Lupus Trust @lupustrust
The Lupus Trust was set up as a registered charity in 1991. Its aim is to support lupus research at Guys Hospital & raise lupus awareness. lupus.org.uk London Joined March 2012-
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Very true! 🙄 #chronicpain #autominnunedisease #invisibleillness #lupusSucks #lupusfighter #chronicillness #lupusLife #lupuswarrior #lupus #lupustrust #lupusawareness #lupustruth #lupusfact
This happened to me recently and I reacted exactly the same way 😁 #chronicpain #autominnunedisease #invisibleillness #lupusfighter #lupusSucks #chronicillness #lupusLife #lupuswarrior #lupus #lupustrust #lupusawareness #lupustruth #lupusfacts
I find myself trying to negotiate with my body saying 'I know there has to be some pain, but could it be a bit less than this?' #chronicpain #autominnunedisease #invisibleillness #lupusSucks #chronicillness #lupusLife #lupuswarrior #lupus #lupustrust #lupusawareness
And so they should! #chronicpain #autominnunedisease #invisibleillness #lupusfighter #lupusSucks #chronicillness #lupusLife #lupuswarrior #lupus #lupustrust #lupusawareness #lupustruth #lupusfacts
Very true, it's exhausting explaining over and over why you aren't 'better yet' or how 'yes, you're still in pain'. #chronicpain #autominnunedisease #invisibleillness #lupusfighter #lupusSucks #chronicillness #lupusLife #lupuswarrior #lupus #lupustrust #lupusawareness
I start a story, lupus brain fog kicks in and I can't remember where the heck I was going with it, so I just keep going in the hope I'll eventually remember. 😆 #lupus #lupustrust #lupusawareness #brainfog #lupusbrainfog #chronicillness #autoimmunedisease #chronicpain
We all do this. It saves continually complaining or explaining how lupus makes you feel. 🙄 #chronicpain #autominnunedisease #invisibleillness #lupusfighter #lupusSucks #chronicillness #lupusLife #lupuswarrior #lupus #lupustrust #lupusawareness #lupustruth #lupusfacts
Sadly true. 🫤 #chronicpain #autominnunedisease #invisibleillness #lupusfighter #lupusSucks #chronicillness #lupusLife #lupuswarrior #lupus #lupustrust #lupusawareness #lupustruth #lupusfacts
Accurate! 🙄 #lupus #lupustrust #lupusawareness #lupuslife #chronicillness #chronicpain #invisibleillness #autoimmunedisease
Another very accurate description. 🫤 #chronicpain #autominnunedisease #invisibleillness #lupusfighter #lupusSucks #chronicillness #lupusLife #lupuswarrior #lupus #lupustrust #lupusawareness #lupustruth #lupusfacts
These are all things we try to explain to others but they often just don't understand. 🫤 #chronicpain #autominnunedisease #invisibleillness #lupusfighter #lupusSucks #chronicillness #lupusLife #lupuswarrior #lupus #lupustrust #lupusawareness #lupustruth #lupusfact
A sadly accurate description. As you get older more aches and pains come along so I can't remember when I last had a completely pain free day, something others take for granted. #chronicpain #autominnunedisease #invisibleillness #lupus #lupustrust #lupusawareness
Exactly! 😊👍 #chronicpain #autominnunedisease #invisibleillness #lupusfighter #lupusSucks #chronicillness #lupusLife #lupuswarrior #lupus #lupustrust #lupusawareness #lupustruth #lupusfacts
🫤🙄 #chronicpain #autominnunedisease #invisibleillness #lupusfighter #lupusSucks #chronicillness #lupusLife #lupuswarrior #lupus #lupustrust #lupusawareness #lupustruth #lupusfacts
I'm quite sure you know what I mean! 🙂 #chronicpain #autominnunedisease #invisibleillness #lupusfighter #lupusSucks #chronicillness #lupusLife #lupuswarrior #lupus #lupustrust #lupusawareness #lupustruth #lupusfacts #flare #flareup
This is really accurate, of course we'd like a cure but 'manageable' would be great. At least then we'd be able to do more, plan things in advance and have some sort of 'normal' life. #lupus #lupustrust #lupusawareness #lupuslife #lupuswarrior #chronicillness #chronicpain
The fact that we know we are going to pay later for any activity we decide to do is a really sad state of affairs, most people have no idea what that's like. We're constantly asking ourselves 'is it worth doing it'? #lupus #lupustrust #lupusawareness #chronicillness
The Lupus Trust is funding a study looking at how menopause and HRT affect women with lupus. It is being led by Melanie Sloan at Cambridge University. The team are looking to recruit a researcher to help with this study, either full time or part time: jobs.cam.ac.uk/job/45849/
Laurent ARNAUD @Lupusreference
17K Followers 595 Following MD, PhD | Professor of #Rheumatology | #Lupus #SLE | #Digitalhealth | President of @SLEuroSociety | @ERN_ReCONNET Disease Coordinator for Lupus & RP 🇪🇺
LUPUSUK 💙 @LUPUSUK
11K Followers 673 Following LUPUS UK is the only national registered charity supporting people affected by #lupus and assisting those approaching diagnosis. Reg Charity: 1200671
Lupus Europe @LupusEurope
4K Followers 351 Following Lupus Europe is the umbrella association of currently 31 national lupus self-help organisations throughout Europe, and supports people with lupus in Europe.
Lupus Research @LupusResearch
49K Followers 900 Following The Lupus Research Alliance is the world’s largest private funder of lupus research. Together with your help, we will conquer lupus.
The Lancet Rheumatolo.. @TheLancetRheum
13K Followers 269 Following The #LancetRheumatology is a clinical #rheumatology journal publishing innovative & practice-changing research & opinion across all #rheumatic & #MSK disorders
Asociación de #Lupus.. @LupusMadrid
6K Followers 5K Following La asociación AMELyA #Lupus Madrid tiene como objetivo mejorar la calidad de vida d toda persona afectada d lupus e informar a los afectados. Visita nuestra web
Lupus Foundation of A.. @LupusOrg
46K Followers 1K Following Lupus Foundation of America is the only national force devoted to solving the mystery of lupus while giving support to those who suffer from its brutal impact.
Kelle Bryan @kellebryan
14K Followers 939 Following Actress, award winning CEO https://t.co/8OZszP8qHy Acting rep @leemorgan_mgnt 🇺🇦 Currently shooting for @itv Campaigner @lupustrust
Nuria #Lupus @TuLupus
7K Followers 7K Following Me define lo q soy y no lo q tengo. Escribo en @lupuseurope, @afosfolipido, @LupusJaen, @AcoluEspana, @lupusmadrid y https://t.co/zpXRSUnCnE
EMEUNET @EMEUNET
7K Followers 858 Following EMEUNET is the @eular_org committee of young clinicians and researchers in rheumatology. Follow us for news, resources, opportunities and events of interest!
Eve smith @evemdsmith_eve
729 Followers 994 Following Paediatric rheumatologist, University of Liverpool, EATC4Children, Alder Hey. Interested in everything lupus, & raising awareness of paed rheum @WORDDay_org
Vivir Con Lupus💜 @VivirConLupus1
2K Followers 1K Following En este espacio comparto mi historia, consejos y recursos para vivir con #Lupus. Mi objetivo es acompañarte, apoyarte y motivarte. 💜
Dalila @dalilatm
657 Followers 490 Following Interested in research ethics and all about lupus. We need a #cure for #Lupus 💜 Cardiff Lupus Support Group #patient 🦋
EULAR @eular_org
21K Followers 2K Following The European Alliance of Associations for Rheumatology. The registration for #EULAR2024 Congress is now open!
SLEuro @SLEuroSociety
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Medical Research Foun.. @MedResFdn
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Kaleidoscope Fighting.. @Kaleidoscope_FL
4K Followers 3K Following We educate the public and the medical community about lupus, to push for earlier, life-saving diagnoses for those afflicted, and to spur funding for a cure.
Yurilís Fuentes @yurilisjfuentes
5K Followers 4K Following Internista-Reumatólogo. Profesora en @UDO_VE Madre, esposa, hija. #Lupus Researcher. PhD student, interested in #Education in #Lupus. Tweets are my own.
Rheumatology & Rheuma.. @RheumJnl
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Ricky Chotai (he/him) @ricky_chotai
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anne standbridge @anneystanney
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Borealis @Borealis85
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Disability Isn’t A .. @diisability
10 Followers 14 Following morg, 28 yrs old. childhood TBI survivor, epilepsy haver(simple partial)..posting my chronic illness cocktail & physical/invisible disability awareness #Spoonie
💜♑️JettaJayyyy.. @BrylensMommy_17
222 Followers 651 Following ‘Playing with my intelligence can be bad for your health’ 💜💪🏾💜 Lupus warrior💜💪🏾💜 Boy mom 👩👦💙🤎
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27 Followers 77 Following Fun out going and easy to get along with ❤️. https://t.co/xqxjYQZuAg
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727 Followers 479 Following Wannabe journalist, Social justice activist, Want to see prison reform in the UK & the US. & to change mental health care in the NHS.
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289 Followers 610 Following Spondylitis Superstar. Lyme Legend. Patient Leader & Advocate. Author. Ally To All ♿️🏳️🌈🏳️⚧️
Nicola 🌸 @nicolaah001
228 Followers 897 Following Wife, mother, dog lover. Carpe diem 'cos you just never know....
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6 Followers 7 Following I have a chronic illness(POTS) and way to much to say about it! Here’s the place to live chronically, online!
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queen selena @QueenS94033
633 Followers 4K Following fan account dedicated to the amazing beautiful inside and out brave Queen that is selena marie gomez @joshwri03954536 be yourself always there's no one better
PReS Lupus Working Pa.. @working1371
20 Followers 41 Following Join us in the fight against chidhood SLE [email protected]
peter townley @petertownl70305
95 Followers 305 Following orphaned/homeless at 18 farther of transgender student bloodclot surviour APS/RA/SLE lupusStudent/healthcare/cleaner/pro vaccine anti trump count your blessings
LuvLee Rakgadi @Ms_LuvLee_Diva
2K Followers 3K Following Happy is what happy does😘💕 Let love rule!!!
Bernadette B Jackson @smoochiebbaby
35 Followers 27 Following Wife, Auntie, Worshipper, Lupus Warrior and Daughter of the King!
Sarah Owens @Sarah_Owe
358 Followers 2K Following Kindness! Chronic Disease Fighter! Happy to be Here! 🤓💜
NoxiousLepidoptera�.. @NoxiousClarky
631 Followers 867 Following Mother of Mayhem. Wife of Hero. Autoimmune survivor. LGBTQI+ ally. SNP. Proud Yesperado. Socialist. Bit weird. Still not Janey. 👍🏼
Tim Milliron @MillironTim
75 Followers 73 Following Retired Drilling fluid engineer/owner- Baroid De Venezuela/M&M Mud and Chemical.
Mette Dyhrberg @metamette
3K Followers 632 Following Serial entrepreneur. Founder/CEO @mymeehealth Rethinking autoimmunity. I'm an economist, not a doctor. I'm an autoimmune patient too.
Laurent ARNAUD @Lupusreference
17K Followers 595 Following MD, PhD | Professor of #Rheumatology | #Lupus #SLE | #Digitalhealth | President of @SLEuroSociety | @ERN_ReCONNET Disease Coordinator for Lupus & RP 🇪🇺
Lupus Europe @LupusEurope
4K Followers 351 Following Lupus Europe is the umbrella association of currently 31 national lupus self-help organisations throughout Europe, and supports people with lupus in Europe.
Dr. John Cush @RheumNow
22K Followers 481 Following Know-it-Now. Info on RA, Stills disease, Lupus, Gout, Pregnancy, Spondylitis, Psoriasis, Drug Safety, Rheumatology Research, Medical Education & Drug Evaluation
Dr Amir Khan GP @DrAmirKhanGP
252K Followers 2K Following NHS Doctor•Best Selling Author•GP on @lorraine + @GMB• President @Natures_Voice •Vice President @wildlifetrusts and @savebutterflies 🍉
Lupus Research @LupusResearch
49K Followers 900 Following The Lupus Research Alliance is the world’s largest private funder of lupus research. Together with your help, we will conquer lupus.
Lupus Foundation of A.. @LupusOrg
46K Followers 1K Following Lupus Foundation of America is the only national force devoted to solving the mystery of lupus while giving support to those who suffer from its brutal impact.
Kelle Bryan @kellebryan
14K Followers 939 Following Actress, award winning CEO https://t.co/8OZszP8qHy Acting rep @leemorgan_mgnt 🇺🇦 Currently shooting for @itv Campaigner @lupustrust
EULAR @eular_org
21K Followers 2K Following The European Alliance of Associations for Rheumatology. The registration for #EULAR2024 Congress is now open!
Kaleidoscope Fighting.. @Kaleidoscope_FL
4K Followers 3K Following We educate the public and the medical community about lupus, to push for earlier, life-saving diagnoses for those afflicted, and to spur funding for a cure.
Rheumatology & Rheuma.. @RheumJnl
12K Followers 2K Following Rheumatology & Rheumatology Advances in Practice are the official journals of @RheumatologyUK.
Lupus Canada @LupusCanada
2K Followers 185 Following Working to improve lives of Canadians living with lupus through advocacy, education, public awareness support & research | 1-800-661-1468 | [email protected]
BSR @RheumatologyUK
17K Followers 2K Following The UK's leading specialist medical society for adult and paediatric #rheumatology and #msk health professionals. Note: we're unable to answer patient queries.
#LupusChat @Lupus_Chat
10K Followers 3K Following #Lupus Online Community - Chat: Sundays at 3PM ET - Next #LupusChat May 5th - Moderated by @TiffanyandLupus, @Xtel007, @CaringForLupus & @Syncenerd_Carli
Ian N Bruce @Lupusdoc
4K Followers 2K Following Pro Vice Chancellor Medicine, Health and Life Sciences, Queen's University Belfast Rheumatologist specialising in Lupus and Vasculitis #COYS
Amanda G @LAlupusLady
12K Followers 10K Following #Lupus advocate raising #LupusAwareness sharing joy and information to empower people on their journey.
King's College Hospit.. @KCH_Research
827 Followers 732 Following The Research and Development Department at King's College Hospital NHS Foundation Trust
David D'Cruz @DavidDC51815841
2 Followers 4 Following
Nia | The Chronic Not.. @chronicnotebook
11K Followers 962 Following Here to smash societal stigmas about #chronicillness & #disability💊 Life with #ibd #eds #migraine #fibro #dysautonomia & more 🦓 IG 49K📷 Join Discord⬇ she/her
Lupus Foundation of A.. @LupusAfrica
39 Followers 74 Following Lupus Foundation of Africa was founded to create awareness on scourge of Systemic Lupus Erythematosu
Hugh Montgomery @hugh_montgomery
9K Followers 69 Following Prof of Intensive Care Medicine, UCL. Director Centre Health & Performance. Science Environment Writing (most recently https://t.co/8hZnfPeJL4) Tweets=mine
Rob Swanda @ScientistSwanda
40K Followers 332 Following Making Science Accessible & Understandable | https://t.co/9OxOsYGZg0
Lupus Association @LADAOrg
6K Followers 5K Following Improving access to care & quality of life by wielding the patient voice as a catalyst to advance advocacy, education, awareness & research efforts.
The Oddfellows @OddfellowsUK
2K Followers 1K Following UK friendship society. Looking for social events and wellbeing support in your local area? Get in touch. Everyone’s welcome. #NonProfit #Mutual
Lupus Survivors @lupussurvivors
8K Followers 7K Following Empowering lupus survivors by sharing our perspectives on the impact chronic illness has had on our mind, body and spirit.
Lupus News @Lupus_bio
1K Followers 40 Following Track the latest #lupus news, research, clinical trials, companies and reports. Continuously updated from 500+ news, research publications.
C. Michael Gibson MD @CMichaelGibson
436K Followers 374K Following Non-Profit Founder/Leader | ❤️ Doc | Artist Scientist Educator | News Anchor https://t.co/7OIKCgMVAT | RT ≠ endorse | Disclaimer: https://t.co/bwmE2O3U5W
Kava @Scroll_KZP
13K Followers 109 Following #KAVA is a decentralized blockchain that combines the speed and interoperability of Cosmos with the developer power of Ethereum.
WorldLupusFederation .. @WorldLupusFed
977 Followers 272 Following The World Lupus Federation is a coalition of lupus patient organizations, united to improve the quality of life for all people affected by lupus.
KellyFund4Lupus @KellyFund4Lupus
3K Followers 715 Following Your life does NOT stop just because you have lupus! Love yourself more than lupus hates your body. Our story~ https://t.co/u34Eb2u2Mz Founder @brendablackmon
Lupus S&M @Lupus_SM
2K Followers 110 Following The official #OpenAccess journal of the @LupusOrg published by @BMJ_company creating a barrier-free forum for #lupus #research
Healthwatch North Som.. @HealthwatchNS
2K Followers 3K Following We're your health & social care champion. We make sure NHS leaders/other decision makers hear your voice & use feedback to improve care. RT/Follow ≠ Endorsement
Healthwatch B&NES @hwatchbathnes
2K Followers 2K Following The latest news, topics and highlights from around Bath & NES's Healthwatch network. Tell us what you think! https://t.co/RUGGqrtZyP
Tim Spector MD (Prof) @timspector
117K Followers 801 Following PI of the ZOE PREDICT studies & the ZOE Health Study @Join_ZOE Researcher/Author on microbiome, nutrition & genomics. All views my own.
UK Health Security Ag.. @UKHSA
503K Followers 774 Following Official feed of the UK Health Security Agency (UKHSA) providing regular news updates on the work of the organisation.
HSF Charity @HSFCharity
1K Followers 470 Following This is the official twitter account for The Hospital Saturday Fund a Registered Charity in the UK No 1123381 and in Ireland No 20104528
HCPLive Rheumatology @HCPLiveRheum
8K Followers 874 Following HCPLive Rheumatology provides clinically impactful news and updates for HCPs treating rheumatic disease.
Paddys @twitchoftheday
3K Followers 3K Following Overhead, a crazy song. It's a bird. How out of its throat smaller than a finger can there fall the waters of its song? (P. Neruda, Ode To Bird Watching)
#CharityHour @CharityHourUK
17K Followers 17K Following #CharityHour ran for 10 years on Wednesday 8-9PM from Feb 2014 to Feb 2024. Host @TaheraMayat from https://t.co/lTbDhBzBhi - stay in touch with me on LinkedIn
Jeramie Rain @jeramiedreyfuss
17K Followers 2K Following Above all be kind. Use short time on earth to make positive change. No change too small. Be grateful.Speak up Fight for the voiceless.Plant eater #Pigoneer🌱Dem
APS Foundation of Ame.. @APSFA
3K Followers 2K Following APS Foundation of America (#APSFA) is the only US org spreading #Antiphospholipid Syndrome #APS & #Lupus #Awareness! #DVT #PE #Stroke #APS #miscarriage
All Things Lupus™ @AllThingsLupus
3K Followers 1K Following Surviving #lupus for over 25 years & counting! I hope to encourage and empower people whose lives have been affected by #lupus. #RA #CKD #spoonie
Advocate Agency @advocateagency
1K Followers 468 Following A specialist company sourcing specialist artists. We pride ourselves on our select client list of multicultural artists who strive for excellence.
Lupus Lights NE @LupusLightsNE
4K Followers 1K Following You can #LiveWellWithLupus! Connecting those with #lupus and #autoimmune diseases by sharing personal experiences and health-related information. #SLE
NLO | Lupus @NLOLupus
1K Followers 834 Following Whether you've just been diagnosed or have had Lupus for years, you'll find practical advice, valuable resources and a supportive community at #NewLifeOutlook.
Caring For Lupus @CaringForLupus
4K Followers 798 Following Passionate about improving Lupus Awareness; Co-host of #LupusChat (Sun. 3pm EST) - #Lupus #LupusWarrior #LupusAwareness #KearnyCares #BerkeleyAlumni #PinkSocks
nickede @nickede
19K Followers 18K Following Branding & Culture Expert. Campaigner. Management: [email protected]
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556 Followers 293 Following We're a coalition of 46 organisations who believe that people with long term conditions in the UK shouldn't have to pay for their prescriptions.
Rheumatology Nurses @RNSociety
4K Followers 3K Following Leading nurses and APPs (nurse practitioners and physician assistants) to excellence in the care of patients with rheumatic diseases.
Dr Sara Kayat @sara_kayat
14K Followers 408 Following 👩🏽⚕️NHS GP & TV Doctor @thismorning #celebrityisland #gpsbehindcloseddoors #12hourstocureyourstreet #specialclinics agent: @thesohoagencyuk
Jessica VanHove @JessVanhove
493 Followers 477 Following Animal lover, cat lover, vegetarian, bird watcher, RN, MS survivor
هكر تقني اخ�.. @LawyersVSLupus
2K Followers 2K Following تقني هكر اختراق - استرجاع الحسابات - تهكير - سناب - تويتر - انستغرام - حذف الابتزاز -تهكير واتساب وايكلاود تواصل واتس بلبايو
Awareness Everyday @AwarenessEvery
3K Followers 3K Following Everyday Awareness Apparel - #Awareness is not just a month of the year, it's EVERY DAY! Be Seen, Be Heard! #lupus #sjogrens #cancer #autoimmune
Lupus Video Channel @LupusChannel
3K Followers 2K Following All things LUPUS-Links to blogs, videos, info, articles, groups, support, etc!
Int J Clin Rheumatol @fsgijr
592 Followers 768 Following International Journal of Clinical Rheumatology | Focus on clinical aspects of rheumatological disease | Published by Future Medicine Group
Invisible illness is an umbrella term for any medical condition that isn't easily visible to others. @lupustrust @IndianRheum @SjogrensOrg @MoHFW_INDIA @PMOIndia @narendramodi @WHO #SclerodermaIndia #InvisibleIllness #ChronicIllness #Scleroderma #Autoimmunedisease #healthcare
@lupustrust I got one for you that gets under my skin. “Why do you have to go to so many doctor appointments?” REALLY?🤨😡
For #LupusAwarenessMonth, we hear from one of our Consultant Rheumatologists, Chris Wincup, about upcoming research at @KingsCollegeNHS. He said: "It is a very exciting time to be researching Lupus and we intend to share some of these advances ..." Read➡️bit.ly/3Fmr1bf
Visit lupus.org.uk for helpful resources, the latest news on research and donation links if you'd like to offer your support. 💜 @lupustrust #lupusawareness #livingwithlupus #lupustrustuk
What is #Lupus? Around 50,000 people in the UK are thought to have Lupus. October is #LupusAwarenessMonth. Please read our post, learn about the symptoms of Lupus and the organisations that offer support to people with the disease. @LUPUSUK @HibbsLupusTrust @lupustrust
Thank you sincerely to everyone who voted . I literally never. Especially with such a beautiful line up of nominee's. #winner #TV personality excellence award. ✨️ Thanks to @RB_Official @leemorgan_mgnt @paulinebriscoe @lorraindublin My next next door neighbour and my mum 🥰
Wow, this is spot on! It's how I ended up pretty much completely isolated. I have one friend who regularly checks in with me. Everyone else pretty much buggered off - this is why I started Spoonie on a Mission! We need to support one another!!
🙁 #lupusfighter #lupusSucks #chronicillness #lupusLife #lupuswarrior #lupus #lupustrust #lupusawareness #lupustruth #lupusfacts #chronicpain #sickofbeingsick
@lupustrust It's bloody well true! Spent Sunday with a friend, having lunch and sitting, talking quietly, in a bookstore for a few hours. Seemed fine - we had a good time. Been suffering with less sleep, more tiredness, and higher levels of pain since Monday morning. Can't. Fecking. Win.
Grateful to @MedResFdn for supporting this exciting neuroinflammation academic meeting in Edinburgh on 7th & 8th Nov. Registration & abstract submissions open – book now! edin.ac/3Zno6If #lupus @HuntLabEdin @LupusResearch @lupustrust @LupusEurope @LUPUSUK @NHSEngland
Please everyone get your COVID XBB subvariant vaccine... FDA approved today! Yay! If you have #Lupus , #SLE, #sjogrens or immunocompromised in any way, especially get it! Anti-vaxers, just ignore my Tweet (but I would love some of you to change your mindsets)... Donald Thomas, MD
Today, we took action approving & authorizing for emergency use updated COVID-19 vaccines formulated to more closely target currently circulating variants & to provide better protection against serious consequences of COVID. Here’s what you need to know: fda.gov/news-events/pr…
@Volsicle @lupustrust My immune system is apparently the equivalent of an under-enriched Jack Russel terrier. It will chew through **anything**.
Follow me guys. @lupustrust #lupus #chemotherapy
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