The PSP Association @PSPAssociation
Helping people living with Progressive Supranuclear Palsy & Corticobasal Degeneration to live the best life they can #TeamPSPA 🧠 pspassociation.org.uk/news/wear-eds-… United Kingdom Joined January 2011-
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Our #Volunteer Support Group Coordinator Maria Rodrigues, with Val Richardson and Bob Ruskin, met MP @LizTwistMP to discuss caring for loved ones with PSP, CHC Funding, and the challenges of PSP & CBD. They’re also reaching out to other MPs. #TeamPSPA #MP #Policy #NHS
Our Helpline Care Navigators Alexandrea and Kaysha are excited to be in #Birmingham today at the Parkinson's Nurse Conference to speak to health and social #care professionals about PSP, CBD and the charity. Do stop by and say hi if you're attending!👋#ParkinsonsNurses
Missed our Healthcare Professional #Masterclass? Catch up anytime on our website or #YouTube! Gillian McKinley, Speech & Language Therapist, shared tips on PSP & CBD: safe swallowing, nutrition, and #communication. Watch here: ow.ly/BV5x51003se #PSP #CBD #Webinar
Our Guide to PSP & CBD for Physiotherapists covers: 📖 Multidisciplinary management 📖 Physiotherapy intervention 📖 Symptom management & more Read & share: ow.ly/Einl50ZXWl1 #HealthCareProfessionals #Physiotherapy #Physiotherapists #HealthGuide
We're seeking a new Chair as Rowena Ironside steps down. If you have strong governance and people skills, you could help lead PSPA through change. Voluntary role, expenses reimbursed. Apply: starfishsearch.com/jobs/pspa-chai… Deadline: 4 Dec #CharityJobs #Volunteering #BoardChair
Catch-up on our #masterclass for health and social care professionals. Dr Boyd Ghosh delivered this insightful Masterclass and was joined by former #Carer Denise Hunt who shared her Lived experience of a #misdiagnosis. Watch and share the session here: ow.ly/OWLO50ZV0r7
Our Director of #Policy and Influencing, Mark was at the House of Lords yesterday, for a discussion with Peers on the Health Bill and how they can ensure that it delivers what people with neurological conditions need. The event was hosted by The @NeuroAlliance #HealthBill
Our new-look PSPA Matters is here! Download the latest edition or listen to the audio version on our website. Inside: research updates, PSPA Strategy news, and progress in diagnosing PSP & CBD. Read now: ow.ly/ULBX50ZUZ59 #PSPAMatters #PSPResearch #Magazine
Sign The @NeuroAlliance call for a national plan for neurological conditions below 👇 #OpenLetter #Government #NeuroPlan
📆 Less than one week to support our call for a Neuro Plan Now! 🧾 Right now, there is no national plan for neurological conditions. But together we can change that. 📝 Sign our open letter today and push for change for millions of people. bit.ly/4w5hHAY
Have 7 minutes to spare? Help shape the future of PSPA by sharing your feedback! We're developing a new website and want to hear how you use it. Complete our short survey: ow.ly/AGuf50ZURWq Please share with colleagues. #Survey #Feedback #UserExperience
Our new-look PSPA Matters magazine is here! 💜 We’ve updated the colours and increased the font size thanks to your feedback. Inside: PSPA Survey insights, Understood Fund research, and progress in diagnosis. Read or listen: pspassociation.org.uk/information-an… #PSPAMatters #Magazine
How is #AI transforming PSP research? 🧠 Professor Larry Golbe shares how artificial intelligence is already making a difference. Read more: ow.ly/n2xA50ZTp8v Are you using AI in your research? #PSP #AIResearch #PSPResearch #Neuroscience #BrainResearch #NeuroTech
Last few tickets! Join our HSCP Masterclass on Wed 7 Oct, 6:30–8pm. Learn about Communication & Swallowing in PSP & CBD with Gillian McKinley, Speech & Language Therapist. Register free: ow.ly/XCsl50ZSIfB #Communication #SpeechTherapy #Webinar #PSP #CBD
Every year, charities miss out on £560m in unclaimed Gift Aid tax relief. When you donate, remember to #TickTheBox! It costs you nothing but means everything to us. #GiftAidAwarenessDay #GiftAid #Donation #Fundraising
On Gift Aid Awareness Day, we’re supporting the Back the Future of Gift Aid campaign and asking Government to modernise the Gift Aid system, so charities have more to help more. #BackTheFutureOfGiftAid #GiftAidAwarenessDay #GiftAid #Donation #Fundraising
Closing soon! Add your signature to our open letter calling for a national plan for neurological conditions in England now. bit.ly/4w5hHAY Thank you to the 8,522 people and counting who've signed already. Together we can be an even louder voice for change.
🎧#InternationalPodcastDay: Hear PSPA CEO James Cusack on The Journal Podcast with Luke Holloway, discussing life with PSP & CBD, diagnosis challenges, and support. Listen: ow.ly/s9VX50ZQ1Ay Questions? Email [email protected] #Podcasts #Spotify
Spaces still available for #Neuro2026! Join us and CurePSP to hear experts share the latest in PSP & CBD research. Book your tickets for 5-6 Nov at Hilton Bankside, London: ow.ly/Htw550ZQ501 #PSP #CBD #ResearchEvent #Conference #MedicalConference #MedicalEvent
@emski1971 So sorry for your loss 💜🤎
Thank you to the amazing health & social care professionals who joined our Regional Awareness event today! Your passion for learning and supporting people with PSP & CBD is inspiring. Huge thanks to our speakers for sharing their expertise—together, we’re making a difference!
A lovely piece of artwork, thank you for sharing and please support Matt's fundraiser if you can! #LondonMarathon #Fundraising #donate
Grateful to Drew, one of our brilliant Creative Teachers @HarrogateColl who has donated this lovely piece of Art to my @PSPAssociation fundraiser! 🖼️ Another £25 secured! Please do consider supporting me. A small charity trying to make an impact! ⬇️ 2027tcslondonmarathon.enthuse.com/pf/matt-webley…
Andrew Lees @ajlees
10K Followers 987 Following Professor of Neurology at UC London Author of Ray Kennedy biography, The Hurricane Port, Mentored by a Madman, Brazil that Never Was and Brainspotting.
Richard Cave 🇺🇦 @speedoftrust27
2K Followers 916 Following Speech and Language Therapist. UCL post-doc GDI Hub Research Fellow, MND Association. RCSLT advisor for voice banking & MND ALS Alliance professional award 2022
Kristophe Diaz, PhD @KristopheDiaz
3K Followers 3K Following I lead @CurePSP as its ED & CSO #neurodegeneration #partnerships - #neurotwitter https://t.co/okt78bSLm8
Kailash Bhatia, @kailashbhatia
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CurePSP @CurePSP
3K Followers 1K Following To raise awareness, build community, improve care and find a cure for PSP, CBD and MSA.
Ed Jabbari @Ed_Jabbari
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Simon Mead @smead2
3K Followers 2K Following Prions dementia climbing running dog walking Dad & husband. National Prion Clinic UCLH. Deputy Director @MRC_Prion @UCL NIHR Senior Investigator
Cambridge FTD @CambridgeFTD
2K Followers 294 Following The Cambridge Centre for Frontotemporal Dementia and Related Disorders led by Professor James Rowe #JamesRowe #dementia #ageing #FTD #PSP #CBD #Aphasia #PET
MSA Trust @MSAtrust
2K Followers 700 Following The UK and Ireland's only charity supporting people affected by Multiple System Atrophy. We rely entirely on voluntary donations and fund research into MSA.
Prof Jane Alty @janealty1
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Parkinson's UK @ParkinsonsUK
71K Followers 6K Following We’re Parkinson’s UK, the charity that’s here to support every Parkinson’s journey. Every step of the way.
Richelle Flanagan �... @RichelleFlan
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Neurological Alliance... @naiireland
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National Organization... @RareDiseases
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Chrystalina Antoniade... @NeuroMetrology
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MND Education @mndeducation
3K Followers 901 Following Supporting Health and Social Care Professionals who provide care and support for people affected by MND. Because every day matters.
The Neurological Alli... @NeuroAlliance
7K Followers 888 Following 100+ organisations working together to make sure everyone affected by neurological conditions can access the support they need, when they need it #BackThe1in6
The AFTD @AFTDHope
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Dervis Salih @DervisSalih1
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Daiga Heisters 💙 @DaigaHeisters
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TAYPSP @TAYPSP
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Mortal Commons @mortalcommons
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Tammy Carpenter @TerryMo66938628
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Collette Arch-bold @archcollette1
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Matt Webley @mrwebleyteach
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Meg Oglesby @OglesbyMegan
204 Followers 847 Following She/her. Trainee Clinical Psychologist in the University of Galway and aspiring Neuropsychologist. 🧠 interested in Neurodegeneration, Stroke and ABI.
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Leviathan @mskorunes
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Dr Sarah Casey @sarah... @sarahjane_casey
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Alex Pope @Popea50
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Emma @mypdnurse
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S T @OAire10
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Lewy Body Dementias P... @LBDPIA
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suissemisse @StephensNi10902
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Hannah Orbell @hannahorbell
137 Followers 695 Following Somewhat obsessed with the 1940s & WW2. Passionate about history. Vintage cycle enthusiast. Digs for victory! Loves wildlife. MA History. March Town Councillor.
Krzysztof @Krzyszt38225790
215 Followers 559 Following
Surrey Safeguarding A... @SurreySAB
529 Followers 589 Following The SSAB - Partnering across Surrey to raise awareness and protect the welfare of vulnerable adults at risk. RTs ≠ endorsements.
Azure Pink @AAAzure
117 Followers 551 Following Children cannot consent, so there’s no such thing as “willing children”.
Jeffrey Huang @jeffreyhuang
763 Followers 1K Following Scientist studying remyelination, neuroinflammation, multiple sclerosis @Georgetown University. Bluesky: https://t.co/vCpX0aPmCC
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Avem @BMAEMDPHD24
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Jessica Haigh @JessicaHaigh_
27 Followers 151 Following Neuropsychology research assistant and cognitive neuroscience PhD student | She/her
Nora Ivy @noraivyx
8K Followers 1K Following // i post porn and porn things// https://t.co/aftVZhp5nQ
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Sultrasoft @SUltrasoft
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Ekene Anakor @EkeneA28
395 Followers 919 Following Interested in neurodegenerative diseases, disease modelling, drug discovery & development. Assistant Professor in Pharmacology @UoB_Pharmacy. RT ≠ Endorsement
冯硕 @FShuo24300
0 Followers 14 Following
MarmiteMel 💋 @Meybsxox
3K Followers 7K Following Vegetarian woman. Love all animals, especially dogs 😍 Free speech, not a snowflake 😒 Speaker of languages. Views expressed are my own thoughts! 💭
artisan @SusanArtisan
122 Followers 372 Following pro eu, hate inequality of any kind, tired of the rich robbing the poor!
S S @SSAMRC2
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AM @americanmerkin
120 Followers 4K Following mal vivant…working on myself to avoid stepping on the devil’s tail and also and more importantly to stop challenging G-d to a slapbox match
Stephen Tindal @tindal_stephen
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FfionOT 💚 (she/her... @FfiontheOT
121 Followers 187 Following Occupational Therapist working inpatient rehab, frailty and community care @BetsiCadwaladr🌟Cymraes 🏴 All views are my own🤟🏼
MDS @movedisorder
17K Followers 313 Following MDS is a professional society of clinicians and other healthcare professionals interested in movement disorders. #movedisorder @MDJ_Journal | @MDCP_Journal
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10K Followers 987 Following Professor of Neurology at UC London Author of Ray Kennedy biography, The Hurricane Port, Mentored by a Madman, Brazil that Never Was and Brainspotting.
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46K Followers 11K Following Every day we support people affected by motor neurone disease. Because with MND, every day matters.
Parkinson's UK Excell... @ParkinsonsEN
4K Followers 341 Following We are the Parkinson's UK Excellence Network, bringing health and care professionals together to transform Parkinson's care. For support: @ParkinsonsUK
Kristophe Diaz, PhD @KristopheDiaz
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Kailash Bhatia, @kailashbhatia
7K Followers 2K Following Professor of Clinical Neurology, Queen Square, UCL; founding editor MDCP; opinions my own
CurePSP @CurePSP
3K Followers 1K Following To raise awareness, build community, improve care and find a cure for PSP, CBD and MSA.
Ed Jabbari @Ed_Jabbari
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Neurology Journal @GreenJournal
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Cambridge FTD @CambridgeFTD
2K Followers 294 Following The Cambridge Centre for Frontotemporal Dementia and Related Disorders led by Professor James Rowe #JamesRowe #dementia #ageing #FTD #PSP #CBD #Aphasia #PET
MSA Trust @MSAtrust
2K Followers 700 Following The UK and Ireland's only charity supporting people affected by Multiple System Atrophy. We rely entirely on voluntary donations and fund research into MSA.
Alzheimer's Research ... @AlzResearchUK
87K Followers 1K Following We are the UK's leading dementia research charity and we won’t stop until everyone is free from the heartbreak of dementia. We stand #ForACure. 🟧
Parkinson's UK @ParkinsonsUK
71K Followers 6K Following We’re Parkinson’s UK, the charity that’s here to support every Parkinson’s journey. Every step of the way.
UCL Brain Sciences @UCLBrainScience
24K Followers 1K Following @UCL Faculty of Brain Sciences is a global leader in research and education into the mind and brain. Follow us also on https://t.co/hegiQyx48p…
Neurological Alliance... @naiireland
3K Followers 784 Following NAI is the national umbrella body representing 40 not for profit organisations working with people with neurological conditions & their families.
National Organization... @RareDiseases
40K Followers 3K Following #NORD has been the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay. On Bluesky at @ https://t.co/D7PIT4k0Py
Chrystalina Antoniade... @NeuroMetrology
2K Followers 2K Following Head of Group. Biomarkers, wearable technology,AI and digital health, eye movements, gait, (Neurology, Parkinsonism)
Adam Smith @BetterResearch
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Jonathan Schott @jmschott
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NCVO @NCVO
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NHS England Workforce... @NHSE_WTE
106K Followers 2K Following NHS England’s workforce, training and education team. Account managed 8:30 – 17:00
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Foreign, Commonwealth... @FCDOGovUK
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GOV.UK @GOVUK
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Dementia Friends @DementiaFriends
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Imperial Department o... @ImperialBrains
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Health and Social Car... @CommonsHealth
29K Followers 1 Following We are a cross-party group of @HouseofCommons MPs. This account is not being monitored. Follow us at @HOCcommitteesUK.
BBC Breaking News @BBCBreaking
50.2M Followers 3 Following Breaking news alerts and updates from the BBC. For news, features, analysis follow @BBCWorld (international) or @BBCNews (UK). Latest sport news @BBCSport.
Science, Innovation a... @CommonsSITC
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Procedure Committee @CommonsProcCom
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