CADASIL_Consortium @cadasil_c
This NIH-funded study is looking at challenges in persons with a NOTCH 3 variant that causes CADASIL. cadasil-consortium.org Joined January 2022-
Tweets41
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Followers45
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Following24
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Likes6
Register now for our upcoming webinar with Dr. Allison Lindauer, assistant professor and gerontological nurse practitioner at Oregon Health Science University on Wednesday, September 25th! ucsf.zoom.us/webinar/regist…
Watch our webinar for practical guidance on #CADASIL, covering genetic counseling, the testing process, and the implications of results. We discuss preparation, risks and benefits, insurance, family planning, and communication with family members. youtu.be/AuDmDdn1Nw4
The #CADASIL webinar from 07/29 is now avaiable. youtu.be/sSUgk169-Eg
Please join us July 29 (5pm PST, 6pm MST, 7pm CST, 8pm EST) for a webinar on the controversies in #CADASIL led by University of San Francisco Principal Investigator, Michael Geschwind. Register using this link: ucsf.zoom.us/webinar/regist…
Join us for an upcoming #webinar, hosted by our central team on Wednesday June 26th, where some of our coordinators will discuss study updates and have a discussion with the #CADASIL community. Use this link to sign up: ucsf.zoom.us/webinar/regist…
Join us for an open discussion of resources for those affected by #CADASIL following CureCADASIL's morning session. Register for the United Leukodystrophy Foundation Family Conference ulf.org/news/conferenc… (Adult tickets: $50, Children: $30; cost covers entire ULF conference).
Please join the #CADASIL Consortium for our webinar, The Genetics of CADASIL, where University of Washington Principal Investigator, Dr. Suman Jayadev, will be discussing the varying factors implicated in the genetics of CADASIL. Thank you for registering! ucsf.zoom.us/webinar/regist…
#CADASIL is heritable, but is not always passed on; the CADASIL consortium is recruiting familial controls in a national study to better understand this genetic disorder. See our link for more details: cadasil-consortium.org
In recognition of #CADASIL Awareness Day, here is a compilation of #cartwheelsforcadasil participants!
Is your loved one living with #CADASIL? The CADASIL Consortium’s national study is currently looking for family members of persons with CADASIL as controls for our study. See more details at cadasil-consortium.org
We are actively enrolling family members of persons with #CADASIL as controls for our study. Please see the link below for more information: cadasil-consortium.org
Join us for an upcoming webinar with Dr. Stephen Salloway discussing the #CADASIL Consortium Study featuring a panel of participants on 10/17 5pm PT/7pm CT/8pm ET. Please use this link to register; ucsf.zoom.us/j/95589487353?…
If you missed Dr. Biller's #CADASIL webinar hosted by CureCADASIL, we are happy to provide a link to the recording for all those interested in viewing! Click here for more information; register.gotowebinar.com/recording/1679…
We have reached 100 participants! There is still plenty of room for more. Please reach out to us for more information. cadasil-consortium.org #CADASIL
Camren D'Amore @d_camren66604
0 Followers 196 Following
Gary @GaryD1205
270 Followers 2K Following Massive golf lover 🐯 Hatchet Man (Crusaders fc) and love my wee country Northern Ireland, #GlazersOUT #RaiderNation
TeamConnor6 @TeamConnor6
11 Followers 31 Following A family dedicated to raising awareness of the rare disease CADASIL.
Daliah Ross, PhD @daliahross
1K Followers 1K Following Neuropsych Postdoc Fellow @BrownClinPsych 🧠 via @UCSDVAIntern @YUNews @NYUniversity | @INSneuro SMC | @TheAACN STAC | @APADivision40 EAC | she/her | views=mine
Anna VandeBunte @AVandeBunte
425 Followers 397 Following #PhD candidate | Casaletto Lab @UCSFmac I modifiable risk | healthy brain aging 🧠 | vascular health | big fan of moving 🏃🏽♀️
R GB @RGB623726337426
1 Followers 12 Following
thinkCADASIL @thinkCADASIL
15 Followers 6 Following
John Downey @DOW280TEN
11K Followers 12K Following the website is for donations to CADASIL research a cure is very close please help Dr Fanny Elahi in any amount🇨🇦 we need to do this now thanks🇲🇽
Neuron Atlas @NeuronAtlas
75 Followers 909 Following Spreading knowledge about the latest research in #Neurology and risk factors #NeuroTwitter 🧠 Minion MD dreaming about my PhD
Debra Robinson @Debbie61715134
13 Followers 14 Following Biotech Drug Development Executive Who Advances Medicines to Improve People Lives
ruaridhTVO @ruaridhTVO
1K Followers 768 Following Artist/writer/music/dj. Run @Broken20_label & logicofthesignifier & No Roof Only Sky. Favourite Basic Channel is still Quadrant Dub. Usually in a huff. He/him.
Xima García @ximagg
217 Followers 806 Following
ATLGamut @ATLgamut71
4 Followers 156 Following Midwesterner living and working in Georgia. Photography and Fitness nut into cycling, hiking and traveling all around to experience art, culture, and people
Fashion On Wheels @FWfashioned
57 Followers 1K Following A Perfect accessory for that absolutely fabulous lady! 💥 Classic looking pieces is our motto 💥💯 Authentic 💥 DM for orders/enquiries 📲+60176862510
Gadgetgal488 @gadgetgal488
18 Followers 92 Following
Jennifer Nessling @PoshNessJen
25 Followers 468 Following
Stephen Fitzsimons @sfitzsimons081
235 Followers 457 Following Postdoctoral Fellow @IcahnMountSinai 🌎from @ucddublin @RCSI_Irl in Ireland. Research interests: CADASIL, Inflammation, macrophages, microRNAs, EVs and MS.
Andria Burroso @Burr52463Andria
2 Followers 24 Following
Susanna.J.Smith @SusannaJSmith
851 Followers 1K Following Content strategist, podcaster & writer—healthcare, empathy, ethics, genetics, technology. https://t.co/5HClcGSm14 & https://t.co/VAv7qfhoA4
Juliette Lloyd @julietteLloyd
99 Followers 311 Following
Project CADASIL @ProjectCADASIL
183 Followers 216 Following Working to increase awareness of #CADASIL, share resources and news, and secure funding for the advancement of therapies, treatments, and ultimately a cure.
teamconnor4cadasilcur... @teamconnor4cada
41 Followers 108 Following The Connor family is dedicated to raising awareness and funds to for CADASIL research. Help us reach goal!
Paul @Paul28096922158
0 Followers 9 Following
Barb A Hunt @Barb_A_Hunt
24 Followers 89 Following
Karin Castellano @1425hair
1 Followers 11 Following
Peter k @petethegreek007
5 Followers 8 Following
Marci Kay Livingston ... @MarciKayRN
208 Followers 584 Following She/Her Certified Hospice and Palliative Nurse. HRB-TMRN PhD Scholar at the University of Limerick. All opinions are my own.
Jorge G. Ortiz-Garcia... @Jorge_Ortiz_G
849 Followers 933 Following Vascular Neurologist - Neurointensivist. The University of Oklahoma HSC 🧠 Soccer Fan ⚽️ Short Film producer 🎥 All you need 🇪🇨
Ki @kibird
347 Followers 686 Following
Cynthia Ann Monti @cind0510
0 Followers 2 Following
Steve Tanner @paparazorback
20 Followers 68 Following outdoorsman,christian conflict mediator/arbitrator,hobby wildlife photographer PaPa to wonderful gkids
Kegan Brown @Kegb412
527 Followers 659 Following Mortgage Banker Flat Branch Home Loans NMLS - 1965707
Antony Chen @Antonyneuro
170 Followers 109 Following Stroke Neurologist, NTUH, Taipei, Taiwan; Research fellow, University of Calgary, Canada
Fanny Elahi, MD, PhD @FannyElahi
2K Followers 1K Following Physician-scientist on a mission to prevent dementia. CADASIL expert. Blood vessel enthusiast. Associate Professor @IcahnMountSinai – We’re hiring!
Justin R. Lester @Mr_JLester
686 Followers 752 Following Jesus follower. Courts Husband, Cams Dad. BBQ (wannabe) pitmaster. Still learning.
juan pablo millan @juanmillansan
91 Followers 3K Following
ong beng hooi @ongbenghooi1
535 Followers 299 Following Neurologist, Neurophysiologist & Neuromuscular
cureCADASIL @cureCADASIL
457 Followers 91 Following cureCADASIL is a non-profit organization committed to curing #CADASIL and improving the quality of life for those affected by this genetic disease.
bikini_krill @_amy_kate_
185 Followers 689 Following mostly re-tweets, because I’m not very funny or interesting
Andria Burroso @andiepasburr
16 Followers 41 Following
JennyMajersik @JMajersik
295 Followers 212 Following Professor of #Neurology, Stroke Center Dir, #CTSI Co-Dir, Division Chief @UofUNeurology, Associate Ed @StrokeAHA_ASA, @AANmember #neurotwitter #Fulbright
Karen Orjuela Traslav... @DrKarenOrjuela
970 Followers 1K Following Editor-In-Chief @EQN_Journal. Vascular Neurologist with 🏔️ soul and community spirit. Opinions mine @UChicago_Neuro @YaleSOM @SEQUINS24 @AmericanHeartIL
Project CADASIL @ProjectCADASIL
183 Followers 216 Following Working to increase awareness of #CADASIL, share resources and news, and secure funding for the advancement of therapies, treatments, and ultimately a cure.
La Papillon CADASIL F... @lapapillonCF
11 Followers 98 Following La Papillon CADASIL Foundation, Inc. is a registered 501(c)(3) nonprofit organization that was founded by Renee Marie La Fleur, to help patients of CADASIL.
Neurology Journal @GreenJournal
98K Followers 1K Following Neurology is the most widely read and highly cited peer-reviewed neurology journal. It is the medical journal for the American Academy of Neurology.
University of Utah Ne... @UofUNeurology
1K Followers 408 Following The Department of Neurology at the University of Utah is committed to the conquest of neurological disease through patient care, research, and education.
JennyMajersik @JMajersik
295 Followers 212 Following Professor of #Neurology, Stroke Center Dir, #CTSI Co-Dir, Division Chief @UofUNeurology, Associate Ed @StrokeAHA_ASA, @AANmember #neurotwitter #Fulbright
Fanny Elahi, MD, PhD @FannyElahi
2K Followers 1K Following Physician-scientist on a mission to prevent dementia. CADASIL expert. Blood vessel enthusiast. Associate Professor @IcahnMountSinai – We’re hiring!
Karen Orjuela Traslav... @DrKarenOrjuela
970 Followers 1K Following Editor-In-Chief @EQN_Journal. Vascular Neurologist with 🏔️ soul and community spirit. Opinions mine @UChicago_Neuro @YaleSOM @SEQUINS24 @AmericanHeartIL
ong beng hooi @ongbenghooi1
535 Followers 299 Following Neurologist, Neurophysiologist & Neuromuscular
Antony Chen @Antonyneuro
170 Followers 109 Following Stroke Neurologist, NTUH, Taipei, Taiwan; Research fellow, University of Calgary, Canada
American Academy of N... @AANmember
45K Followers 1K Following The official account of the American Academy of Neurology.
World Stroke Academy @WorldStrokeEd
14K Followers 2K Following The Educational platform of the World Stroke Organization @WorldStrokeOrg
Cadasilsupportuk @Cadasilsupport1
165 Followers 97 Following CADASIL Support UK is a Registered Charity established in Nov 2017 . Our aim is to raise awareness & provide a network of support for patients, family & carers.
CADASIL Awareness @CADASILAware
121 Followers 5 Following cerebral autosomal dominant arteriopathy with subcortical infarcts and leukoencephalopathy
The Mighty @TheMightySite
50K Followers 2K Following Making health about people: When we ask how you’re doing, we actually want to know! Download our free app to join a community that gets it ✨
Hunter's Hope @HuntersHopeFDN
3K Followers 21 Following Working toward treatments and a cure for Krabbe & Leukodystrophies, advocating for newborn screening and supporting those affected by these diseases.
Adam Mosseri @mosseri
161K Followers 930 Following Father of three boys, married an amazing woman, supporter of Threads and head of Instagram
Andria Burroso @andiepasburr
16 Followers 41 Following
Rare Disease UK @rarediseaseuk
21K Followers 2K Following National campaign run by @GeneticAll_UK to improve the lives of those affected by rare conditions and all who support them. #RareDisease.
International Headach... @ihs_official
8K Followers 628 Following To advance headache science, education & treatment. Our Journal: @JCephalalgia. Find us on https://t.co/wjNPoTFjTr…
Rare Disease Day @rarediseaseday
42K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
The CADASIL Project @CADASILProject
50 Followers 6 Following
NIH @NIH
1.7M Followers 229 Following Official account of the National Institutes of Health. NIH...Turning Discovery Into Health®. Privacy Policy: https://t.co/wOGwZ3gX1M Engagement ≠ endorsement
HDSA @HDSA
6K Followers 1K Following The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease.
cureCADASIL @cureCADASIL
457 Followers 91 Following cureCADASIL is a non-profit organization committed to curing #CADASIL and improving the quality of life for those affected by this genetic disease.Trends for United States
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