脳神経系疾患である全身ジストニア症と格闘しています。悪化進行が深刻なので対応可能な治療医療従事者・技術者を探しています。間接的な情報や具体的な情報でなくても構いませんので何か情報お持ちの方がいらっしゃいましたら情報提供くださるとありがたいです。宜しくお願いします。 JPNJoined January 2016
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