SECURE-Alopecia @SecureAa

A global, secure, online, de-identified Personal Health Identifier-free registry to record all COVID-19+ cases in alopecia patients on immunomodulating therapy securealopecia.covidderm.org Joined April 2020

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Dmitri Wall @DmitriWall

4 years ago

Thank you to everyone who has contributed & all the groups who’ve supported awareness of the registries including @ad_secure @SecureAa @debraireland @HealthySkin4All @ILDSDerm @SecureAa @AlopeciaUK @NAAF_org @eadv @eczemasupport @EczemaOutreach @nationaleczema @IADPO @BHNSociety

NISR Solutions @SkinRegs

4 years ago

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SECURE-Alopecia @SecureAa

4 years ago

We’re still recruiting patients! Delighted for others to participate, join the group & increase what we know! securealopecia.covidderm.org

British Hair and Nail Society @BHNSociety

4 years ago

We’re still recruiting patients! Delighted for others to participate, join the group & increase what we know! securealopecia.covidderm.org

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SECURE-Alopecia @SecureAa

4 years ago

Thank you!

British Hair and Nail Society @BHNSociety

4 years ago

Thank you!

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Dmitri Wall @DmitriWall

5 years ago

Learning from Disease Registries During a Pandemic: Moving Towards an International Federation of Patient Registries. So thrilled to have had the opportunity to write about #patientregistries during #COVID19 with such a wonderful group of co-authors. cidjournal.com/article/S0738-…

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SECURE-Alopecia @SecureAa

5 years ago

There's still time to register cases before we run the analysis - please share and encourage colleagues to do so! #COVID19 #COVIDhair #Alopecia #hairloss #shedding

SECURE-Alopecia @SecureAa

5 years ago

There's still time to register cases before we run the analysis - please share and encourage colleagues to do so! #COVID19 #COVIDhair #Alopecia #hairloss #shedding

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SECURE-AD @ad_secure

5 years ago

Thanks to +500 people with #AtopicDermatitis (#eczema) who completed the SECURE-AD Patient Survey. The graph shows what happened to almost 200 of those who actually had #COVID19. If you have #AtopicDermatitis and had #COVID19, please complete our survey on secure-derm.com/secure-pad/

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SECURE-AD @ad_secure

5 years ago

Very grateful for the physicians reporting to the #AtopicDermatitis and #COVID19 registry. Below our latest results of 241 cases. Visit secure-derm.com to see more. Do you have #AtopicDermatitis and had #COVID19? Ask your doctor to report your case secure-derm.com/secure-ad-phys…

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SECURE-Alopecia @SecureAa

5 years ago

We're about to analyse our data! So, as we unfortunately see new waves of #COVID19 emerge, registering patients secure-derm.com/secure-alopeci… who've had #alopecia/#hairloss before/after COVID diagnosis remains essential! @AlopeciaUK @NAAF_org @BHNSociety @ISHRS @ILDSDerm

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Esther Freeman MD PhD @DrEstherFreeman

5 years ago

Tagging my #covid registry collaborators so they can help spread the word that the Covid Dermatology Registry now captures dermatologic reactions/side effects of the #covidVaccine ! @SuzanneOlbricht @PsoProtect @rheum_covid @ad_secure @SecureAa @MishaRosenbach @juleslipoff

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Dmitri Wall @DmitriWall

5 years ago

Pre-proof of our article is now available #openaccess in #ClinicsinDermatology @NekiMeah @SinclairDerm @irvinederm @SecureAa Shedding light on therapeutics in alopecia and their relevance to #COVID19 cidjournal.com/article/S0738-…

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SECURE-Alopecia @SecureAa

5 years ago

Thanks Alan!

Alan Irvine @irvinederm

5 years ago

Thanks Alan!

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SECURE-Alopecia @SecureAa

5 years ago

Delighted to say that we have now recruited 200 patients. Please keep spreading the word re all #COVID registries such as @ad_secure @PsoProtect @AADskin @rheum_covid as we work together to shed light on the impact of COVID on our patients.

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SECURE-Alopecia @SecureAa

5 years ago

175 patients registered-thank you! Please continue to spread the word & help understand #Covid19 & #alopecia #hairloss secure-derm.com @AlopeciaUK @ISHRS @HealthySkin4All @ILDSDerm @AADskin @NAAF_org @DmitriWall @SinclairDerm @irvinederm @Lidia_Rudnicka @TostiAntonella

SECURE-Alopecia @SecureAa

5 years ago

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SECURE-Alopecia @SecureAa

5 years ago

2 weeks ago SECURE-Alopecia (sister 2 @ad_secure) recorded >100 #COVID19 patients with/developed #alopecia/#hairloss but now 151! Thank you & please continue to spread the word! securealopecia.covidderm.org/login/?next=/i… @ISHRS @AlopeciaUK @NAAF_org @ahrsorg @SinclairDerm @NekiMeah @irvinederm

SECURE-Alopecia @SecureAa

5 years ago

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SECURE-AD @ad_secure

5 years ago

Prof Phyllis Spuls, dermatologist/study lead SECURE-AD, draws your attention to her upcoming talk about the “Use of Biologics and Immunosuppressive Drugs during the COVID-19 Pandemic” at the @eadv congress. If you have eczema and had #COVID19 please visit secure-derm.com.

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Dmitri Wall @DmitriWall

5 years ago

Great work by our @PsoProtect friends. Real-world #patientregistry data is always vital, but particularly during #COVID19. Please support psoprotect.org @ad_secure @SecureAa secure-derm.com aad.org/member/practic… hscovid.ucsf.edu/global-hidrade…

International Psoriasis Council @IpcPs

5 years ago

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SECURE-Alopecia @SecureAa

5 years ago

Just posted a photo instagram.com/p/CGvkMoZHhOS/…

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Dmitri Wall @DmitriWall

5 years ago

Very sorry to hear how #COVID19 has affected you. Hope you are improving A global group of dermatologists @SecureAa are studying this. Those with COVID who had or develop hair loss can ask their doc to anonymously register their case secure-derm.com/secure-alopeci… Grateful 4 awareness

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SECURE-Alopecia @SecureAa

5 years ago

SECURE-Alopecia (sister to @ad_secure) has recorded 111 #COVID19 cases in patients with/developed #alopecia Please have your doctor anonymously record if you had #hairloss & COVID securealopecia.covidderm.org/login/?next=/i… @ISHRS @AlopeciaUK @NAAF_org @ahrsorg @SinclairDerm @NekiMeah @irvinederm

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SECURE-Alopecia @SecureAa

5 years ago

#covid19 can result in hair shedding, often about 8 weeks post COVID. We’d like to understand more about this, so if this, or any hairloss has affected you before or after COVID, please ask your physician to register your case..it’s simple & quick! Secure-derm.com