Francesco Sparano @_Fra_Spa
Patient-reported outcomes researcher. Health Outcomes Research Unit @FGIMEMA orcid.org/0000-0002-1358… Roma, Lazio Joined February 2017-
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Check out all of this year's #MajorPROsASH, the top 20 best patient-reported outcomes & quality of life abstracts from #ASH24. 🧵 #ASHEducation #ASHKudos cc @ASH_hematology
Health-Related Quality of Life and Financial Burden in Ethiopian Patients with Chronic Myeloid #Leukemia Receiving Tyrosine Kinase Inhibitors: A Cross-Sectional Study. brnw.ch/21wOXga @FGIMEMA #QoL
Led by med student Darshi Shah and in collaboration with Fabio Efficace @FGIMEMA, we present the most comprehensive landscape of PROs in #MultipleMyeloma RCTs at #EHA24! ▪️ PRO domain most sensitive to change: GHS/QoL ▪️ Most common experimental arms associated with improved…
On behalf of @ic_MDS, & under leadership of Dr Fabio Efficace, we have published a position statement emphasizing importance of measuring Patient reported outcomes #PROs in #MDSsm clinical trials with detailed practical considerations @Hemasphere_EHA onlinelibrary.wiley.com/doi/full/10.10…
📺 Oggi alle 11:40 e 21:40 su Rainews24 andrà in onda l'intervista realizzata dal programma Basta la Salute, in cui il presidente della fondazione GIMEMA, Marco Vignetti, parlerà del tema della tossicità finanziaria. Anche in diretta streaming su buff.ly/2Ux1gPC.
#risutatiGIMEMA Uno studio appena pubblicato sulla rivista JCO - Oncology practice, coordinato dai ricercatori GIMEMA, indica che il problema della “tossicità finanziaria” riguarda anche i malati emato-oncologici che vivono in Italia. CLICCA SULLA FOTO ⤵️ buff.ly/3tUdRzW
We recently published the Danish data set for the EORTC QLU-C10D 🙂 Our data can be used to conduct health economic analysis based on QLQ-C30 data. Also, the data give interesting info on how important different domains if QOL are rated by the general population📉⬇️
We recently published the Danish data set for the EORTC QLU-C10D 🙂 Our data can be used to conduct health economic analysis based on QLQ-C30 data. Also, the data give interesting info on how important different domains if QOL are rated by the general population📉⬇️
Happy #ASH23! Announcing this year's #MajorPROsASH, the top 20 patient-reported outcomes & quality of life abstracts at the 2023 @ASH_hematology Annual Meeting. We even got our own PRO oral session this year! Follow along in this thread. 🧵#MajorPROs
Recent publication from Brundage et al and our team - turns out when cancer pts are educated as to what PFS means, “treatments that impact negatively on quality of life were not preferred by most patients for PFS gains alone” academic.oup.com/jnci/advance-a… @csoncol
📅Upcoming poster presentation at #EHA2023 by Prof. Fabio Efficace on "Long-term comorbidity and health problems in acute myeloid leukemia (AML) survivors: An international AML survivorship study" Read more in the abstract 👇 library.ehaweb.org/eha/2023/eha20… @FGIMEMA #QualityofLife
📅Upcoming poster presentation at #EHA2023 by Prof. Fabio Efficace on "Long-term comorbidity and health problems in acute myeloid leukemia (AML) survivors: An international AML survivorship study" Read more in the abstract 👇 library.ehaweb.org/eha/2023/eha20… @FGIMEMA #QualityofLife
Proud of this publication, the first original article in the new @bmj_company Oncology journal. @LauraMarandino @EleonoraGhisoni @marialuciareale @paslombardi @JamesAimar @valedoc87 @chiaramallow @fabioturco92 @R_DiLiello @fperrone62 Tweetorial (1/6) bmjoncology.bmj.com/content/2/1/e0…
Las terapias celulares han salvado a pacientes con tumores de la sangre que deberían haberlos matado hace años. Este tratamiento basado en un autotrasplante de células inmunes parecía ciencia ficción hace 10 años, pero hoy se usa en la clínica elpais.com/ciencia/2023-0…
Missing the🎯 For 627 #AI clinical trials, a systematic review (1997-2022) shows that only 24% used patient-reported outcome measures thelancet.com/journals/landi… @LancetDigitalH @Denniston_Ophth @drmelcalvert and colleagues
Esiste un doppio legame tra la crisi climatica e la fragilità degli Stati a rischio: gli effetti dei cambiamenti climatici peggiorano i conflitti e a loro volta sono amplificati dalle crisi. Eppure sono proprio i Paesi a rischio a ricevere minori risorse altreconomia.it/gli-ostacoli-a…
Ci sono poche cose affascinanti come l'Antartide e avventurose come andarci. Poche persone possono farlo ma alcune sono scienziati italiani e possiamo farci dire da loro com'è: a me l'ha raccontato Alessia Nicosia, fisica dell'atmosfera del CNR ilpost.it/2023/01/19/ant…
La riduzione delle precipitazioni nevose rende lo sci da discesa uno sport senza futuro, ma gli aiuti pubblici a chi gestisce gli impianti di risalita e l’innevamento artificiale non si fermano. Un “accanimento terapeutico”. Di @lmartinelli80 altreconomia.it/la-crisi-clima…
Dipsurd @Dipsurdj131
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Robert Z. Orlowski @Myeloma_Doc
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Anna Laura Dilauro @dilauro_anna
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Rhett @miyashiget53041
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Susanna .Abbott @BThompson96529
12 Followers 713 Following ¡Buscamos trabajadores a tiempo parcial! Horario flexible, paga diaria de 100€ a 400€. ¡Trabajo desde casa!🇪🇸👩🔧👨🔧 whatsapp：https://t.co/yw2zfobSJK
Robin @robin_mccurry98
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Micha Pilz @MJPilz
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Giacomo Massa @GMassaMD
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EUonQol @EUonQol_
94 Followers 52 Following European #Oncology Quality of Life (EUonQoL) #research project funded by the #European Union (Grant N.101096362) to develop, pilot and validate a #EUonQoL-Kit.
SYNTHEMA @SYNTHEMA_EU
299 Followers 391 Following A cross-border hub to develop & validate #AI techniques for anonymization & synthetic data generation in rare hematological diseases 🔬🩸🇪🇺 #HorizonEU project
EORTC Quality of Life... @EORTC_QLG
1K Followers 891 Following The mission of the @EORTC QLG is to develop measures of PRO in #cancer, incl. #HRQoL, and promote and coordinate studies concerning the #QoL of cancer patients.
My Clinical Outcomes @MyClinOutcomes
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Raul Cordoba, MD, PhD @DrRaulCordoba
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HemaSphere Journal (I... @Hemasphere_EHA
5K Followers 601 Following Official #OpenAccess journal of EHA, publishing basic, translational, & clinical heme research. Preliminary data: 2024 Impact Factor = 14.6 (ranked #5).
The PROTEUS Consortiu... @proteuspros
250 Followers 251 Following Helping you navigate the use of Patient Reported Outcomes (PRO) in clinical trials and clinical practice. RTs ≠ endorsements.
Martina @kio_avalon
3K Followers 922 Following 👩🏻⚕️ @SapienzaRoma | Immunology & Immunotherapies | Medical topics in simple terms #MedTwitter
Samantha Cruz @samsamcr
305 Followers 449 Following Research fellow @CPROR_UoB | PhD | PROs | University of Birmingham | Mexican 🇲🇽
Lisa Wintner @lisa_wintner
41 Followers 106 Following
Catherine van Nijevel... @CNijevelt
11 Followers 1K Following Du kannst dein eigenes Vergnügen opfern, wenn es dem anderen Glück bringt 💙
Raffaella Lucchini @Raffa_Lucchini
2K Followers 1K Following Radiation Oncologist at Humanitas Research Hospital. 👩🏻⚕️🇮🇹 Focused on GU and lower GI cancers.
Massimo Di Maio @MassimoDiMaio75
3K Followers 3K Following Medical oncologist at Molinette Hospital, Turin. Professor of Medical Oncology at University of Turin. AIOM president elect #clinicaltrials #cancer #QoL
Laura Marandino @LauraMarandino
710 Followers 1K Following Clinical Research Fellow in Renal & Melanoma @royalmarsdenNHS/ Member @EAUYAU_RenalCa
Maurizia Barbieri @MauriziaBarbie1
31 Followers 349 Following
Annals of Research in... @AnnResOncology
589 Followers 2K Following Quarterly e-journal in English, open access and peer-reviewed. Published by Edra S.p.A. Builds bridges across different #cancer disciplines.
Jens Lehmann @JLehmann_IBK
303 Followers 541 Following early career investigator @imed_tweets | current chair of ECI group at @EORTC_QLG & EORTC board member patient-reported outcomes | ePRO | cancer |
Luigia Carapezza @psico_onco
572 Followers 2K Following Psicoterapeuta CBT | Psico-oncologo | Consulente sessuale #oncosessuologia I 📍In presenza e online 🖥️ #GU #oncologia #urologia #psiconcologia
Sunil Shrestha, PhD @drsunilshrestha
490 Followers 2K Following Father; Pain Scientist; Clinical Researcher; Oncology Clinical Pharmacist; Academician; Photographer; Nepal
Valentina Casaccio @valentina_ci_75
269 Followers 5K Following “Il mare non ha paese nemmeno lui ed è di tutti quelli che lo stanno ad ascoltare di qua e di là dove nasce e muore il sole” (Giovanni Verga)
Festival della Partec... @festpartecipa
657 Followers 493 Following FDP 2023 - Presente! Per un futuro partecipato - VIII edizione - 22/24 settembre – Bologna
EORTC QLG Early Caree... @EORTC_QLG_ECI
283 Followers 284 Following Network of early career investigators involved in the EORTC Quality of Life Group | Views are not those of the EORTC QLG | This week handled by @
renzo ditalese @sansorenzo
679 Followers 2K Following
Stefano Dalla Casa @RadioProzac
2K Followers 507 Following Cottimista, settore editoria. I would prefer not to.
Iniciativa Compromís... @iniciativapvsur
477 Followers 591 Following Cuenta de Iniciativa Compromís en las comarcas del Sur. Ecosocialismo, ecofeminismo y valencianismo @iniciativapv @compromis
Nina :Deliu @DeliuNina
393 Followers 354 Following Continuous Learner, Piecewise Lecturer (Statistics). Assistant Prof @SapienzaRoma | Visiting Researcher @MRC_BSU, @Cambridge_Uni | Visiting Faculty @Google.
Giuls Traversi @GiuliaTraversi8
14 Followers 175 Following Manager and curator for performing arts 🦜🦜
Valentina Bazzarin @VBazzarin
2K Followers 3K Following “Unthinking respect for authority is the greatest enemy of truth.” Co-founder - https://t.co/YuHqpx8QZX -
La strada per la Monc... @PerMoncloa
19 Followers 70 Following Il primo podcast italiano dedicato al racconto delle campagne elettorali spagnole. 📣🎙 -anchor.fm/lastradaper-la…
Angelo Lucarella @AngeloLucarella
1K Followers 5K Following Avvocato, Docente Universitario, Ambasciatore di Pace UPF Italia e delegato speciale G7, esperto giurista World Justice Project (UE), Presidente di Colturazione
Frontiers @FrontiersIn
90K Followers 29K Following We publish groundbreaking discoveries by the world's top experts. #openaccess
Beatrice Tosi @Beatric79497880
854 Followers 4K Following Ci sono miserie che gridano, di fronte alle quali non abbiamo il diritto di restare indifferenti.
Fondazione GIMEMA @FGIMEMA
557 Followers 178 Following Gruppo Italiano Malattie EMatologiche dell'Adulto
World Federation of S... @WFSJ
19K Followers 13K Following Representing, supporting, educating and promoting our community of international member associations and +10,000 #ScienceJournalists worldwide • #Diversity
Robert Z. Orlowski @Myeloma_Doc
16K Followers 5K Following Deputy Chair of Lymphoma/Myeloma, Vice Chair MM Research @ MD Anderson; Translational researcher who hates myeloma. Tweets are my own. Retweets ≠ endorsements.
Kelly Schoenbeck @KellySchoenbeck
218 Followers 349 Following Hematologist @UCSF | Alum @HemOncUCSF @ColumbiaMed @OHSUSOM | interests: #heme #QOL #PROs | tweets my own
EmatoInfo @EmatoInfo
1K Followers 1K Following Latest research in hematology | Breaking news, insights, interviews, live tweeting and updates from major conferences. Co-published @ilpensiero | @think2it
Common Sense Oncology @csoncol
3K Followers 29 Following
Micha Pilz @MJPilz
57 Followers 378 Following Wir suchen immer nach Einhörnern, und dabei haben wir doch Nashörner
JCO Oncology Practice @JCOOP_ASCO
15K Followers 312 Following Impactful information & insights to changes & challenges inherent in delivering equitable, high-quality oncology care. Part of @JCO_ASCO family of journals.
Revista 5W @revista5W
67K Followers 533 Following Crónicas de larga distancia. Lo que está lejos importa más que nunca: https://t.co/3VHFyuTvhJ
Raj Chakraborty @rajshekharucms
5K Followers 338 Following Hematologist/Oncologist/Clinical Researcher @ColumbiaCancer #Myeloma #Amyloidosis Asst. Prof @ColumbiaMed Host @BloodCancerTalk COI: https://t.co/du0rVMRFkC
Giorgio Fruscione @Gio_Fruscione
4K Followers 2K Following 📌 I analyse and love the Balkans | 🗺️ Research fellow at ISPI | ✊🏽 Antifascist & environmentalist
Cinefilia Cult @cinefiliacult
278K Followers 6K Following Sigo descubriendo cine. Algunos me llaman Cult, otros Carlos. Aquí… se celebra el CINE todos los días😊🫂❤️🎬 Contacto: [email protected]
YoungEHA @young_eha
3K Followers 479 Following YoungEHA is YOUR community for the next generation in hematology, represented by the YoungEHA committee. @EHA_Hematology #YoungEHA🌱 E-mail: [email protected]
🔥 Kareem Carr PhD ... @kareem_carr
172K Followers 347 Following Statistician. PhD@Harvard. Check out my Vital Statistics newsletter (link in bio)
Zeke Emanuel @ZekeEmanuel
29K Followers 568 Following MD, PhD, Oncologist. Vice Provost @Penn Ex-Biden Transition COVID Task Force, Obama advisor, @NIH Latest book: "Which Country Has the World's Best Health Care?"
Canal Red @CanalRed_TV
122K Followers 653 Following Aquí sí nos vamos a atrever. ✊ Únete y ayúdanos a crecer #ApoyaCanalRed: https://t.co/qDTbwPoSHD Telegram https://t.co/jHap0VZcfz
Jeffrey peppercorn MD @EthicsdoctorP
542 Followers 338 Following Oncologist and Bioethicist with interest in health policy and rock n roll. Editor-in-Chief JCO Oncology Practice. Tweets and opinions are my own.
Robertacava_ @robertacava_
3K Followers 2K Following Freelance journalist covering Southern EU from Barcelona. I write Ibérica, a newsletter that helps Italians stay on top of Spanish/Portuguese current affairs.
Radio Nacional @rne
353K Followers 244 Following Cuenta oficial de X de Radio Nacional de España. También en https://t.co/CoAL2iREzp, en https://t.co/1rTZw7OhvB y en https://t.co/mkMN8k0Ah2
EUonQol @EUonQol_
94 Followers 52 Following European #Oncology Quality of Life (EUonQoL) #research project funded by the #European Union (Grant N.101096362) to develop, pilot and validate a #EUonQoL-Kit.
Materia @materia_ciencia
806K Followers 665 Following Twitter oficial de Materia, la web de noticias de ciencia, salud y medio ambiente. Suscríbete al boletín: https://t.co/eWk4q91zLE
My Clinical Outcomes @MyClinOutcomes
3K Followers 4K Following Real-time patient #outcomes platform for routine clinical practice. @ICHOM_ORG @PHIN_UK. CEO @t1mwilliams. Since 2011. https://t.co/ngJAhYdCaq #VBHC #PROMs
Lundini Out of Contex... @lundiniooc
23K Followers 16 Following Chiamateci Onorevoli. Non c'erano fanpage. Ci abbiamo messo una pezza. Faccende Complicate alle 20.15 su Rai3 e su Rai Play 📷: @sectumsemprae
Nature Medicine @NatureMedicine
352K Followers 255 Following Nature Medicine is a research journal devoted to publishing the latest advances in translational and clinical research for scientists and physicians.
Jeffrey V. Lazarus @JVLazarus
9K Followers 5K Following Committed to people-centred health systems. Director #SLDthinktank. Professor @CUNYSPH @ISGLOBALorg @JVLazarus.bsky.social Loraxian #LiverTwitter![Meteorologo. One flap of a sea-gull's wing may forever change the future course of the weather. [Ed. Lorenz]](https://pbs.twimg.com/profile_images/1464903063672705025/jSFiiruw.jpg)
Federico Grazzini @curvadelvento
468 Followers 443 Following Meteorologo. One flap of a sea-gull's wing may forever change the future course of the weather. [Ed. Lorenz]
Sveja Podcast @PodcastSveja
539 Followers 541 Following Sveja è la rassegna stampa su Roma che cambia ogni giorno. Tutte le mattine, dal lunedì al venerdì, una voce diversa vi racconta cosa accade in città.
SYNTHEMA @SYNTHEMA_EU
299 Followers 391 Following A cross-border hub to develop & validate #AI techniques for anonymization & synthetic data generation in rare hematological diseases 🔬🩸🇪🇺 #HorizonEU project
JCO Clinical Cancer I... @JCOCCI_ASCO
5K Followers 186 Following Clinical research based on biomedical informatics methods applied to cancer-related data, information, and images. Part of @JCO_ASCO family of journals.
Vincent Rajkumar @VincentRK
80K Followers 2K Following Editor-in-Chief, Blood Cancer Journal; Chairman @IMFmyeloma Board; Cancer & Myeloma Research; Opinions solely personal views https://t.co/HOGYJSpsoG
Gita Thanarajasingam @GitaThanaMD
914 Followers 219 Following Physician and researcher in lymphoma and toxicity of cancer treatment. Assoc. Prof of Medicine at Mayo Clinic. Tweets & opinions mine. On a Twitter hiatus :)
Amylou Dueck, PhD @BiostatGirl
739 Followers 232 Following Statistical superhero. Professional data whisperer. Hall of fame golfer. And lover of bar charts (#sorrynotsorry). Tweets are my own.
Ajay Major, MD, MBA @majorajay
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Raul Cordoba, MD, PhD @DrRaulCordoba
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ERN EuroBloodNet @ERNEuroBloodNet
2K Followers 404 Following ERN-EuroBloodNet aims to improve healthcare and quality of life of patients with Rare Hematological Diseases. Funded by the European Union.
IMI_SISAQOL @sisaqol
250 Followers 113 Following Setting International Standards in Analysing Patient Reported Outcomes and Quality of Life Endpoints in Cancer Clinical Trials
HemaSphere Journal (I... @Hemasphere_EHA
5K Followers 601 Following Official #OpenAccess journal of EHA, publishing basic, translational, & clinical heme research. Preliminary data: 2024 Impact Factor = 14.6 (ranked #5).
ConScienza @con_scienza
3K Followers 66 Following Team Multidisciplinare con l'obiettivo di approfondire e far conoscere, senza scopo di lucro, argomenti legati a Medicina, Salute Pubblica e Sistemi Complessi.
Martina @kio_avalon
3K Followers 922 Following 👩🏻⚕️ @SapienzaRoma | Immunology & Immunotherapies | Medical topics in simple terms #MedTwitter
Global PROMS Initiati... @PromsInitiative
114 Followers 92 Following A Joint Global Initiative on Patient Reported Outcomes for #MultipleSclerosis powered by @MSIntFederation, @EuropeanCharcot and @AISM_nazionale
OKX @okx
5.8M Followers 319 Following A new alternative for your crypto journey | Self-custody & dApps: @Wallet | Support: @OKXHelpDesk | UK users: @OKX_UK
Club Esportiu Europa @CEEuropa
25K Followers 326 Following 𝗖𝗘 𝗘𝘂𝗿𝗼𝗽𝗮. Des de 1907. 💙🤍 👥 Fes-te soci/a: https://t.co/zoj4n8BThP 🔗 https://t.co/TIOBDIklmZ ⚽ 𝟙ℝ𝔽𝔼𝔽 𝗗𝗜𝗘𝗠 𝗡𝗢.
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Francesco Filippi @FrancescoFili15
2K Followers 401 Following Storico della mentalità, autore, formatore.
Semafor @semafor
71K Followers 88 Following Building a new global news company. Sign up for our newsletters: https://t.co/1NfW7fz4Bz
Samantha Cruz @samsamcr
305 Followers 449 Following Research fellow @CPROR_UoB | PhD | PROs | University of Birmingham | Mexican 🇲🇽
Ultimora.net - POLITI... @ultimora_pol
129K Followers 78 Following La politica raccontata da https://t.co/iYDWk6tCo8 - anche su Telegram su https://t.co/3JalzcTzNI E-MAIL: [email protected] 📧Trends for United States
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