Pattern.org @Pattern_org
Pattern is an initiative of the @RareCancerRF that empowers patients by enabling them to directly donate their cancer tissue/fluid and medical data to research. pattern.org United States Joined January 2019-
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Today a Non-clear cell (Chromophobe) Kidney sample will be delivered to @broadinstitute for #CancerResearch! @RareCancerRF #share
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Pattern.org retweeted
ICYMI: Last night, the US House passed #PCHETA, a bill that would improve access to #PalliativeCare. Thanks to our advocates for sharing their stories and to the House for recognizing the importance of palliative care for brain tumor patients and families. On to the Senate! #btsm
Pattern.org retweeted
The International Brain Tumour Alliance has been building bridges between brain tumour organisations across the world since 2005. Greater collaboration leads to greater knowledge which leads to greater hope. #internationalbraintumourawarenessweek2019 #IBTAWeek #btsm
Pattern.org retweeted
Researchers found that almost a third of adolescent and young adult cancer patients showed cognitive impairment. The largest group of patients in this study had #sarcoma. #AYAcancer #cancerbrain #cancercognitiveimpairment ow.ly/5LOc50wRYPm
Pattern.org retweeted
Thanks to our @CureNETs partnership, we're enabling patients anywhere to donate living tissue for the derivation of neuroendocrine organoids to be shared broadly as a public resource. Watch video to learn more: youtu.be/_FlIMAOkTOM @meyersonlab @RareCancerRF @Pattern_org
This morning another ACC (Adenoid Cystic Carcinoma) tissue donation AND an Angiosarcoma sample were sent to @broadinstitute!! #BeatCancer #CancerResearch @CureASC @accrf_org @RareCancerRF
Visit Pattern.org to see how you can help today! #CancerResearch #share
Great News! Today Pattern.org delivered a Pheochromocytoma/Paraganglioma (PPGL) sample to @broadinstitute @PheoPara
Excited!! Pattern.org delivered another fibrolamellar tissue sample to @Broad today! So proud to be working with @FibroFoundation to create new cancer models!
Pattern.org retweeted
We hear from Dr. Adrian Fairey as he answers “What surgical options do I have for treating a tumour?” in the KC Video Knowledge Library. The library is a depository of hundreds of Q&A videos of #kidneycancer symptoms, diagnosis, and treatment options. bit.ly/2LzzNat
Pattern.org retweeted
ICYMI: Our Q3 quarterly report on new clinical trials that have opened/started or begun recruitment for patients in the U.S. with primary brain tumors (since the last report at the end of Q2) is now out: bit.ly/2VoBaMq
Pattern.org retweeted
The impact of partner support and comfort level in assisting #melanoma survivors with skin self-examination may be perceived differently by melanoma survivors and their partners, according to results of a study published in @oncologynursing bit.ly/2AWE6qn
How Pattern.org works! If you or someone you know has an upcoming surgery visit pattern.org to learn how you can help rare cancer research. #share #CancerResearch
Pattern.org retweeted
The earlier an accurate #hATTR #amyloidosis diagnosis can be determined, the better. #hATTRCompass offers free, confidential genetic testing to patients who have been diagnosed with #hATTR #amyloidosis with polyneuropathy and can be accessed by both patients and their physicians.
Pattern.org retweeted
Registration Open For November Living With #Melanoma Symposiums at Mass General and University of Michigan Health Systems. Agenda and registration info:mailchi.mp/aimatmelanoma/…
Pattern.org retweeted
In all types of cancer, some of the body’s cells begin to divide without stopping and spread into surrounding tissues: cancer.gov/about-cancer/u…
Pattern.org retweeted
THANK YOU to our top DTRF @RunForAnswers fundraisers! Top Team: #TeamRachel; Top Individual: Rachel Sitta; Participation: #UnicornSquad; Top Virtual: Anna Gladstone. Thank you to ALL who fundraised for desmoid tumor research! Your fundraising pages are still accepting donations!
Pattern.org retweeted
It’s breast cancer awareness month, help us accelerate research be spreading awareness of our project in Metastatic Breast Cancer MBCproject.org #mbcproject #CountMeIn
Pattern.org retweeted
THANK YOU to the nearly 600 #raredisease advocates who participated in #RareAcrossAmerica! YOU made the #rarevoice heard around the country this summer & the results show that your stories had a huge impact on Policymakers. See/celebrate your success here: rareadvocates.org/congratulation…
Pattern.org retweeted
Amidst all the pink ribbons and feel good "survivor" stories, women with metastatic breast cancer feel left behind. Read an excerpt of Radical in @TIME to learn why: time.com/5689570/metast… cc @Stickit2Stage4 @GhajarLab @AlanaWelm @stage4kelly @MBCNbuzz @corrie_painter
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