ELBCC @elbcc
Discovery Science, Translational Goals, Clinical Impact elbcc.org Europe Joined April 2019-
Tweets252
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Following31
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The ELBCC has news regarding its website and how to join the consortium! Curious? Follow us at the BlueSpace! @elbcc-2018.bsky.social. We will stop posting here starting March 1, 2025.
My home country Scotland 🏴 NO cervical cancer cases detected in vaccinated women following HPV immunisation! None! Zero! What a stunning achievement ! The HPV vaccine ie a modern medical miracle!
Do you know what one of the simplest things you can do to raise awareness of #LobularBreastCancer is? Call it by its name. Most people have never heard of Lobular Breast Cancer so the more we name it and talk about it, the more awareness we will raise.
Based on the growing discomfort with this platform and the current developments, the ELBCC will cease activities on twitter/X and move to the Blue Space. Join us! #bluesky #ELBCC_2018
The Dutch have prepared an awareness video (with English subtitles!) in the context of the Global #ILC #AwarenessDay and their afternoon Symposium. Learn about ILC and practice your Dutch! @PWBDerksen @Veertje24770384 @Cancer_UMCU #SabineLinn #15October
The Dutch have prepared an awareness video (with English subtitles!) in the context of the Global #ILC #AwarenessDay and their afternoon Symposium. Learn about ILC and practice your Dutch! @PWBDerksen @Veertje24770384 @Cancer_UMCU #SabineLinn #15October
Thanks a lot for the fantastic edition of the #ilcsymposium 2024 in Leuven! What an amazing community! Step by step moving together in the right direction for patients with #lobular breast cancer @elbcc @PWBDerksen @oesterreichs @aftimosp @AVincentSalomon
Just started the final day of the #ILCSymposium 2024. @lab_kok is kicking off the TME session with a keynote on #immunotherapy on #ILC.
A brilliant talk from Christiane Kuhl (Aachen) on the beneficial use of #MRI for #ILC #diagnostics. #ILCsymposium
And we are off!!! The 2024 Leuven edition of the ILC Symposium!! Starting is Tanja Spanic on patient-partnered research. @ChristineDesme2 @PWBDerksen @AVincentSalomon @oesterreichs #lobsterpot #ca19138
Everything you need to know about Lobular Breast Cancer My latest video is up on my @YouTube channel @lobbccanada @LobularBCUK @LobularIreland @LobularResearch @lobularmoonshot @LobularBCA @ELBCAdvocates @BreastDense youtu.be/mILpah3vUFc?si…
Correct Pathological Diagnosis of #ILC requires the specific antibodies and optimised protocols! We just posted the SOP, including a link to the recently published white paper. elbcc.org/News. Please implement in your daily diagnostics and spread the word!!
Registration is now open for the annual invasive #lobular breast cancer symposium (ilcsymposium.com) which will take place in Leuven, Belgium, this year on September 23-25! Register now as places are limited. @OncoAlert
A milestone has just been published! Recommendations and a SOP from the COST action #Lobsterpot to correctly diagnose #ILC is out @ModernPathology. Onwards and upwards toward a WHO guideline! doi.org/10.1016/j.modp… @AVincentSalomon @ChristineDesme2 @PWBDerksen @COSTprogramme
The clinical #lobsterpot working group is getting things done! Teaming up with global partners to build #ILC specific diagnostics and trials. @PWBDerksen @ChristineDesme2 @AVincentSalomon @LobularBCUK @LobularIreland
We're appealing to all Cancer Organisations to link this Invasive Lobular Carcinoma Patient Information Leaflet on their Website A super evidence based summary of Lobular Breast Cancer available to download in 24 European Languages elbcc.org/Leaflet
hey #lobular researchers! @LobularBCA together with @AACR and the DEBORAH MUELLER FOUNDATION are funding #ILC INNOVATION AND DISCOVERY GRANTS!! Check out aacr.org/grants/aacr-lo…
Pathologists ahoy! Excellent work by #Gronewold et al. demonstrates restoration of junctional characteristics in metastatic #ILC cells to the colon. Stromal signals at work?? We co-author on this paper in J. #Pathology @gronewold @elbcc #lobsterpot doi.org/10.1002/2056-4…
ELBCC partners led by #Christgen published data showing that #ILC can change phenotype depending on the metastatic context. Restoration of P-cadherin based cell adhesion overrides morphology!! Implementations for #pathologists and diagnostics! doi.org/10.1002/2056-4… @PWBDerksen
"I had three mammograms that were 'clear'." TV presenter @JuliaBradbury speaks to @mrdanwalker about why her cancer was "missed" three times, as the type of breast tissue, that she and many other women have, means cancerous tumours are more difficult to spot on a mammogram.
So happy to have been able to work with growing European #lobular breast cancer advocacy @elbcc @LobularBCUK @LobularIreland @ChristineDesme2 @PWBDerksen @CBrisken thanks @hiplinemedia for all your efforts here in US and Europe. Fulfilling @LPseattle ‘s mission 🙏💔 #GlobMob

Double Whammy @double_whammied
9K Followers 7K Following Everything was going great until this whole breast cancer thing.
Dr. Steffi Oesterreic... @oesterreichs
2K Followers 401 Following Proud mother, wife, and Breast cancer researcher. @UPMCHillmanCC @PittTweet @UPMCnews @MageeWomens @AdrianVLee #lobmob All views are my own.
Jason A. Mouabbi MD @JAMouabbi
3K Followers 877 Following Breast Medical Oncologist @mdandersonnews | Lobular Specialist | Lead of #ILC Working Group | co-Lead of HR+ Working Group | Chair of @LobularBCA
Dr Liz O'Riordan @Liz_ORiordan
67K Followers 9K Following Author, Speaker and Breast Cancer Content Creator
Adrian Lee @Adrianvlee
2K Followers 599 Following Husband and father, breast cancer researcher and advocate, precision medicine leader, data parasite
Patrick WB Derksen @PWBDerksen
345 Followers 81 Following Professor, Biomedical Scientist, Humanist, Liberal. Tweets are mine.
Siobhán Freeney Advo... @BreastDense
3K Followers 5K Following Patient Advocate Breast Density //Lobular Breast Cancer // Relevance of Essential Screening MRI for Women with Dense Breasts #MakeTheRequest #LivingWithLobular
LobularBCUK @LobularBCUK
1K Followers 1K Following Lobular Breast Cancer UK is a patient advocacy charity working to improve outcomes for people affected by lobular breast cancer.
Erika Hamilton, MD, F... @ErikaHamilton9
19K Followers 3K Following Director of Breast Cancer Research Program at Sarah Cannon Research Institute | Wife | Mom to 2 Girls | Tweets are My Own #Oncology #BCSM, #Cancer, COI at link.
Living with Lobular B... @lobbccanada
758 Followers 1K Following C. McKay, MSW, lobular breast cancer advocate and researcher, dx. 2013, lobular bc skin recurrences x4. Interested in policy, politics and practice.
George Sflomos @sflomos
1K Followers 2K Following Cancer Researcher passionate about Lobular Carcinoma, Preclinical Oncology, Discovery Science & Advocacy @LobularBCA Member ECR Council @EACRnews
Jo Taylor BEM @abcdiagnosis
21K Followers 19K Following Founder of After Breast Cancer Diagnosis & living with secondaryBC, #breastreconstruction, signposting, support #patientadvocate #blogger, #campaigner #activist
Julia Katherine @jackel626
519 Followers 434 Following Metastatic Thriver/Advocate Lead Research Advocate and Publications/Clinical Trial Curator, Writer, Lobular Breast Cancer Alliance @LobularBCA Tweets are my own
Darlaine honey @darlaine_honey
1K Followers 3K Following Sexual health advisor. mother, sister, auntie, friend. Be nice, it doesn't hurt. Invasive lobular breast cancer advocate and terrier woman.
Claire Turner @ClaireTTweets
2K Followers 4K Following Cultural consultant & Chair of @LobularBCUK Love water, wild places, wellbeing & curious wondering. #LobularBreastCancer Patient Advocate Views my own
Megsie @warriormegsie
6K Followers 6K Following Breast Cancer Survivor | Blogger | Advocate | Voice Over Actor | Cat Mom | BLM ✊🏾 | Mental Health Matters |Storyteller | Same handle on bsky! 💙
Christine Desmedt @ChristineDesme2
784 Followers 206 Following Head Laboratory for Translational Breast Cancer Research, KU Leuven. Committed to personalize treatment for patients with breast cancer.
David W. Lim @DavidLimMD
724 Followers 792 Following MDCM MEd PhD FRCSC FACS Breast surgical oncologist/Breast Ctr Med Dir @WCHospital #breastcancer scientist @WCHResearch Assistant Professor @UofTSurgery @UofTGSx
Philippe Aftimos, MD ... @aftimosp
6K Followers 4K Following Med Onc, Clinical Trials Development Leader @JulesBordet #BreastCancer #PrecisionMedicine. Citizen of wokistan. Ecolo and vegan💚🌱Oud 🎼 💛💙⚽️Views are mine.
Rob Clarke @RobClarkeLab
2K Followers 2K Following Breast biologist; researching stem cells in development and cancer, and signalling esp. Notch and Wnt. Models inc. patient-derived organoids and xenografts.
Pedro Freire, MD @pedrojfreire
506 Followers 809 Following Medical Oncologist at Recife-PE, Brazil. Former fellow @ICESP, USP. Special interests in young women malignancies and lobular breast cancer. Views are my own.
Kristen @Kristen77295621
51 Followers 134 Following
Lorraine Churchill @Rain_churchill
69 Followers 349 Following
ROS1 Cancer Spain @ROS1CancerSpain
137 Followers 1K Following Because everyone deserves the best diagnosis and the best treatment for their disease. #ROS1 advocate. #ROS1agnostic
Lesley Goodburn @lgoodbu
6K Followers 7K Following Using @Sethsstory99 to improve end of life care & raise awareness of pancreatic cancer #sethslegacy Views are my own
Winsome Journals @JournalsWinsome
224 Followers 7K Following WINSOME PUBLISHING. Articles Publishing
elaine nangle @laineyroo
46 Followers 155 Following
Dynami Foundation for... @DynamiFound
15 Followers 48 Following Dynami = strength in Greek. Empower the lobular breast cancer community w/ research, survivorship support, & education. Together, we're stronger.
Europa Donna Albania @EuropaDonnaAl
97 Followers 226 Following Europa Donna Albania është shoqata shqiptare për luftën kundër Kancerit të Gjirit. Pjesë e Koalicionit Europian të Kancerit të Gjirit EUROPA DONNA
Katie Torrington @KKTorrington
188 Followers 2K Following Strategic partnerships expert working to build corporate and foundation relationships. All views are my own.
Andrea Lener @AndreaLenerIOM
1 Followers 31 Following
Amanda Fitzpatrick @fitzpat_a
198 Followers 343 Following Clinical Senior Lecturer @Kings College London. Medical Oncologist @Guy’s and St Thomas’ NHS Trust. Brain mets researcher. @WSETglobal Level 3 certified
Alice Francisco @draalicefrancis
227 Followers 1K Following Mother & Runner | Thyroid Cancer Survivor | Breast Surgeon, MD MSc | CEO Maple Tree Cancer Alliance Brasil | tweets are on my own
Julia Foldi, MD PhD @JuliaFoldiMD
499 Followers 354 Following Breast Medical Oncologist @UPMCHillmanCC @MageeWomens via @YaleHemeOnc @YaleIMed, @NYUGrossman, Immunology @WeillCornellGS.
Wendy @wendy_marder
42 Followers 868 Following
tatsunori_shimoi 下�... @shimoi_oncology
1K Followers 1K Following I am a medical oncologist. My areas of expertise are breast cancer, sarcoma, gynecologic cancer, urologic cancer, and rare cancers.
Dr Angélica Santiago @ismenasg
762 Followers 1K Following Breast cancer metastasis & dormancy | Research Scientist @CNIOStopCancer | Still @OfficialUoM | all NOTCH & bone | Make the 🌍 a better place | The power of HER
EuropaDonnaSlovenija @EuropaDonnaSLO
311 Followers 470 Following Slovensko združenje za boj proti raku dojk Europa Donna je neodvisna, neprofitna, humanitarna organizacija.
AEM @AEM3292115
0 Followers 1K Following
Dr Adil Daing Officia... @dradiliqbaldain
2K Followers 7K Following Robotic Cancer Surgeon. Designate FSSO Fellow American Society Of Surgical Oncology. Member-American ASCO-European ESSO Cancer Societies.Rt's Not Endorsements.Kori Aldrich @kmaldrich
51 Followers 775 Following
Tracy Bennett @trcbennett5
7 Followers 86 Following
mrn @ye_ensoon
0 Followers 542 Following
Professor Sara MacLen... @SajMacLennan
547 Followers 802 Following Psycho-oncologist (health psychologist) & Director of Operations for UCAN (Urological CANcer Charity); Stakeholder engagement in the design & delivery of care
Elbca @ELBCAdvocates
61 Followers 240 Following
ali @outwithed
425 Followers 4K Following Opinions are probably much more nuanced than you think. Pavements are my nemesis.
Lorey Kristine @LoreyKristine
0 Followers 14 Following
dalia rosano @DaliaRosano
36 Followers 117 Following
RCSI SIM @RCSI_SIM
5K Followers 4K Following The @RCSI_Irl Centre for Simulation Education & Research 📷 https://t.co/tX02dnV01s
Josephine Elugbaju (A... @AnuAkinbo
7 Followers 110 Following
Sophia Leduc @SophiaLed
6 Followers 18 Following Data & Technology Manager @BCIM (Brussels Center for Immunology) @VUB
Haimantika Seel @HaimantikaSeel
177 Followers 3K Following PhD Student at Ben Gurion university, Israel @bengurionuMandy Vere @nfnmandy
1K Followers 2K Following Stockport lass, adopted Scouser, radical bookseller. For women as a sex, always. Join me & sign: https://t.co/9fnzubXrKj
Aurora Sangalli @SangalliAu2003
2 Followers 25 Following
Sue Ellen Murrey @semurrey
34 Followers 338 Following
Christine Hodgdon @christeeny513
4K Followers 3K Following Stage IV Breast Cancer Survivor & Advocate treated at Johns Hopkins #BCSM. Extroverted introvert who loves nature & traveling. Co-founder of GRASP @grasptweets
Stephanie Ad @c4ever23
0 Followers 103 Following
Lucia Borriello @luciaborriell
2K Followers 4K Following Assistant Professor in the Department of Cancer & Cellular Biology @templemedschool and @FoxChaseCancer. We study how the TME regulates dormancy and metastasis.
Steve Miller @SteveMi95086174
34 Followers 325 Following Life is a game, play it Life is a challenge, face it. Life is a book, read it. Life is a stroy, tell it. Life is a war, fight it. Life is a rase, win it.
Angela @AngelaHecyk
260 Followers 1K Following Biotech clinical operations. Ewing’s sarcoma survivor & patient advocate. Sconnie and wildlife ecologist at heart. Views my own.
Neyran ⚖️💜⚖�... @ColakogluNeyran
2K Followers 3K Following #emadder destekçisi #metastatikmemekanseri 2 tatlı kız annesi Biyolog, eğitimci 💛 https://t.co/f0zj6Hinul
Pete Simpson @PeteSim10031537
157 Followers 324 Following Breast cancer genomics researcher at @breast_lab #UQCCR @UQMedicine #invasivelobularcarcinoma #familialbreastcancer #lungcancer
Tian Du @tian_du12
51 Followers 677 Following
Kate Beecher Matthews... @beecher_kate
822 Followers 2K Following Postdoctoral Research Fellow @breast_lab #UQCCR @UQMedicine 🇦🇺🧠👩🔬🌈
LobularMoonShotProjec... @lobularmoonshot
265 Followers 991 Following Raising awareness and funding for research into Invasive Lobular Breast Cancer. #lobularmoonshotproject #lobularbreastcancer
Susan Michaelis @SusanMichaelis1
388 Followers 658 Following Dr Susan Michaelis | Expilot | Air accident investigator | PhD in aircraft contaminated air || Founder: https://t.co/n5EUg0zHKO
Dr. Steffi Oesterreic... @oesterreichs
2K Followers 401 Following Proud mother, wife, and Breast cancer researcher. @UPMCHillmanCC @PittTweet @UPMCnews @MageeWomens @AdrianVLee #lobmob All views are my own.
Jason A. Mouabbi MD @JAMouabbi
3K Followers 877 Following Breast Medical Oncologist @mdandersonnews | Lobular Specialist | Lead of #ILC Working Group | co-Lead of HR+ Working Group | Chair of @LobularBCA
Adrian Lee @Adrianvlee
2K Followers 599 Following Husband and father, breast cancer researcher and advocate, precision medicine leader, data parasite
Patrick WB Derksen @PWBDerksen
345 Followers 81 Following Professor, Biomedical Scientist, Humanist, Liberal. Tweets are mine.
LobularBCUK @LobularBCUK
1K Followers 1K Following Lobular Breast Cancer UK is a patient advocacy charity working to improve outcomes for people affected by lobular breast cancer.
George Sflomos @sflomos
1K Followers 2K Following Cancer Researcher passionate about Lobular Carcinoma, Preclinical Oncology, Discovery Science & Advocacy @LobularBCA Member ECR Council @EACRnews
Julia Katherine @jackel626
519 Followers 434 Following Metastatic Thriver/Advocate Lead Research Advocate and Publications/Clinical Trial Curator, Writer, Lobular Breast Cancer Alliance @LobularBCA Tweets are my own
Claire Turner @ClaireTTweets
2K Followers 4K Following Cultural consultant & Chair of @LobularBCUK Love water, wild places, wellbeing & curious wondering. #LobularBreastCancer Patient Advocate Views my own
Christine Desmedt @ChristineDesme2
784 Followers 206 Following Head Laboratory for Translational Breast Cancer Research, KU Leuven. Committed to personalize treatment for patients with breast cancer.
Philippe Aftimos, MD ... @aftimosp
6K Followers 4K Following Med Onc, Clinical Trials Development Leader @JulesBordet #BreastCancer #PrecisionMedicine. Citizen of wokistan. Ecolo and vegan💚🌱Oud 🎼 💛💙⚽️Views are mine.
Christine Hodgdon @christeeny513
4K Followers 3K Following Stage IV Breast Cancer Survivor & Advocate treated at Johns Hopkins #BCSM. Extroverted introvert who loves nature & traveling. Co-founder of GRASP @grasptweets
flora migyanka @maggiemoo09
430 Followers 1K Following 9yr BC Survivor &Advocate #LBCA steering committee, started a foundation @dynamifoundation.org love good champagne 🍾& the beach IG:@uncorkforacure_detroit
Amy McCart @amymccart
316 Followers 515 Following Breast cancer genomics researcher at UQCCR #lobular #metaplastic |she/her
Claudia Fischbach @fischbcl17
2K Followers 369 Following Professor @CornellBME - Biomedical Engineer - Cancer Researcher Interested in the physical microenvironment and #ECMatrix of tumors. She/her.
Tone Lien @tonelien
126 Followers 228 Following
laurie hutcheson @lbhutcheson
89 Followers 96 Following
Cancer Research UMC U... @Cancer_UMCU
462 Followers 366 Following The official Twitter account of the Strategic Program Cancer for all cancer research at UMC Utrecht.
Sandra Tavares @SdraTavares
85 Followers 81 Following Cancer Cell Biologist. Junior Researcher. Women in STEM
KarenVanBaelen @VanBaelenKaren
162 Followers 110 Following MD gynecology-obstetrics, PhD candidate at the Laboratory of Translational Breast Cancer Research, KU Leuven with focus on invasive lobular breast cancer
Lobular Breast Cancer... @LobularIreland
1K Followers 1K Following Advocacy, education and awareness of Invasive Lobular Breast Disease with Patients, Researchers and Clinicians #InItTogether #ILC #LobularBreastCancerIRL
Rebecca Dent @RebeccaDSing
1K Followers 246 Following
Leigh Pate @LPseattle
748 Followers 532 Following Founder Lobular Breast Cancer Alliance. Writer. Former political hack. Living w/ #lobular #breastcancer & #ovariancancer. Cancer Research Advocate. Tweets mine
Mechanocontrol @Mechanocontrol
1K Followers 176 Following MECHANO·CONTROL is a @EU_Commission project focused on the mechanical control of the biological function with the aim to abrogate breast tumour progression
Veertje @Veertje24770384
99 Followers 154 Following Samen bouwen aan het realiseren van patiëntwaarde en dit continu verbeteren. Geïnteresseerd in #LobularBreastCancer #CVID #immunodeficiency
Emanuela Busz @EmanuelaBusz
14 Followers 46 Following
Hillary Andrews, PhD @HillStirSci
2K Followers 895 Following passionate about improving cancer research and policy with and for patients || director, regulatory & research partnerships @cancerresrch || tweets = my own
Otto Metzger @Otto_DFCI
888 Followers 452 Following Physician-scientist dedicated to improve treatments for patients diagnosed with breast cancer
Lobular Breast Cancer... @LobularBCA
2K Followers 508 Following Patients, researchers and clinicians working together to advance efficient research and refine treatments for patients with ILC #lobular #LBCA