Brian Skotko @brianskotko
International expert on Down syndrome. Director @MGHDownSyndrome. Medical geneticist @mghfc. Enthusiast of https://t.co/vpU3CVatVr. Views my own. brianskotko.com Boston, MA Joined April 2009-
Tweets3K
-
Followers4K
-
Following234
-
Likes645
Proud to help treat four-year-old Theo's obstructive sleep apnea - a condition prevalent in people with #Downsyndrome. Grateful to partner with @MassEyeAndEar Dr. Hartnick for this cutting edge treatment involving the Inspire device. Read his story! 👉 massgeneralbrigham.org/en/about/newsr…
Happy to support my colleague, Clinical Research Coordinator, Mikayla today at the 15th @mghfc Pediatric Research Day. I'm very proud of all the ongoing research the @MGHDownSyndrome team continues to conduct to advance our knowledge of Down syndrome.
Not having access to a specialty clinic doesn't mean you can't get the resources, recommendations & checklists that your loved one with #Downsyndrome deserves. DSC2U.org helps families get personalized health & wellness checklists. 👉DSC2U.org/plans
Go Jen!
The MGH Down Syndrome Program crew at the #Unstoppable @TheMDSC Conference this weekend! Great energy, amazing speakers and wonderful company. Can't wait for next year. #Downsyndrome #Downsyndromeawareness
Today is #WorldDownSyndromeDay. In a study I conducted with the help of international colleagues, research showed that the US and other countries can do more to improve quality of life for people with Down syndrome. Read more: sciencedirect.com/science/articl…
Yes to @MGHDownSyndrome Resource Specialist, Ben! 💯Happy World Down Syndrome Day! What does it mean to you and those in your community? If they don't know about #Downsyndrome or this amazing day for celebrating it, SHARE THIS! #EndTheStereotypes #DownsyndromeAwareness
I am excited to participate and speak at the United Nations tomorrow on World Down Syndrome Day for an event celebrating the abilities of people with Down syndrome. To tune in tomorrow (3/21) from 1:15 - 2:30 p.m. EST, follow this link ➡ webtv.un.org/en/schedule/20…
6 more days until World Down Syndrome Day! Get your crazy socks! 🧦Grab a mismatched pair or colorful, crazy pair - whatever it takes to get people’s attention and get the conversation going! Then - take the opportunity to teach them something about Down syndrome!
The ABATE Study is testing an investigational vaccine that may slow the progression of Alzheimer’s disease in people with Down syndrome. If you have DS and are between 35 - 50 years, you may be able to take part in this study. Complete the survey to see. redcap.partners.org/redcap/surveys…
My colleague, Dr. @StephSantoroMD of the MGH Down Syndrome Program was interviewed on the @TheLuckyFewPod last week In this interview, she talked about her latest research - Developing a Down Syndrome Health Instrument! Take a listen! theluckyfewpodcast.com/episodes/241-d…
If you have a child between 5-18 years of age with Down syndrome & are interested in hearing more about this research study, “Energy Expenditure and Weight-Related Behaviors in Youth with Down Syndrome” or see if you are eligible, click on the link below. milwaukee.qualtrics.com/jfe/form/SV_em…
📣Self-talk is important! Self-talk... ➡ is common in people with Down syndrome ➡ is a key player in cognitive development ➡helps to coordinate actions and thoughts Talk to your doctor if you are concerned about your loved one's self-talk. More info: massgeneral.org/children/down-…
Preparing your loved one with Down syndrome for a sleep study? 😴 For more tips on how to have a successful night, visit the @MGHDownSyndrome resource page: massgeneral.org/children/down-…
If you or someone you know is an adult with Down syndrome experiencing symptoms of depression, consider joining this treatment study at Massachusetts General Hospital. Click on the link or copy and paste it into your browser for more information: rally.massgeneralbrigham.org/study/down_syn…
Global Down Syndrome .. @GDSFoundation
22K Followers 7K Following GLOBAL is the largest non-profit in the U.S. working to save lives and dramatically improve health outcomes for people with Down syndrome.
National Down Syndrom.. @NDSS
19K Followers 2K Following NDSS empowers individuals with Down syndrome and their families.
Heidi Crowter-Living .. @HeidiCrowter95
9K Followers 4K Following Law allows abortion to 24 wks- unless u have DS its BIRTH! Tweets by Heidi & her team! https://t.co/k9GxCCYLBz…
Down's Syndrome Assoc.. @DSAInfo
22K Followers 3K Following Supporting people who have Down's syndrome to live full and rewarding lives.
#wouldntchangeathing @Wouldntchangea1
8K Followers 2K Following Making negative perceptions of Down Syndrome a thing of the past.
Canadian Down Syndrom.. @CdnDownSyndrome
7K Followers 925 Following Canadian Down Syndrome Society (CDSS) is the national source of expertise promoting the abilities and contributions of people with Down syndrome. #SeeTheAbility
Down Syndrome Resourc.. @DSRFcanada
3K Followers 460 Following DSRF provides comprehensive support, rich social connections, and the best resources available so people with Down syndrome and their families can thrive.
Don't Screen Us Out @dontscreenusout
5K Followers 4K Following Creating a world where people with Down’s syndrome are equally valued and have an equal chance of being born.
Down Syndrome Podcast @IfWeKnewThenPOD
1K Followers 2K Following A Down syndrome advocacy podcast with the mission to change misperceptions & promote inclusion. Hosted by: @StephenSaux @LoriMurphySaux #DownSyndrome #T21 💛💙
Sally Phillips @sallyephillips
85K Followers 4K Following Official account of actor Sally Phillips. Enthusiastic about Finland, seriously over having a serious side.
Hayley at Downs Side .. @DownsSideUp
14K Followers 10K Following Downs Side Up blogger. Author, speaker, Mum. @LoveYouNatty book @inclusiveminds @spcialndsjungle @mencap_charity ambassador #TedX #modelNatty #LipWarrior
Dr. Elizabeth Head @ElzHead
4K Followers 4K Following Professor, Dept Path @UCISOM, @ucimind @UCI_CFAR_DS, @abc_ds_ Aging and Alzheimer disease in people with Down syndrome, 🇨🇦, https://t.co/CX1ahHRnR8
Born Fabulous Podcast @PodcastBorn
1K Followers 3K Following In depth conversations about accomplished individuals w/ disabilities. Writer. Public speaker. Inclusionista. Fierce mama. Loyal Mn Vikings fan!-Greta Harrison
Leslie Ordal @GenCounsNews
4K Followers 3K Following Asst Program Director @boisegenetic / Genetic Counselor / psychiatric genetics / @Wellesley & @UofT alum / @greygenetics / 🇨🇦🇺🇸 / tweets my own
Alzheimer Biomarkers .. @abc_ds_
395 Followers 371 Following The ABC-DS is a research study looking for Alzheimer biomarkers in Adults with Down Syndrome. NIH Funded. 8 Sites nationally and internationally.
Colette Lloyd @ColetteLloyd
2K Followers 3K Following Proud mum to four young adults. Speech and language therapist. ✝ Passionate about Truth. Light. Love. Wisdom. #inclusion #downsyndrome #ethics #chocolate
katy_dss @KLironi
2K Followers 4K Following 🎤singing, signing and story telling with Down’s Syndrome Scotland ABC programme ...Makaton, communication..all views my own 💃🎤🍰💖
Down's Syndrome Scotl.. @DSScotland
4K Followers 542 Following helping people with Down's syndrome realise their full potential by providing support, services and information to them, their family, carers & professionals.
Mara Dierssen @maradierssen
6K Followers 2K Following Group Leader Cellular and Systems Neurobiology |Center for Genomic Regulation | President of the Spanish Brain Council, Past president T21RS, SENC, IBANGS
LuMind IDSC @LuMindIDSC
3K Followers 2K Following We accelerate #research to improve health & independence for all with #Downsyndrome and empower families with education, connections & support. #DSresearch
Buzz Walling @BuzzWalling
29 Followers 35 Following
Cellular and Molecula.. @Cmmr_Journal
118 Followers 1K Following An international, open access and peer-reviewed journal. Editor-in-Chief: Prof. Consolato M. Sergi, University of Ottawa, Canada
Rachael Ross MBE @rachaelross21
562 Followers 483 Following Education, Chair Portsmouth Down Syndrome Association, Founding Officer at National Down Syndrome Policy Group APPGDS, BAFTA Accessibility & Inclusion Patron
Zeynep Atak @atakzey
1K Followers 509 Following PhD candidate | Neuroscience & Cognitive Science | Neocortex development in Down Syndrome @ChildrensNatl | @METU_ODTU
kahhl @kahlgt
15 Followers 74 Following
Ta Bellamy @bellamy_ta92540
8 Followers 3K Following
Laura Duhon @DuhonLaura
512 Followers 1K Following Dr. Laura Duhon:Texas State University, Director of Teacher Fellows, Kagan National Trainer, SWT/TXST alum, Seton Hall EdD alum, ADPi, Boy Mom, Wife
Alex @alscial11
125 Followers 590 Following
Vanessa L. Merker, Ph.. @vlmerker
1K Followers 1K Following Health services researcher at @MGHNeurology passionate about #PatientEngagement in research, #RareDisease and the working woman. Trained @BUSPH & @VA_CHOIR.
Tom Sileo @TSileo
7K Followers 2K Following Author (I Have Your Back, @3WiseMenBook & @TravisBrendan) | @Streamdotorg senior editor | @RutgersU alum | #DownSyndrome dad | #Nats fan: 2019 World Champions!
Tierra Jolly, MS3 (sh.. @thenextDrJ
52 Followers 153 Following DC native | Disability Advocate | Former Educator | World's Okayest Mom | Openly Black | Unbought & Unbossed | Hopeful #gasgang | #theluckyfew
Luma177 @luma177
2 Followers 75 Following
Irish Mammy @TeamInclude
17 Followers 255 Following Mum to bunch of kids, one with Down Syndrome. Down Syndrome community advocate. #DownSyndrome #Inclusion #Community Engagement
Opeyemi Oluwatoni Owo.. @Tonioflagos
69 Followers 160 Following Lagos State Youth Ambassador || HR @smpn_national || Media Enthusiast
Beth Gearheard @BethGearhe95129
0 Followers 2 Following
Donald Teo @DonaldTeo11
1 Followers 72 Following
Kristin Barrett @KrissyBarrett37
4 Followers 24 Following
Ali Javinani, MD @AliJavinani
538 Followers 836 Following Maternal-Fetal Medicine Postdoc Research Fellow @MFCC_BCH_BWH @BostonChildrens @HarvardMed | he/him/his 🏳️🌈| 🧘 🌎 🎶 🐶🩰🧑🍳| views are my own
jesus fontenla @jesusfontenla
338 Followers 322 Following Todos los días a 𝑭𝒇𝒚𝒏𝒏𝒐𝒏 𝑮𝒂𝒓𝒘. Subir una colina pero bajar una montaña. Esa es la idea. https://t.co/z5Fby53gIR
Jennifer Ansiton @JoiceWink
343 Followers 4K Following
Team Up @TeamUpInclusion
375 Followers 893 Following TeamUp's innovative buddy system allows people with Down Syndrome to receive support in a group setting. Opportunity for two-way learning. InclusionForAll.
Carl Waggoner @CarlWaggon41902
62 Followers 411 Following
Ali Gomez @argomeztcu
0 Followers 14 Following
Marc Egeland @EgelandMarc
18 Followers 42 Following
Rafael Plana Bellido @elvigiadetorre
92 Followers 249 Following
Mother of the little .. @kleine_sonne_
96 Followers 141 Following I am the mother of a boy with Down syndrome. 🇺🇦🇬🇪 PP: [email protected]
Christine Hodges @Christine77h
7 Followers 83 Following
Danly Omil-Lima, MD @domillima
2K Followers 2K Following A human with opinions based on my experiences. @fcuroonc SUO fellow by way of @caseurology . Cuban in Philly. 🇨🇺🏳️🌈
Sarah @SarahLou192
1 Followers 13 Following
Pearls77 @Oluwatoyin38289
3 Followers 44 Following
Evelyn Chege @ChegeEvelyn
24 Followers 136 Following
Tonnie Coppus @CoppusTonnie
19 Followers 89 Following
Zahit Usta @zahitusta
150 Followers 229 Following
Samuel Okanu @OkanuSamue76979
1K Followers 4K Following
sri 💀 @SrikantSwamy
50 Followers 2K Following tech enthusiast • tweets data / animals / geo-politics • name pronounced as: “Shree-kaanth”
Terri Lancaster @TerriLa77840070
1 Followers 10 Following
Stephen Hozier @stephen_H64
222 Followers 667 Following
Down Syndrome Center .. @PakistanDown
21 Followers 163 Following Welcome to this global Down Syndrome support group aimed to support children with Down Syndrome and their families.
Special Kids Moments .. @SpecKidsMoments
1K Followers 3K Following Special Kids Moments is dedicated to showing the incredible potential of kids with special needs and the positive impact of their empathy and boundless love.
Grant @GrantCoauette
138 Followers 475 Following Family Med/Emergency Med PA-C; over-worked by choice #MedTwitter; Stock Market/Crypto Twitter; MN Sports (embarrassingly)
Ann Steck @asteckmd
517 Followers 971 Following Rural Family Physician. Resident Educator. Mommy. 🏳️🌈Ally. She/her. Tweets are my own.
Harvey @helloharvey
9K Followers 276 Following Harvey Rogerson plays Leo Goskirk in Emmerdale Harvey's story is one of happiness, encouragement & hope for the future!
Cara Ruggiero, PhD, R.. @CaraRuggiero
461 Followers 1K Following Postdoctoral Research Fellow at Harvard @mghfc | Family systems, interventions, and policy to address obesity and food insecurity | Tweets my own
Kim Lee @kimsuelee
25 Followers 381 Following
chloe webb @chloewebb30
58 Followers 291 Following
Miss Elly @MissEll94414885
29 Followers 159 Following
Global Down Syndrome .. @GDSFoundation
22K Followers 7K Following GLOBAL is the largest non-profit in the U.S. working to save lives and dramatically improve health outcomes for people with Down syndrome.
National Down Syndrom.. @NDSS
19K Followers 2K Following NDSS empowers individuals with Down syndrome and their families.
Down's Syndrome Assoc.. @DSAInfo
22K Followers 3K Following Supporting people who have Down's syndrome to live full and rewarding lives.
Canadian Down Syndrom.. @CdnDownSyndrome
7K Followers 925 Following Canadian Down Syndrome Society (CDSS) is the national source of expertise promoting the abilities and contributions of people with Down syndrome. #SeeTheAbility
Down Syndrome Resourc.. @DSRFcanada
3K Followers 460 Following DSRF provides comprehensive support, rich social connections, and the best resources available so people with Down syndrome and their families can thrive.
Down Syndrome Podcast @IfWeKnewThenPOD
1K Followers 2K Following A Down syndrome advocacy podcast with the mission to change misperceptions & promote inclusion. Hosted by: @StephenSaux @LoriMurphySaux #DownSyndrome #T21 💛💙
Dr. Elizabeth Head @ElzHead
4K Followers 4K Following Professor, Dept Path @UCISOM, @ucimind @UCI_CFAR_DS, @abc_ds_ Aging and Alzheimer disease in people with Down syndrome, 🇨🇦, https://t.co/CX1ahHRnR8
Alzheimer Biomarkers .. @abc_ds_
395 Followers 371 Following The ABC-DS is a research study looking for Alzheimer biomarkers in Adults with Down Syndrome. NIH Funded. 8 Sites nationally and internationally.
DSA Toronto @DSAToronto
2K Followers 1K Following Down Syndrome Association is a registered Canadian Charity helping promote the VALUE, ACCEPTANCE & INCLUSION of people with Down syndrome. 🖱️website for events.
LuMind IDSC @LuMindIDSC
3K Followers 2K Following We accelerate #research to improve health & independence for all with #Downsyndrome and empower families with education, connections & support. #DSresearch
National DS Congress @NDSC
9K Followers 744 Following The leading resource of support and information for anyone touched by or seeking to learn about Down syndrome, from the moment of a diagnosis through adulthood.
WesElyMD @WesElyMD
63K Followers 361 Following Husband & Dad. ICU Doc. Vanderbilt. @CIBScenter studies Covid & Long Covid, ICU Survivorship, PICS, Dementia, Delirium. Tweets my own. Still learning.
World Down Syndrome D.. @WorldDSDay
13K Followers 346 Following Join us on 21 March to ask the world to #EndTheStereotypes
Jawanda Mast @Sassysutherngal
993 Followers 2K Following https://t.co/WAVbzCboJO Down syndrome advocate, love Jesus, husband, daughter & Razorbacks. Views are my own. This is my story!
Linda Crnic Institute.. @CrnicInstitute
575 Followers 913 Following Premier #DownSyndrome research organization. Tweets #DSresearch science and advocacy. Home of the #HumanTrisomeProject. Part of @CUAnschutz.
Bishop Robert Barron @BishopBarron
271K Followers 20 Following Bishop of Diocese of Winona-Rochester (MN); founder of @WordOnFire; host of CATHOLICISM series.
Aly Abou Eleinen @AEleinen
425 Followers 311 Following Professional Squash Player 🇪🇬 🌏 World No. 13 🎓UPenn’22
Stephanie Santoro, MD @StephSantoroMD
100 Followers 117 Following Clinical Geneticist providing care for patients with #Down syndrome, a researcher studying ways to measure and improve health @MGHDownSyndrome @mghfc
Down Syndrome Daily @DownDaily
8K Followers 2K Following a quick way to get current news related to Down syndrome
Paolo Cassano @paolo_cassano
117 Followers 79 Following Associate Professor of Psychiatry at Harvard Medical School and Director of Photobiomodulation at Massachusetts General Hospital (MGH) Neuropsychiatry
Lee Drew @Lee_M_Drew
3K Followers 96 Following Former England Junior National Coach. PSA Referee & Refereeing Director. PSA Squash TV Commentator. WSO Development Lead. https://t.co/430WMStGIY
NICHD News @NICHD_NIH
18K Followers 2K Following Official account of NICHD, part of @NIH. Healthy pregnancies, healthy children, healthy & optimal lives. Engagement≠endorsement
Miguel Rodriguez @MiguelSquash
9K Followers 354 Following Profesional de Squash #14 dL mundo #1 de Colombia. Campeón del British Open 2018. 🥉 World games 22, 🥇🥇🥇 Juegos Bolivarianos 22.
321foundation @321Foundation
993 Followers 749 Following to empower all people with Down syndrome and other disabilities through advocacy, education, and support
CIB Squash @CIBsquash
677 Followers 141 Following CIB Egyptian Squash Open Men's & Women's PSA Platinum Event 19th to 25th September 2022
Nina B. Gold, MD @nbgmd
541 Followers 1K Following Medical and biochemical geneticist @MGHfC. Opinions my own.
Anthony Horowitz @AnthonyHorowitz
86K Followers 667 Following Author (Alex Rider, Foyle, Sherlock Holmes, Bond and Hawthorne), TV and film writer. So many words...! https://t.co/lXBX1XIAGz
María Carmona Iragui @tiemposinti
254 Followers 643 Following Neuróloga dedicada a #Alzheimer y al #SíndromedeDown en @SantPauMemory🧑🏻⚕️🧠💉, disfrutona, sincebollista, persona, feminista y madre de 3. No en ese orden.
Marie-Claude Potier @McPotier
376 Followers 461 Following Observe, analyse and treat. Search answers for Down syndrome and Alzheimer’s
DS DN @TheDSDN
1K Followers 670 Following
Squash Mad @SquashMadNews
8K Followers 6K Following Interviews, features, analysis and opinion. The independent voice of squash. Now an Olympic sport #LA2028
Joey Barrington @joeybarrington
6K Followers 150 Following Former @PSAWorldTour Professional Squash player & England International. Lead Commentator & Presenter @SquashTV @PSAWorldTour JBPJ Squash Camps coming July 2024
Cheri Blauwet, MD @CheriBlauwetMD
6K Followers 3K Following Sports Med Physician @SpauldingRehab @BrighamHealth @HarvardMed / 7x Paralympic Medalist / Boston Marathon winner / @BosBizJournal 40 under 40 / Wife & Mom of 2
Squash Info @SquashInfo
9K Followers 1K Following The definitive squash resource In partnership with @SquashLibrary
Sam Ezersky @thegridkid
26K Followers 405 Following Digital Puzzles Editor @nytimes: Crosswords, #SpellingBee 🐝, etc ”Boyish quipster,” per Vanity Fair Sad Baltimore sports fan Chromesthete WAHOOWA
Mohamed ElShorbagy @MoElshorbagy
63K Followers 321 Following World Number 1 for 50 months, Former World Champion, 23x Platinum events Champion. Instagram: MoElshorbagy #Tecnifibre #Optasia #Rowe #ExpressNetworks
U.S. Open Squash @USOpenSquash
7K Followers 721 Following October 7-14, 2023, @SpecterCenter. Tickets on sale now.
Paul Coll @paulcollsquash
6K Followers 287 Following Professional squash player #TeamHEAD @head_squash
Joel Makin @JoelMakin
2K Followers 244 Following Professional squash player. Highest world ranking 7. @karakaluk @Greenaway_Autos
Tarek Momen @TkMomen
8K Followers 183 Following Professional Squash Player ***************** World Champion 2019 🏆 **************** Current World no.8 **************** @PSAWorldTour
Karim Abdel Gawad @karimabdelgawad
8K Followers 115 Following professional squash player .... 2016 world champion .. former world no 1 ...Instagram : @karim.gawad . @Harrowsports @cibegypt
Ali Farag @AliFarag
19K Followers 436 Following 4x World Squash champion | Egyptian and Proud | Harvard graduate | Lucky to be making a living out of a lifelong hobby
PSA Challenger Tour @PSAChallenger
3K Followers 257 Following The #PSAChallenger Tour sees future stars of the @PSAWorldTour clash with some of squash's most experienced professionals in tournaments across the globe.
Ari Ne'eman @aneeman
16K Followers 9K Following PhD candidate in Health Policy at @Harvard. Writing a book on US disability history for @SimonBooks Tweets delete periodically.
CGM at MGH @CGM_MGH
1K Followers 98 Following Center for Genomic Medicine at Massachusetts General Hospital Harvard Medical School
The Lucky Few Podcast @TheLuckyFewPod
351 Followers 39 Following THE LUCKY FEW PODCAST SHIFTING THE NARRATIVE BY SHOUTING THE WORTH OF PEOPLE WITH DOWN SYNDROME. @macymakesmyday @hooray4sunny @michaboyett
IMDSA @IMDSA
765 Followers 363 Following IMDSA is designed to support and family whose life has been affect by mosaic Down syndrome by continuously pursuing research opportunities throughout the world.
Oksana Hlyva @goDSresearch
338 Followers 670 Following Parent researcher w/ interest in health-related quality of life, inclusion, & accessibility; not neutral for blue & yellow: Ukraine and Down syndrome
MGH Equity and Commun.. @MGHEquity
1K Followers 512 Following At Mass General Hospital, we believe that because of diversity we excel; through inclusion we respect; focused on equity we serve, heal, educate and innovate.
Stand Up For Downs @StandUp4Downs
2K Followers 454 Following Stand Up For Downs exists to enhance the world of Down syndrome using humor. You should totally donate/ follow us, or just laugh! https://t.co/5BpyFxttqx
Karen Donelan @kdonelan339
796 Followers 929 Following Health Policy Survey Rsch: Equity, Workforce, Teams. Stuart H. Altman Professor @TheHellerSchool @BrandeisU @MonganInstitute
Brigham and Women's H.. @BrighamWomens
59K Followers 3K Following Providing the news and latest research from Brigham and Women's Hospital in Boston, MA, a nonprofit teaching affiliate of Harvard Medical School.
Mass General Brigham .. @MGBHealthPlan
457 Followers 143 Following Mass General Brigham Health Plan, with you every day. Your health is everything to us.
T21Mom @Trisomy21Momma
304 Followers 314 Following Single Momma by choice to my beautiful girl Ainsley, who is rocking an extra chromosome, also known as Down syndrome. Creator and host of the T21Mom podcast.
UpsideDowns @UpsideDownsNZ
1K Followers 654 Following Our charity is giving a voice to New Zealand children with Down syndrome. Can you help us? 💛💙Delighted to have contributed to the Inaugural International #DownSyndrome Societal Services and Supports Survey with colleagues around the world, including @brianskotko and many more... go.dselink.net/f8wd #WorldDownSyndromeDay
Today is #WorldDownSyndromeDay. In a study by led by Dr. @brianskotko and international colleagues, research showed that the US and other countries can do more to improve quality of life for people with Down syndrome. Read more: sciencedirect.com/science/articl…
Hear from one of our exciting Plenary Speakers @brianskotko and see what his thoughts are on attending #WDSC2024 #worlddownsyndromecongress #downsyndromaustralia #downsyndromeinternational
Last week on #WorldDownsyndromeDay @brianskotko, MD, director of @MGHDownSyndrome, spoke with @boston25 about the advancements being made for people with Down Syndrome and the work that still needs to be done to support them. spklr.io/6017oy6P
Love that I get to advocate alongside passionate NDAC Members like Cathy! Want to join us? Check it out.
Don't let policy complexities intimidate you" - wise words from Cathy Pinkerton, an NDAC member, mom, and passionate advocate for individuals with Down syndrome. Join her and NDAC in making your voice heard! bit.ly/3Xt8wKa #Advocacy #Downsyndrome
#ACMGMtg24 poster day! 👩🏫👩🏫👩🏫👩🏫👩🏫👩🏫 Proud to share the great success we had with recruiting through the DS-Connect registry for our project
I am very excited for the opportunity to share about my favorite topic: Grassroots Advocacy! Thank you to @LuMindIDSC for inviting me!
NDSC Grassroots Advocacy Manager Jawanda Mast will be sharing valuable insights on policy and grassroots advocacy on the @LuMindIDSC Foundation myDSC webinar series on March 14th, 1:00 PM ET. Register now at mydsc.org/webinar/ #AdvocacyInAction #Downsyndrome
🥳The @TheMDSC Conference is back in PERSON this year & we are thrilled to be going! Dr. @brianskotko will be presenting about about Down Syndrome Clinic To You (DSC2U.org) Register for by visiting mdsc.org. Can't wait to see everyone there!
Back in my hometown for the @NDSS Adult Summit!
“An adult with Down Syndrome…”
@brianskotko Although so many of these studies and potential treatments are a little too late for the fabulous @KatyVoiceFan , we are thrilled with all the progress!
Honored and humbled to receive the 2023 John M. Opitz Young Investigator award for our publication on management of #DownSyndromeRegressionDisorder in AJMG @WileyBiomedical 🥳🎉 @mghfc Congratulations to co-awardee @shahida_moosa 🎉 Link to articles: onlinelibrary.wiley.com/doi/toc/10.100…
ATTENTION CAREGIVERS: Have you heard of DSC2U, the online clinic that makes your primary care physician a Down syndrome specialist? Let Dr. @brianskotko and his team help you maintain the best care for your loved ones. Check it out now - dsc2u.org
In a new study from @brianskotko and colleagues, researchers found that many Spanish-speaking families encounter language barriers, racism, and discrimination in obtaining medical care for loved ones with #DownSyndrome. Read More: massgeneral.org/news/press-rel…
#MassGeneral physician @brianskotko MD was quoted in @SleepReview's article about recent developments in treating sleep apnea in children with Down syndrome. sleepreviewmag.com/sleep-disorder…
Research led by Christopher Hartnick, MD, and @brianskotko has proven the safety and efficacy of using hypoglossal nerve stimulation to treat obstructive sleep apnea in children with #DownSyndrome. spklr.io/6010lBCK
@brianskotko This is just incredible! Your work and efforts on helping our kids with Down Syndrome is so important! Thank you so much for this awesome opportunity 💙💛
@brianskotko @MGHDownSyndrome It is such a valuable tool and so helpful!
Learn more about the clinical effectiveness of the cited program, "Down Syndrome Clinic to You" by PI @brianskotko and @mghfc, assessed in a PCORI-funded #CER study. pcori.me/3GPxSL7 @KFFHealthNews
Most Down syndrome programs nationwide focus on children, even though many people with the condition now live into middle age and often develop health problems typically associated with seniors. nbcnews.com/health/health-…
Our own Dr. @brianskotko talks Healthcare Equity in the Down Syndrome Community when he sat down with @theluckyfew. Give it a listen. podcasters.spotify.com/pod/show/thelu…
Trends for United States
You might like
