Chronic Chronicles @chronicallycool
Too sick right now to think of something catchy.. I'll have to get back to you. -#chronicmigraine - #IBS - #chiarimalformation - #sleepapnea - chronicchroniclesblog.wordpress.com Halifax, Nova Scotia Joined December 2012-
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Guess who's going for their second #MRI in two weeks... #thisgirl #wishmeluck
Going for an Emergnecy head MRI tomorrow morning.. Knowing that the current wait time is around 480 days, I'm terrified...
I have to say, it's not very comforting when both your specialists are worried, but I'm stuck waiting for a MRI before anything can be done😞
I've known for weeks now that I needed to go back for my follow up MRI that I've put off for 4 years..now I'm afraid I've left it too long😔
@BrainAndBowel Hmm! I'll look into it. I had pretty extensive and regular blood monitoring a year or so ago, so I'll have to check if that was included!
Found a better way to describe myself:Girl who's brain thinks she has a constant hangover and decides to stop breathing for fun #causewhynot
Currently in the ER, with what they believe is a broken foot 😐
@hellodiannalove thanks for the rt 💜 this came from an extended stay in the ER, where I realized I needed more in my life than being sick
When snapchat finally gives a #spoonie friendly filter 🙈😷😍
Could ya'll please rt my last tweet? It would mean so much 💜 #BellLetsTalk
@pbartolone sorry for the super late response! I haven't been on it in a while, but shoot me a message if you want :)
But seriously. When you need a drug every 12 weeks, a 6 week delay is insane. But it doesn't matter, because I'm "not missing work"
So my Botox appointment (which was 3 wks late) was pushed 3 more wks. But they called without a blocked # so now I have their direct line 😈
My Halloween Mask 🎃 #CPAP #spoonie #happyhalloween
@flowerchild5692 what kind of mask do you use?? ( of you don't mind me asking!!)
@flowerchild5692 do you have the resmed air sense???
Today is the first day since 2009 my pain has dropped below an 8.. I'm so confused, but so happy #what #spoonie #progress? #fingerscrossed
Well I don't hate the #cpap machine as much as I thought I would.. On the plus side, my mask is white/pink and grey 💁🏻
After being on crutches for the part 5 days, I have a new appreciation for those who use them all the time #spoonie #yallaresuperheroes
Princess, The Tower @APainPrincess
29K Followers 27K Following Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP
All Things Rheumatoid... @RA_information
13K Followers 2K Following Get informed about Rheumatoid arthritis - share your news #rheumatoidarthritis #arthritis
Chris✞chronicpainDA... @ChronicPainDad
22K Followers 21K Following Raising Awareness for #Chronicillnesses🎗Supporting all in #Chronicpain I’m in agony 24/7 but I’ll #NeverGiveUp #StayStrong #YouMatter ✝️ https://t.co/bW802UapEX
Suzan Jackson @livewithmecfs
4K Followers 3K Following Writer with ME/CFS & Lyme & son w/#MECFS & #Lyme; love to travel, read & spend time outdoors w/family & friends; write 2 blogs & author of chronic illness book.
Dana Baker hopes you ... @DanaBaker
2K Followers 981 Following I'm not great at the advice; can I interest you in a sarcastic comment? • Fond of hats, dogs, naps, equal rights, open minds • Migraine/NDPH/Fibro/ThyCa ✌️🦥🥞
Mommah @MommahsMusings
1K Followers 1K Following Mommah to Daine, Beka, Teddy, Kaiser, Freddie, Annie, Alaska and CowBelle on IG MommahsMusings
Lene Andersen @TheSeatedView
5K Followers 4K Following Author, #ChronicIllness #Rheum #Disability Advocate, Photographer, Writer & @HealthCentral #RA site Power Advocate. Is your woke accessible? She/her
Danes B. @danesburch
423 Followers 4K Following Progressive old midwest mom living in the south. Lions / Braves / Pistons / Dawgs fan. Not interested in dipshits.
Jess @JessCeeOnX
1 Followers 30 Following Single Mom/Boy Mom/Psychotic/Neurotic/needs a gin and tonic 🦓💜🧠
Dorothy_DFG @DfgDorothy75707
21 Followers 1K Following
Black 🖤Sheep; @BaaBaa_Ewe
30 Followers 255 Following #Chronic everything at this point 😑. 🖤;🐑 “If you hear hooves,think horses not zebras. But zebras do exist.”
Jamie Jones @77jamiebeth
117 Followers 696 Following Mama of Reese and Bradley and currently fighting breast cancer. Ehlers Danlos, Chiari, Hashimotos, Thoracic Outlet, Tethered Chord and Scoliosis warrior!
laura 💙 @laurakay27
276 Followers 936 Following
ShakingThePainAway @Lorelei6623
109 Followers 497 Following Wife of ShakyDad. Both have Young Onset Parkinson's. 20+ yrs. Authors, Advocates, Speakers! Love our God, Family, Troops & Country USMC Family🇺🇸🙏❤MAGA
NewFrame @NewFrameThePain
865 Followers 3K Following NewFrame is a digital health platform that supports physical therapist's care for patients with chronic pain 🔬 🧘♀️💤🥑🏃♀️🩺
Nerivio by Theranica @Theranica
504 Followers 852 Following Nerivio® by Theranica is a non-invasive, FDA approved, safe & drug-free migraine solution.
Provide Aimovig for m... @PutAimovigOnNHS
866 Followers 1K Following Group of migraine patients calling for 'life changing' new medicine Aimovig to be provided on the NHS -- Emphasis now on 'provided' as many trusts still won't
Billy Hanlon @bhanlon15
14K Followers 14K Following ME/CFS | Long COVID | IACC | https://t.co/Qitpgq8anF
Mimi @Iknowright13
180 Followers 786 Following These are my opinions, and I'm no longer keeping them to myself. I'm sharing the wisdom in 160, or less. Consider this your warning.
Anna M Cobián @an_meco
35 Followers 196 Following
🚜 Jessi 🐎 @jessiaus95
581 Followers 3K Following Heart Surgery Survivor , Bisexual, Truckers Daughter, Chronic pain warrior, Caregiver and Schnauzer Dog Momma.
Rachel Kate Hiles🥄... @rachelkhiles
610 Followers 1K Following Rare Disease Patient Advocate Living, Coping, And Mom-Ing With Chronic Pain, Mental Illness & Low-Vision
sparkle sparkle @sparkleliz99
21 Followers 354 Following
craig & mel & steph &... @the__watchers
15 Followers 54 Following #invisibledisability #spoonie #chronicpain #lyme #servicedog #sdit #disabled #chronicillness #research but mostly, #friends
Migraine World Summit @MigraineSummit
6K Followers 2K Following Annual largest migraine patient event since 2016. Free, online, with 30+ leading experts on migraine. 🧠 https://t.co/t4Fr9GyDgQ
Chronically Morgan @chronicallymorg
1K Followers 3K Following Working on my p̶a̶i̶n̶ bananas. One day at a time. #fibromyalgia #chronicmigraines #gaps ~♥️️'s ☕🛀🌴🎁🌊📷🥄—🇨🇦 & 🇦🇺
Robin Davin @RobinDavin
93 Followers 1K Following My life has it's challenges, but, I get by. I will not complain, as, I know it could be worse...and others are fighting tougher battles than I am!
Migraine Solutions LL... @Relaspen
48 Followers 162 Following Relaspen, currently in development, is a portable migraine relief device that can be administered by anyone, anywhere. We're launching our crowdfunding 10/15!
Leola Thysa @Leola_thysa
45 Followers 147 Following #Chiarimalformation #Chronicillnesswarrior #toddlermom #boymom #adhd #mentalhealthwarrior #bpd
LightUpTheLandmarks @LightuptheLand1
317 Followers 3K Following Established in 2016 as a way for patients to visually raise awareness by inviting local buildings and landmarks to show support by lighting up at night
ChiariCrusaders @ChiariCrusaders
20 Followers 63 Following Raising awareness for Arnold Chiari Share your story! Instagram-Chiaricrusaders
Felicia Jaremus @FeliciaJaremus
330 Followers 783 Following Almost-doc, Mathematics education, gender, equity, @Uni_newcastle, @UON_TTRC. Chronic pain advocate. Meditation teacher in training. Views my own. She/her
erin.browne @crazyboutowlz
17 Followers 291 Following
Psoriasis Support @PsoriasisSuppor
520 Followers 3K Following
hannah marie koehn�... @HannMontann
351 Followers 682 Following hmk. 30. michigan. i’m a sick kid, but i’m a warrior. rest easy dad. author/writer.
menieres disease @menieresSup
220 Followers 2K Following
Chiari Bridges @ChiariBridges
353 Followers 388 Following #ChiariMalformation #EhlersDanlosSyndrome #Syringomyelia #Chiari #ChronicPain #ChronicIllness #EDS
JtheRattlerNolesFan @stlperspective
531 Followers 2K Following Husband, Son, Father, Grandfather, Uncle, Music #mswarrior #blackmandepressed #EclecticExperience
migraineloretta @lorettamigraine
9 Followers 23 Following #chronicmigraine #ibs #chronicillness #transformedmigraine #spoonie
lizzy cochran @lizzycochran1
0 Followers 2 Following
Melody Lewis-Stewart @LStewartMelody
512 Followers 7K Following Woman of God, Insurance Underwriter, Wife, Mother of 2 sons, Daughter, Music lover, Reader, SC State Bulldog alumni...to God be the GLORY!
Lau🌸🌈 @LauraWasilewsk8
202 Followers 641 Following 🌟 Chronic Illness & Mental Health Awareness 🌟 IIH & Chronic Migraine 🌟 🌈 LGBT 🌈 🌸🌼🌷
Scooter @scootnscooters
95 Followers 1K Following Helping Disabled Individuals be Able to be Independent With Their Pets.
Fibromyalgia @fibromyalgiaedu
365 Followers 792 Following #Fibromyalgia Education (FE) is a comprehensive website that provides tips, strategies and #empathetic support to #fibromyalgia warriors around the world
Diva Foster @chiari_diva
78 Followers 579 Following Survivor/Warrior 2 brain surgeries/Advocate for Chiari Malformation/disabled/retired/Married my soulmate/1S/1D/2GS/ 3GD/ 1GGD 💜🙏
Summer Plum @howtopatient
51 Followers 302 Following Patient advocate. Lived experience with EDS, MCAS, MCTD, dysautonmia, and migraine. Helping others more easily get the care I had to fight for. #howtopatient
Napp Queen @NappQueenx
260 Followers 788 Following
Neuroaesthetic Farmho... @NeuroFarmhouse
2K Followers 5K Following Prescribing Creativity through Neuroaesthetics for Chronic Illness | Where Art Becomes Medicine.
Migraine Escape @migrainescape
242 Followers 1K Following 100% ALL NATURAL Australia TGA Listed Complementary Medicine. Min side effects. No pills, drugs, needles, surgery. Nature +Science =awesome results. CGRP beware
Miriam Kinyanjui @MiriamKinyanj10
6 Followers 59 Following Stay at home mom/ zookeeper to 3 cute monkeys.
Princess, The Tower @APainPrincess
29K Followers 27K Following Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP
Chris✞chronicpainDA... @ChronicPainDad
22K Followers 21K Following Raising Awareness for #Chronicillnesses🎗Supporting all in #Chronicpain I’m in agony 24/7 but I’ll #NeverGiveUp #StayStrong #YouMatter ✝️ https://t.co/bW802UapEX
Dana Baker hopes you ... @DanaBaker
2K Followers 981 Following I'm not great at the advice; can I interest you in a sarcastic comment? • Fond of hats, dogs, naps, equal rights, open minds • Migraine/NDPH/Fibro/ThyCa ✌️🦥🥞
Louise Hunt @louisehelenhunt
2K Followers 147 Following She/her✨• #IBD #ostomy blogger & advocate • #boweldisease awareness & education • @crohnscolitisuk Research Champion • AAT student
Mommah @MommahsMusings
1K Followers 1K Following Mommah to Daine, Beka, Teddy, Kaiser, Freddie, Annie, Alaska and CowBelle on IG MommahsMusings
Lene Andersen @TheSeatedView
5K Followers 4K Following Author, #ChronicIllness #Rheum #Disability Advocate, Photographer, Writer & @HealthCentral #RA site Power Advocate. Is your woke accessible? She/her
Justina Marianayagam,... @_justinam
2K Followers 1K Following Pediatrics Resident @UBCPediatrics |interests in policy & rural health | 2nd gen immigrant et #bilingue 🇨🇦
Mia @BreatheMia
1K Followers 409 Following Living life with Chronic Migraine, Gastroparesis, and other chronic illnesses.
Chronic Teacher @ChronicTeacher
41 Followers 63 Following Chronic Teacher is now CLOSED. Please head over to my new blog, @amytalks_life 💕
Amy Soranno @AmySoranno
4K Followers 3K Following Working at the intersection of animal advocacy, public policy, and systems change.
Disco Quantum Leaping @wwkeshado
128 Followers 196 Following
Hillary Fout @hillarymfout
2K Followers 4K Following Chronic Migraineur. Boy Mom. Wife. Student. Blogger. Animal Lover. #chronicmigraine #blogger #bloggingmom
🐝 Holly Clark @5primeto3prime
1K Followers 4K Following But go and learn what this means: I desire mercy, not sacrifice. Matthew 9:13 #Johnlock #AnkylosingSpondylitis American of British & Syriac descent [She/Her]
Spoonie Speak @spooniespeak
4K Followers 3K Following #SpoonieSpeak is a #spoonie chat so ppl feel they're out with friends while in their PJs! Creator @whentaniatalks, co-host @hamrowannie. Currently not monitored
🐈⬛ Shackles&P... @Jerzcaligrl
4K Followers 2K Following #MigraineAwareness #MentalHealthMatters #StopTheStigma #J2❤️#SamnDean 🫎🐿️ #RadioCompany 🎤 #TheBoys 🐺 #AdoptDontShop 🐈⬛❤️ #FureverHomes #WhoRescuedWho
American Migraine Fou... @amfmigraine
15K Followers 2K Following The mission of the AMF is to support innovative research that will lead to improvement in the lives of those who suffer from #migraine and other disorders.
American Headache Soc... @ahsheadache
13K Followers 591 Following American Headache Society® professionals dedicated to the study & treatment of #migraine, #headache & facial pain. #AHSAM #AHSAZ @HeadacheJournal
Danielle Newport Fanc... @MigraineWriter
3K Followers 130 Following Migraine sufferer looking to connect, inform and help. #writer #migraine #chronicpain #invisibleillness #spoonie #survivor #wellness #hope #positivity #support
Breanda Taylor @Mrcdsmom
661 Followers 3K Following Jesus Christ of Nazareth follower 🙏🏼 Mercedes Mama #ProtectTheChildren #Caregiver #DementiaWithLewyBodies sucks! $Breandataylor
Giving Patients A Voi... @GivePainAVoice
2K Followers 773 Following Giving Patients A Voice ~ non profit patient advocacy group that champions education & timely access to quality healthcare for Chronic Pain and Chronic Illness.
Leeah the Spoonie @POTSiePrincess_
717 Followers 237 Following POTS • EDS type III •Trochanteric Bursitis• IBS• Herniated Discs & Stonosis• Raynauds• Chronic Migraine • Chronic pain • PTSD • Anxiety & Depression •
Brittani Z @clarabowed
54 Followers 146 Following 29. Taken. Obsessed Old Hollywood fan. Spoonie. Barista. Wife of Buster Keaton.
Sheri (White) New @New2Sheri
808 Followers 575 Following Advocate..ASD..hEDS…CRPS..MCAS..Migraine..Occipital Neuralgia.Fibro..Insomnia..ChronicInflammation..ESFJ..Trauma…@Nevro_HFX..Ambassador..
Sarah Pritchard ♿�... @SarahLouise_146
2K Followers 1K Following 33. Incapable of withholding comment.
Taylor Swift @taylorswift13
84.0M Followers 0 Following And, baby, that's sh0w business f0r y0u. ❤️🔥
lil spoonie🥄 @chronicallyil
2K Followers 2K Following 🏳️🌈 / 22 / chronic pain, chronic migraines, POTS, IBS, PTSD, anxiety, depression, PMDD
Eric T. Tung @EricTTung
121K Followers 79K Following #DigitalMarketing #ContentMarketing & #SocialMedia, Author, Parent. 25x Certified. 2 degrees from @KevinBacon, once stood up @BritneySpears on a date.
raptor queen 🌿🐛... @RaptorQueenA
493 Followers 1K Following 🌻 Amy/Raptor Queen. She/her. EDS ♿ Twitch affiliate. Nature enjoyer. 🌲 Queer disaster. 🏳️🌈 BLM. | [email protected] 💌
MigraineChecked @MigraineChecked
937 Followers 841 Following Smartphone app to help detect migraine triggering foods. We share insights, updates and news within the world of migraines. Powered by ContentChecked, Inc.
chronically me @rndspoons
678 Followers 129 Following migraines, chronic headaches, hyper mobility, reflex neurovascular dystrophy, generalized anxiety disorder, and other mental illnesses
Em Thielking @emthielking
214 Followers 308 Following Approximately 33 chicken nuggets tall. I’m a BSW student in Northern Ontario, interested in macro social work, cats, disability studies, and dementia. She/They
Moniquin ♡ @MoniquinSpeaks
91 Followers 87 Following 👦🏻 || ✝️ || ☕️ || 🇭🇳🇺🇸 I’m out here causing ruckus.
Mitochondrial News @mitochonnews
393 Followers 204 Following
Bendy Pain Warrior @CEitake
1K Followers 2K Following #ChronicLife as a #chronicillness / #raredisease warrior with #EDS & #CVS. Nearly every system in my body is angry at me. #ableismexists & it hurts me.
k @chronic_diva
3K Followers 2K Following
Beks @beckanicolej
174 Followers 205 Following dog connoisseur of sorts. sardonic spoonie. deeply apologetic for the things I tweeted when I was 19.
SaRo ♿️ @inchronicpain
2K Followers 247 Following Life with #ChronicPain. Fighting facial and head pain from TMJD, migraines, #TrigeminalNeuralgia, plus #Endometriosis, since I was 12 years old.
TheMamaSpoon @TheMamaSpoon
24 Followers 92 Following Musings from a chronically ill mother of 2. Finding joy amidst the pain. Instagram http://t.co/nIDiwaF6DS, Pinterest & Facebook http://t.co/eDtt7YP4OL
Dr. Brian Goldman @NightShiftMD
104K Followers 4K Following ER MD Author of four bestsellers including Nightshift, Power of Kindness and Power of Teamwork. My latest book is The Casino Shift. RTs are not endorsements.
Sickboy Podcast @sickboypodcast
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teamteer @teer4health
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Kala Brand Music @kalabrandmusic
8K Followers 101 Following Welcome to the Kala Brand Music profile! Established in 2005, Kala's mission is to design and build affordable, unique, and quality instruments for all players.
MoreThanAMigraine @StopthePain_CM
323 Followers 186 Following #ChronicMigraine suffer for 10 yrs...Migraines for over 20 yrs. But I AM More than a Migraine! Aspire to being forever Grateful & Hopeful!
brooke @brklynbouncer
691 Followers 425 Following
Migraine Again @MigraineAgain
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1K Followers 2K Following Artist. Entrepreneur. Autoimmune & CNS Servant. 3rd Generation Migraine Royalty. #POTS #spoonie #ChronicLife #Royal
CareZone @CareZone
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60 Followers 273 Following She/her Terrible friend and lover of snakes. #hsssarmy
Texas Spoonie 🥄 Al... @texasspoonie
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MyMigraineLife (Sarah... @MyMigraineLife
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Lori-Ann Holbrook @citygirlflare
3K Followers 2K Following https://t.co/Qk7LIc9g8s, Vol. w-Nat'l Psoriasis Fndtn, writer https://t.co/BbMm6DnJqj & https://t.co/saD1OYMexA. #psoriaticarthritis #eds #spoonie
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61 Followers 231 Following I'm what I am and I'm what im not, I live to love and laugh alot, and thats all i need...
ACM @lifewithchiari
44 Followers 41 Following Daily battles might not be worth the fight, but every life is worth the war. #conquerchiari #chiariawareness #chiariprobs #chiaristrong






