HelpYusufSMA @YusufHelp
Joined July 2025-
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⏳ Time is running out! My baby Yusuf (11 months) is battling SMA Type 1 💔 Only your support can save his life. Please donate & share 🙏 Donate here :- impactguru.com/fundraiser/hel… #SaveYusuf #Donate #SMA @curesmaindia @therantinggola @iamsrk @akshaykumar @SrBachchan @CMOMaharashtra
SMArt Warrior Ruvanthika's inspiring speech at SMArt Con 2025 highlights the importance of treatment, therapy & support in managing #SMA. Her positivity & prayer for others' well-being touched everyone's heart 💜✨ #SMAWarrior #SMArtCon2025 #HopeForSMA
🌸 Meet Devansh, a 21-month-old SMA warrior! 💜 With therapy, treatment & love, he's becoming stronger each day. Let's raise awareness & work towards a future where no child's potential is limited by SMA! 🌍💜 #SMAAwarenessMonth #CureSMAIndia #StrongerWithSMA
✨ Dylan's Story ✨ 9-yr-old Dylan's treatment halted due to funding issues. SMA meds are life-changing but unaffordable. No child should lose strength due to cost. Sustainable access is key! 🌸💜 #CureSMAIndia #SMAAwareness #AccessToMedicines #HopeForSMA
Meet Diya,a 4-yr-old SMA warrior thriving thanks to breakthrough treatments & daily physiotherapy!Physiotherapy builds strength, improves movement & gains independence. Let's celebrate Diya's progress & raise awareness! 🌈💕 #SMAWarrior #PhysiotherapyMatters #CureSMA #SMAwareness
🙏This Ganesh Chaturthi, please be my baby’s Vighnaharta and help remove the biggest obstacle of his life SMA Type 1.💔 Celebrate this Ganesh Chaturthi by saving a baby’s life. Please donate & RT. 🔗 impactguru.com/fundraiser/hel… #SaveYusuf #GaneshChaturthi #SMA @SrBachchan @SonuSood
✨ Meet Revati, a brave SMA warrior from Pune! 💜 She's sharing her journey to raise awareness about SMA & inspire hope. Her story shows that access to treatment & research can change lives! 🌸 #SMAAwareness #CureSMA #SMAWarrior #HopeForSMA
Urgency & Hope ⏳ Time is running out for Yusuf. SMA Type 1 worsens every single day. We are desperately seeking help to fund his treatment. Please join us in this fight for his life 🙏 Donate here: impactguru.com/fundraiser/hel… #SaveYusuf #DonateForYusuf @therantinggola @dhruv_rathee
Baby Yusuf deserves a chance to live, smile & grow like every child. But SMA Type 1 is stealing his childhood. Your support can give him life. Please donate & share 💙 👉 impactguru.com/fundraiser/hel… #SMAAwareness #SaveYusuf #zolgensma @BeingSalmanKhan @iamsrk @SonuSood @IrfanPathan
✨ Irfan's scoliosis surgery journey is a testament to courage & resilience! 💙 From struggling with simple tasks to enjoying everyday moments, his story inspires hope & reminds us that every experience matters. 🙌 #SMAAwareness #LifeWithSMA #HopeStrengthLove
💜 Meet Layam, a brave little boy living with #SMA Type 2. His story reminds us that life with SMA is about resilience, love, and hope. Let's spread knowledge, compassion, and strength together! #SMAAwareness #CureSMA #HopeForSMA
Heartfelt thanks to @ficci_india @NITIAayog & @CDSCO_INDIA_INF for including Ms Alpana Sharma, Co-Founder of Cure SMA Foundation of India. Grateful for the opportunity to share patient voices & work towards a better future for SMA families 🙏 #SMAIndia #PatientCentricity
Heartfelt thanks to @ficci_india @NITIAayog & @CDSCO_INDIA_INF for including Ms Alpana Sharma, Co-Founder of Cure SMA Foundation of India. Grateful for the opportunity to share patient voices & work towards a better future for SMA families 🙏 #SMAIndia #PatientCentricity
"Collaboration is key—internal and external stakeholders must unite. Grassroots awareness among practitioners, doctors, pediatricians, and the public is essential to drive rare disease progress." – Ms. Alpana Sharma, Co-founder & Trustee, Cure SMA
Session 1 explores the transformative potential of advanced therapies to strengthen India’s rare diseases ecosystem and improve patient outcomes. Focus on integrating these into public healthcare under the NPRD
Welcoming Our Esteemed Panelists ✨ The National Conference on Making Rare Care Possible, by FICCI with NITI Aayog and IMPF, is honored to host our Esteemed Panelists whose valuable insights will play a pivotal role in shaping impactful discussions on rare care in India.
Meet Rudraunsh, a cheerful SMA warrior! 🌟 His parents are crowdfunding for Zolgensma, a life-changing treatment. Let's spread awareness & support this amazing family! 💕 #SMAAwareness #CrowdfundingForLife #SMAWarrior
SMA awareness saves lives! 💜 3 life-changing treatments exist: Zolgensma, Risdiplam & Spinraza. Crowdfunding spreads awareness, builds solidarity & gives SMA kids hope. 🌸 Together, let's turn awareness into action! ✨ #SMAAwareness #CureSMA #HopeForSMA
Huge thanks to @ficci_india & @NITIAayog for amplifying patient voices in crucial healthcare discussions! Your efforts towards inclusive policymaking are truly appreciated. #PatientCentricity #HealthcareInIndia
Huge thanks to @ficci_india & @NITIAayog for amplifying patient voices in crucial healthcare discussions! Your efforts towards inclusive policymaking are truly appreciated. #PatientCentricity #HealthcareInIndia
Meet Amanya, 10, who is thriving with #SMA thanks to patient support & #Spinraza treatment! 💜 Her story shows how community & guidance can turn fear into hope. ✨ #SMAAwareness #PatientSupport #SMAWarrior #CureSMAIndia @Maharashtr67917
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sherry aka elisa. @sherlisass
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