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It has been 4 weeks since your funeral. We miss you so much Soshie Bear. We're all struggling without you.
Sophia, Mommy and Daddy love you sweetpea. You are so strong. So brave. We didn't give up on you. Please forgive us.
Dear God, I am offering my little girl to you tonight. Please be mercyful and don't let her suffer anymore.
Sophia is so sick. The docs told us that there is not much more they can do for her. We're preparing to bring her home.
You have been so strong. You have fought so hard. We know you are getting tired. You are truly an Angel.
We have had to make some very tough decisions today. I pray that we have done the right thing. We love you Sophia.
Today has not been a very good day. Taken off the O2 and placed on Bi-pap. Sophia is beginning to struggle.
Had our 2nd major meeting with docs since last Wednesday. Sophia is deteriorating quickly. She's running out of time.
So much for uneventful. Sophia spiked a fever. We're watching Bee Movie and Sophia is getting sleepy.
Please God, please, give Sophia another chance. If anyone deserves it, she does.
We are getting close to having to make the hardest decisions of our lives. We need your prayers now more than ever.
We met with a group of doctors today. We are beginning to run out of options. We really need some prayers from everyone.
Today has been uneventful. Sophia has been resting comfortably for most of the day. We watched Curious George together.
I am off of BiPAP and just on oxygen at this point. Heart and breathing rates are stll elevated. Still getting fevers.
Still in the PICU. Making very slow progess. Getting close to 100 days in the hospital.
Sophia was extubated and taken off of the ventilator yesterday. She slept for most of the day. So far so good.
The move to the new Children's Hospital went well. It took its toll on Sophia, but she has recovered.
Yesterday, Sophia had a very rough day. She was intubated and placed on the ventilator. She is stable and resting.
Last day at CHP in Oakland. Can't wait for the move to Lawrenceville.
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