Global MPN Scientific Foundation @gmpnsf
Global MPNSF is a non-profit foundation, which empowers MPN patients worldwide by raising awareness, advocating for their needs and supporting research. #MPNsm hopp.to/gmpnsf Barcelona, Barcelona Joined May 2022-
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📢 Meet Geron, a company committed to innovation in the MPN field. 🌍 Join our free webinar Oct 1 | 3 PM CET 🎤 Speaker: Christian Dimaano (VP, Medical Affairs) 🗣 English + Spanish translation 🔗 Register here: gmpnsf.org/post/webinar-d… #MPNsm
📣 For all healthcare professionals, advocates & MPN communities: The Wellbeing Project offers access to: 🌿 Therapeutic online classes (Yoga, Chi Kung, breathwork) 🆓 7-day free trial 🎥 Share it: gmpnsf.org/post/feeling-e… #MPNWellbeingProject #MPNsm
The 5th MPN Spring Symposium program is now live 🗓️ Nov 7 to 9, 2025 📍 Hybrid from Barcelona 💻 Online access via Zoom Top faculty: Prof. Haifa Al-Ali Dr. Natalia Curto Dr. Serge Verstovsek 🔗 Program + registration: gmpnsf.org/post/program-m… #5thMPNS #MPNsm
📣 Recommend this roundtable to your PV patients 🩸 A global space to connect, share and feel supported 📅 Sept 22 at 6 PM CEST 🗣️ Spanish with English interpretation 🌐 Live on Zoom 🔗 Register: gmpnsf.org/post/roundtabl… #MPNsm
Simultaneous Spanish translation will be provided. Register today: bit.ly/4mzkq0R
🧠 “Time + information = power” 💬 In this open talk with Prof. Haifa Al-Ali, we explore: ✔️ Anxiety after diagnosis ✔️ New oral treatments for ET ✔️ Physical activity as a tool ✔️ The patient journey and feeling in control 🎥 Watch now: gmpnsf.org/post/informal-… #MPNsm
📅 Nov 7–9, 2025 🌍 Join the 5th MPN Spring Symposium virtually! With: 🧬 Prof. Haifa Al-Ali (Germany) 🩺 Dr. Laura Fox (Barcelona) 🔬 Dr. Natalia Curto-García (London) + over 25 MPN patients & holistic health experts ✅ Register now: gmpnsf.org/register-5th-m…
📢 September 11 is #MPNAwarenessDay Let’s make sure our voice is heard everywhere. MPNs are rare blood cancers. Most can't see it, but we live with it every day. 📸 Join the Wall of Hope 🔗 gmpnsf.org/post/mpn-aware… #MPNsm
🧘♀️ New initiative for MPN patients The Wellbeing Project brings real tools to manage symptoms like fatigue, anxiety and brain fog ✔ Bilingual (EN and ES) ✔ Join from anywhere 🎥 Discover the project and join the community: gmpnsf.org/post/from-fati… #WellbeingMPN #MPNsm
🩸 Yesterday’s webinar on the POIESIS trial by @KartosThera with Dr. Serge Verstovsek and Prof. Haifa Al-Ali was a success. 🩺 👉🏻 Thank you to everyone who joined! 📲 Recording coming soon at gmpnsf.org #MPNsm
📅 Sept 11 | 6 PM CEST MPN Awareness Day Webinar Supplements and MPN Treatments Led by Dr. Natalia Curto (Guy’s & St. Thomas’ NHS, London) What helps? What interacts with the treatment? 🔗 Register: gmpnsf.org/post/webinar-i… #BloodCancerAwareness #MPNsm
🧒🏽 Children can be diagnosed with MPNs. It's rare but real. This article answers questions like: ✅ How it’s detected ✅ JAK2, CALR, MPL mutations ✅ Treatment options ✅ Living a normal life 📲 Read now: gmpnsf.org/post/children-… #MPNsm
📣 Join top experts Dr. Serge Verstovsek & Prof. Haifa Al-Ali for a webinar on the groundbreaking POIESIS trial (@KartosThera). Learn about the future of treatment and research. 🩸 🗓️ Sep 8th | ⏰ 6 PM CEST 📲 Register now: gmpnsf.org/post/webinar-d… #MPNsm
Meet John from the Netherlands 🇳🇱 👉🏻 After his Polycythemia Vera diagnosis, he co-created the MPN Journal, a free tool to help patients track symptoms and feel in control. 🎥 His story: gmpnsf.org/post/meet-john… #BloodCancerAwareness #MPNsm
🩸 September is Blood Cancer Awareness Month MPNs are rare blood cancers that need our attention. 📲 More info at gmpnsf.org/post/blood-can… #CancerAwareness #BloodCancerAwarenessMonth #SeptembreRouge #MPNsm @mpdrc
🧬 What are patients thinking before joining a clinical trial? In yesterday’s webinar, @SilenceTheraPlc presented divesiran for PV, and Dr. Susanne Isfort (@SIsfort) answered key trial-related questions. 🎥 Replay coming soon #MPNsm
🎥 New: Montse’s story after a stem cell transplant (MF, Spain) Part 1 of her video series is now available. She opens up about life in the hospital and beyond. 👉🏻 Watch: gmpnsf.org/post/montse-s-… #MPNsm
🚨 New website live! Global MPN Scientific Foundation presents a dynamic platform for: ✔️ Patients ✔️ Physicians ✔️ Pharma 🎥 Video hub 🧬 Scientific updates 🌐 Global community Visit now: gmpnsf.org #MPNsm
👉 #buildhopeMPN is more than a hashtag. It’s a virtual Wall of Hope for the MPN community. Today, on World Hashtag Day, meet Montse, recently transplanted after a diagnosis of #Myelofibrosis. 📲 See more on Instagram or visit our site: 🔗 gmpnsf.org/post/montse-s-… #MPNsm
🌍 Help us empower the Global MPN community Your donation supports education, research and connection for MPN patients Every contribution counts! 🔗 Donate: gmpnsf.org/donate #MPNsm
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