Vision Health Advocacy Coalition @VisionAdvocacy
VHAC promotes patient-centered policies that make services, devices and life-changing treatment more accessible for people with vision conditions. visionhealthadvocacy.org Joined January 2020-
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Did you know? Up to 50% of those with Graves' Disease develop #TED.
This month, VHAC is observing Sjögren's Awareness Month. Patients afflicted with Sjögren's often develop other conditions.
Thyroid eye disease has a variety of signs and symptoms. Learn more about the #TED patient experience: bit.ly/3PvDw9w
Patients may experience worsening symptoms, disease progression and vision loss while they wait for a diagnosis. Learn more: bit.ly/3GAx7oE
Thank you to everyone who attended this evening’s Thyroid Eye Disease Patient & Caregiver Event in Atlanta, GA! Visit visionhealthadvocacy.org to stay updated on events and news!
Ophthalmologist and oculoplastic surgeon Dr. Hwang continues this evening’s event with an educational presentation on what #thyroideyedisease is and the impact on patients.
#Thyroideyedisease, often referred to as TED, is a rare autoimmune condition that causes the immune system to mistakenly attack tissue around the eye. Andrea shared her story about living with the condition with tonight’s audience!
This evening’s program began with @VisionAdvocacy welcoming participants and discussing the importance of awareness and education in thyroid eye disease. Visit visionhealthadvocacy.org to learn more!
STARTING SOON: We look forward to our discussion on #thyroideyedisease with ophthalmologist and oculoplastic surgeon Dr. Hwang and patient, Andrea, today in Atlanta, GA!
Many people spend hours a day staring at a digital screen. Do you experience digital eye strain?
Living with or caring for someone with #TED? Join VHAC on April 22 in Atlanta for a free discussion on living with and managing the disease. Register now: bit.ly/3Pasary
More than 2.2 billion people are living with a vision condition. Treatments can help alleviate symptoms, but utilization management tactics can sometimes block patients' access. Read more: bit.ly/47prTrx
Innovative treatments provide hope for patients who have rare vision conditions. Learn more: bit.ly/3uBODXg
#DYK more than half of people with vision impairment are women? #WomensEyeHealthMonth
April is National Minority Health Month! The Children’s Vision Equity Alliance (CVEA) of @PBA_savingsight advances equity in children’s vision and eye health through education, access to care, policies, and partnerships. For more information, visit: nationalcenter.preventblindness.org/childrens-visi…
Join @VisionAdvocacy for our #ThyroidEyeDisease Patient and Caregiver Event in Atlanta! Register here: bit.ly/3Pasary
.@SjogrensOrg is dedicated to creating a community to raise awareness about the complexities of Sjögren’s. Learn more during Sjögren’s Awareness Month. bit.ly/4asUFJJ
Yesterday was an exciting day! Thank you @PBA_savingsight for protecting our eyes during the eclipse! #Eclipse2024
Happy Total Solar Eclipse day! Visit our website to find detailed viewing information and safety tips. Be sure to tag us in photos with your eclipse viewing glasses to be featured on our Instagram story! preventblindness.org/solar-eclipse-… #totalsolareclipse2024 #solareclipse2024
April is Women's Eye Health and Safety Month! Did you know? Women have a higher prevalence of dry eye than men. Talk to your doctor about treatment options. For more information, visit: PreventBlindness.org/dry-eye.
Bhakti Panchal @BhaktiPanchal_
29 Followers 71 Following MS3 @UMmedschool 🩺 Aspiring Ophthalmologist 👁 passionate about healthy policy, advocacy, and medical education✨ @eyeteaofficial writer
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1/2 Únase a @VisionAdvocacy el 30 de marzo para una discusión gratuita sobre cómo vivir y controlar la enfermedad ocular tiroidea. Únase en persona en Miami o virtualmente. Para más información y para registrarse visita la pagina de web aquí: visionhealthadvocacy.org/events/
2/2 Join @VisionAdvocacy on March 30 for a free Spanish language discussion on living with and managing thyroid eye disease. Join in-person in Miami or virtually. Learn more and register here: visionhealthadvocacy.org/events/
It's #WorldOptometryDay! @PBA_savingsight thanks optometrists across the globe who work to keep our eyes safe and healthy. #optometry
@VisionAdvocacy Hi - do you have some sample social media posts in both English & Spanish for your upcoming virtual+in person event in Miami? This will be a great resource for the patient community!
DYK? When #priorauthorization is denied, patients and providers have a right to appeal the insurer’s decision. Find out how to file an insurance complaint in your state in @VisionAdvocacy’s new toolkit: bit.ly/3Tok5Q5
The Institute for Patient Access launched a new blog site: Health Policy Today. Explore the new site and get the stories that shape patient-centered care at healthpolicytoday.org.
Today is #WorldSightDay. How much do you know about macular degeneration? Learn about it in a video from @VisionAdvocacy: bit.ly/3r0kg6b
.@RepMMM emphasizes the importance of access to broadband in rural communities. She notes that physicians are "the voice for so many people,” and encourages them to reach out to their representatives to advocate for access. #TelehealthSummit21
Getting Telehealth Policy Right: A National Summit is streaming live now. Watch here: summit.telehealthadvocates.org #TelehealthSummit21
Thanks for helping us spread the word about #IEDWeek, @VisionAdvocacy!
Learn about the different types of inflammatory eye disease from @PBA_savingsight during Inflammatory Eye Disease Awareness Week: bit.ly/3kJtnHl #IEDWeek #EyeDiseaseAwarenessWeek
This is not a GDATF event, but Dr. Chang presented at our seminar in Seattle in 2019 (remember in-person events???) and gave an excellent talk!
VHAC and @patientaccess will host a webinar on living with and managing thyroid eye disease on September 22. Learn more and register here: visionhealthadvocacy.org/webinar/
AfPA is celebrating 15 years! Thank you to all who have joined us in advocating for patient-centered care. Take a look at our milestones in a new infographic: bit.ly/3xKqeeR And, keep an eye out for #TBT posts throughout the year. #AfPA15
Isabel 28 (diagnosed at 20) My most difficult Sjögren’s symptoms are dry eyes, dry mouth, joint pain, fatigue, brain fog and peripheral neuropathy. I won't let this disease stop me from achieving my personal and professional goals. #ThisIsSjögrens sjogrens.org/blog/2021/sjog…
Cyndi 52 (diagnosed at 43) Since I was diagnosed with Sjögren’s, I have learned to find my voice. I want to encourage all patients to find their voice. It took me years to find mine. Don’t try to hide your disease – once you own it, you gain all of your power back #ThisIsSjögrens
If you missed last night's webinar from @VisionAdvocacy and @PBA_savingsight / @EyesOnCapHill regarding the Thyroid Eye Disease drug shortage, you can view it anytime at: youtube.com/watch?v=5F8A9q…
Join VHAC and @PBA_savingsight tonight at 8pm ET to learn about the drug shortage of the only FDA-approved medication for thyroid eye disease. Register here: bit.ly/3pGm0k1
There is still time to register for tomorrow's free patient listening webinar for those experiencing a thyroid eye disease drug shortage! Register today at: us02web.zoom.us/.../reg.../WN_…
Are you having trouble accessing your thyroid eye disease medication due to the drug shortage? Join @VisionAdvocacy & @PBA_savingsight on February 10 at 8PM ET to learn about the shortage of the only FDA-approved medication for thyroid eye disease: bit.ly/39PpPOq
Are you having trouble accessing your thyroid eye disease #TED medication due to the drug shortage? Join @VisionAdvocacy & @PBA_savingsight on February 10 at 8PM ET to learn about the shortage of the only FDA-approved medication for TED: bit.ly/39PpPOq @LADAOrg
Some thyroid eye disease (TED) patients are experiencing a drug shortage due to Operation Warp Speed. On 2/10, at 8 p.m. ET, @PBA_savingsight and @VisionAdvocacy will host a patient webinar for those experiencing a TED drug shortage. Register at: us02web.zoom.us/webinar/regist…
With the nation’s attention riveted on the distribution of COVID-19 vaccines, drugs that allow patients to deal with other serious medical conditions are falling by the wayside. But it doesn’t need to be that way. bit.ly/39tMIGQ
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