Lauren Boardman @lfboardman07

16K Followers 9K Following #Bruker Scientific Instruments (NMR, EPR, MRI, microCT, MS, LCMS, MALDI, TOF, MS-TOF, FTMS, XRD, XRF, FTIR, Raman...) Life Sciences, Pharma, Chemical, Food, QC.

Sarah @Sarah04241988

6 Followers 160 Following

We're bridging the gap to improved quality of life, for a better tomorrow, for the #1in15 South Africans affected by rare diseases.

Rare Diseases South A... @rarediseasessa

5K Followers 4K Following We're bridging the gap to improved quality of life, for a better tomorrow, for the #1in15 South Africans affected by rare diseases.

The Dylan O'Brien Foundation is a registered charity set up in memory of Dylan O'Brien, to raise awareness of rare diseases - Reg No. 1160424

voices for Dylan @dylanfoundation

338 Followers 2K Following The Dylan O'Brien Foundation is a registered charity set up in memory of Dylan O'Brien, to raise awareness of rare diseases - Reg No. 1160424

Rebecca Joslin @MissTriathlon

3K Followers 2K Following Endeavouring to take leaps, challenge myself and never say "if only". Triathlete early in the morning and marketer during the day.

Lennert Acke @lennertacke

216 Followers 762 Following Helping businesses unleash the power of their data at Datatonic. All views expressed are my own.

Non Profit. Connecting Researchers, Caregivers, Patients, Policy Makers & Industry in Healthcare. One World -Better Health. https://t.co/pc8m9RLNNU

R&G Disease Network @RAGDNetwork

2K Followers 2K Following Non Profit. Connecting Researchers, Caregivers, Patients, Policy Makers & Industry in Healthcare. One World -Better Health. https://t.co/pc8m9RLNNU

boohoo help team @boohoo_cshelp

110K Followers 48K Following Official customer service page for https://t.co/qgHOVgIrof - 24 hours a day/ 7 days a week.

Public Hlth Dr,interested in evid-based health services commissioning,clinical leadership & hlth policy.My views are my own,RTs are no endorsements

Ash Paul @pash22

34K Followers 37K Following Public Hlth Dr,interested in evid-based health services commissioning,clinical leadership & hlth policy.My views are my own,RTs are no endorsements

Rebecca Joslin @MissTriathlon

3K Followers 2K Following Endeavouring to take leaps, challenge myself and never say "if only". Triathlete early in the morning and marketer during the day.

Partner@Binance & @Robinhoodapp, Swing / Day Trader, Blockchain Expert. Investment Coach, Join Our Community To Learn How To Become A Profitable Trader

Peter Randy @peterandyy

2K Followers 2K Following Partner@Binance & @Robinhoodapp, Swing / Day Trader, Blockchain Expert. Investment Coach, Join Our Community To Learn How To Become A Profitable Trader

CORD Mission: Provide a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders.#Canada4Rare

CORD @raredisorders

5K Followers 687 Following CORD Mission: Provide a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders.#Canada4Rare

Lennert Acke @lennertacke

216 Followers 762 Following Helping businesses unleash the power of their data at Datatonic. All views expressed are my own.

Rare Opportunities in Primary Care is committed to improving the quality of primary care for people living with rare diseases.

Rare Opportunities @RarePrimaryCare

429 Followers 891 Following Rare Opportunities in Primary Care is committed to improving the quality of primary care for people living with rare diseases.

voices for Dylan @dylanfoundation

338 Followers 2K Following The Dylan O'Brien Foundation is a registered charity set up in memory of Dylan O'Brien, to raise awareness of rare diseases - Reg No. 1160424

stefania vicari @stefaniavicari

1K Followers 988 Following Digital Sociologist at @sheffielduni. PI of @Previvorship (https://t.co/TPHnJdCRoO), funded by @LeverhulmeTrust

Timothy Barrett @Tim_Barrett2

448 Followers 303 Following Professor of paediatrics, University of Birmingham

An integrated platform connecting databases, registries, biobanks and clinical bioinformatics for rare disease research

RD-Connect @ConnectRD

3K Followers 559 Following An integrated platform connecting databases, registries, biobanks and clinical bioinformatics for rare disease research

Keren Carss @kerencarss

1K Followers 832 Following Genomics enthusiast 🧬 | Views my own

Advocacy group for patients and researchers of #RareDiseases. Be a FACE for rare disease: Fundraising, Awareness, Community, Education.

EliseCook Foundation @ECFoundation

397 Followers 275 Following Advocacy group for patients and researchers of #RareDiseases. Be a FACE for rare disease: Fundraising, Awareness, Community, Education.

Director at @cmlnet Empowering leukemia patient leaders (CML). Patient advocate, formerly @eurordis & @RareConnect Own views

Denis Costello @rarecare

3K Followers 3K Following Director at @cmlnet Empowering leukemia patient leaders (CML). Patient advocate, formerly @eurordis & @RareConnect Own views

A society of medical students at Barts & the London wanting to learn more about rare diseases so that we can make a difference to patients and their families

Barts Rare Diseases @BLRareDiseases

190 Followers 53 Following A society of medical students at Barts & the London wanting to learn more about rare diseases so that we can make a difference to patients and their families

UPenn Million Dollar ... @MDBRide4Rare

970 Followers 386 Following Riding for rare disease research since 2014! Check us out! https://t.co/KmHVtNwzXA

R&G Disease Network @RAGDNetwork

2K Followers 2K Following Non Profit. Connecting Researchers, Caregivers, Patients, Policy Makers & Industry in Healthcare. One World -Better Health. https://t.co/pc8m9RLNNU

MedicsforRareDisease @MedicsForRare

5K Followers 2K Following This account is no longer active, please continue to follow our work on Instagram and Bluesky! @medicsforrare

Tweets by Stephanie Fischer, rare disease advocate & stroke survivor sharing info & resources to engage #raredisease community. Opinions my own.

Rare Point of View @RarelyYours

595 Followers 400 Following Tweets by Stephanie Fischer, rare disease advocate & stroke survivor sharing info & resources to engage #raredisease community. Opinions my own.

Rare Voices Australia @RareVoices

3K Followers 498 Following Rare Voices Australia (RVA) is Australia’s national peak body for Australians living with a rare disease.

Ukraine_Rare_Disease @Ukraine_RareDis

31 Followers 71 Following NGO Rare diseases of Ukraine

ВООЗ rare-disease... @rarediseasesru

53 Followers 1 Following

Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.

Beacon for Rare Disea... @RareBeacon

12K Followers 10K Following Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.

Rare Disease @Fabry_PompeSolu

79 Followers 52 Following

Presidential Proclamation 1989 declared every last week of February as the “National Rare Disease Week” in the Philippines.

RareDiseaseWeekPH @RareDiseaseWeek

221 Followers 158 Following Presidential Proclamation 1989 declared every last week of February as the “National Rare Disease Week” in the Philippines.

A non-profit network transforming health through genetics. 🧬 We promote openness in health systems, advocacy, empowerment, informed decisions, and access.

Genetic Alliance @GeneticAlliance

22K Followers 2K Following A non-profit network transforming health through genetics. 🧬 We promote openness in health systems, advocacy, empowerment, informed decisions, and access.

Nonprofit organization harnessing the power of sport to build a community that invests in the lives of people impacted by rare diseases.

Uplifting Athletes @UpliftingAth

5K Followers 3K Following Nonprofit organization harnessing the power of sport to build a community that invests in the lives of people impacted by rare diseases.

Changing the lives of patients affected by rare & undiagnosed diseases through social support, advocacy & treatment-focused research.
https://t.co/qWTTVoKeyL

RareDiseaseFdn @rarediseasefdn

8K Followers 488 Following Changing the lives of patients affected by rare & undiagnosed diseases through social support, advocacy & treatment-focused research. https://t.co/qWTTVoKeyL

Mother to and a #zebra spreading #awareness of #ehlersdanlos #raredisease #aneurysm #narcolepsy and more! There is #hope #timeforchange

Kristin #EDS @KristinRarity

259 Followers 386 Following Mother to and a #zebra spreading #awareness of #ehlersdanlos #raredisease #aneurysm #narcolepsy and more! There is #hope #timeforchange

CoRDS is the world's only cost-free, international #RareDisease #PatientRegistry -
Enroll today and share your #data!
https://t.co/DOIhiNxbbF

SanfordCoRDS @SanfordCoRDS

4K Followers 2K Following CoRDS is the world's only cost-free, international #RareDisease #PatientRegistry - Enroll today and share your #data! https://t.co/DOIhiNxbbF

Rare Disease Day @rarediseaseCH

161 Followers 2 Following Am Sonntag, den 28. Februar 2010 findet in Basel und Zürich der TAG DER SELTENEN KRANKHEITEN statt.

RareDisease_Mie @RareDisease_Mie

448 Followers 594 Following 一人でも多くの方々に「稀少難病」を知っていただきたいです。NPO法人三重難病連加盟団体（三重県難病相談支援センター事業受託団体前三難連理事稀少難病の会みえ会長 RDDJAPAN MIE主催桑名市民活動団体)

King's College London, Students 4 Rare Diseases Society - 46% of patients wait over a year for a rare disease diagnosis. It's up to us to speed that up.

KCL Rare Diseases @S4RDKCL

314 Followers 49 Following King's College London, Students 4 Rare Diseases Society - 46% of patients wait over a year for a rare disease diagnosis. It's up to us to speed that up.

@RareDiseasesEU is currently managed by Victoria Hedley, RD Policy Manager @ Newcastle University (formerly account 4 RD-ACTION & EUCERD JA). Views now my own

Rare Disease Policy @RareDiseasesEU

3K Followers 884 Following @RareDiseasesEU is currently managed by Victoria Hedley, RD Policy Manager @ Newcastle University (formerly account 4 RD-ACTION & EUCERD JA). Views now my own

We’ve moved! PSR Orphan Experts is now Ergomed. To stay updated on future news, please follow us on the Ergomed Twitter page at https://t.co/mWUAHD63Iq

PSR Orphan Experts (n... @PSRorphan

5K Followers 3K Following We’ve moved! PSR Orphan Experts is now Ergomed. To stay updated on future news, please follow us on the Ergomed Twitter page at https://t.co/mWUAHD63Iq

CamRARE (Cambridge Ra... @camraredisease

8K Followers 6K Following We want everyone affected by a rare condition to feel connected, empowered, and supported. Also at: https://t.co/1E1CsLJB1g

Rare Disease Day seeks to raise awareness in the community and their impact.
Rare Disease Day is on the 28th of Feb.
http://t.co/oZiOIn3T

Rare Disease Day Aus @RareDiseaseAus

1K Followers 286 Following Rare Disease Day seeks to raise awareness in the community and their impact. Rare Disease Day is on the 28th of Feb. http://t.co/oZiOIn3T

Royal Holloway, University of London hosted the largest Rare Disease Day event in the UK on 29 February 2012, a rare day itself as it was a leap year.

Rare Disease Day @RDD2013

649 Followers 303 Following Royal Holloway, University of London hosted the largest Rare Disease Day event in the UK on 29 February 2012, a rare day itself as it was a leap year.

Beyond the Diagnosis @BeyondtheDx

8K Followers 5K Following Beyond the Diagnosis unites art and science to raise awareness for children living with life-altering diseases.

RGI is a non-profit organization that provides research to families in need of diagnosis & treatment for rare genetic diseases.

Rare Genomics @RareGenomics

9K Followers 3K Following RGI is a non-profit organization that provides research to families in need of diagnosis & treatment for rare genetic diseases.

Rare Diseases South A... @rarediseasessa

5K Followers 4K Following We're bridging the gap to improved quality of life, for a better tomorrow, for the #1in15 South Africans affected by rare diseases.

My name is Rayaan Siddiqui and I am six years old. I have a rare disease called HLH and I need a bone marrow transplant to help me get better.

Hope 4 Rayaan @Hope4Rayaan

476 Followers 124 Following My name is Rayaan Siddiqui and I am six years old. I have a rare disease called HLH and I need a bone marrow transplant to help me get better.

Rare Disease Blogs @rarediseaseblog

2K Followers 15 Following International opinion & debate from opinion leaders in the fields of Rare Diseases & Orphan Drugs

Rare Disease Team @RareDxResearch

5K Followers 119 Following A Canadian research team focusing on rare disease policy.

2/28/19. #ShowYourStripes & join the movement in the US & around the world for #RareDiseaseDay. (Hosted in the US by @RareDiseases.)

Rare Disease Day US @RareDayUS

7K Followers 982 Following 2/28/19. #ShowYourStripes & join the movement in the US & around the world for #RareDiseaseDay. (Hosted in the US by @RareDiseases.)

Breaking news, patient stories & FDA updates within the rare disease community. Listen to our podcast: https://t.co/xUkFDfCDUV, hosted by @GiulianaGrossi

Rare Disease Report @RareDR

15K Followers 1K Following Breaking news, patient stories & FDA updates within the rare disease community. Listen to our podcast: https://t.co/xUkFDfCDUV, hosted by @GiulianaGrossi

28 February 2027 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are impacted by rare diseases. #RareDiseaseDay

Rare Disease Day @rarediseaseday

42K Followers 3K Following 28 February 2027 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are impacted by rare diseases. #RareDiseaseDay

National campaign run by @GeneticAll_UK to improve the lives of those affected by rare conditions and all who support them.

#RareDisease.

Rare Disease UK @rarediseaseuk

20K Followers 2K Following National campaign run by @GeneticAll_UK to improve the lives of those affected by rare conditions and all who support them. #RareDisease.