Adv Lalit Mokate @adv_mokate
Advocate Practice in District and Session Court Pune Kothrud, Haveli Joined May 2021-
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Virtual #Run4SMA @curesmaindia extends its deepest gratitude 2 d @IndiaCoastGuard 4 deir remarkable commitment in championing d cause of Spinal Muscular Atrophy #SMAAwareness by holding Virtual #Run4SMA across LxB of India bustling cities 2 d most remote corners of our nation🙏.
Cure SMA India thanks @Syniti for distributing essential medical equipment to #SMA warriors in Hyderabad, symbolizing freedom & dignity. 🙏 Together, we are building a future where no child is held back by SMA 💜 #EmpoweringLives #SMAWarriors #HopeAndStrength
✨ Closing SMA Awareness Month with hope! Mr Sreejith's son's progress with #SMA drug #Risdiplam shows that with timely access & care, milestones are possible. Holding onto hope for a brighter future 🌈 #SMAAwareness #HopeForSMA #CureSMAIndia
✨ Meet Javeria, a 10-yr-old SMArt warrior with big dreams! 💜 Cure SMA India thanks Syniti for empowering SMA warriors with essential medical equipment, symbolizing freedom & dignity. 🙏 #SMABravery #CureSMAIndia #SMArtWarriors #SMABeingLimitless
🌸 Meet Devansh, a 21-month-old SMA warrior! 💜 With therapy, treatment & love, he's becoming stronger each day. Let's raise awareness & work towards a future where no child's potential is limited by SMA! 🌍💜 #SMAAwarenessMonth #CureSMAIndia #StrongerWithSMA
🌟 Rajasekhar's inspiring journey from a small village to the stage, overcoming challenges & shining with confidence!His story highlights the importance of awareness support & guidance in unlocking opportunities for those with SMA. #SMARTCON2025 #SMAAwareness #DisabilityInclusion
SMArt Warrior Ruvanthika's inspiring speech at SMArt Con 2025 highlights the importance of treatment, therapy & support in managing #SMA. Her positivity & prayer for others' well-being touched everyone's heart 💜✨ #SMAWarrior #SMArtCon2025 #HopeForSMA
Meet Diya,a 4-yr-old SMA warrior thriving thanks to breakthrough treatments & daily physiotherapy!Physiotherapy builds strength, improves movement & gains independence. Let's celebrate Diya's progress & raise awareness! 🌈💕 #SMAWarrior #PhysiotherapyMatters #CureSMA #SMAwareness
✨ Dylan's Story ✨ 9-yr-old Dylan's treatment halted due to funding issues. SMA meds are life-changing but unaffordable. No child should lose strength due to cost. Sustainable access is key! 🌸💜 #CureSMAIndia #SMAAwareness #AccessToMedicines #HopeForSMA
🌸 Meet Pradeep Kumar, a father of 2 brave boys with #SMA! 💜 Ayansh's progress after gene therapy is inspiring, but Hemanth's journey highlights the need for accessible treatments. Together, we can make a difference! ✨ #SMAAwareness #CureSMAIndia #StrongerThanSMA (part 1)
Meet Deeksha, a SMArt warrior who inspires with her journey of hope & determination! 💪🌟 "Your spirit should never let you down. With willpower, you can always move forward." #SMArtCon2025 #SMAAwareness #NeverGiveUp #CureSMAIndia
✨ Irfan's scoliosis surgery journey is a testament to courage & resilience! 💙 From struggling with simple tasks to enjoying everyday moments, his story inspires hope & reminds us that every experience matters. 🙌 #SMAAwareness #LifeWithSMA #HopeStrengthLove
✨ Meet Revati, a brave SMA warrior from Pune! 💜 She's sharing her journey to raise awareness about SMA & inspire hope. Her story shows that access to treatment & research can change lives! 🌸 #SMAAwareness #CureSMA #SMAWarrior #HopeForSMA
💜 Meet Layam, a brave little boy living with #SMA Type 2. His story reminds us that life with SMA is about resilience, love, and hope. Let's spread knowledge, compassion, and strength together! #SMAAwareness #CureSMA #HopeForSMA
"Collaboration is key—internal and external stakeholders must unite. Grassroots awareness among practitioners, doctors, pediatricians, and the public is essential to drive rare disease progress." – Ms. Alpana Sharma, Co-founder & Trustee, Cure SMA
Session 1 explores the transformative potential of advanced therapies to strengthen India’s rare diseases ecosystem and improve patient outcomes. Focus on integrating these into public healthcare under the NPRD
Heartfelt thanks to @ficci_india @NITIAayog & @CDSCO_INDIA_INF for including Ms Alpana Sharma, Co-Founder of Cure SMA Foundation of India. Grateful for the opportunity to share patient voices & work towards a better future for SMA families 🙏 #SMAIndia #PatientCentricity
Heartfelt thanks to @ficci_india @NITIAayog & @CDSCO_INDIA_INF for including Ms Alpana Sharma, Co-Founder of Cure SMA Foundation of India. Grateful for the opportunity to share patient voices & work towards a better future for SMA families 🙏 #SMAIndia #PatientCentricity
Meet Rudraunsh, a cheerful SMA warrior! 🌟 His parents are crowdfunding for Zolgensma, a life-changing treatment. Let's spread awareness & support this amazing family! 💕 #SMAAwareness #CrowdfundingForLife #SMAWarrior
Welcoming Our Esteemed Panelists ✨ The National Conference on Making Rare Care Possible, by FICCI with NITI Aayog and IMPF, is honored to host our Esteemed Panelists whose valuable insights will play a pivotal role in shaping impactful discussions on rare care in India.
SMA awareness saves lives! 💜 3 life-changing treatments exist: Zolgensma, Risdiplam & Spinraza. Crowdfunding spreads awareness, builds solidarity & gives SMA kids hope. 🌸 Together, let's turn awareness into action! ✨ #SMAAwareness #CureSMA #HopeForSMA
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SANTOKH BANGA 9779855... @santokhkumar60
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National Organization... @RareDiseases
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Rare Disease Report @RareDR
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World Health Organiza... @WHO
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Srilakshmi Nalam @srilakshminalam
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Dr Harsh Vardhan @drharshvardhan
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satish @satisht24
334 Followers 18 Following #SpinalMuscularAtrophy - Genetic rare disorder kills SMA kids day by day,there is medicine #Risdiplam in in India, Can not afford the cost, Pls save my SMA Son
MyGovIndia @mygovindia
3.4M Followers 362 Following Citizen engagement platform of Government of India, giving people the opportunity to work towards Surajya with their ideas & grass root level contribution.
National Health Autho... @AyushmanNHA
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Department of Biotech... @DBTIndia
111K Followers 273 Following The Department of Biotechnology, Ministry of Sc & Tech, Govt of India supports research, its applications and education in the Life Sciences and Biotechnology.
ICMR-NIV @icmr_niv
15K Followers 39 Following Official handle of the ICMR - National Institute of Virology, under Indian Council of Medical Research, DHR, MoHFW, Govt. Of India. Broadcasts only. No replies.
NITI Aayog @NITIAayog
2.8M Followers 218 Following NITI Aayog is the premier policy think tank of the Government of India, providing directional and policy inputs.
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Archana Vashist Panda @PandaVashist
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Vinod Scaria @vinodscaria
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Sharad Pawar @PawarSpeaks
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CMO Maharashtra @CMOMaharashtra
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