SCETIDE @SCETIDE
Registry of Stem Cell Transplantation for Primary immune deficiencies in Europe scetide.org Necker Hospital, Paris Joined January 2014-
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Last chance to register! 👇 We are starting this afternoon at 15h CEST.
Last chance to register! 👇 We are starting this afternoon at 15h CEST.
New @CEREDIH article! Impact of graft function on #healthstatus & #HealthQualityOfLife in 112 very long-term #survivors who received an #HSCT for #PID #IEI pubmed.ncbi.nlm.nih.gov/37321401/ #PrimaryImmunoDeficiency #RareDiseases @SCETIDE @ESIDsociety @Filiere_MaRIH @APHP @hopital_necker
Allogeneic stem cell transplantation compared to conservative management in adults with inborn errors of immunity ashpublications.org/blood/article-… Fab 🙌🇬🇧 🇫🇷 collab - case matched retrospective study - HSCT significantly reduces PID related events. Longer FU required to show OS benefit.
Immunoglobulins are #EssentialMedicines for patients with primary immunodeficiencies recognised by the @WHO. Collecting plasma is more important than ever to make sure plasma-derived medicines are available for patients in need. #Plasmasaveslives #IPAW2022
Journée DÉFICITS IMMUNITAIRES PRIMITIFS et HÉMOPATHIES INDUITES PAR LES INFECTIONS VIRALES CHRONIQUES de la Société Médicale des Hôpitaux de Paris #SMHP - Gratuite pour les internes - Vendredi 23 septembre 2022
New article😃in #BMT @NaturePortfolio on Curative allogeneic #HSCT following #ReducedToxicityConditioning in #YoungAdults with #PrimaryImmunodeficiency #PID #IEI reporting our experience of @hopital_necker @APHP @InstitutImagine @CEREDIH @SCETIDE @TheEBMT @ESIDsociety #Frontiers
Le projet « Imagine La Suite » a pour but de faciliter l’#insertion socio-professionnelle des jeunes adultes touchés par une #maladie #génétique rare et vivant avec un #handicap. Un grand merci à la Fondation Sycomore pour son implication dans ce projet ! bit.ly/3BUepEO
Looking forward to this discussion on 'Transition Care-Exploring the Journey' starting in 2h! You can still register: ipopi.org/webinar-reg/ @MahlaouiNizar from @laSuite and Dr Dalm from @ErasmusMC will take on this journey and share best practices #PID #AdultCare #AYA
This is a great meeting to attend to if you are interested in #PrimaryImmunoDeficiencies #PID #InbornErrorsImmunity #IEI
This is a great meeting to attend to if you are interested in #PrimaryImmunoDeficiencies #PID #InbornErrorsImmunity #IEI
IPOPI's next Clinical Care Webinar is in 2 weeks and will explore a hot topic - PID and Vaccines. The guest speaker is Prof Cunningham-Rundles from @MountSinaiNYC Register now to guarantee your attendance ipopi.org/ipopi-clinical… See you on Sep 9th at 15:00h UK time!
IPOPI is excited to anounce that the 3rd Asian PID Meeting is taking place online on September 18-19! We will have a medical education day and a patients meeting day to address the region's #PID priorities. If you'd like to register give us a shout!
Pour les patients atteints de déficits immunitaires, lettre d’information du @CEREDIH et @AssociationIris : ceredih.fr/uploads/COVID1… Pour tout autre information : • Ministère de la Santé et des Solidarités solidarites-sante.gouv.fr/soins-et-malad…
🚩#URGENT #Coronavirus : Mise à jour de la note d' #Informations + #recommandations à destination des #soignants @CEREDIH + patients #DIP #DéficitsImmunitairesPrimitifs @AssociationIris 👉frama.link/AJgCqkdf @hopital_necker @APHP @Univ_Paris @InstitutImagine @Filiere_MaRIH
Thank you @petitsprinces for their article on our #Transition #Care #program for #AYA #RareDiseases #ChronicDiseases from #Pediatrics to #AdultCare @LaSuiteNecker @hopital_necker @APHP @piecesjaunes @FondationHPHF @InstitutImagine
La greffe de moelle osseuse peut être un #traitement curatif pour certains patients atteints de #DIP. Plus y aura d'inscrits sur la liste, plus ils ont de chance de trouver un #Donneur compatible ! #Don #déficitimmunitaireprimitif #maladiesrares
La greffe de moelle osseuse peut être un #traitement curatif pour certains patients atteints de #DIP. Plus y aura d'inscrits sur la liste, plus ils ont de chance de trouver un #Donneur compatible ! #Don #déficitimmunitaireprimitif #maladiesrares
Transition from paediatric to adult medical care is a special period of adjustment. Thank you all that help #PID patients and #RareDiseases patients through this fase. @LaSuiteNecker @symesandrew @MahlaouiNizar
IPOPI has issued a statement on the current epidemic of the new #Coronavirus. #primaryimmunodeficiency patients should be cautious by keeping track of developments in their region and reduce exposure and transmission. bit.ly/PID_Coronavirus
IPOPI's 13th IPOPI EU PID Forum was a success and the report is now online! Full details on the Winter e-News article e-news.ipopi.org/ipopi-13th-pid…
@hopital_necker #LaSuite programme gets #PrixGalien2019. Thank you @ipopi_info #eNEWS for your support. Proud to be #Chairperson of your Medical Advisory Panel. Congratulations on your hard work + dedication for #PID patients around the 🌍 e-news.ipopi.org/hospital-necke…
Retrouvez la 📆 journée nationale du centre de référence des #déficits #immunitaires #héréditaires #ceredih 👩🔬le 13/12 à l'Institut Imagine, à Paris. ➡️ Pour vous inscrire : doodle.com/poll/2rzr4q2s8… @CEREDIH @InstitutImagine @hopital_necker
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