Global Long COVID Patients Resources @pwLCResources
Resources & help for #longcovid patients globally. Let's fight #covid #longcovid related #misinformation & #disinformation together. Part of @PuchoDigiHealth researchblog.puchodigitalhealth.com global Joined April 2023-
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This is the crucial sentence: "Whatever switch gets turned on in the body to allow humans to tolerate and benefit from exercise – it’s not happening on multiple levels in ME/CFS." healthrising.org/blog/2023/06/1…
If you’ve been following me, you know that I’ve been doing video interviews with biotech leaders on social media for years. Now I’m taking it to the next level. Launching today: BiotechTV.com @BiotechTVHQ
More evidence of the toll the mass disabling event we’re in. As always, remember the names of those who helped governments fabricate your consent.
More evidence of the toll the mass disabling event we’re in. As always, remember the names of those who helped governments fabricate your consent.
Solve is beginning one of our most ambitious advocacy projects to date — one which could alter the research landscape for #MECFS, #LongCovid, & infection-associated chronic illnesses. We’re calling for the creation of a new, dedicated office @NIH. ow.ly/CAZF50OpwZL
📢 Are you living with long COVID and two or more pre-existing conditions or caring for someone who is? 📢 Do you live in Leicester? @long_covid @PHOSP_COVID @LeicResearch @CersResearch @LongCovidChoir @longcovidpod @CovidCastaways @LCNMUK Your input would be valuable 👇
🚀BREAKING NEWS: We're thrilled to launch our first program, NITRO, aimed at revolutionizing the care for millions suffering from osteoarthritis through groundbreaking approaches to tissue regeneration. Join us on this journey of discovery and innovation! arpa-h.gov/engage/program…
For #LongCovid patients, the pandemic is far from over. The U.S. public health emergency expires today, and many fear that their struggle – to be recognized and treated within the nation's fragmented health care system – is only beginning. google.com/amp/s/www.pbs.…
Several physicians I contacted have described this LifeLabs marketing as "deceptive" Both @DoctorsOfBC and @PHAC_GC point out there is no diagnostic test for long covid The company hasn't responded to my request yet More here 👇 @CTVVancouver #bcpoli bc.ctvnews.ca/b-c-doctors-pu…
Some of the most disabling symptoms of #LongCovid - despite varied manifestations & lack of a clear diagnostic - can be recognized & relieved without specialty care. My first feature for @JAMA_current 1/n jamanetwork.com/journals/jama/…
Many thanks for Brian Vastag, Patient #4 in the NIH ME/CFS Intramural Study, for sharing his current thoughts & analysis on this vital study in a Mastodon thread. Brian's involvement w/this begins in 2015. Grateful for his efforts in moving this forward. sciencemastodon.com/@brianvastag/1…
Many thanks for Brian Vastag, Patient #4 in the NIH ME/CFS Intramural Study, for sharing his current thoughts & analysis on this vital study in a Mastodon thread. Brian's involvement w/this begins in 2015. Grateful for his efforts in moving this forward. sciencemastodon.com/@brianvastag/1…
hi folks! this is a friendly reminder that I write a weekly blog and newsletter about COVID-19, which often covers #LongCovid, surveillance challenges, and broader public health issues. you can sign up for the newsletter here: hype.co/@covid19datadi…
1/☀️Summer Science☀️ @Sagebio (🧵1 of 4): We wrapped @MindkindThe answering how best to collect & share youth mental health #BigData w partners @UWglobalMH @HigherHealthSA @WalterSisuluUni @ZingelazZ @OxChildPsych @minafazeloxford @psychiatry_ucam @Tamsin_J_Ford @netshrink @CMHLP
_disappear @disappe51654109
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Marnie Keicher @KeicMarn
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Merryn Elmes @mer_elme
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Noa Donlyuk @donlyuk80288
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Bailey Soifer @soif_bail
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McTedese @McTedese16356
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Otelia Wooten @OteliaWoot52089
90 Followers 5K Following
Christina Gulbransen @ChristinaG77772
36 Followers 2K Following 23 . Crazy Presale of crypto casino👇💎
Pauletta Bongo @BongoPaulet
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Rena Moglia @MoglRe
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Kyla Rodenberger @KylaRodenb86173
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Leyla Splawn @LeySplaw
49 Followers 5K Following
Winnie Lemoine @LemoineWinni
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Shanae Krenz @KrenzShana25440
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Rylan Bibian @BibianRyla34345
55 Followers 5K Following
Nanda Kishore Routhu @nandakishorer
116 Followers 667 Following Assistant Professor at Emory University School of Medicine, Emory University
_G_olven @g_olven22836
28 Followers 2K Following
Sarah Varaza @SVaraza68528
83 Followers 5K Following
Thesmeth @Thesmeth119889
21 Followers 2K Following
Agatha Preli @AgatPre
64 Followers 5K Following
Pura Erhard @ErhardPura46874
79 Followers 5K Following
Gabriella Elwonger @GElwonger75721
47 Followers 5K Following
Lilly Carchidi @CarchidiLi48645
81 Followers 5K Following
Su Groshong @GroshongGrosho
68 Followers 5K Following
Isla-grace Blankumsee @blankumsee23674
105 Followers 5K Following
Alleen Spiegel @spiege_alle
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Semmat @Semmat335087
28 Followers 2K Following
יוסי פרס @Yosiperes
178 Followers 2K Following
Stella Bracket @BracStell
30 Followers 5K Following
Seraphina @Seraphina532396
20 Followers 2K Following
Joanna Kennaugh @JoannaKennau
33 Followers 5K Following
Emma Heggen @em_hegge
74 Followers 5K Following
Minha Kuwada @MinKuwa
57 Followers 5K Following
Eulah Ferard @EulahF16315
78 Followers 5K Following
Seraphina Woolfolk @SeraphinaW55515
32 Followers 5K Following
Emmy Mahran @EmmyMahran91547
75 Followers 5K Following
Gloria Vandeman @GVandeman11351
35 Followers 5K Following
Delmy Dang @dang_delmy40773
61 Followers 5K Following
Palina @Palina1092465
18 Followers 1K Following
Erica Arjune @ArjuEri
54 Followers 5K Following
Mary Halton @maryhalton
2K Followers 1K Following Science journalist. Big fan of icy moons. Previously @BBCNews. She/her. Queer 🏳️🌈 #LongCOVID ☁️@maryhalton.bsky.social
Daan Kolkman @dakolkman
8K Followers 2K Following Sociologist of data and algorithms. Working on responsible data science and governance of algorithms @UniUtrecht. Header by https://t.co/VbONi7vwx8
Bhavik Koladiya @BhavikKoladiya
3K Followers 79 Following CEO, https://t.co/ME3gRfgJqg | MD, Finix Partners | Founder, BharatPe
Nataša Pirc Musar @nmusar
65K Followers 386 Following Uradni profil predsednice Republike Slovenije | Official profile of the President of the Republic of Slovenia.
Amarok Subalpine @ASubalpine
2K Followers 3K Following I fly close to my man, aim well and then of course he falls down. Pronouns odjebi/odjebite
GeneralAwesomeness �.. @_MegWhite_
6K Followers 1K Following Translator, movie buff, menstruacija, maskulinost, nekak zgledam. Sem ljubezniva in nisem v sindikatu.🌈🌈🌈
Aljoša Harlamov @AlHarlamov
6K Followers 3K Following Urednik, bralec in publicist. V prostem času gleda in bere žanr za @podkastobod.
pengovsky @pengovsky
10K Followers 882 Following Agent provocateur and occasional scribe. Chief janitor @radio_kaos. The stammering one in #MetinČaj, #EvropskaČetrt, #LDGD podcasts. TUEs @ 10AM @aracityradio
Jana Javornik @JanaSvenska
5K Followers 4K Following Academic/Policy Adviser | ex- Director-General of Higher Ed | Advocate #LongCovid #raredisease | Policy, Work/ers, EDI, Impact, Sustainability| Ops mine! |
Steeve Boulant @BoulantLab
1K Followers 654 Following a bit of clathrin, a bit of virus, a bit of organoids: A LOT OF FUN
ScheelLab @ScheelLab
1K Followers 524 Following Viruses, host interactions and RNA. Part of Copenhagen Hepatitis C Program @ UCPH 🇩🇰+🇨🇭🇫🇷🇦🇺🇵🇹🇩🇪🇲🇽🏴🇸🇮
TWINCORE @TWINCOREtweets
682 Followers 256 Following Zentrum für Experimentelle und Klinische Infektionsforschung. 2008 gegründet von Helmholtz-Zentrum für Infektionsforschung und Medizinischer Hochschule Hannover
Systems Arbovirology @ScaturroLab
907 Followers 626 Following Viruses, Mosquitoes & Mass-Spec: what else? Systems Arbovirology! Join our international research group in Hamburg. @Hamburg @LIV @SystemsArbovirology
Tulio de Oliveira @Tuliodna
61K Followers 654 Following Director of CERI (Centre for Epidemic Response & innovation) @StellenboschUni and KRISP (KZN Research Innovation & Sequencing Platform) @UKZN. Tweets my own.
Institute for Experim.. @ExpVirology
918 Followers 250 Following Institute for Experimental Virology - TWINCORE Fighting the extra tiny little bugs that make us sick: #HepatitisC #RSV #SARSCoV2 #HepatitisE #Hantavirus
Marcel A. Muller @MarcelAMller
2K Followers 906 Following coronavirus researcher #ChariteVirology. Opinions are my own.
Friedrich-Loeffler-In.. @Loeffler_News
3K Followers 317 Following Für das Friedrich-Loeffler-Institut, Bundesforschungsinstitut für Tiergesundheit, twittert die Pressestelle. Impressum: https://t.co/DlidW35bVO
Charité - Universit�.. @ChariteBerlin
60K Followers 257 Following Dies ist der offizielle Twitter-Account der Charité. Hier postet, moderiert und kommentiert das Social-Media-Team.
Jeremy Kamil is also .. @macroliter
25K Followers 5K Following He, him. CMV virologist exploring how viruses exploit glycoimmune checkpoints #Glycotime | Loves 🥾 🏔️ 🏕️| Y'all on Bluesky or Threads? Linktree below ⬇️
Arbovirus Seminars @ArbovirusS
4K Followers 3K Following virtual seminars on arbovirus biology, by the community for the community (organised by @MorrisonLabCO , @TuliLab and @VHIT_Mckimmie)
Sriram Kumar @sriramkumarskr
878 Followers 4K Following Postdoc working on RNA viruses & innate immunity. Young @GesVirologie Board 2021-2023, @YI_dgfi & @y_efis Board 2023-2025, @iGEM Biosafety/Security. #DEIMatter
Marion Koopmans, publ.. @MarionKoopmans
86K Followers 3K Following https://t.co/x3zIbMPDg5 Head of Viroscience Department , WHO collaborating centre EID
BeateSodeik Lab @beatesodeik
5K Followers 2K Following Herpes, Virology, Cell Biology, Biochemistry. Trying to devalue competition, and to foster collaboration, reasoning and fairness in science, politics and life.
Luka Cicin-Sain (cici.. @CicinSain_Lab
655 Followers 101 Following Viral Immunologist, science enthusiast. Lab focuses on adaptive immunity against CMV and SARS-CoV-2. My views are my own, not necessarily of my employer.
Sandra Ciesek @CiesekSandra
158K Followers 92 Following virologist and gastroenterologist working in patient care and research for more than 20 years; my opinion
Meyer Lab @MeyerLab_Viro
1K Followers 327 Following Virology Lab | RNA Viruses | experimental viral evolution and its limits | trying something new every day | 🇩🇪🇬🇧
Leif Erik Sander 🇮.. @Sander_Lab
40K Followers 1K Following Infectious Diseases & Respiratory / Director of ID @ChariteBerlin. We study how #VaccinesWork & immunity to respiratory infections. @berlinnovation
Oded Rechavi @OdedRechavi
139K Followers 1K Following Don't be fooled by the rocks that I got, I'm still Oded from the block. TED: https://t.co/rcOm9TSTf5 Huberman Lab Podcast: https://t.co/xZTNlx9nbi
Baldauf Lab @Baldauf_Lab
866 Followers 637 Following Young and dynamic research group @LMU_muenchen working on innate immunity against retroviruses and cancer; @baldauflab.bsky.social
The Binder Lab @TheBinderLab
15K Followers 438 Following #Virology research @DKFZ– investigating #virusdynamics, #antiviralresponse and its involvement in #carcinogenesis. Tweets by Marco Binder.
DZIF - Deutsches Zent.. @DZIF_
3K Followers 346 Following 500 Ärzt:innen und Wissenschaftler:innen aus 35 Einrichtungen mit dem Ziel der Translation - der effektiven Überführung von Forschungsergebnissen in die Klinik.
Nicolas Manel @NicolasManelLab
2K Followers 330 Following
Emanuel Wyler @ewyler
9K Followers 1K Following Berlinbewohner, Migrationshintergrund Alpenpanorama Wissenschaft @MDC_Berlin Publikationen: https://t.co/SAjc8csZQz @[email protected], https://t.co/87TOThOS7S
GfV - Gesellschaft f�.. @GesVirologie
6K Followers 36 Following Wir sind die Fachgesellschaft für Ärzte/Innen und Wissenschaftler/Innen aus dem Bereich der Virologie in und aus Deutschland, Österreich und der Schweiz.
Friedemann Weber (@fr.. @Friedemann1
12K Followers 2K Following Basic researcher on viruses and innate immunity. Professor and Chair JLU Giessen Opinions are my own
Björn Meyer @_b_meyer
21K Followers 924 Following Virologist ☣ @MeyerLab_Viro | Trying to understand why viruses tick the way they do - then, now and in future | 🇩🇪🇪🇺🇺🇳
Christine GOFFINET �.. @GoffinetLab
1K Followers 1K Following Chair in Virology @LSTM | HIV-1, alphaviruses, SARS-CoV-2 | Innate immunity and viral evasion | Alumna of Charité - Universitätsmedizin Berlin, Germany
st🧚♀️@ @mmssrraa4
680 Followers 513 Following 看護師保育士 #コロナ後遺症 で1年半超、就労不能中 💉×0 #労災 🐈🐈🐈ｿﾏﾘとｱﾋﾞｼﾆｱﾝと暮らしています ♪backnumber藤井風 😸猫の欲しいものリスト→https://t.co/jhT2gfO6he
Mari Carmen Motos @mcmotos7
2K Followers 2K Following CIE-10 G93.3 y CIE-11 8E49 ⬇️ #EncefalomielitisMiálgica #pwME #PacienteExperto
Send | Unsend (Sophia.. @SendUnsend
225 Followers 474 Following Describable scribe & babbler | Work in education | March 2020 #LongCovid sufferer | She/her
Melissa RN 818 @818_rn
147 Followers 924 Following mom,RN,dog owner, currently battling with #longcovid #Trump2024
The Mindful Direction @MindfulDirect
22K Followers 6K Following Don't wait for the right conditions. All you need for your growth is available to you in this moment! Vibrate higher every day! Follow us for mindful teachings.
Dr. Neuro 🏳️�.. @Neurofourier
25K Followers 2K Following (Not active) Infectious disease | Public Health | Global Health | Epidemiology | @ CDC | He/him 🇺🇸 🏳🌈🦠 | Opinion =My own
Leah B. Gilliam, MD @DrGRuralMD
23K Followers 3K Following Family Doc. Farm wife 😉 Sometimes witty. Always awkward. UT Vol. ADHD. She/her.This is the crucial sentence: "Whatever switch gets turned on in the body to allow humans to tolerate and benefit from exercise – it’s not happening on multiple levels in ME/CFS." healthrising.org/blog/2023/06/1…
If you’ve been following me, you know that I’ve been doing video interviews with biotech leaders on social media for years. Now I’m taking it to the next level. Launching today: BiotechTV.com @BiotechTVHQ
More evidence of the toll the mass disabling event we’re in. As always, remember the names of those who helped governments fabricate your consent.
At 2-year follow up of >1,100 people who had Covid, unvaccinated vs >600 controls --18% were affected with #LongCovid @bmj_latest bmj.com/content/381/bm…
One word makes a big difference when it comes to talking about our emotions. If you can shift from saying, “I am worried,” to, “I am feeling worried,” you separate yourself from your emotion. This is a beautiful, subtle reminder that you are not defined by your emotions.
TODAY: Deputy Director Dr. Susan Monarez discusses innovation in American healthcare technology and IT at @GovConWire’s 2nd Annual Healthcare IT - Digital Transformation Forum. Visit ow.ly/jmFr50Ocb5a for more information. #GCWhealthcare2
Solve is beginning one of our most ambitious advocacy projects to date — one which could alter the research landscape for #MECFS, #LongCovid, & infection-associated chronic illnesses. We’re calling for the creation of a new, dedicated office @NIH. ow.ly/CAZF50OpwZL
📢 Are you living with long COVID and two or more pre-existing conditions or caring for someone who is? 📢 Do you live in Leicester? @long_covid @PHOSP_COVID @LeicResearch @CersResearch @LongCovidChoir @longcovidpod @CovidCastaways @LCNMUK Your input would be valuable 👇
🚀BREAKING NEWS: We're thrilled to launch our first program, NITRO, aimed at revolutionizing the care for millions suffering from osteoarthritis through groundbreaking approaches to tissue regeneration. Join us on this journey of discovery and innovation! arpa-h.gov/engage/program…
Several physicians I contacted have described this LifeLabs marketing as "deceptive" Both @DoctorsOfBC and @PHAC_GC point out there is no diagnostic test for long covid The company hasn't responded to my request yet More here 👇 @CTVVancouver #bcpoli bc.ctvnews.ca/b-c-doctors-pu…
Some of the most disabling symptoms of #LongCovid - despite varied manifestations & lack of a clear diagnostic - can be recognized & relieved without specialty care. My first feature for @JAMA_current 1/n jamanetwork.com/journals/jama/…
What a week for @BinitaKane @gezmedinger & myself in #SouthAfrica; learning from @resiapretorius & Jaco Laubscher so we can bring their science to the UK; & some desperately needed R&R #LongCovid #TeamClots #MECFS (the wine is fake!)
One child goes to school and then Taekwondo while pre-symptomatic. Within 3 weeks 75 households become infected, resulting in 201 infections. It’s wild that the role of children in this pandemic was ever questioned.
Bad news for many paediatricians and fake-experts: ➡️CHILDREN represent a major transmission vector, yesterday, today and tomorrow! "Children infected from diverse pediatric facilities can be a major source of widespread household transmission with the potential to facilitate…
Many thanks for Brian Vastag, Patient #4 in the NIH ME/CFS Intramural Study, for sharing his current thoughts & analysis on this vital study in a Mastodon thread. Brian's involvement w/this begins in 2015. Grateful for his efforts in moving this forward. sciencemastodon.com/@brianvastag/1…
Following up from Dr. Whittemore of the NIH this morning on the NIH ME/CFS Intramural Study: "The paper has been submitted and is under review! Vicky"
hi folks! this is a friendly reminder that I write a weekly blog and newsletter about COVID-19, which often covers #LongCovid, surveillance challenges, and broader public health issues. you can sign up for the newsletter here: hype.co/@covid19datadi…
The medical center has reinstated a temporary mask mandate after more than a dozen hospital workers and patients at the medical center tested positive for the coronavirus this week, officials confirmed. trib.al/3TiWNj7
Keep mask mandates in healthcare settings, and ensure that high quality masks are free for everyone.
1/☀️Summer Science☀️ @Sagebio (🧵1 of 4): We wrapped @MindkindThe answering how best to collect & share youth mental health #BigData w partners @UWglobalMH @HigherHealthSA @WalterSisuluUni @ZingelazZ @OxChildPsych @minafazeloxford @psychiatry_ucam @Tamsin_J_Ford @netshrink @CMHLP
THIS!! Without #BIPOC input: AI, trials, interventions and diagnostics will not adequately address the needs of our communities. “There is no about us, without us”
The understandable distrust that Black, Indigenous racialized peoples have with the medical establishment have left dangerous gaps in most research initiatives. Here’s a way to peruse & choose which projects you may want to explore & engage with. We deserve to be front & centre.
We are in an era of COVID-19 dashboard shutdowns from many organizations, so here's a list of data tracking efforts that haven't wound down yet. coviddatadispatch.com/2023/03/26/cov…
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