Fragile X Awareness @fragilexsyndrom

Science Update: Instruction method for parents improves language function in youth with Fragile X syndrome nichd.nih.gov/newsroom/news/… by @NICHD_NIH #nih

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FRAXA Research @FRAXAresearch

5 years ago

The placebo effect has been a particular pitfall in #FragileX #clinicaltrials. FRAXA is working with #pharmaceutical and #biotech partners to develop and test new clinical trial designs that include objective measures to evaluate treatments. fraxa.org/overcoming-the…

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Mac Keith Press @mackeithpress

5 years ago

📕🥳Just Published! New book #FragileX Syndrome and Premutation Disorders: New Developments and Treatments edited by Randi J Hagerman and Paul J Hagerman. Download a free chapter here👉 bit.ly/38GDCqf @NFXFoundation, @FRAXAresearch, @FragileXAus, @UCDMINDINST

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NFXF @NFXFoundation

5 years ago

With all of the new restrictions, returns to virtual schooling, etc. we thought we would remind everyone of our COVID-19 resources page 25+ articles and videos to help you. Check it out and use it at hubs.ly/H0Bgb3_0.

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Fragile X Awareness @fragilexsyndrom

5 years ago

Arbaclofen Returns After 7 Years! paper.li/fragilexsyndro… #fragilex

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Fragile X Awareness @fragilexsyndrom

5 years ago

Fish give insight on sound sensitivity in autism sciencedaily.com/releases/2020/… #brain

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Fragile X Syndrome is the most common inherited cause of learning disability. We support & empower individuals, families & professionals.

Fragile X Society, UK @fragilexuk

3K Followers 1K Following Fragile X Syndrome is the most common inherited cause of learning disability. We support & empower individuals, families & professionals.

Working to find effective treatments & a cure for #FragileX, the most common inherited cause of intellectual disabilities and autism. Facebook: fraxaresearch

FRAXA Research @FRAXAresearch

2K Followers 830 Following Working to find effective treatments & a cure for #FragileX, the most common inherited cause of intellectual disabilities and autism. Facebook: fraxaresearch

Edel Harris OBE (She/... @Edelharris

5K Followers 4K Following I use the Twitter MUTE button when required!

Sussex since 64; Wolves 🐺 since ‘65; Packers since ‘67; Liberal since ‘70; horses since ‘89; Fragile X Syndrome since ‘01; retired since ‘17; pro foreigners

Steve Harris🐺🦞 ... @SteveJHarris

2K Followers 2K Following Sussex since 64; Wolves 🐺 since ‘65; Packers since ‘67; Liberal since ‘70; horses since ‘89; Fragile X Syndrome since ‘01; retired since ‘17; pro foreigners

Intellectual Disabili... @nceidh

1K Followers 1K Following This account is currently not actively managed. You can find us on other platforms @nceidh.

29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay

Rare Disease Day @rarediseaseday

42K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay

CraigMcD @c_mcdonald3

923 Followers 2K Following Retired - views my own.

Connections, information, support & advocacy for the Fragile X community - those living with Fragile X syndrome or Fragile X Premutation-Associated Conditions.

Fragile X Australia @FragileXAus

1K Followers 492 Following Connections, information, support & advocacy for the Fragile X community - those living with Fragile X syndrome or Fragile X Premutation-Associated Conditions.

Sue Fletcher-Watson @SueReviews

13K Followers 4K Following Part-time tweeter. Follow @smrcresearch and / or @supertroopedin for more. And find me on BlueSky @suereviews.bsky.social

I vote for the natural environment and human rights. Dislike those who trample the downtrodden and disadvantaged. Not a fan of ignorance and superstition.

Shawn Wolfe @wolfe_wolfe_fox

63 Followers 412 Following I vote for the natural environment and human rights. Dislike those who trample the downtrodden and disadvantaged. Not a fan of ignorance and superstition.

social: transcendentalist; economics: Henry George; law: Blackstone; philosophy: Plato/Advaita; music: Mozart to Gershwin to Hot Tuna

Randolph Kraus @randolphkraus

117 Followers 460 Following social: transcendentalist; economics: Henry George; law: Blackstone; philosophy: Plato/Advaita; music: Mozart to Gershwin to Hot Tuna

Heather Davidson @htdavidson

5 Followers 126 Following

angel jose pereira @angelpereira450

951 Followers 7K Following

Chuck20176 @chuck20176

4 Followers 124 Following

Will Rogers @WRogers19958

71 Followers 370 Following Live Strong, Be Brave, Act Bold, Nothing is too hard to do and most importantly, Always Believe!

Passionate about truth telling + failures in Mental Health.
Wish to remember Sam Gomm and help others with a memorial and garden for the bereaved.

Heidi Gomm @gommheidi1

156 Followers 629 Following Passionate about truth telling + failures in Mental Health. Wish to remember Sam Gomm and help others with a memorial and garden for the bereaved.

Arianna @AriannaS1033

1 Followers 37 Following Psychology Honors College Student at Pitt

Karyn Manter @KarynManter513

2 Followers 21 Following

V for Vendetta @v10590

0 Followers 44 Following

Julie @Julie9680782219

0 Followers 13 Following

eurodesi @PrajvalRay

150 Followers 363 Following

Sean Cahir @Cahiry001

10 Followers 656 Following

AZAB @AzabG01

0 Followers 62 Following

Chris Chatham @chchatham

2K Followers 3K Following Pure science on blue sky (chchatham dot bsky dot social). On X, pushback on the redshift

Fragile X Syndrome +Autism + SLD+ ADD + Dislexia + Disgrafia = #NeurodivergentsFamily Denied ADA = #HumanRighsViolations #MelendezFamilyCasesMatters

KALA LOVE @kalalovekm

108 Followers 746 Following Fragile X Syndrome +Autism + SLD+ ADD + Dislexia + Disgrafia = #NeurodivergentsFamily Denied ADA = #HumanRighsViolations #MelendezFamilyCasesMatters

patrick King @patrick35078605

0 Followers 10 Following

Paul Baudouin @paul_baudouin

5 Followers 71 Following

Ryan @RG_Willi22

0 Followers 16 Following

Ryan M @RyanM51390463

0 Followers 7 Following

spaceman-spiff @s_m_spiff_2024

229 Followers 717 Following Catholic husband and dad. MAGA. Frightened by the Sleestak

ZombieMomGaming @ZombieMomGaming

19 Followers 141 Following

Sheri L @Sheri_Lee_

124 Followers 1K Following Canadian🇨🇦. Small business Owner .

High quality genomic medicine for patients in the East Midlands / East of England. East Genomic Laboratory Hub (GLH) + East GMSA https://t.co/fHVC57KUvr

NHS East Genomics @East_Genomics

2K Followers 1K Following High quality genomic medicine for patients in the East Midlands / East of England. East Genomic Laboratory Hub (GLH) + East GMSA https://t.co/fHVC57KUvr

NOT MEDICAL ADVICE. 20+ Year sleep medicine savant. Do androids dream of electric sheep? account is not checked.. email me: bthermitcrab@pm.me

BowTiedHermitCrab @BTHermitCrab

195 Followers 225 Following NOT MEDICAL ADVICE. 20+ Year sleep medicine savant. Do androids dream of electric sheep? account is not checked.. email me: [email protected]

ghiim @TimetoSunny

3 Followers 23 Following

cott @CottSleep

3 Followers 65 Following

Andrea Lynch @andiFLCA

37 Followers 149 Following

Newlife the Charity for Disabled Children - helping disabled children and their families in the UK since 1991 #TeamNewlife #FightForOurFuture #ACTNow

Newlife the Charity @Newlifecharity

6K Followers 3K Following Newlife the Charity for Disabled Children - helping disabled children and their families in the UK since 1991 #TeamNewlife #FightForOurFuture #ACTNow

EpiGenRare - Rare Dis... @EpiGenRare

57 Followers 375 Following Official Rare Disease UK EpiGenRare account. Improving the lives of people with epigenetic rare conditions.

REOLUT - Rare Disease... @REOLUT

39 Followers 344 Following Official Rare Disease UK REOLUT account. Improving lives of people with rare conditions of the lower urinary tract.

I'm Pharma graduate owning pharma distribution business at Bellary. Before worked with Ranbaxy, Novonordisk and Meditronics at various levels. Passionate worker

Vishwanath K Kota @6dec3ea98f05448

55 Followers 576 Following I'm Pharma graduate owning pharma distribution business at Bellary. Before worked with Ranbaxy, Novonordisk and Meditronics at various levels. Passionate worker

Jasmine @JasmineDyanand

104 Followers 292 Following Florida $jasminedyanand1987

ManyChickensSage @ManySage

18 Followers 142 Following Cis/Straight/ , She/Her Just being me, Fragile X champion

Vickie Martinez @MartinezVi18111

9 Followers 417 Following

Lauren Dougal @laurendoug4188

0 Followers 12 Following

Gillian Hughes @gillianrose77

12 Followers 40 Following Research Assistant at University College London, Institute of Cognitive Neuroscience

🔬 Scientist, Promoter Designer & Co-founder of Re:Pair Genomics in Toronto. Develop gene therapy for epilepsy, Dravet Syndrome, and rare genetic disorders.

Yosuke Niibori PhD @YosukeNRepair

25 Followers 133 Following 🔬 Scientist, Promoter Designer & Co-founder of Re:Pair Genomics in Toronto. Develop gene therapy for epilepsy, Dravet Syndrome, and rare genetic disorders.

Shane @shane47164

1 Followers 29 Following

Phillip Bishop @TheRealBishop14

6 Followers 38 Following

UK disability charity for all families caring for a disabled child ☎️ support, info & advice ❤️ bringing families together 📢 campaigning for change!

Contact @contactfamilies

33K Followers 6K Following UK disability charity for all families caring for a disabled child ☎️ support, info & advice ❤️ bringing families together 📢 campaigning for change!

Lambinator @Rinalamb10

20 Followers 153 Following If you’re not having fun, you’re no fun at all.

Sabiha Alam @urmialam122

56 Followers 1K Following #PhD Candidate #Integrative Biology #GPSGA Ambassador, OSU #OKState #works on Fragile X Syndrome #Ionome #Gut_Microbiome

Loverofmidgets @dilfandasian

15 Followers 2K Following

Nell @NellNell1593010

0 Followers 123 Following

secondaryspedteacher @secondarys81459

11 Followers 64 Following On the hunt for Secondary Special Educator Resources and Literacy Practices

JP @JP_Nifty

235 Followers 3K Following Mechanical engineer by profession. Aspiring Delta one trader, Trend following using reactive technical analysis.

Pan-Canadian network uniting clinical, scientific and patient experts to improve the health and well-being of individuals affected by rare diseases.

Canadian Rare Disease... @CanadianRDN

355 Followers 819 Following Pan-Canadian network uniting clinical, scientific and patient experts to improve the health and well-being of individuals affected by rare diseases.

Kira woodgate @Misskiraa87

82 Followers 214 Following 3rd year student speech & language therapist 🥰 📚 💬 @SLTHuddsUni 💕family 💕Travel 💕New challenges

Tiago Castelo @castelo_tiago

31 Followers 173 Following

Fragile X Society, UK @fragilexuk

3K Followers 1K Following Fragile X Syndrome is the most common inherited cause of learning disability. We support & empower individuals, families & professionals.

FRAXA Research @FRAXAresearch

2K Followers 830 Following Working to find effective treatments & a cure for #FragileX, the most common inherited cause of intellectual disabilities and autism. Facebook: fraxaresearch

Steve Harris🐺🦞 ... @SteveJHarris

2K Followers 2K Following Sussex since 64; Wolves 🐺 since ‘65; Packers since ‘67; Liberal since ‘70; horses since ‘89; Fragile X Syndrome since ‘01; retired since ‘17; pro foreigners

Fragile X Australia @FragileXAus

1K Followers 492 Following Connections, information, support & advocacy for the Fragile X community - those living with Fragile X syndrome or Fragile X Premutation-Associated Conditions.

Ellen Pitcher @pitcher_ellen

77 Followers 71 Following @Mizzou Alum. Passionate about #fundraising and teaching others the joy of giving. Tweets = mine. RTs ≠ endorsement.

Husband & proud dad of two boys including one with fragile x syndrome. Pharmacist reseach in how integrative medicine could help in #FragileX

ivan SG @ivansimon73

33 Followers 129 Following Husband & proud dad of two boys including one with fragile x syndrome. Pharmacist reseach in how integrative medicine could help in #FragileX

The Fragile X Resource Center of Missouri unites the local community to enrich lives through education, awareness, research and support for Fragile X Syndrome.

Fragile X Resource Ce... @FragileXMO

22 Followers 16 Following The Fragile X Resource Center of Missouri unites the local community to enrich lives through education, awareness, research and support for Fragile X Syndrome.

Laura Devonport @lcdevonport

63 Followers 164 Following Mummy to amazing son and daughter with Fragile X ❤

Fragile X Syndrome @1million4FXS

30 Followers 27 Following

Nyleta McRae @nyleta9

2 Followers 17 Following

Centrelink @Centrelink

31K Followers 32 Following This account is now closed. Stay up to date at @ServicesGovAU and @myGovAU

Kim Jeffryes @boobywoman

308 Followers 623 Following Dance with all ur heart and both ur soles! Fraggle family 💖

Fragile Xproject @fragilexipad

934 Followers 2K Following a dream project about getting iPads to Fragile X patients

I'm a mom to a son with Fragile X Syndrome. He is the greatest gift I've been given in this world. My husband & I team together raising awareness and research $

Amy Watkins @awatkins24

252 Followers 394 Following I'm a mom to a son with Fragile X Syndrome. He is the greatest gift I've been given in this world. My husband & I team together raising awareness and research $

LA Fragile X Assoc @CentralLAFX

136 Followers 106 Following We are the Central Louisiana Fragile X Association, representing Fragile X families in Louisiana.

SocialPilot is a powerful social media suite for agencies, SMBs, & multi-location brands.

Streamlined scheduling, powerful analytics & easy collaboration.

SocialPilot @socialpilot_co

74K Followers 4K Following SocialPilot is a powerful social media suite for agencies, SMBs, & multi-location brands. Streamlined scheduling, powerful analytics & easy collaboration.

Over-thinker. PAMIS #ChangingPlaces Campaign Coordinator. Passionate about access & inclusion. My boy is the reason that #TescoJuniorNappies were created.

Laura Rutherford @LauraRutherford

2K Followers 2K Following Over-thinker. PAMIS #ChangingPlaces Campaign Coordinator. Passionate about access & inclusion. My boy is the reason that #TescoJuniorNappies were created.

26 y/o twins raising awareness of Fragile X Syndrome. We work, support JTs & play rugby for Borders/Scottish Clan/Scottish. Dad helps us tweet as we can’t read.

Stu and Matt @stuandmattmcd

2K Followers 2K Following 26 y/o twins raising awareness of Fragile X Syndrome. We work, support JTs & play rugby for Borders/Scottish Clan/Scottish. Dad helps us tweet as we can’t read.

Post the BEST content in your industry — in minutes per month. Schedule posts to X, Instagram, Facebook, Google Biz, LinkedIn, Pinterest, TikTok and YouTube.

PostPlanner @PostPlanner

46K Followers 18K Following Post the BEST content in your industry — in minutes per month. Schedule posts to X, Instagram, Facebook, Google Biz, LinkedIn, Pinterest, TikTok and YouTube.

Commun.it @commun_it

386K Followers 391K Following https://t.co/9sSrmzs44h - We help you 🚀 Grow on Twitter - It's Magical & Free!

Mom to 4 precious boys, litigator, coffee and book lover, food maker, Fragile X champion. Devoted. Busy. Exhausted. Fulfilled.

Lara Lovett @4boysandilovett

55 Followers 214 Following Mom to 4 precious boys, litigator, coffee and book lover, food maker, Fragile X champion. Devoted. Busy. Exhausted. Fulfilled.

BizSugar @bizsugar

24K Followers 3K Following The coolest small business news is shared on http://t.co/ty2H0GGl, the small business social media site. Sweet!

We're a non-profit dedicated to fragile X support and advocacy in HK. We aim to improve the lives of those touched by fragile X and to raise awareness about FX.

Fragile X HK @FragileXHK

93 Followers 67 Following We're a non-profit dedicated to fragile X support and advocacy in HK. We aim to improve the lives of those touched by fragile X and to raise awareness about FX.

Proud Mum to three children including twin boys with Fragile X syndrome, retired teacher, loves food, wine, reading & walking the dog.

catherine krupinski @ckrupinski

272 Followers 461 Following Proud Mum to three children including twin boys with Fragile X syndrome, retired teacher, loves food, wine, reading & walking the dog.

Mom of 4 boys! 2of my kids have Fragile-X Syndrome, the leading cause of inherited Autisim. If you know someone with Autisim, suggest testing for Fragile-X!!

1Cat_Woman @1Cat_Woman

204 Followers 937 Following Mom of 4 boys! 2of my kids have Fragile-X Syndrome, the leading cause of inherited Autisim. If you know someone with Autisim, suggest testing for Fragile-X!!

The GSNV is an active organisation committed to promoting the interests and well-being of people affected by genetic, undiagnosed and rare conditions.

GSNV @gsnv_info

669 Followers 2K Following The GSNV is an active organisation committed to promoting the interests and well-being of people affected by genetic, undiagnosed and rare conditions.

Sonic Learning is a leading provider of neuroscience programs. Our team of health and education professionals help you achieve your optimum learning potential.

Sonic Learning @sonic_learning

4K Followers 1K Following Sonic Learning is a leading provider of neuroscience programs. Our team of health and education professionals help you achieve your optimum learning potential.

One World Organization Inc. is raising money to build a group home for adults with special needs. My brother/hero has FragX. https://t.co/6dl6WJQx7e

SpecialNeedsAdvocacy @oneworldorg

138 Followers 308 Following One World Organization Inc. is raising money to build a group home for adults with special needs. My brother/hero has FragX. https://t.co/6dl6WJQx7e

TXFX @fragilex2011

41 Followers 14 Following North Central Texas Fragile X Community Support Network

Central CA Fragile X @CentralCaFX

56 Followers 68 Following

The UC Davis MIND Institute is an international research center, committed to scientific discovery involving neurodevelopmental disabilities.

UCDavisMINDInstitute @UCDMINDINST

3K Followers 564 Following The UC Davis MIND Institute is an international research center, committed to scientific discovery involving neurodevelopmental disabilities.

GreaterChiFX @GreaterChiFX

80 Followers 32 Following A Member of the Community Support Network of the National Fragile X Foundation!

Crystal Rodriguez @CrissyRodFX

49 Followers 145 Following Mother to 2 Fragile X Angels :)

We aim to engage with employers to help them understand the value that people with disability bring to business. #SeeThePossibilities

See The Possibilities @STPNSW

3K Followers 587 Following We aim to engage with employers to help them understand the value that people with disability bring to business. #SeeThePossibilities

GivingCareBack a nonprofit concept providing rejuvenating interventions including yoga, art expression, health education & activities for care givers.

4CareGivers @GivingBackCare

476 Followers 1K Following GivingCareBack a nonprofit concept providing rejuvenating interventions including yoga, art expression, health education & activities for care givers.

Fragiele X Vereniging Nederland staat voor de belangen van mensen met Fragiele X en aanverwante aandoeningen (FXTAS, FXPOI) en hun omgeving.

Fragiele X Nederland @fragielex

128 Followers 4 Following Fragiele X Vereniging Nederland staat voor de belangen van mensen met Fragiele X en aanverwante aandoeningen (FXTAS, FXPOI) en hun omgeving.

FRAXAS @FRAXAS1

69 Followers 11 Following Swiss Fragile-X Association

This is the Official Page of the Fragile X Association of Southern California. Spread the word! Our mission is to promote awareness of Fragile X
Syndrome.

Fraxsocal @Fraxsocal

380 Followers 455 Following This is the Official Page of the Fragile X Association of Southern California. Spread the word! Our mission is to promote awareness of Fragile X Syndrome.

Fragile X of Northern Arizona is a regional volunteer support group for families affected by Fragile X Disorders. #FragileX

Northern AZ FragileX @FragileXNAZ

94 Followers 29 Following Fragile X of Northern Arizona is a regional volunteer support group for families affected by Fragile X Disorders. #FragileX

Author of 5 #1 NYT/WSJ bestsellers, Creator of COYOTE card game with 300M+ viral video views (https://t.co/kef2X6pF3K), Tim Ferriss Show podcast with 1B+ downloads

Tim Ferriss @tferriss

2.0M Followers 3K Following Author of 5 #1 NYT/WSJ bestsellers, Creator of COYOTE card game with 300M+ viral video views (https://t.co/kef2X6pF3K), Tim Ferriss Show podcast with 1B+ downloads

Business @XBusiness

1.4M Followers 2K Following Get better at X. Get better at business.

Mother of 2 beautiful daughters, wife of an awesome man who is committed to spreading the word about Fragile X Syndrome.

Rachelle Gatewood @raralees

100 Followers 93 Following Mother of 2 beautiful daughters, wife of an awesome man who is committed to spreading the word about Fragile X Syndrome.

STX209 Stories @STX209_Stories

85 Followers 152 Following Fragile X and Autism parents united in support of continued research of STX209/Arbaclofen.

Patricia Kisamore @fragilexpk

684 Followers 1K Following mom to 2 fab children, SPED teacher, Fragile X Syndrome adv, avid reader, 4ever a GM lovely 💔 https://t.co/F4KE2rapgR

Heartland Fragile X Alliance is a place where families affected by Fragile X can connect, share information and support each other.

HeartlandFX @HeartlandFX

65 Followers 60 Following Heartland Fragile X Alliance is a place where families affected by Fragile X can connect, share information and support each other.

Liz Henderson @LizHenderson01

124 Followers 294 Following From Oxnam to Dunning. Head, Craigclowan School & Nursery.

RareShare is a social platform building communities for patients, families, and healthcare professionals affected by rare medical disorders.

RareShare @RareShareOrg

5K Followers 2K Following RareShare is a social platform building communities for patients, families, and healthcare professionals affected by rare medical disorders.

autism/fragile x mom @autismfragilex

23 Followers 4 Following

Mom, Wife, Molder of the Future, EdTech & music lover-David Cook, Ryan Star & GRO, Wishing, Hoping, Waiting, Fundraising for a Fragile X cure! #BetheChange

stacy @FragileXception

295 Followers 744 Following Mom, Wife, Molder of the Future, EdTech & music lover-David Cook, Ryan Star & GRO, Wishing, Hoping, Waiting, Fundraising for a Fragile X cure! #BetheChange

FriendsforFragileX @FriendsforFX

108 Followers 95 Following News and information from the Friends for Fragile X non-profit organization. Visit our Facebook: http://t.co/dujOXxXkEI

IFXS @FragileXIreland

132 Followers 75 Following Promoting awareness of Fragile X Syndrome (FXS) and Fragile X associated disorders (FXTAS & FXPOI).

Author, Mom of 2 sons, ages 26 and 24 born with fragile X syndrome and autism. We started a fund to help other families affected by fragile X-see our site!

Cindi Rogers @MrsRogers2014

156 Followers 37 Following Author, Mom of 2 sons, ages 26 and 24 born with fragile X syndrome and autism. We started a fund to help other families affected by fragile X-see our site!

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