Huntingtonsdisease @_Huntingtons
Joined October 2015-
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Followers88
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New Post: My Huntington’s Journey, from Childhood to College buff.ly/2LHCfNx
New Post: Phase 2 Trial Recruiting Early-stage Huntington’s Patients to Test Neflamapimod for Improving Cognition buff.ly/2M6ORx9
New Post: Is It a Hobby or an Obsession? buff.ly/2GmX4cM
New Post: I Don’t Want to Live with a Secret Anymore buff.ly/2M0BcYc
New Post: Cannabinoid Derivatives Show Therapeutic Potential in Mouse Model, But EHP-102 Still Superior buff.ly/30D75u1
New Post: European Initiative Targets Diagnosis, Treatment of Rare Diseases buff.ly/2XYJDWu
New Post: It’s All About Respect buff.ly/2lA6uKp
New Post: Egypt Leads World in Huntington’s Prevalence, But Lacks Clinical Trials on the Disease, Report Says buff.ly/2lcTslN
New Post: It’s All About Respect buff.ly/2LjIBlR
New Post: Scientists Discover Two Distinct Symptom Profiles in HD Patients buff.ly/32muTUE
New Post: Reaching for the Stars to Find a Cure for Huntington’s buff.ly/2xFZfU9
New Post: Macedonian Gaucher Activist Publicizes Plight of Rare Disease Patients buff.ly/2xCdSrx
New Post: World’s First Alport Stamp Is Macedonian Mom’s Latest Win for Rare Disease Patients buff.ly/2Yve8nW
New Post: Experts Publish Guidelines For Managing Behavioral Symptoms of HD buff.ly/2XnN7BK
New Post: Encouraging Brain Donations for Huntington’s Research Goal of HDSA and CHDI Foundation Partnership buff.ly/2J8Dthe
New Post: How the Internet Has Changed the Huntington’s Disease Experience buff.ly/2NhbdhL
New Post: NORD Honors Industry, Patient Advocates at Rare Impact Awards Gala buff.ly/2RFDBZq
New Post: Huntingtin’s Seeding Activity a Potential Early Biomarker of Huntington’s Disease, Study Says buff.ly/2Lg0DF1
New Post: Discovering the Healing Power of Laughter buff.ly/2FttYI7
New Post: Huntington’s Caregivers Also Must Be Mindful of Their Own Well-being buff.ly/31K0788
Eduardo Pereira @erafaelpereira
57 Followers 757 Following Menos pela ação oficial do que pelo braço e pela espada do particular (G. Freyre)
T D @JTDowns01
95 Followers 241 Following
fadi bathish @fbbathish
3 Followers 109 Following
PURPLEK @violetkathyw
4K Followers 3K Following appreciate dialogue to enhance understanding n various points of view, a bit sarcastic
HDAwareness2024 @HDAwareness2024
371 Followers 3K Following Awareness leads to great things; Please Get involved what's left of my Family Thanks You. #huntingtondisease #juvenilehuntingtonsdisease #CureHD #CureJHD too.
Prof Fiona Ducotterd ... @FionaDucotterd
831 Followers 1K Following Neuroscientist, Medicine Maker and Mum. CSO of Alzheimer’s Research UK Drug Discovery Institute at UCL.
HDLutece @HDLutece
106 Followers 197 Following HD patient positive (5 years Unversity postgraduate, bilingualhad to quit my job, and helped my mother to take care of my father for 17 years English, french
PersonalizeMyMed @MyPrecisionMed
1K Followers 5K Following Personalize My Medicine (PMM) keeps you updated on the latest in medical innovation, personalized medicine, and digital health. PMM is an Amazon Affiliate.
Sandra Bartolomeu Pir... @BartolomeuPires
754 Followers 2K Following Nurse PhD researcher. Passionate about improving care for people living with neurodegenerative conditions. Views my own.
Champions For HD @ChampionsForHD
307 Followers 248 Following Non-profit Fighting to aid families and cure Huntington’s & Juvenile Huntington's Disease one family and one voice at a time. #HDCantTameMe
Spiegs @spiegs03
175 Followers 561 Following Girl Dad x 2. Golf nut. Husker fan. Denver Broncos fan. ATL Braves fan. Wannabe wine sommelier.
EHDN News @EHDN_News
717 Followers 975 Following European Huntington's Disease Network newsletter. Please see our profiles on BlueSky and LinkedIn for the latest updates.
HDANI @HDAssocNI
787 Followers 3K Following HDANI is a NI registered charity which supports people affected by Huntington's disease. We provide support, information & advice to families and professionals.
Dr Catherine Deeprose @Catheri11893107
55 Followers 246 Following Science Writer and Editor. Passionate about science and science communication. All views are my own.
HDSA San Francisco Ba... @HDSA_SF
273 Followers 537 Following Updates and news from the Huntington's Disease Society of America San Francisco Bay Area Chapter. #LetsTalkAboutHD. Recommendations? email [email protected]
Mrswigwam40 @mrswigwam40
14 Followers 419 Following
Samantha Elvin @SamanthaElvin4
1 Followers 4 Following
JohnnyQutah @JohnPra12071972
172 Followers 1K Following GOD, JESUS, FAMILY, COUNTRY.. I am a child of God and he has sent me hear to destroy dragons with the light I was given
mary dryburgh @MaryDryburgh
56 Followers 104 Following Former child & Family Support Officer with Child Brain Injury Trust. Now retired..
Anne-Wil Heemskerk @DrAWHeemskerk
30 Followers 101 Following
Sandi Spratt @therecipecards
82 Followers 269 Following Passionate Foodie; author, photographer and recipe developer. Lover of all things chocolate.
jackie harrison @jaq421
3K Followers 5K Following #sybilontour is a project to raise awareness of Huntington's by sending #hounds4huntingtons on adventures follow them here https://t.co/lsNlK4tCHc
Clear DysphagiAide @DysphagiAide
61 Followers 298 Following Clear DysphagiAide™ is a NEW affordable food and beverage thickener that is changing the quality of life for those with swallowing difficulties.
International Listeni... @IntListening
605 Followers 296 Following The ILA is the professional organization whose members are dedicated to learning more about the impact that listening has on all human activity.
Shelby Thompson @Shelby_inspired
10 Followers 171 Following 29• Canadian🇨🇦 • Unintentionally Spiritual • PTSD Survivor • Bug Nerd & Nature lover on an adventure called Life! 🖖 HD Gene Negative! #HDawareness
Ruohua (Helen) Lyu @LyuRuohua
21 Followers 19 Following PhD candidate, University of Melbourne. Molecular biology/HD
P Cahill @PCahill2
26 Followers 30 Following
[email protected] @wendimmhotmail1
38 Followers 2K Following Animals Animals Holidays Celebrity Gamers History Rock/Alt Interesting Pictures Health Olympics Television Hip-Hop/Rap Classic Rock Lifestyle Personalities
HectorPerezRomanMEd @educatorla
259 Followers 357 Following Teacher of the Year LACounty&LAUSD|NationalBoardCertifiedTeacher|UTLA BoardofDirector|LACountyFED Delegate|RadioHost KROJ 101,5FM(tweets my opinion)
Polly Waits @WaitsPolly
19 Followers 14 Following learning disabilities physiotherapist at Leicestershire Partnership NHS Trust
and let music speak @sammiepiekhaar
78 Followers 885 Following
Journal of Huntington... @journal_hd
1K Followers 250 Following Journal of Huntington’s Disease | Dedicated to expediting our understanding & improving treatments of HD | Editors: Blair R. Leavitt & Leslie M. Thompson
Dr Moh @Holistic__Medic
734 Followers 5K Following #FOAMed #MedTwitter #TwitteRx #IDTwitter #MedEd #POCUS #PrimaryCare #Neuroscience #Medicine #SoMe #MentalHealth
ma @menmy42002
388 Followers 2K Following I am who I am. I love my life Nd nothing can get in the way of the things I am doing with it? My god has blessed me!
gatcu @gatcu
28 Followers 324 Following
Jose Lastra @JoseLas05547198
5 Followers 65 Following
hf @ThisFineShrub
457 Followers 2K Following At least do no harm. Trying Respect. Pragmatist. Parent. Health/Genetics Advocate. Neuroscience. Sci + Fi (both). Gardener. Country Not Party.
hook @HHuntingFishing
1K Followers 3K Following We are actively developing our team of promotional collaborators in 2018. We are looking for fishermen and hunters who like our products in the same way 🇺🇸🇨🇦🇫🇷
Sezzie🙋♀️ @sarahmccahon
27 Followers 237 Following Live for today through laughter as the reality can be pretty pants sometimes. 😔
Dawn E Harry @DawnHarry1
94 Followers 188 Following Fiftysomething, living my best life, against the odds, never defeated, keeping positive in a negative world.
Yvonne Davison @y_davison
8 Followers 69 Following
Sherrie All, PhD @SherrieAllPhD
1K Followers 4K Following Author, Keynote Speaker, and Owner of the Chicago Center for Cognitive Wellness
Keem Prozar 🇵🇸�... @thekimma
172 Followers 715 Following Mostly retweets | Working mom | Aspiring entrepreneur | Texas Liberal | Proud nerd | Idealist | Ravenclaw | INFJ | she/her | ActivistTrends for United States
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