Neurofibromatosis Therapeutic Acceleration Program @ntapresearch
Accelerating the development of effective therapeutics for plexiform and cutaneous neurofibromas n-tap.org Baltimore, Maryland Joined May 2023-
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Be part of the amazing progress we are making toward accelerating the development of effective therapeutics for cutaneous and plexiform neurofibromas. Learn more about NTAP funding opps thru our open proposal process: bit.ly/4acIxfD @HopkinsMedicine #NF #medtwitter
#DYK Cutaneous neurofibromas (cNFs) are the most common skin tumor in people living with neurofibromatosis type 1 (#NF1)? Visit bit.ly/3TE1K48 to learn more about a clinical study currently underway. @HopkinsMedicine #dermatology #medtwitter
Worlds colliding. People with NF1 are at risk for many rare cancers. Many common cancers are driven by somatic #NF1 loss. Understanding the NF1 condition and gene may unlock new potential for immunotherapy in rare and common cancers. #ImmunoOncology #Immunotherapy #MedTwitter
Looking forward to #FrancisSCollinsScholar Dr. Chelsea Kotch’s talk on risk stratification for #NF1 associated tumors at the Pediatric Precision Medicine Cancer Care Summit hosted by UCSF next week! More info here: virtualce.ucsf.edu/Pediatric-Prec… #NF @HopkinsMedicine @ntapresearch
Congrats to Dr. Natalie Pride on joining the #FrancisSCollinsScholar community. We look forward to her important contributions to the #NF1 field. #KidsNeuroscienceCentre @kids_research #ChildhoodCancer #PediatricCancer @SCHNkids
Partnerships across patients, clinicians, scientists & comp biologists reveals genetic features of #NF1 nerve sheath tumors based on @JohnsHopkinsNF1 biospecimen repository and @nfopensci. How discoveries get made. Data is open. Come explore! bit.ly/3SS9Bup
We’re hiring! NTAP is seeking a COO to forge field changing initiatives & get us closer to our mission of ending suffering from #NF1 tumors. Check out this position and apply your talents to enable breakthrough advances as part of an epic team! bit.ly/3SX61iT
Proud to support #FrancisSCollinsScholars @rtsundby @AngelaHirbe & collaborators in this important work which represents a major technological advance with substantial implications for the diagnosis and management of #MPNST, a leading cause of death in people with #NF1.
Proud to support #FrancisSCollinsScholars @rtsundby @AngelaHirbe & collaborators in this important work which represents a major technological advance with substantial implications for the diagnosis and management of #MPNST, a leading cause of death in people with #NF1.
Wonderful year @ntapresearch: cNF NatHx Study reaching goals & device studies complete, NF Data Portal shared 14k files, Made hx w/ GREAT partners, FCS grew NF1 science. Ready to roll in 2024! @HopkinsMedicine @ChildrensTumor @PeDRAResearch @Sagebio #SWTX n-tap.org
Hot off the presses! @ntapresearch funded project from Dr. Rox Anderson’s group published in @JAADjournals showing that small cNF tumors can be rapidly & safely treated without invasive surgery. Good news for people with #NF1 bit.ly/3tbBP9F #NF1 @HopkinsMedicine
ICYMI #SNO2023 was a big meeting for #NF1 and @ntapresearch with presentations by five #FrancisSCollinsScholars highlighting advancements in #NF1 research. And our own @jblakel3 received the SNO WiN Mentorship Award! @NeuronC @HopkinsMedicine
Congratulations to #FrancisSCollinsScholar @0Shrutigarg on the Confidence for Translation (C4T) award furthering your work to improve memory and cognitive function for children with #NF1 bit.ly/3GUhfOl @ntapresearch @HopkinsMedicine #NF @Translation_Mcr @OfficialUoM
Looking forward to #SNO2023 presentation by #FrancisSCollinsScholar @VasuLabUCSF presenting innovative approaches to targeting NF1 loss in nervous system tumors @NeuroOnc @ntapresearch @HopkinsMedicine #NF
Dr Coulpier & the Piotr Topilko lab define tumorigenesis of cutaneous #NF stages in a NF1-KO mouse model & demonstrate the impressive impact of topical MEK inhibitors in stopping cNFs. @ntapresearch @Inserm @HopkinsMedicine pubmed.ncbi.nlm.nih.gov/37331503/
Proud to support the important work of #FrancisSCollinsScholars and collaborators to advance #NF1 research. tinyurl.com/4n25phct @rtsundby #ASTRO2023 @cancer_connect @NCI-CCR_PedOnc-@WUSTLmed @ntapresearch
Excited to share this recent publication by #FrancisSCollinsScholar, @LauraFertitta & team in France, showing the power of stratification by severity of cNF tumor burden to better interpret cNF-Skindex. pubmed.ncbi.nlm.nih.gov/37149083/
Excited to share this recent publication by #FrancisSCollinsScholar, @LauraFerttita & team in France, showing the power of stratification by severity of cNF tumor burden to better interpret cNF-Skindex. pubmed.ncbi.nlm.nih.gov/37149083/ @theJIDJournal #NF1
Calling all early stage clinician scientists who want to be part of the cure! Don’t miss this opportunity to apply for the #FrancisSCollinsScholar program and receive up to 100% salary support for #NF-associated activities. Applications due Dec 1st bit.ly/3qp3MsA
#FrancisSCollinsScholar Steven Rhodes led study showed that omics informed inhibition of CDK4/6 and ERK1/2 synergistically suppresses MAPK and shrinks nerve sheath tumors in NF1 mice. Precision discovery for NF1 driven tumors. bit.ly/3PjWQpz @CCR_AACR #AACR
Up to $25M available in funding for NF related research. Exciting opportunities for scientists across all disciplines and areas of biomedical focus. Explore the broad NFRP Areas of Emphasis and new funding mechanisms. Letter of intent due 9/21/23. cdmrp.health.mil/nfrp/
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Fausto Rodriguez @FRodriguezNP
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Arturo LoAIza-Bonilla.. @DrBonillaOnc
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PeDRAResearch @PeDRAResearch
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AlYur777 @PamWolters
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Jesus G Aranguena @AranguenaJGA
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Meleea @MissMeleea
422 Followers 323 Following lover of anything coconut, country music and good books. Netflix binge watching champion. food enthusiast. neurofibromatosis warrior
Rare Cancer Research .. @RareCancerRF
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NF Patients United @NfPatients
219 Followers 94 Following Neurofibromatosis Patients United (NFPU) is the European Neurofibromatosis umbrella patient association
Simge Acar, MD @simgemd
785 Followers 394 Following @WUSTLmed #NF1 research via @ChildrensTumor YIA | @KU_Medicine'22 | 📸🥾🚴♀️👩🍳 | #Match2024 (she/her)
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Science News @ScienceNews
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Science Magazine @ScienceMagazine
4.0M Followers 483 Following The world's leading outlet for cutting-edge research in all areas of science. Follow @NewsfromScience for stories from our news team.It was a privilege to present @WUSTLmed-@NCI_CCR_PedOnc’s collaborative study to inspiring peers! Appreciative of @ChildrensTumor and @ntapresearch ‘s continued support of @jack_shern @AngelaHirbe @aadel_chaudhuri, Jeff Szymanski, Paul Jones, @alexandercpan and my work!
POB's Dr. Taylor Sundby @rtsundby is at the @ChildrensTumor #NF Conference and presented his talk on using liquid biopsies to determine the biology of #NF1 related nerve tumors! Learn more about Dr. Sundby and his work here: go.cancer.gov/97XCLZC #EndNF
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