New data presented at this year's @OrphanConf (w/@waynestate) shows that #ATH434 behaves like a chaperone to redistribute iron within the body. #wodc2024 #friedreichsataxia #neurodegenerativedisease bit.ly/4a2gfUm

Every morning, columnist Kendall Harvey wakes up to the task of managing her expectations and hope, as well as her reality. bit.ly/4aRxKb8 #FriedreichsAtaxia #FAAwareness #LivingWithFA #FACommunity

May is Friedreich’s Ataxia Awareness Month and patients, caregivers, and the overall community are encouraged to participate. bit.ly/4dhLHke #FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity

Alterity Therapeutics Presents New Data Demonstrating Potential of ATH434 to Treat Rare Neurodegenerative Disease Friedreich’s Ataxia - please check the link for more details ow.ly/V0cX50RsB5L @AlterityT #FriedreichsAtaxia #Neurology #RareDiseases #FDA

Could you benefit from one or all three of these therapies? Learn more: bit.ly/3wbLVJ4 #FriedreichsAtaxia #FAAwareness #LivingWithFA

Columnist Jean Walsh encounters the everyday frustration of a small thing — a missing key fob — made worse by poor service and her FA. bit.ly/3QoHn8O #FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity

Exploring Emerging Therapies in Friedreich’s Ataxia: A Review Register now to stay informed: touchneurology.com/your-free-10-m… #FriedreichsAtaxia #Neurology #MedicalResearch

Read why this gene therapy candidate for heart disease in FA is now on the #FDA fast track to expedite development: bit.ly/3UBlfee #FriedreichsAtaxia #FriedreichsAtaxiaNews #FAResearch

Alterity Therapeutics Reveals New Data Demonstrating Potential of ATH434 to Treat Rare Neurodegenerative Disease Friedreich’s Ataxia $ALLR, #AllarityTherapeutics, #AllarityTx, #FriedreichsAtaxia crweworld.com/article/news-p…

Catch up on the #FriedreichsAtaxiaNews Column of the Week here: bit.ly/3JAaemT #FriedreichsAtaxia #FAAwareness #LivingWithFA #FACommunity

Being the parent of a child with FA takes you beyond the expected boundaries of parenting. Other parents weigh in on the unique challenges and triumphs you may encounter: bit.ly/4b2dmUc #FriedreichsAtaxia #FAAwareness #LivingWithFA #FACommunity #Caregiver

Here is this week's most read article featured on our #FriedreichsAtaxiaNews website! Are you caught up? bit.ly/4dbsIYE #FriedreichsAtaxia #FAAwareness #LivingWithFA #FACommunity

The 2024 NORD #RareImpactAwards will honor the industry innovators behind recent groundbreaking #RareDisease treatments. One of those is @biogen, developers of the 1st FDA-approved treatment to slow disease progression of #FriedreichsAtaxia. Learn more: rareimpact.org

In case you missed it, we explore strategies aimed at helping you juggle the competing demands of life with FA: bit.ly/4b57oC1 #FriedreichsAtaxia #FAAwareness #LivingWithFA #FACommunity

Did you know that some stores have carts that can be attached to a wheelchair with Velcro straps? Explore how to make your shopping trips easier here: bit.ly/4ddzL35 #FriedreichsAtaxia #FAAwareness #LivingWithFA #FACommunity

Some FA patients find community through disease-specific fundraising events. Have you taken part in similar activities? #FriedreichsAtaxia #FAAwareness #LivingWithFA #FACommunity

Matt Lafluer picks Kyle Bryant’s brain about his upcoming adventure: cycling the highest paved road in the world — all in the name of FA. bit.ly/4aGeoFS #FriedreichsAtaxia #FAAwareness #LivingWithFA #FACommunity

Living with FA requires a fatigue management plan and evaluations of what's on today's to-do list, writes columnist Kendall Harvey. bit.ly/3xMtf2O #FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity

Could the gene-editing therapy be able to help protect nerve cells? New evidence suggests so. bit.ly/3vWgPVM #FriedreichsAtaxia #FriedreichsAtaxiaNews #FAResearch

Encouraged by the benefits of a seven-year meditation practice, Jean Walsh adds a new tool to her stress management kit. bit.ly/4aGeltG #FriedreichsAtaxia #FAAwareness #LivingWithFA #FACommunity