communities. Yn Gymraeg @YmchwilCymru Mon-Fri 08:00-17:00
Imperial PERC @Imperial_PERC
3K Followers 4K Following Now at Bluesky - https://t.co/dGG9Skkg4B Patient Experience Research Centre. We promote participatory approaches to improving healthcare.
Phil Smith @chorleyphil
831 Followers 2K Following Researcher @CASCADEresearch @CUSocSci @ResearchWales - Interests: educational journeys, inclusion/exclusion, care experiences, relationships, social/youth work
Rebecca Rayner @BeckRayner
1K Followers 1K Following Stroke and Neurology Clinical Lead Physio. NIHR MRes Clin Practice graduate and Pre Doc award holder. All views my own.
Georgia💙 @Georgia_Melia
429 Followers 493 Following Research Practitioner @ East Midlands Major Trauma Centre | NIHR-ARC funded PhD student @ UoN | ❤️ sport, food, travelling & music | Views are my own💫
Michelle Krenzler @MichelleKrenzl1
4 Followers 38 Following
Sarah Harrisson @DrSAHarrisson
512 Followers 404 Following Physio @mpftnhs & clinical research @KeeleMedSchool. Improving care for people living with #pain. Interests #Neup #msk #biopsychosocial. Veteran 🏃🏼♀️
Sarah Higson 💙 @sarah_higson
3K Followers 4K Following Associate Director for patient engagement & experience - dedicated to partnership working #TeamNNUH #QCommunity #Juggler #Optimist
Dr Jane Thompson @JaneThompsonAdv
591 Followers 730 Following Advocate for public involvement in dementia research; cared for and about husband with dementia of Alzheimer's type.
Matthew Megson (he/hi... @drmegson
432 Followers 570 Following Welsh Urology SpR, completed PhD. ISSM young researchers committee member, BURST committee. Lead for SWURG. Member of Welsh ethics committee
Jenna💙 @Jenna_Spry
331 Followers 650 Following University of Bristol Senior Research Associate. Interested in researching all things health & wellness. Individuals' experiences are key. All views are my own
Sarah (Muir) Patrick @SarahMuir
546 Followers 1K Following Public & Patient Involvement & Engagement Consultant. Associate Staff @mrcppu @dundeeuni. BSc (Hons) Neuroscience. MCIPR. Mama, renovator & music lover.
Callum Bradford @Cal_Bradford98
58 Followers 233 Following PhD Student: Walking Football & Breathlessness @TeessideUni \\ Interests: Mental Health💚 Behaviour Change🔁 Public Health🛒 \\ Anxious Mess😅 & Football Nerd⚽
STruem @truem_s
2 Followers 342 Following
Anna M (Butterfly🦋... @AnnaResearchRep
2K Followers 2K Following #PPI specialist @UCLHresearch & NIHR @DataDrivenBTRU |@NHSBT PPI |@bloodcancer_uk research |
Hannah Wilson @HannahJEWilson
280 Followers 467 Following 👩🏻⚕️PhD - StAR Research Lecturer @RCSI_SWaT📍Royal College of Surgeons in Ireland 🤝 Passionate about PPI 📗 ECR EdBoard @jadvnursing 🧘🏻♂️ Yogi
Laura O'Connor @Laura_OConn
265 Followers 413 Following Researcher with @pmrycaretrials1, infrequent tweeter
Lindsay Haywood @LindsayinHealth
2 Followers 123 Following Passionate supporter of involvement in health and social care improvement. ( all posts are personal and not those of my employer)
Jolynne @JolynneDeSouza
31 Followers 474 Following
Dr Sofia Vougioukalou @SVougioukalou
624 Followers 947 Following Research Fellow @CTRCardiff Uni, Associate Editor @Arts_Health_Jnl, Trustee @Women_CF, interested in equalities in adult social care, dementia & creativity
Kati @KatBeeDee
13 Followers 276 Following
Emma Campbell @EmmaCampbell99
453 Followers 655 Following Research Fellow @UniofNottingham. Kids 1st ❤️, then applied health research #coproduction #citizenscience #participatoryresearch & environmental sustainability.
Dr Amie Wilson @amiewil
860 Followers 1K Following Midwife. SeniorLecturer-LSTM. GlobalMaternalHealth.BirthAdvocate.India,Malawi,Uganda,Tanzania,Kenya,Zimbabwe,Pakistan.Feminist. Weightlifter.BeKind!
Verónica Blanco Guti... @Vero_BG_
1K Followers 4K Following Midwife/NHSCEP8/EPSRC CDT in Digital Health&Care/Feminist @UoBrisDigHealth @Ox_wrh #PerinatalHealth #HCI #Inequalities #HealthEquity #SDOH #AIdrivenCDSS
Pete Edwards @Dr_PJEdwards
739 Followers 1K Following GP in @BNSSG_ICB area. Researcher @CAPCbristol. @ https://t.co/eOw3ayYksz
Notaceleriac @Notaceleriac
850 Followers 928 Following A coeliac, not a celeriac. Aka Angie Pitt, PhD psychology student @EPR_HPRU @KingsIoPPN and youth engagement for @RHSWisley
Hannah Gardiner (they... @HJGardiner
896 Followers 3K Following PhD Student Food Justice/Systems @PlymUni Interests: transformed society, decentralised power, climate justice, participation, creativity, posthumanism
Professor Alexandra J... @ProfAJohnstone
3K Followers 2K Following Nutrition Scientist at Rowett Institute, University of Aberdeen
Dr Sarah McKenna @DrSarah_McKenna
127 Followers 263 Following Research Fellow @ADRC_NI | Queen’s University Belfast | Children’s Social Care | Homelessness
Carol Vorderman @carolvorders
923K Followers 3K Following ‘NOW WHAT?’ book out now https://t.co/VMu8aMRRHs Award winning broadcaster and campaigner Politically independent. https://t.co/rox0cPaS4f
NIHR Applied Research... @NIHRARCs
5K Followers 2K Following We are the network of 15 @NIHRresearch Applied Research Collaborations. ARCs support applied health & care research across the country https://t.co/3vPO6R4cYW
Marney Williams @HomeUrs29
223 Followers 396 Following Championing Patient and Public Involvement in NHS, public health and social care research, and excellence in education. Maths teacher.
Barbara Moseley Harri... @harris_moseley
285 Followers 584 Following PhD student @MyBCU. Speech & Language Therapist. Focused on prioritising views of people who #stutter #stammer in both. See website for project. My own views.
Ngawai @ngawai_n
1K Followers 2K Following Passionate about Patient & Public Involvement | Women’s Health & Research | QMUL Hon Fellow | #BRIDGE4WomensHealth #EpiSafe @elly_charity @Katies_Team
Cardiff University Sc... @CUmedicengage
2K Followers 536 Following We are no longer posting on this account. Find us on Instagram - cardiffunimedicine; bluesky - @cumedicengage.bsky.social
Marie Curie Cymru @MarieCurieCymru
2K Followers 1K Following Our nurses provide care to terminally ill patients in their own homes or in the Cardiff & Vale hospice, while offering support to their families.
Kerry Broom @KerryBroom1
72 Followers 347 Following
Dr Helen Findlay @helenfindlay
6K Followers 5K Following PhD service user involvement in palliative care (Brunel U) MSc Politics (Strathclyde U) 'Fighting for Life' play re mum (dementia), dad (MND) & older life
Shaping Our Lives @Solnetwork1
4K Followers 5K Following We're a user-led non-profit, working to ensure everyone can have a say in the services they use. #InclusiveInvolvementMatters #LivedExperience
Libby Humphris @LibbyHumphris
570 Followers 1K Following Co-lead Public Involvement @EvidenceWales Honorary Research Associate @CUmedicengage Multiple chronic health issues, Crocheter 🧶
NIHR School for Prima... @NIHRSPCR
4K Followers 381 Following We only engage on 🦋Bluesky: https://t.co/TYv09MAbAo 🤝Linked In: https://t.co/O3BmhYL1Kj 🎥YouTube: https://t.co/iSrm96YWxV 📰 Subscribe to our news: https://t.co/kU1eEPRN3o
SAPC @sapcacuk
4K Followers 787 Following The Society for Academic Primary Care. Advancing primary care through education and research
Shared Learning Group... @SLGInvolvement
870 Followers 276 Following Group of national UK vol sector orgs encouraging shared learning about service user and/or carer #involvement. Includes Charities Research Involvement Group
James Lind Alliance @LindAlliance
10K Followers 1K Following Bringing patients, carers, and health and care professionals together to identify and prioritise the unanswered questions they want health research to address.
Lisa Whittaker @LisaWhittaker02
3K Followers 3K Following Research Involvement Lead @bloodcancer_uk @BloodCancer_Res https://t.co/GtPN7lnoyl
Marie Curie Research ... @MCPCRCCardiff
1K Followers 603 Following We listen to people at the end of life, no matter the illness. We produce the evidence needed to drive change and improve the end-of-life experience for all.
Selina Wallis @UnlockingBirth
3K Followers 7K Following Public Involvement Manager @arc_nwc | Founder #SafeByDefault | #coproduction #traumainformed #cse #dv #doula | Memoirist | All views my own
Involved in Research @InvolvePatients
638 Followers 907 Following Anna & Linda share experiences about involvement in #healthcare #research with #researchers, #patientadvocates & the #public #patientinvolvement #CancerResearch
Meerat Kaur @Kaumee
2K Followers 2K Following Becoming part of the furniture @NIHR, trustee @bmehealthforum, designs collaborative research, evaluation &focuses on community-led approaches.Views=my own.
Dr Julie Bayley @Juli... @JulieEBayley
3K Followers 569 Following Impact nerd. No longer using Twitter. Profile left up to let you know I’m over at Bluesky @JulieBayley.bsky.social or LinkedIn
Moondance Cancer Init... @MoondanceCancer
1K Followers 2K Following We find, fund & fuel brilliant people & brave ideas to make Wales a world leader in cancer survival.
Cicely Saunders Insti... @CSI_KCL
12K Followers 912 Following The Cicely Saunders Institute @kingscollegelon is the first purpose-built palliative care research institute, part of @KingsNMPC
PPI Ignite Network at... @PPI_Ignite_DCU
2K Followers 1K Following PPI Ignite Network DCU link. HRB, IRC and university funded network to create a shared voice for PPI, improve PPI quality and facilitate collaborative learning.
PPI Ignite Network @ ... @PPI_Ignite_UCC
762 Followers 343 Following HRB, IRC and university funded. Building capacity for Public and Patient Involvement (PPI) within UCC and amongst wider society. Tweets by Emmy Racine.
RCSI PPI Ignite @RCSI_PPI_Ignite
1K Followers 1K Following Official twitter account of the @RCSI_Irl @PPI_Ignite_Net Team. Sharing news on #PPI research, training and events from researchers and PPI contributors.
Maynooth_PPI @Maynooth_PPI
312 Followers 360 Following Supporting and facilitating user involvement in research within Maynooth University. National Partner of PPI Ignite Network
UCD PPI Ignite @UCD_PPI_Ignite
384 Followers 203 Following Twitter account of UCD PPI Ignite. Embedding public and patient involvement and engagement into research culture and practice. Tweets by ED.
Derek Stewart @DerekCStewart
6K Followers 6K Following Patient advocate after throat cancer in 1995: From Ayr to Blogger, Facilitator, Speaker with OBE and Professorship (Hon) for University of Galway. CRUK Member
UK Stroke Forum @UKStrokeForum
10K Followers 2K Following The UK's largest multidisciplinary conference for stroke care professionals #UKSF25
Neurological Alliance... @naiireland
3K Followers 808 Following NAI is the national umbrella body representing 40 not for profit organisations working with people with neurological conditions & their families.
the 'lived experience... @ThrivePlayer
644 Followers 400 Following The voice of the #LIVEDEXPERIENCE matters. #STROKE THRIVER. I am strongly involved in Aphasia Activism. #AphasiaCafé. #PPI CONTRIBUTORY LARRY MASTERSON
#HelloMyNameIs Jade H... @RNJadePUNC21
2K Followers 2K Following Registered Nurse adult health #PUNC21 RCN student committee SW rep & vice chair 2022/23 @RCNNRN curator RN @MarieCurieSW #150Leaders 2023
Louise Potter @louisepotter55
50 Followers 391 Following
Dr Alex Wray 💙 @AlboZambo
621 Followers 1K Following End of Life Matron @hullhospitals PhD exploring child bereavement @hullyorkmed Health Services Research Fellow @YorkStJohn 🌈 💙
Cathy Beresford @CathyJBeresford
479 Followers 946 Following Nurse, PhD researcher, views my own. Research interests: liver disease care, diabetes, learning disability care, palliative care.
Accelerated Surgical ... @surgicalHRC
2K Followers 556 Following The HRC will work with businesses to support the development of medical devices, diagnostics and digital technologies.
Rachael Basak @raechaep
189 Followers 369 Following I am passionate about good health & social care for ALL. I love my family, my friends, my campervan & my job at Princess Alice Hospice. Views are my own.
Lucy Mitchinson @lucymitchinson
169 Followers 231 Following Research Fellow in Behavioural Science at QMUL 👩🏻🎓📚 Interest in cancer screening and inequalities in care (she/her)
Marie Price @Marie24Price
34 Followers 165 Following
Elolin 💙 💚👩�... @Elolin2
139 Followers 941 Following (She/her) Mum. Palliative care. Music💖 Public History🥰 Embedding anti-racist work culture #LifelongLearning #BBCProms addict
Claire Arthur @ClaireArthur17
127 Followers 311 Following Senior Research Nurse, Supportive & Palliative Care. Passionate about ensuring access to research for all and that patients receive dignified palliative care.
Tharin Phenwan, MD, P... @TPhenwan
262 Followers 360 Following X is unusable. I mainly used Linkedin now. PhD in #ACP with people living with #dementia, #PalliativeCare advocate, GP, lecturer at @UoDHealthSci
Sarah Yardley @lavendercrew
939 Followers 3K Following Listening, Learning, Trying to live life as my best creative self. Would always rather be by in or on the sea. Personal account. #ChurchillFellow2024 #Trellis5
Kasia Patynowska @KPatynowska
276 Followers 328 Following Doctoral Research Fellow, Research Nurse Hospice care at home Trail runner, microadventurer, Vizsla lover, mum to 2 amazing girls! Views my own.
Fiona Mason @fi_mason
710 Followers 707 Following Writer & assorted wordsmithery. Creative writing workshops. Author of 2023 East Anglian Book Awards shortlisted memoir "36 Hours". https://t.co/81zkPbw7Mc