Tamara @chydorina + Tess @ales_frost are scientists + patients who improved from severe #MECFS after taking antibiotics Our aim w/ @remissionbiome is to look at how modifying the microbiome can shift the baseline in #MECFS Please consider donating: gofundme.com/f/Remissionbio…
1. The idea for @remissionbiome came from both of us experiencing a temporary remission after taking a mix of antibiotics (& in Tamara’s case, probiotics). While remission was fleeting, afterwards, our baselines improved. Our aim is to recreate this event + understand it.
@remissionbiome @chydorina @ales_frost Your remission didn't last. It may have cleared a few contributing bacteria. The target is the nervous system. Try 5mg oxy. Works like a charm in 20-30 mins. If successful I will contribute to THAT study.
@remissionbiome @chydorina @ales_frost 5.5 years ago, I had EBV. I had subsequent ear infections and every time I get antibiotics, my Cfs seemed to go into a sort of remission. I definitely think there is something to this. Only certain ABX gave me improvement in my sx. Amox/clav every darn time.
@remissionbiome @chydorina @ales_frost I have two teenagers 5 years into their ME/CFS journey. Both housebound. Really interested ib your work and would love to know more.
@remissionbiome @chydorina @ales_frost Thoughts on this paper? researchgate.net/publication/36…