URPP ITINERARE @itinerare_uzh
A University Research Priority Program @UZH_en to promote therapy development and healthcare in rare diseases through integration of research and education. itinerare.uzh.ch/en.html Biotechnopark Schlieren Joined November 2020-
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Yay! We are overjoyed to announce that the #UZH Universität Zürich has approved the next funding period for the URPP ITINERARE! Thank you all for making this possible!
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We have moved - you will now find the management team and many of the URPP ITINERARE researchers in the ultra-modern Research and Teaching building at the University Children's Hospital in Lengg.
Don't forget your registration for this years ITINERARE summer school: linkedin.com/feed/update/ur…
📸 Sieh dir diesen Beitrag auf Facebook an facebook.com/share/J5Qdiaae…
URPP ITINERARE retweeted
🎙️ Entdeckt die neueste #PodcastEpisode "Ich habe eine seltene Gefässerkrankung". Corinne, 36, teilt ihre Erfahrungen mit dem Klippel-Trénaunay-Weber-Syndrom, einer Herausforderung, die ihr Leben seit Geburt prägt. srf.ch/audio/rehmann/… @SRF
URPP ITINERARE retweeted
Great group of talented people that does and will shape our field!
Our PhD Student Susi Wehrli & PostDoc Sebastian Wäscher published a new paper on healthcare access and health equity in #RareDiseases. Congrats @WehrSue & Sebastian 🥳!
Our PhD Student Susi Wehrli & PostDoc Sebastian Wäscher published a new paper on healthcare access and health equity in #RareDiseases. Congrats @WehrSue & Sebastian 🥳!
Just in time for the first ❄️ representatives from research and practice meet for the annual URPP ITINERARE Symposium in Zurich. 6 exciting presentations allow participants to learn about the latest findings and challenges in the field of #RareDisease
A new week is upon us and so is a new quiz question! 🥳 How many % of the Swiss population have a rare disease? 🔍
Seltenheit als Herausforderung – Die kostenlose Helpline Seltene Krankheiten unterstützt betroffene Kinder und Erwachsene, Angehörige und Fachpersonen bei der Recherche nach Experten, Informationen und Ressourcen. kispi.uzh.ch/helpline-selten
📢 Join us at the ITINERARE Symposium 2023 on Nov 30th at @UZH_en ! Explore cutting-edge rare disease research, gene therapies, and more with global experts. Register by Nov 17th - it's free! Don't miss out! 🧬🔬 #RareDisease #UZH itinerare.uzh.ch/en/ITINERARE-S…
Don't fret if you missed our booth and podium discussions at #Scientifica last weekend👀! While the physical booth has vanished, the incredible knowledge and fun memories are here to stay🥳. Thanks to everyone who stopped by #raredisease @UZH_Science @KispiZuerich @uzh_irem
URPP ITINERARE retweeted
When PhD-life gives you posters, strike a pose and present like a #pediatric #psychologist at #EPPC2023 📊 Poster is on barriers to care in pediatric #raredisease – main findings in thread👇collab with @Andrew_A_Dwyer @child_trauma
Oana Inel @oana_inel
297 Followers 420 Following Postdoc at the University of Zurich; Previously at @tudelft, @VUamsterdam; Research interest #humancomputation #reponsibledatascience #explanations #semanticweb
Marshall Summar, M.D. @genedocrare
518 Followers 473 Following I am the CEO of Uncommon Cures, a rare disease clinical trials company.
REPO4EU @REPO4EU
352 Followers 576 Following The #HorizonEU initiative building a global platform for #DrugRepurposing powered by #AI | Collaboration & knowledge transfer for #NetworkMedicine 💊
Nine Knoers @knoers
1K Followers 532 Following professor clinical/ medical genetics. Chair Department Genetics, UMC Groningen . former Chair Dutch Society of Clinical Genetics
Dr James Crowe @SlimJimCrowe
183 Followers 354 Following Pharmacological tinkerer and PhD. Interests include Neuroscience, Organoids and Sci-fi! Working on Gaucher disease organoids at ITINERARE/Kispi/UZH. Views own.
Myrona Goutaki @mgoutaki
523 Followers 375 Following Paediatric respiratory epidemiology,Primary Ciliary Dyskinesia Also tweet as @beatpcd and as @PCD_ispm All tweets reflect my personal opinions only
Rob Hartmans @rohor63
744 Followers 678 Following Partner bei Hirzel.Neef.Schmid.Konsulenten. Gebürtiger Zuger mit holländischen Wurzeln. Beratung und Begleitung im Dreieck Wirtschaft - Politik - Gesellschaft
Lukas Schwyter @SchLuk_
399 Followers 753 Following PhD-Student in the Kümmerli Lab @ University of Zurich Ecology | Evolution | Pathogens | Polymicrobial infections @schluk.bsky.social
ettoreferrari @EttoreFerrariGT
351 Followers 3K Following @FPLogisticLtd @AngelGTRacing @Areas_Tech @AvalancheLiv @8eartrap @8irdcageRecords @BeastNRG
Daewoong Moon 문 대... @DaewoongM
9 Followers 5K Following NORTHERN BUSINESS General Manager DAEWOO Engineering & Construction Company I am interested in NK the electricity and running water shortage.
Lucas Kissling @KisslingLucas
76 Followers 109 Following PhD at @SchwankLab, interested in #CRISPR, #GenomeEngineering
Preethi @preethi611
161 Followers 150 Following Previous lab MPI-HLR; Currently: Surveying PhD students dealing with toxic supervisors #scientificmalpractice #phdlife #toxicphd DM to tell your story
Elisabeth Langmann @sabethlang
355 Followers 1K Following find me on bsky: elangmann.bsky.socia #bioethics | #marginalization I #publichealth PhD in Medical Ethics Research Associate @uni__augsburg first gen I she/her
Alice Margaria @AliceMargaria
927 Followers 1K Following Asst Prof @UZH_en Codirector @UZH_H2R | Fam law | law&anthro |HRs | PI Who is the Court for? @VolkswagenSt | The Construction of Fatherhood @CUP_Law | #firstgen
Legómena @sebuscaGalatea
898 Followers 2K Following Immunology and Allergy. Biocurator. Mental health. Existential Therapy. Philosophy of Science/Immunology/Biosemiotics/This is my personal opinion.
Thorsten Dietz @DietzThorsten
1K Followers 1K Following
Dana Mahr @STS_DACH
2K Followers 3K Following Dr. Dana Mahr | Technikfolgenabschätzung @ ITAS/KIT | Deepfakes • Digitale Gesundheit • Gender & Inclusion • Neue Formen von Wissenschaftskommunikation
Melissa Kinch @Melissa_Kinch_
197 Followers 468 Following PhD candidate UCD | Child, Adolescent & Family Research | Patient Voice & Engaged Research | Rare Disease Research | Methods Enthusiast | All views are my own
Aldons @AldonsChua
270 Followers 443 Following Overseas Filipino Nurse🇵🇭 | Endocrinology CNS 🇬🇧 | “own views”
ySSN @y_SSN
575 Followers 435 Following young Society for Swiss Neuroscience: scientific exchange and networking in a vibrant & friendly environment for all early-career neuroscientists in Switzerland
Stella Brogna @BrognaSte
1 Followers 111 Following
Deepak Tanwar @d_k_tanwar
1K Followers 3K Following Bioinformatics Specialist and Trainer at @isbsib & @DQBM_uzh A massive binf. #rstats #methodsmatter
SH @SH25952986
0 Followers 15 Following
:) @Howdys12345
159 Followers 787 Following
Electrophysiology Cor... @e_phac
34 Followers 161 Following Enthustiatic about patching, neuroscience and nephronology. Get in touch if you want to perform electrophysiological experiments with us!
Jacobs Center for Pro... @JacobscenterUZH
580 Followers 65 Following Jacobs Center for Productive Youth Development is a scientific center at the University of Zurich. Moved to https://t.co/BraGwq4Gve
Developmental Science... @DSN_ZH
241 Followers 169 Following Socially relevant research & teaching about #development across the #lifespan at the intersection of #psychology, #medicine, #education, #neurobiology etc.
Moritz Daum @moritzda... @MoritzDaum
1K Followers 1K Following Prof for #DevelopmentalPsychology @uzh_ch | Director @jacobscenterUZH | Board member @dsn_zh | #Multilingual #Language #Development | Football fanatic @fcbayern
Alenka Schmid @alenka_schmid
161 Followers 286 Following Psychologist, Earl Grey fueled Postdoc ☕️ University Children’s Hospital Zurich, 🔍🫀Congenital Heart Disease #chd
OuiMaisNon @OuiMaisNonMerci
0 Followers 14 Following
BarbaraHugoninRao @BarbaraHugonin
565 Followers 2K Following advocacy👩🏼⚕️Journalism #ʀᴀʀᴇᴅɪꜱᴇᴀses🧬🫀#neuro🧠#pneumo🫁 @ESPNIC_society @ESPR_EBM mentee 🌍📚🖼🦋🩰🏃🌳🩺👨👩👦👦 EU CLIMATE CHANGE🇪
UZH Parasitology @uzh_Parasito
282 Followers 86 Following Official Account of the UZH Parasitology - @uzh_en
Rare Disease Policy @RareDiseasesEU
3K Followers 909 Following @RareDiseasesEU is currently managed by Victoria Hedley, RD Policy Manager @ Newcastle University (formerly account 4 RD-ACTION & EUCERD JA). Views now my own
Fondazione Gianni Ben... @FondazioneBenzi
98 Followers 121 Following Fondazione Gianni Benzi is a not-for-profit organisation that promotes scientific research particularly with reference to vulnerable populations
ACIMET | Asociación ... @ACIMET_MMA
700 Followers 1K Following Asociación de afectados y familiares con acidemia metilmalonica. #Enfermedadrara #metabólica #genética 🧬. 1/60.000 nacidos 👶 48 casos. 🗺️https://t.co/hxtLUmdb9P
Federico Germani @fedgermani
2K Followers 1K Following I no longer tweet - follow me on LinkedIn. https://t.co/XpCh7JG34G
Jess Fares @Cure_Cole
2K Followers 2K Following Mom to Cole, diagnosed with #SYNGAP1. Working hard with @curesyngap1 to improve lives of those with #epilepsy #SIB #autism #hypotonia #ID and their families!
Rossella De Falco, Ph... @rosselladefalc
709 Followers 3K Following Head of Right to Health Campaign at Just Fair, Ph.D. Cum Laude @UniPadova, LL.M. ESCR @Uni_of_essex, MA at @SAIShopkins
Carola Fischer @carolakfischer
34 Followers 59 Following
Leonie @leonie_ab
19 Followers 32 Following
Canals Lab @Canals_Lab
240 Followers 285 Following Assistant Professor at UZH and Kispi Zurich. Neuroscientist combining iPSCs and genome editing to model human neurodegenerative Lysosomal Storage Disorders.
Sean Froese @FroeseLab
53 Followers 47 Following Investigating inherited metabolic disorders to develop better diagnostics and treatments. @KispiZuerich. @UZH_en.
Miriam Güra @GueraMiriam
7 Followers 24 Following
Laura Zanetti @laurazanetti89
49 Followers 208 Following Scientific coordinator @UZH_AdaBD, teacher in primary school, trainer https://t.co/NTmLgkORy9, freelancer https://t.co/VXuTZ2w3oN
Lilly Shanahan @LillyShanahan1
428 Followers 318 Following Prof and Director of Risk & Resilience lab @JacobscenterUZH @zproso. #Longitudinal research, #stress #mentalhealth #adolescence #resilience #zproso #GSMS study
HUG @hug_ge
46K Followers 7K Following Les Hôpitaux universitaires de Genève partagent avec vous les dernières actualités santé #santé #médecine #hôpital #genève
Kantonsspital GR @KantonsspitalGR
554 Followers 45 Following Hier twittert das Team der Unternehmenskommunikation aus dem Zentrumsspital der Südostschweiz.
UZH Virology @uzh__Virology
175 Followers 78 Following Official Account of the UZH Virology - @uzh_en
Lukas Schwyter @SchLuk_
399 Followers 753 Following PhD-Student in the Kümmerli Lab @ University of Zurich Ecology | Evolution | Pathogens | Polymicrobial infections @schluk.bsky.social
Lucas Kissling @KisslingLucas
76 Followers 109 Following PhD at @SchwankLab, interested in #CRISPR, #GenomeEngineering
Moritz Daum @moritzda... @MoritzDaum
1K Followers 1K Following Prof for #DevelopmentalPsychology @uzh_ch | Director @jacobscenterUZH | Board member @dsn_zh | #Multilingual #Language #Development | Football fanatic @fcbayern
Center for Medical Hu... @uzh_cmh
2K Followers 1K Following Center for Medical Humanities, University of Zurich. Interacting between Medicine, the Arts & the Humanities #medhums
UZH Gleichstellungsko... @UZH_GLK
324 Followers 206 Following Bitte folgen Sie neu @AGL_UZH. (Dieser Account war aktiv: Januar 2020 bis August 2023)
Raffaella Willmann @Raffa869
73 Followers 69 Following Research Manager at Swiss Foundation for Research on Muscle Diseases
Fondazione Gianni Ben... @FondazioneBenzi
98 Followers 121 Following Fondazione Gianni Benzi is a not-for-profit organisation that promotes scientific research particularly with reference to vulnerable populations
Federico Germani @fedgermani
2K Followers 1K Following I no longer tweet - follow me on LinkedIn. https://t.co/XpCh7JG34G
IBME @uzh_ibme
203 Followers 125 Following This was the Institute of Biomedical Ethics and Medicine History (IBME) @UZH. The profile is inactive. Please find us on LinkedIn, Facebook or on our webpage.
Judith Safford 🇺�... @JudithSafford
150 Followers 149 Following #PatientLeadership above all for arthritis research. Science is real. Kindness is everything. Loves mountains and cold lakes. Proud to be @ScianaNetwork
Jess Fares @Cure_Cole
2K Followers 2K Following Mom to Cole, diagnosed with #SYNGAP1. Working hard with @curesyngap1 to improve lives of those with #epilepsy #SIB #autism #hypotonia #ID and their families!
Carola Fischer @carolakfischer
34 Followers 59 Following
Effy Vayena @EffyVayena
3K Followers 757 Following Professor of #Bioethics @eth_en /Founder @EthicsPolicyLab /co-direct @SNForg Bioethics Academy/ previously @WHO @BKCHarvard @HMSbioethics / 🇨🇭🇺🇸 🇬🇷
ola sabet @OlaSabet
313 Followers 297 Following Microscopy, Systems Biology, Self-organization and Patterns (in life and art)
Alex Yema Kreins @alexyema
702 Followers 1K Following @Wellcometrust career development fellow treating #IEI patients (athymia/SCID) @GreatOrmondSt & translational research @uclchildhealth to improve their outcomes
LSZYSN @LSZYSN
503 Followers 124 Following We are the Life Science Zurich Young Scientist Network. We aim to bring new opportunities to young scientist by closing the gap between Academia and Industry.
Valerie Treyer @tcshell2
204 Followers 255 Following PhD in neuroscience studied psychology and philosophy works @UZH_IREM & @USZ research on dementia - privat Vorstand @glpzh & Präsidentin @glpdietikon
Alenka Schmid @alenka_schmid
161 Followers 286 Following Psychologist, Earl Grey fueled Postdoc ☕️ University Children’s Hospital Zurich, 🔍🫀Congenital Heart Disease #chd
Genetix Biotherapeuti... @genetix_biotx
10K Followers 724 Following We’re transforming lives through curative #genetictherapies - building a future of lasting hope for patients and families. https://t.co/1dUPTEWcyx
Pachlopnik Lab @PachlopnikL
85 Followers 116 Following Our lab focuses on inborn errors of the immune system and their consequences on health. We are at the University Children‘s Hospital and University of Zurich
TheScienceBreaker @sciencebreaker
833 Followers 163 Following Where scientists share their excitement over novel research and break down complex topics for curious readers. #scicomm #openscience Hosted by @sciences_UNIGE
AndrewDwyer @Andrew_A_Dwyer
330 Followers 445 Following Associate Professor, Boston College; MGH-Harvard Center for Reproductive Medicine; genomics, reproductive endocrinology, rare diseases, health disparities
Kaan Boztug @KaanBoztug
337 Followers 92 Following Physician Scientist. Pediatric Hematologist, Oncologist, Immunologist. Immunodeficiency discovery enthusiast. Soccer fan. Views are my own.
Leire Solis @LeireSolis
513 Followers 203 Following Patient advocate @ipopi_info, interested in Universal Health Coverage #UHC, primary immunodeficiencies #PIDs, #rarediseases - all views are personal
Johan Prevot @JohanPrevot
679 Followers 220 Following Executive Director @ IPOPI All views strictly personal.
Cambridge Rare Diseas... @camraredisease
8K Followers 6K Following making #rarediseases an everyday conversation https://t.co/kZWskP9Ojj
Edgard Eeckman, PhD @eeckman
1K Followers 813 Following Author, actor, animator. President of Patient Empowerment VZW
Simona Bellagambi @SimonaBellagam2
98 Followers 61 Following Volontaria nelle malattie rare consigliere direttivo EURORDIS Rare disease Europe
Stefano Previtali @previste
83 Followers 94 Following
Paola Festa @BPaolaFesta1
125 Followers 217 Following Research Associate at the University of Cambridge. Interested in understanding the role of the autophagy-lysosomal pathway in Neurodegeneration.
Giuseppe Merla @GiuseppeMerla
47 Followers 81 Following
Danielle Drachmann @dani_drachmann
681 Followers 3K Following Executive Director at @ketotic_hypo / EHP @healthparl / Patient Representative at @EMA_News
David Ross @mensraredisease
726 Followers 840 Following MRDMH supports men’s mental health for those suffering with a rare disease. #raredisease #malementalhealth #mentalhealth #rarementalk #mrdcharity
Mühlemann Lab @OMuhlemann
1K Followers 179 Following RNA biology and post-transcriptional regulation of gene expression – that's what excites us @DCBPunibern and @NCCR_RNADisease
Katharina Schubert @KathaSchubert
237 Followers 367 Following Structural biology PhD student @The_Ban_Lab @ETH🧬🦠, BIFler, Associate Director @OpenLifeScience, scientist, cat-mom, nature-lover 🏔🌿 (she/her)
Institute of Pharmaco... @UZH_IPT
514 Followers 452 Following Official account of the Institute of Pharmacology and Toxicology - University of Zurich @UZH_en.
Forschung für Leben @ForschungLeben
264 Followers 321 Following Forschung rettet leben! Unser Verein setzt sich für die Schweizer ForscherInnen ein und informiert die Bevölkerung und die Politik
Hans-Günter Meyer @Hackimeyer
454 Followers 373 Following Botschafter der #Epigenetik. Bin als Patientenvertreter in das BMBF cluster4future Forschungsprojekt @nanodiagBW eingebunden.
Florin Bösch @boe_flo
38 Followers 57 Following Psychologist; Ph.D. candidate 👨🎓; Research field: Children with rare metabolic diseases👨🔬; Football enthusiast (FC St.Gallen 1879)💚⚽️
Nina Zeltner @NinaZeltner
5 Followers 7 Following
Bambino Gesù @bambinogesu
16K Followers 1K Following Profilo ufficiale dell’Ospedale Pediatrico Bambino Gesù, punto di riferimento a livello internazionale per la ricerca e per la cura di bambini e adolescenti
Sean Froese @FroeseLab
53 Followers 47 Following Investigating inherited metabolic disorders to develop better diagnostics and treatments. @KispiZuerich. @UZH_en.
Desiree Boeck @BoeckDesiree
86 Followers 131 Following Postdoc at the University of Zurich @schwanklab, PhD in cryoET @PilhoferLab
Ben Allcock @BenAllcock
95 Followers 252 Following
Fondation Maladies Ra... @fdmaladiesrares
3K Followers 341 Following Fondation de coopération scientifique | Foundation For Rare Diseases - Foundation for scientific cooperationTrends for United States
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