FSR @StopSarcoidosis
The Foundation for Sarcoidosis Research (FSR) is the leading international organization dedicated to finding a cure for sarcoidosis and improving care. stopsarcoidosis.org Chicago, IL Joined June 2011-
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#PostInPurple #SaySarcoidosis #AvsolaDay #SarcoidosisAwareness2024 #SarcWarrior💜💪🏾 @StopSarcoidosis
#PostInPurple #SaySarcoidosis #AvsolaDay #SarcoidosisAwareness2024 #SarcWarrior💜💪🏾 @StopSarcoidosis https://t.co/xXOnKbPVwZ
Did you know? Clinical trials pave the way for breakthroughs in treatment, but lack of diversity can limit their impact. Learn more about why diversity matters and how you can make a difference here: loom.ly/l6DtLSQ
As Sarcoidosis Awareness Month comes to an end, we extend our heartfelt thanks to everyone who joined us in raising awareness, sharing stories, and supporting the cause. Saying 'sarcoidosis' and posting in purple is a meaningful act, no matter the season.
Exciting News! Roivant and Kinevant Sciences have completed enrollment in the RESOLVE-Lung study. Stay tuned for topline results by year-end! #SarcoidosisResearch #RESOLVELungStudy Link to full article: loom.ly/oOdSoI8
💜Memorial Monday 2024 💜 Let us remember those that made a lasting impression on our lives and who will be forever in our hearts. Click here to pay tribute to and watch the 2024 Memorial Monday presentation. loom.ly/A_baCIk
FOR CLINICIANS ONLY: FSR-GSCA is pleased to announce its next FSR-GCA Sarcoidosis Journal Club CME, on May 15, 2024, at 4:00 - 5:00pm CST. loom.ly/wFCWsSE
Joining us on Episode 112 of the FSR Sarc Fighter Podcast is Sanjay Shukla, CEO of aTyr Pharma. Sanjay returns to the podcast with a promising update on Efzofitimod. Listen Now: stopsarcoidosis.org/sarc-fighter-p…
Join all of us at FSR for our final Sarcoidosis Awareness Month Weekend Match – help us raise awareness and $3,000 to fund more research and patient support initiatives! Click here to make a difference and donate $1, $5, or $10 today! loom.ly/bw8Pt8o
Join us for a special webinar: Saying Sarcoidosis with Policy Advocacy 🗓️ 4/30/24 | 5:00 – 6:00 PM CDT 🔗 Register: loom.ly/gMZVZ98
Join us in our mission to conquer sarcoidosis. Together, we can turn hope into action and make a lasting difference in the lives of millions. To learn more about volunteer opportunities or to get involved, please visit our website stopsarcoidosis.org/volunteer
Primary care providers: Earn CME credit through this @PriMedCME podcast presented with @StopSarcoidosis on what to know about sarcoidosis in the lungs. Speakers include @NHLBI_Translate & @YaleMed's Dr. Mridu Gulati. Listen here: bit.ly/45MSgHu
🔍Cardiac sarcoidosis (CS) poses unique challenges in diagnosis and treatment. While it's diagnosed in 2-5% of systemic sarcoidosis cases, postmortem studies reveal a higher incidence, up to 20-30% in the US. Learn more about Cardiac Sarcoidosis: loom.ly/hpq0iQA
In honor of Volunteer Appreciation Week, we want to take a moment to shine a spotlight on the heartbeat of our organization: our amazing volunteers! loom.ly/FSsQZk8
Join us this week on 4/25 from 5pm-6pm CT for an educational webinar on Using Your Voice with Clinicians and Research! Discover the essentials of sarcoidosis clinical trials and the crucial role of diversity in shaping research outcomes. Sign up now: bit.ly/fsrwebinar_cli…
What It’s Like to Have a Rare Disease Like Sarcoidosis goodrx.com/conditions/sar… via @GoodRx
Sarcoidosis Awareness Month is all about education and awareness. Let's continue to inform others about sarcoidosis and its impact on individuals and communities. Learn More: loom.ly/r7GKGPQ #SarcoidosisAwareness #Day23 #SaySarcoidosis #StopSarcoidosis #PostinPurple
Today, as we continue to raise awareness for sarcoidosis, let's also take a moment to celebrate Earth Day. Just like our commitment to improving health and well-being, caring for our planet is vital for a sustainable future. loom.ly/r7GKGPQ
FOR CLINICIANS ONLY: FSR-GSCA is pleased to announce its next FSR-GCA Sarcoidosis Journal Club CME, on May 15, 2024, at 4:00 - 5:00pm CST. loom.ly/wFCWsSE
Caring Hands Sarcoid @Sarcoid_Network
3K Followers 3K Following 501c3 nonprofit that connects, empowers and mobilizes the Sarcoidosis community.Naftali Kaminski @KaminskiMed
13K Followers 2K Following First Generation Physician-Scientist, & many other things. This account is Private - opinions and tweets do not represent any of the organizations I work with.SarcoidosisUK @SarcoidosisUK
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3K Followers 917 Following #HeartTransplant #LVAD #NuclearCardiology #amyloidosis #sarcoidosis | @SaintLukesKC @MidAmericaHeart | Former fellow @ClevelandClinic | #HoyaSaxa @GeorgetownFrank R. @SarcoidosisofLI
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14K Followers 222 Following Official account of the National Institute of Arthritis and Musculoskeletal and Skin Diseases, @NIH. Privacy: https://t.co/eMXWoHwCJc Engagement ≠ endorsementSarcoidosis_papers @sarcoid_papers
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76 Followers 34 Following Pulmonary/Critical Care physician at Northwestern University; Director of the FSR-WASOG Sarcoidosis Center of Excellence at Northwestern MedicineDr. Raj Dasgupta @DoctorRajD
5K Followers 4K Following 📚Associate Professor Pulmonary, Critical Care & Sleep MD 📺 Expert Host @chasingthecure SoCal’s Hometown MD, Podcast Host, Huntington Memorial HospitalMarsha Henderson @BREATHEAIR4ME
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13K Followers 2K Following Find us at @CorewellHealth for the latest news and updates.Thank you to John Carlin and @StopSarcoidosis for hosting us on Episode 112 of the Sarc Fighter podcast! During #SarcoidosisAwarenessMonth, tune in at loom.ly/mNOLoio to learn more about what aTyr is doing to help #pulmonarysarcoidosis patients. #efzofitimod #efzofit
Joining us on Episode 112 of the FSR Sarc Fighter Podcast is Sanjay Shukla, CEO of aTyr Pharma. Sanjay returns to the podcast with a promising update on Efzofitimod. Listen Now: stopsarcoidosis.org/sarc-fighter-p…
#PostInPurple #SaySarcoidosis #AvsolaDay #SarcoidosisAwareness2024 #SarcWarrior💜💪🏾 @StopSarcoidosis
On Day 21 of Sarcoidosis Awareness Month, let's empower the community by sharing resources, offering support, and fostering connections. Find Resources: stopsarcoidosis.org #SarcoidosisAwareness #Day21 #SaySarcoidosis #StopSarcoidosis #PostinPurple
Thank YOU to all my friends who donated and said aloud SAR-COY-DOE-SIS 💜💜💜#SaySarcoidosis
As Sarcoidosis Awareness Month comes to an end, we extend our heartfelt thanks to everyone who joined us in raising awareness, sharing stories, and supporting the cause. Saying 'sarcoidosis' and posting in purple is a meaningful act, no matter the season.
aTyr is proud to support some of the many organizations dedicated to improving the lives of those living with #sarcoidosis. Learn more at atyrpharma.com and efzofit.com. #efzofitimod #efzofit #sarcoidosisAwarenessMonth
🔑 In the U.S., systemic sarcoidosis has a prevalence of 35.2 cases per 100K population w/ higher incidence & prevalence in Black Americans Read key points from an AHA scientific statement on the diagnosis & management of cardiac sarcoidosis: bit.ly/4476inj #sarcoidosis
April is #SarcoidosisAwarenessMonth. #Sarcoidosis can lead to #PH when weakened lungs ultimately cause failure of the right side of the heart. Learn more about the link between PH and sarcoidosis in our free brochure. ow.ly/UoKK50RflcV @StopSarcoidosis #MakeItVisible
I hate this fk’n disease almost as much as MS, sometimes more. I am one of the rare people with both, MS, and Sarcoidosis. Oh yea, can’t forget Rheumatoid Arthritis. I would say getting old is hard and it is, but I’ve had these since I was a kid.
Did you know that while sarcoidosis most commonly affects the lungs, it can also impact other organs such as the skin, eyes, heart, and nervous system? It's a multi-organ disease that requires comprehensive management. #Sarcoidosis #SaySarcoidosis #StopSarcoidosis #PostinPurple
Sarcoidosis (SAR-coy-DOE-sis) is a systemic inflammatory disease that can affect any part of the body, but most often the lungs. In about half of those diagnosed with sarcoidosis, the inflammation stops on its own. For others, the disease has long-term effects. @StopSarcoidosis
Join us @edwardmillermd and Dr. Mridu Gulati from the Yale Sarcoidosis Center of Excellence on the next FSR @StopSarcoidosis Journal Club on immunosuppression for active cardiac sarcoidosis. @YaleCardiology @YaleIMed @YalePCCSM
FOR CLINICIANS ONLY: FSR-GSCA is pleased to announce its next FSR-GCA Sarcoidosis Journal Club CME, on May 15, 2024, at 4:00 - 5:00pm CST. loom.ly/wFCWsSE
I’m a walk/runner with #Sarcoidosis @saysarcoidosis @StopSarcoidosis in the 5k at the @downtowncalgary Join me in the #Run for #Reforestation Challenge with @onetreeplanted in the ASICS @Runkeeper app to help plant 75,000 trees! #TrainWithRunkeeper #yyc
Research is hope. Every study on #Sarcoidosis brings us closer to understanding and better treatments. Support research efforts @NIH_nhlbi @NIH @StopSarcoidosis . 🔬💡 #HopeForACure #SarcoidosisMonth #SarcoidosisGrants
We are delighted to join this campaign to raise awareness for #Sarcoidosis (pronounced SAR-coy-DOH-sis) from St.Bartholomew's Hospital (London, UK) @BartsHospital @NHSBartsHealth Will you join us and #SaySarcoidosis too? #SarcoidosisAwareness @StopSarcoidosis @SarcoidosisUK
Not currently back to streaming but I will be raising money to help @StopSarcoidosis all month long! Even if you can't donate, please share this post to help spread awareness! #ForCharity #BleedPurple #SaySarcoidosis #CMDnest #CharityCrew
💜 It's Sarcoidosis awareness month & I am raising money to help @StopSarcoidosis all month long! Please donate, wear purple, or help spread the word by sharing this post! This year marks year 3 💜 instagram.com/linking/fundra… #CMDnest #CNCC #ForCharity #BleedPurple #SaySarcoidosis
And a paper highlighting our experience @TempleLung treating patients with #sarcoidosis and #pulmonaryhypertension - doi.org/10.1002/pul2.1…; these are just a few! #sarcoidosisawarenessmonth @saysarcoidosis @StopSarcoidosis
#SarcoidosisAwarenessMonth #purplepower believe in ourselves despite the stumbling blocks in our way.Focus on the positive aspects.Appreciate what you have and don’t be afraid to ask for help @BrenDee85 @SarcoidosisofLI @chastasfight @StopSarcoidosis @Sarcoid_Network @duffynyc
April is Sarcoidosis awareness month and here’s our fellows at @ukypccm saying SARCOIDOSIS @mwsharp5 @GautamSikka @StopSarcoidosis @UK_HealthCare @DarwinConwell
All around the world someone’s struggling with #Sarcoidosis Hope still lingers Let’s keep the beat kickin #WorldSarcoidosisDay is Today🌍 @BrenDee85 @SarcoidosisofLI @buttahflyk @StopSarcoidosis @Stingrizay @SarcoidosisUK @Sarcoid_Network @chastasfight @JerseyNana @TippingEd
@Pulipati_ @VUMC_heart @StopSarcoidosis Say sarcoidosis! April is sarcoidosis awareness month...very grateful to be able to speak about cardiac sarcoid today at SOTA24!