Bluefield Project @BluefieldProj
A non-profit medical research foundation dedicated to finding a treatment or cure for frontotemporal dementia (FTD). bluefieldproject.org San Francisco, CA Joined March 2017-
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The @progranulin_nav provides: 📍 Clinical FTD trial directory 🧬 Free genetic counseling + testing for eligible participants 📚 Resources for families + providers 🔗 progranulinnavigator.org #FTDAwareness #FTDResearch #CureFTD #EndFTD #progranulin
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As #FTDAwarenessWeek comes to a close, we want to say 💜 Thank you 💜 Families • Researchers • Drug developers • Advocates • Stakeholders Your dedication drives therapeutic progress for FTD. #FTDAwareness #FTDResearch #CureFTD #EndFTD #FTDAwarenessWeek
Bluefield Project retweeted
FTD is genetic in about 20% of cases. Yet only 23.3% of people diagnosed and 12.4% of relatives have had genetic testing. Learn why this matters: ftdregistry.org/press/what-reg… #endFTD #WorldFTDAwarenessWeek #FTD #Genetics
Bluefield Project retweeted
FTD impacts more than health. It strains finances. Care partners say the top job effects are retiring early, cutting hours permanently, or cutting them temporarily. Share your experience in this month’s Quick Question: ftdregistry.org/quick-question… #WorldFTDAwarenessWeek #EndFTD
The Neurofilament Surveillance Project (NSP) is: ✔ Sponsored by @BluefieldProj ✔ Funded by 10 companies + 3 foundations ✔ Tracks biomarkers (like NfL) in 𝘎𝘙𝘕, 𝘔𝘈𝘗𝘛, or 𝘊9𝘰𝘳𝘧72 🔗 bluefieldproject.org/neurofilament/… #FTDAwareness #FTDResearch #CureFTD #EndFTD #FTDAwarenessWeek
Bluefield Project retweeted
Excited to share our new paper which studied progranulin variant carriers with task-free fMRI and fluid biomarkers to understand how brain connectivity tracks with disease progression. pubmed.ncbi.nlm.nih.gov/40958169/ @allftd,@BluefieldProj,@UCSFmac
Bluefield Project retweeted
💙 It’s #FTDAwarenessWeek 💙 FTD is often misunderstood — Symptoms usually start with changes in behavior, language, or personality—not memory. We provide access to free genetic counseling, testing & research connections. Join us this week. 👉 progranulinnavigator.org #EndFTD
The Bluefield Project accelerates therapeutic development for FTD by: ✔ Funding research ✔ Building infrastructure ✔ Collaborating across sectors bluefieldproject.org #FTDAwareness #FTDResearch #CureFTD #EndFTD #FTDAwarenessWeek #FTDAwarenessWeek2025
It’s FTD Awareness Week 💜 The most common dementia for people under 60 is still misunderstood. This week: science, community, and hope. #FTDAwareness #FTDResearch #CureFTD #EndFTD #FTDAwarenessWeek
The #2025FTDRoundtable (Sept 15–17) brings together scientists, industry, regulators & advocates to advance #FTD clinical trials. Honored to serve on the Steering Committee with @TheAftd. Learn more 👉 theaftd.org/research-round… @thebluefieldproj #FTDAwareness #cureFTD
Bluefield Project retweeted
🧬 Thinking about genetic testing? Learn about: 📅 Timing for insurance 🛡 Coverage options 📖 GINA protections 👨👩👧 Family history impact 🔗 progranulinnavigator.org/resources/thin… #FTD #GeneticTesting #InsurancePlanning
Bluefield Project retweeted
Join AFTD and Dr. David Irwin for a healthcare professional webinar on August 13 at 4 p.m. EDT. Explore data from the @EndFTDregistry, learn how to identify early symptoms, and review the best practices for diagnostic workup, including neuroimaging and genetic testing. ⚪ CME &…
Bluefield Project retweeted
Now Live: FTD Disorders Registry Researcher Portal Access secure, deidentified data from real-world lived experience of #FTD disorders. Design studies. Estimate recruitment. Accelerate progress. Learn more: ftdregistry.org/for-researcher… #FTDResearch #Neuroscience #EndFTD #AAIC2025
Adam Boxer @UCSFmac kicked off #AAIC25 with new data highlighting the predictive power of CSF TMEM106B levels and the CSF YWHAG:NPTX synaptic protein ratio in #progranulin variant carriers. Samples from foundational @allftd and @GENFI1 natural history studies.
Bluefield Project retweeted
We’re headed to #AAIC2025! Visit @progranulin_nav at Booth #641 to learn how we're supporting FTD families with free genetic testing, counseling & research tools. 📅 July 27–31 | 🏬 Toronto, CA 🤝 Let’s Navigate FTD Together. 🔗 progranulinnavigator.org #FTD #AlzheimersAwareness
Stop by booth #641 at #AAIC25 to meet members of the Bluefield team and learn more about the Progranulin Information Navigator. @progranulin_nav progranulinnavigator.org
Bluefield Project retweeted
Finding participants is a big challenge in FTD disorders research. Without those connections, studies stall. The Registry helps link researchers and research-ready participants to speed discovery. Learn more: ftdregistry.org/press/accelera… #EndFTD #FTDdisorders #research
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