STL Ehlers Danlos @STLEDSAwareness
Joined May 2015-
Tweets119
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Followers151
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Following236
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Likes11
STL Ehlers Danlos retweeted
We need help to raise awareness of the reality of living with the Ehlers-Danlos syndromes. We need your stories, experiences, quotes and photos to help us make an impact this May Awareness Month. What do you wish people knew about life with EDS? What is a day with EDS like?
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STL Ehlers Danlos retweeted
@ehlersdanlosuk If people only knew this... #EDS #ehlersdanlossyndrome #chronicpain #acutepain #dailydislocations #suffering #wearenotbelieved
Enjoy the new webinar on pilates with EDS!!! chronicpainpartners.com/webinar/webina… @melisaaallen
Watch from the medical device market reviewed to be pretty accurate... @melisaaallen heartisans.com
STL Ehlers Danlos retweeted
Joint hypermobility syndrome and anxiety disorder: Structural brain correlates — ScienceDirect sciencedirect.com/science/articl…
STL Ehlers Danlos retweeted
Bowel symptoms & autonomic dysfunction "Patients express concern over bowel symptoms labelled ‘irritable bowel’." buff.ly/2tswrOQ
STL Ehlers Danlos retweeted
STL Ehlers Danlos retweeted
Hey #SuperFriends, May is #EDSawareness Month ... please RT
STL Ehlers Danlos retweeted
Why are many patients with EDS always tired? bit.ly/2poYdFj Check out ehlers-danlos.com for more information. #DazzleTogether
STL Ehlers Danlos retweeted
What are the Hypermobile Spectrum Disorders? Check out ehlers-danlos.com for more information! #DazzleTogether
STL Ehlers Danlos retweeted
What is Vascular EDS? It is a life threatening connective tissue disorder #EDSawarenessmonth #vascularEDS vascularEDS.org
STL Ehlers Danlos retweeted
Shaken baby misdiagnosis: Parents made to "feel like monsters" bbc.in/2p42ZZt
STL Ehlers Danlos retweeted
17 Things People With Chronic Illness Mean When They Say 'I'm Tired' bit.ly/2oJgMEd
STL Ehlers Danlos retweeted
We are all beautiful. We are a supportive family here at #arthursplace #arthritis #InvisibleIllness
hEDSErica (Barnacles) @Barnacl3s
104 Followers 204 Following Hypermobile, achy, clumsy, fatigued, brain-foggy, and more. I was FINALLY diagnosed with hEDS after many painful years. #EDS #Hypermobility #chronicpain
Flora_Gal @FloraGal26615
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Emília Rosa | Oficia... @emilia_rosa_29
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47 Followers 109 Following Is it a requirement to put something funny here?
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scott schoeneberg @scottlanta10
2K Followers 4K Following I love the NFL, NHL, MLB, & UFC! I'm a fan of Atlanta Braves, Falcons & Hawks! I also have EDS Vascular Type. please check out my YouTube channel person videos
♿️💪🏼Vanessa... @EBroLifts_
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Yasmine Zebra 🦓♿ @ZebraYasmine
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aka Pilotte @terpkristin
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Barb Roberts ❤(◕�... @izzie_mom
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Jacqueline Nicole @Jacquesun
333 Followers 701 Following Lover. Sagittarius. Advocate. Healer. Beekeeper. Food addict. Ehlers Danlos Syndrome. Cystic Fibrosis. Stem celled. Gluten free forever. Love. ∞ ૐ☮
Heather Ashley @HeatherDAshley
99 Followers 227 Following Author of The Bright Side of Dark: Collected Poems. Hope to spread awareness about Ehlers Danlos, Chiari, Mast Cell, POTS and chronic illness/pain in general.
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