James - Diagnosed Dad @diagnosed_dad
👋🏻 A Dad living & dealing with MND/ALS 🎙️ Host - BEYOND MND PODCAST 📷 Ambassador - @challengingmnd linktr.ee/diagnoseddad Bournemouth, England Joined May 2023-
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‘This condition holds no prisoners’ Closing off my speech in the Houses of Parliament. Full video ⬇️ youtu.be/OyQYIKg-JBc?si… #mnd #als #housesofparliament #motorneurondisease #fortunate #thankyou
Explaining to MP’s in Parliament the hope for Interleukin 2. Full video here ⬇️ youtu.be/OyQYIKg-JBc?si… #newdrug #interleukin #trial #hope #treatment #mnd #als #motorneuronedisease #lougehrigsdisease
Thank you for your consistent hard work and awareness raising @diagnosed_dad 💙
Thank you for your consistent hard work and awareness raising @diagnosed_dad 💙
I made the @mndassoc Thumb Print magazine 🧡💙 mndassociation.org/media/thumb-pr…
I would like to offer you a once in a lifetime chance to join a club…. Full video here ⬇️ youtu.be/OyQYIKg-JBc?si… #mnd #als #motorneuronedisease #mnda #appg #club
Entering Parliament 😳 Watch full video here ⬇️ youtu.be/OyQYIKg-JBc?si…
We'd like to see an urgent review of the cost threshold NICE uses to judge whether new drugs should be approved for the NHS. It’s appalling that people with MND face being denied what could be a life-changing treatment because of the outdated systems for approving medicine.
Making my way to the House of Parliament. Full video available on YouTube. ⬇️ youtu.be/OyQYIKg-JBc?si… #housesofparliament #london #bournemouth #train #mnd #motorneuronedisease #als
Its been a while 👋🏻 After a social media break I’ve Just finished editing a video on my day at Parliament. Watch full video here ⬇️ youtu.be/OyQYIKg-JBc?si… #mnd #als #appg #westminster #housesofparliament #london
What a great day at Parliament with @APPGonMND so much to share which I will. Thanks for everyone’s lovely messages & @Sheilas_Perfume for the help today x
Little trip to our favourite place @PaultonsPark We had a blast as always but also checked out their disabled facilities which some may find of interest. ⬇️ youtu.be/stNmhZM5uVM?si…
Today is Rare Disease Day It’s been 6 years since I was diagnosed with ALS It’s been 5 years since I walked It’s been 3 years since I could breathe on my own It’s been 2 years since I could use my hands It’s been 0 days & counting since I have allowed this disease to beat me
My speech/story I have been asked to share by The All Party Parliamentary Group that I’m going to speak in Parliament on the 13th, DONE. My hands and arms feel battered from typing but bring it on💪🏻 Thank you to @StarkeyJennie for your help & input🙏🏻 #mnd #als #parliament #appg
It took all day to upload but my second YouTube video is now live. So if anyone would like to watch me waffle on about vitamins that have and haven’t helped me and the lack of treatment for MND please feel free 💪🏻 You may even find it helpful 🤷🏻♂️ ⬇️ youtu.be/MaYquqG13P0?si…
Please feel free to subscribe to my new YouTube channel. I’ll be sharing longer videos on my journey living with MND along with podcast conversations from other MND warriors & professionals within the community. Many thank x ⬇️ youtu.be/6yLHhEDdnmk?si…
Ollie was inspired to fundraise by his "utterly resilient, witty and passionate" Auntie Sarah who has MND. Running further every day in Feb, he has already raised a HUGE 22k! Ollie and his friends are sharing his journey throughout the month on his Just Giving page... 🏃
“In March I'll be sharing my experience with MPs and Peers at the All-Party Parliamentary Group on #MND. I'll be banging the drum for potential treatments. You can use the MND Association's e-action tool to invite your MP to the meeting: ecampaigns.mndassociation.org/page/143285/ac…”
Today is #RandomActOfKindnessDay ! There are so many great ways to brighten up someone's day. Why not donate to Challenging MND and help us make lasting memories for people living with #MND and their loved ones. Donate here ➡️ paypal.com/uk/fundraiser/…
What is an EMG test? My experience with the two of these tests I had done to diagnose me with MND/ALS. Watch full episode here - youtu.be/6yLHhEDdnmk?si… #mnd #als #emg #doctor #motornuronedisease #awareness
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@All4Mnd @diagnosed_dad Even my grandma's cat was stunned! 😲🐱
@diagnosed_dad @mndassoc @DarbyRimmerMND @united2endmnd @edslater @Rob7Burrow @burrow_geoff @mndresearch Thank.you so very much for speaking out for all those affected, this means so much
@diagnosed_dad @mndassoc @DarbyRimmerMND @united2endmnd @edslater @Rob7Burrow @burrow_geoff @mndresearch Top man thank you it means everything
@diagnosed_dad @mndassoc @DarbyRimmerMND @united2endmnd @edslater @Rob7Burrow @burrow_geoff @mndresearch Hoping and praying that a cure or better treatment comes soon for MND ,dementia, MS, and Parkinson's (which l've got!) 🙏
👏🏻🙏
‘This condition holds no prisoners’ Closing off my speech in the Houses of Parliament. Full video ⬇️ youtu.be/OyQYIKg-JBc?si… #mnd #als #housesofparliament #motorneurondisease #fortunate #thankyou
@diagnosed_dad @mndassoc @DarbyRimmerMND @united2endmnd @edslater @Rob7Burrow @burrow_geoff @mndresearch Well done, James! Great advocacy 👍
#EASTENDERS newcomer @KirstyJCurtis took part in the #LondonMarathon #otd 2015, raising awareness and almost £8,000 for MOTOR NEURON DISEASE! KIRSTY lost her beloved uncle to this horrific condition in 2010. 💙THANK YOU Kirsty, and so sorry for your loss🧡 #MND #MoreNeedsDoing
This is so powerful... Please listen!!!!!!! @diagnosed_dad #MND
I would like to offer you a once in a lifetime chance to join a club…. Full video here ⬇️ youtu.be/OyQYIKg-JBc?si… #mnd #als #motorneuronedisease #mnda #appg #club
@diagnosed_dad @mndassoc @Sheilas_Perfume I meant it.
Please take a look at this open letter addressing the very important issue regarding the lack of information around the results and data from the Mirocals trial. The reason it is so important is that we are being denied access to a potentially effective treatment, Interleukin 2.…
Huge thanks @DarbyRimmerMND @stephhoughton2 @Rob7Burrow @burrow_geoff Jo & @edslater Marcus & Louise Stewart for sending open letter requesting TRANSPARENCY on commercial contracts for #Mirocals to involved scientists & @mndassoc To show support please see united2endmnd.org/support-miroca…
@mndassoc @Sheilas_Perfume @diagnosed_dad Wel deserved James. You are amazing.
Thank you for your consistent hard work and awareness raising @diagnosed_dad 💙
I made the @mndassoc Thumb Print magazine 🧡💙 mndassociation.org/media/thumb-pr…
Huge thanks @PeterAsh_85 #Corrie for supporting @DarbyRimmerMND @Rob7Burrow @burrow_geoff @edslater Marcus & Louise Stewart letter to @mndassoc @neuroshef @kingsmnd @BSMSClinNeuro @QMneuroscience asking for TRANSPARENCY on #Mirocals trial. Pls support @ united2endmnd.org/support-miroca…
Yet again, I tell someone I have MND and they mention @Rob7Burrow ❤️ What amazing awareness raising by Rob and his wonderful family including the legend that is @burrow_geoff 🙏❤️
⚽️ STEPH HOUGHTON is an all-round #England 🏴 footballing legend and a national treasure! 🎈 HAPPY BIRTHDAY! ❤️ THANK YOU for the legacy you have left for females in #football and for supporting those living with #MND, since your beloved husband Stephen Darby was diagnosed...
The football community have come together to do something very, very special ❤️ #marchoftheday @stephhoughton2 @BBCBreakfast
@diagnosed_dad @mndassoc @APPGonMND Thank you. ❤️
@diagnosed_dad @mndassoc Wow - well done, it was a brave thing you did, deserves recognition
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