Siofra's Journey @siofrasjourney

22 year old from N.Ireland diagnosed with a desmoid tumour (fibromatosis) Looking to raise awareness of this rare condition and help support others too. 💕 Northern Ireland Joined December 2017

Tweets

165
Followers

205
Following

726
Likes

130

Siofra's Journey @siofrasjourney

6 years ago

springworkstx.com/patients-famil… Anyone looking a little info in desmoid tumours 👍🏼

0 0 0 0 0

Siofra's Journey @siofrasjourney

6 years ago

Haven’t been on here in ages just want to update a few people that the treatment didn’t work so back to square one. These Desmoid’s are horrible! On the plus side I graduate from my foundation degree this week! I also met the amazing @ollyofficial in the time I was away! 🎓👩🏽‍🎓

0 0 1 0 0

Download Image

Copart UK @CopartUKLimited

7 years ago

@jackpot180 Voice of an angel... who knew!? :D

Lawrence Tanner @LawrenceTanner1

7 years ago

@jackpot180 Voice of an angel... who knew!? :D

3 6 17 0 0

Download Video

0 4 17 0 0

Loose Women @loosewomen

7 years ago

@siofrasjourney Sending you lots of love 😘

0 1 4 0 0

Patricia Devlin @trishdevlin

7 years ago

@d_t_tweets @siofrasjourney @SeaninGraham22 @Lisa_J_Smyth @jillybeattie @LisaJSmyth @yvetteshapiro Contact me anytime, Siofra. 😁

1 1 2 0 0

My Way Access @MyWayAccess

7 years ago

My #ff this week is @siofrasjourney. Siofra is 21 years old from Co. Armagh. Diagnosed with a Desmoid Tumour (Fibromatosis). Siofra is raising awareness of this rare disease and help support others. #pwd #mywayaccess #followfriday

1 4 8 0 0

Download Image

Jonathan) AKA The Sloan Ranger 🤠 @sloaners2000

7 years ago

Wishing you a full speedy recovery ✅ 🤗 @EamonnHolmes @BigHitsRadio_UK

Siofra's Journey @siofrasjourney

7 years ago

Wishing you a full speedy recovery ✅ 🤗 @EamonnHolmes @BigHitsRadio_UK

0 0 4 0 0

Download Image

1 1 3 0 0

Siofra's Journey @siofrasjourney

7 years ago

Treatment has officially started!! #Desmoid #Tumour #Treatment

0 0 4 0 0

Download Image

The Vamps @TheVampsband

8 years ago

Thank you Ireland 🇮🇪! All Night - X3 Platinum and Middle Of The Night - Gold 🙏🏻

186 1K 6K 0 9

Download Image

Siofra's Journey @siofrasjourney

8 years ago

Only for these microwaveable heat packs I don't know how I'd survive. The only thing that helps me get a little relief from the pain. At the microwave more than I am anywhere else, not just during the day but numerous times at night too #Pain #Heat #Desmoid #Tumour #Rare #Relief

0 1 6 0 1

Download Image

Siofra's Journey @siofrasjourney

8 years ago

Back to reality after an amazing 21st birthday and party. I was soo spoilt and had a really fab time with family and friends. Just what I needed before this treatment starts. #21stBirthday #Family #Friends #Desmoid #Tumour

0 0 5 0 0

Download Image

Siofra's Journey @siofrasjourney

8 years ago

Happy St.Patricks Day everyone!!! Hope you all have a brilliant day! #ProudToBeIrish

0 0 2 0 0

Download Image

Dermot Devlin he/him @castleDD

8 years ago

@siofrasjourney I dare say you still look fabulous Siofra. I see you've set up a Facebook page. I've just liked it. Remind me tomorrow to share across the mywayaccess.com platforms. 👍

1 1 1 0 0

Siofra's Journey @siofrasjourney

8 years ago

Can't believe I reached 200 likes on my Facebook page yesterday. Delighted!! Hopefully start treatment this week. Please keep liking and sharing my page. And feel free to like my Facebook page @siofrasjourney Thanks everyone! 💖