APPG on Vulnerable Groups to Pandemics @APPG_VGP
All-Party Parliamentary Group on Vulnerable Groups to Pandemics is a cross-party group of UK Parliamentarians concerned about #vulnerablegroups appg-vulnerablegroups.org Joined September 2020-
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Today we delivered a letter to Prime Minister @RishiSunak signed by 16 charities & organisations representing immunocompromised people across the UK. On this 4th anniversary of the first UK Covid-19 lockdown, we're calling for support for those facing continued risk & isolation.
@_CatintheHat however they have also upheld an appeal by the NHS to delay further roll out to a cohort of approx 14m, for 15 months. meaning many who should get it wont. They will pay more storage charges on the drugs already bought and many will go out of date and have to destroyed
On the day Boris Johnson is interviewed on his decision making we are here @HouseofCommons asking for change for those who are still living indoors to shield from the ongoing threat of #COVID19 We need strategy & targeted support. More here: tinyurl.com/3vdtxskn @UniofBath
On the day Boris Johnson is interviewed on his decision making we are here @HouseofCommons asking for change for those who are still living indoors to shield from the ongoing threat of #COVID19 We need strategy & targeted support. More here: tinyurl.com/3vdtxskn @UniofBath https://t.co/y8I6ra9tWn
Today @DrJoDaniels and I met in @HouseofCommons to present research with @APPG_VGP @4gottenlivesuk we hope will help improve life #mentalhealth #politicaltrust #representation of 1.2 million immunocompromised. Significant promised made. Thanks all 808 people who took our survey.
Pleased to be able to finally share our report ‘Forgotten but Engaged’ which goes live today and will be presented @HouseofCommons See below for report and thread for headlines tinyurl.com/uekr2fpk @BathPsychology @UniofBathNews @4gottenlivesuk @UniofBathIPR @APPG_VGP
Pleased to be able to finally share our report ‘Forgotten but Engaged’ which goes live today and will be presented @HouseofCommons See below for report and thread for headlines tinyurl.com/uekr2fpk @BathPsychology @UniofBathNews @4gottenlivesuk @UniofBathIPR @APPG_VGP
Congratulations to Victoria Atkins MP on her appointment to Secretary of State @DHSCgovuk and to the new health team. We hope that you will work with the APPG VGP to prioritise and protect the immunocompromised still shielding or living restricted lives due to Covid 19
@JeremyVineOn5 @bonsuman @estherk_k @alexisconran Lots of hospital trust are telling their staff not to test for covid if they are ill too. Shocking disregard for vulnerable patients and also their own staff. So yes we need masks in hospital settings. This is the one place that should be safe.
Why are we putting so many at risk? Why are so many ignoring basic principles We need more people to stand up like this and speak out Enough us enough. People are DYING @GwynneMP @libdemdaisy @willquince @carolvorders @SGriffin_Lab @DrFrancesRyan @Kit_Yates_Maths @danielgoyal
Why are we putting so many at risk? Why are so many ignoring basic principles We need more people to stand up like this and speak out Enough us enough. People are DYING @GwynneMP @libdemdaisy @willquince @carolvorders @SGriffin_Lab @DrFrancesRyan @Kit_Yates_Maths @danielgoyal
British Jews: Write to your MPs in support for Israel. We have to make our voices heard. tinyurl.com/mr2rcbej
According to the Minister for Health, the #Forgotten500k campaign that I spearheaded last year with @NikolaBrigden, @MarkOak04974342, and @drlennardlee generated more political questions than any other matter in recent history.
In England, if you test positive for COVID-19 you are no longer automatically contacted by the NHS to discuss treatment if you’re eligible. Click here to read the full article from the Guardian: bit.ly/3EPWRwv
Recruitment has now opened for the #STRAVINSKYstudy Details below of how you can get involved 👇
Recruitment has now opened for the #STRAVINSKYstudy Details below of how you can get involved 👇
Amazing response to submissions to the study on mental health and political views of those #shielding Recruitment is now closed and @Bernardi_L and @DrJoDaniels are busy working on a report for the @APPG_VGP to share with UK government in November. Thanks to @4gottenlivesuk
Clinically Vulnerable.. @cv_cev
14K Followers 12K Following 𝗖𝗼𝗿𝗲 𝗣𝗮𝗿𝘁𝗶𝗰𝗶𝗽𝗮𝗻𝘁 in the 𝗨𝗞 𝗖𝗼𝘃𝗶𝗱-𝟭𝟵 𝗜𝗻𝗾𝘂𝗶𝗿𝘆 JOIN us on FB 📸cv_cev 🟦☁️@cvcev.bsky.social
Forgotten Lives Uk @4gottenlivesuk
5K Followers 5K Following People are coming together to get Evusheld funded in the uk. Please join our group https://t.co/pkgwbGvSpn
Mark Oakley @MarkOak04974342
3K Followers 3K Following fighting to protect 1.2 mill immunocompromised people stuck in the nightmare of shielding for over 3 yrs abandoned by this Government @4gottenlivesuk
Martin Paul Eve @martin_eve
13K Followers 4K Following Principal R&D Developer @CrossrefOrg | Lit Prof @birkbeck_etc | Music on tici taci records | My books: https://t.co/OsmxBx7Bux | Personal account.
Dr Lennard Lee (Oxfor.. @drlennardlee
2K Followers 851 Following Associate Prof Oxford (NDM) & Birmingham University | NHS Oncologist | HMG advisor | @independentsage | #cancervaccines #personalviews
Shannon Peters Banks @ShannonB
1K Followers 2K Following Female entrepreneur, mother, lupus warrior passionate about social leadership, action learning and purpose #lupus #stillshielding #cev #immunocompromised
Amanda Tomlins💜�.. @tomlins_amanda
3K Followers 5K Following Lifelong #Autoimmunity #Kidney #Transplant CNS SLE Sjogrens Evans Asplenia Graves #TransverseMyelitis AFib MECFS+ #MasksInHealthcare EVERY STORY IS US - Rumi
ProtectPatients @ProtectPatient5
1K Followers 1K Following Tweet anything that raises awareness of #immunosuppressed abandonment by the U.K. GOV. RT not an endorsement just interesting. @protectpatient5.bsky.social
Stephen Griffin @SGriffin_Lab
28K Followers 10K Following Professor of Cancer Virology | Viroporins, Antivirals, Viral Oncology, Immunotherapy | Own views | @IndependentSAGE @LongCovidKids @projecthalo #VaccinesPlus
Daisy Cooper MP 🔶 @libdemdaisy
34K Followers 6K Following #StAlbans MP | @libdems Deputy Leader, Health & Care Spokesperson | 📧 [email protected] | Promoted by Liberal Democrats, 9 Hatfield Road AL1 3RR.
Nikola Brigden @NikolaBrigden
1K Followers 3K Following Straight talking Yorkshire Lass, Wife of a Stem Cell Transplant Warrior, Mother and Campaigner for the roll out of protection for https://t.co/4t8tGMQFvh
EternalShielder @TicketToZen
586 Followers 847 Following CEV CRUELLY ABANDONED BY TORY SCUM and SNP. Kidney Transplant Recipient ..shielding since March 2020 Deflated but not defeated! #GTTO 🇵🇸
Chris Fraser 🇬🇧 @christyfraser
919 Followers 999 Following Christian with feet of clay, Campaigner: CEV Safety & Equality, CLL (chronic lymphocytic leukaemia). FFP3/N99 wearer. NOVID.
liz brown 💛💙�.. @lizbrown003
895 Followers 1K Following Ex NHS Nurse. Longdog owner, wine drinking , woke. Never voted Tory never will. Feels European. No DMs. Mastodon @[email protected]. [email protected]
Glyn Huskisson @glynhuskisson1
561 Followers 556 Following Retired uni lecturer. Campaigning for truth about Covid Environmentalist. Keen to stop overdevelopment in South. FB Opposition to S.E. Cambridge Transport Plan
sq @sw57901
1K Followers 4K Following
Janet P @JanandJay
242 Followers 615 Following I am immunocompromised due to blood cancer and treatments. Still shielding. #ForgottenLivesUk. please follow @4gottenlivesuk
Jane Webster @JaneWeb81865788
618 Followers 577 Following Retired maths teacher, ex-Bridge player, learning Italian in hope to visit Italy again but meds for Rheumatoid Arthritis make me #CEV #immunesuppressed
Fi @WattWatt15
551 Followers 2K Following Interested in compassionate communities & enjoying life. Living with metastatic breast cancer & PID . Immune compromised. Opinions my own.
Margaret Dempsey @MargaretDe23620
33 Followers 205 Following
Peace Bankole Selowo @PeaceBankole
98 Followers 1K Following Staff @Bingham University; Researcher @Nasarawa State University, advocate for improved & accessible healthcare systems
Serene Mc geoghegan @mc_serene
3 Followers 7 Following
WorkingAndNotWorkingW.. @WorkingWithLC
314 Followers 499 Following All about #LongCovid paid work/not being in paid work #Benefits including energy limiting conditions: Dr Clare Rayner, Dr Jenny Ceolta-Smith and Pen Scribbler
Andy McGuinness @Andy4Manor
573 Followers 2K Following Lib Dem Councillor for Manor Ward in Stevenage & Public Affairs Manager at health charity - views are my own
Amber Hopgood, MSc �.. @amberhopgood
461 Followers 1K Following #HERper, bug chaser, ecologist | @BBC_ARG_ Chairperson | @GameandWildlife Writer & Research Specialist | @ScienceSaysUK lead | Autistic | She/her | Views my own
Anna Gray @AnnaRebeccaGray
50 Followers 111 Following
Transplant Imaginarie.. @transplanttalks
488 Followers 566 Following Transplant Imaginaries started as an AHRC-funded project & the PI is Dr. Donna McCormack who is a Chancellor's Fellow at the University of Strathclyde.
Jackie everard @jackie_everard
374 Followers 2K Following
Katherine T. Tyson @katherinettyson
2K Followers 2K Following Bibliophile & traveller. Working in the area of international climate & biodiversity Mastodon @[email protected]
fiarh @fionarh289
44 Followers 369 Following Speak 🇫🇷 & 🇩🇪, love crisps & dips, have Long Covid & PoTS
University of Bath Ne.. @UniofBathNews
836 Followers 374 Following The latest news from the @UniofBath Press Office. Media enquiry? Email: [email protected]
Amanda Chetwynd-Cowie.. @AmandaCC92
4K Followers 3K Following NHS public affairs • Trustee of the @JoCoxFoundation • cofounded @FFSake_ • she/her • [email protected]
Kevin Naicker @KevinNaicker20
6 Followers 25 Following
Ros Scott @BaronessRos
3K Followers 299 Following Lib Dem Peer, Deputy Chairman HoL , Board Member National Archives , President National Association of Local Councils
Declan O'Driscoll @Dec_ODriscoll
685 Followers 2K Following Gypsy, Roma & Traveller Human Rights Consultant | Be kind 🇬🇧🇮🇪🏳️🌈🏳️⚧️
Jennifer Allen 💙 @jenSCD
632 Followers 4K Following Clinical Biochemist, Newborn Screening, ‘Sine nobis, sunt divinare’, NHS Supporter, Equality of Opportunity, Westie Lover, Views my own 🇺🇦
jJulie Love MBE @juliemlove23
1K Followers 5K Following Co-founder & chairperson of DAYNA, mum to Colin & John. Non Hodgkin's lymphoma survivor. All views my own. https://t.co/MdhJ98q0Y3
Pill Counter Kel 😷 @PillCounterKel
851 Followers 1K Following Pharmacist. All views my own. Mum. Owned by a cat. Conscientious objector to forced infection. #LuckFupus #CovidIsAirborne #MaskingForAFriend
Julie @SchinkelJulie
455 Followers 4K Following
Kate Brudenell @KatieBrudenell
582 Followers 2K Following Senior Campaigns Advisor @BPSOfficial | she/her | Vale of Belvoir resident |#mentalhealth | #equality | cycling | animals | mountains | music | views my own.
Thushan de Silva @Thushan_deSilva
2K Followers 2K Following Physician Scientist | Professor of Infectious Diseases @ShefUni_ClinMed | Vaccines and Immunity @MRCUnitGambia | SARSCoV2 | Influenza | StrepA
NIHR Applied Research.. @NIHRARCs
5K Followers 2K Following We are the network of 15 @NIHRresearch Applied Research Collaborations. ARCs support applied health and care research across the country 💙 https://t.co/3vPO6R4cYW
Professor Alex Richte.. @AlexRichter3
4K Followers 655 Following Director of the Clinical Immunology Service, University of Birmingham. Consultant Clinical Immunologist University Hospitals Birmingham.
Carlotta Rauch @CarlottaRauch
76 Followers 139 Following National Influencing Officer at @alzheimerssoc/@AlzSocCampaigns. Views my own. She/her
PotteringPanda🐼 @potteringpanda
53 Followers 194 Following Just quietly observing the world 👀. Music, dance, gardening (esp bamboo, obvs), birds, art, history, cat 😺#neuromyelitisoptica #transversemyelitis #cvid 🇬🇧
Henry Nash @henrynash
3K Followers 5K Following Author (“Letters to Dead People”) and Entrepreneur. Believe in bringing back rational discussion and holding our politicians to account.
Raheel Ahmed @RaheelAhmed_ae
1K Followers 4K Following CEO:RakBank 🇦🇪 أكثر من 20 عامًا في مجال التمويل. مؤمن بالأسواق الفعالة والتقنيات الناشئة والشركات الصغيرة في إطلاق العنان للإنتاجية. الاستثمار المؤثر
sophie wintrich @SophieWintrich
74 Followers 351 Following Patient advocate since 2007 Reconnecting after burnout Look after yourselves & each other Personal page on #nhslove #PPI #advocacy #haematology #mentalhealth
#MentallySound @_MentallySound
2K Followers 5K Following #MentalHealth award winning radio show & podcast, @spicefm, Tues 1pm. Archive: https://t.co/TU9zEHB2v9
Inclusive New Normal @InclusiveNew
417 Followers 274 Following Social enterprise working to share, further develop, and facilitate application of learning from the pandemic, towards a safe Inclusive New Normal. Coming soon!
Indigo Rose @indigoroseb12
442 Followers 651 Following Chronically ill and disabled writer. #B12 #EDS #PoTS #AAI #migraine #MCAS, absent MBL #cUTI #cPTSD visual stress, #tetheredcord, #serotoninsyndrome
🏴�.. @mciver1977
1K Followers 3K Following Long Covid Advocate and former toddler. #Longcovid good luck with trolling, you will need it.
Jane Nunnick @JNunnick
269 Followers 512 Following Mum of one beautiful girl, Clinical Trials Nurse Advisor @bloodcancer_uk. Wishes there were more hours in a day!! Views all my own.
Shireen Mushtaq @ShireenMushtaq
711 Followers 3K Following Assistant Professor at Kinnaird College for Women | International Relations | South Asian security studies
Beth Andrew-Dann @Beth_Dann
610 Followers 4K Following @ADJnews 📝 Disability Studies Grad 📚 MBA Environmental Management + BA Geography Grad @BangorUni 🌎 CVST Survivor 🤕 Dysgwr Cymraeg 🏴 PIEMA 🌿
Dr Xin Hui Chan 🕊 @xhschan
969 Followers 902 Following #Infection #GlobalHealth #Equity #Leadership • Academic Clinical Lecturer🦟🧫🦠🍄🪱💊💉• call me ‘Sin Hway’• she/her • views my own • retweets ≠ endorsements
Luca Bernardi @Bernardi_L
617 Followers 431 Following Senior Lecturer/Associate Professor in Politics, University of Liverpool. Mental health & politics; public opinion & public policy; representation
Kieran @nomad_dissident
2K Followers 2K Following Non-partisan. RT/Likes DNE endorsement. Slow to block but will do so for abuse, harassment, etc. Views my own.
Sarah @scooternan
2K Followers 3K Following Passionate socialist from the age of 14. I loathe injustice and racism. I have MS & COPD. Shielding since early March 2020. Proud crank. She/her #WearAMask
Sally Morgan @SallyMo.. @sallymorganslt
4K Followers 5K Following SLT|Lecturer| #AHP Clinical Academic PhD student | Cranio mum| Christian| She/her| Research: Safe Efficient & Enjoyable Meals for Disabled #CYP #Dysphagia #SEEM
Richard Walker @richgwalker007
0 Followers 30 Following
Clareq12.bsky.social-.. @ClareQ12
2K Followers 2K Following Carer for CEV person. Hate Tories, hate fascists, hate anti mask goons. Happy to natter with anyone else
Andrew Todd @AndrewTodd90
61 Followers 162 Following
Bradley Price @BradleyJPrice
944 Followers 3K Following Director of Policy & Public Affairs @ActionPFcharity. Fleeting between hobby obsessions, currently ☕️🥃🍸⛳️♟️🎷 Views my own. (he/him)
Janet Golding @JanetGolding
6 Followers 210 Following
Clinically Vulnerable.. @cv_cev
14K Followers 12K Following 𝗖𝗼𝗿𝗲 𝗣𝗮𝗿𝘁𝗶𝗰𝗶𝗽𝗮𝗻𝘁 in the 𝗨𝗞 𝗖𝗼𝘃𝗶𝗱-𝟭𝟵 𝗜𝗻𝗾𝘂𝗶𝗿𝘆 JOIN us on FB 📸cv_cev 🟦☁️@cvcev.bsky.social
Forgotten Lives Uk @4gottenlivesuk
5K Followers 5K Following People are coming together to get Evusheld funded in the uk. Please join our group https://t.co/pkgwbGvSpn
Mark Oakley @MarkOak04974342
3K Followers 3K Following fighting to protect 1.2 mill immunocompromised people stuck in the nightmare of shielding for over 3 yrs abandoned by this Government @4gottenlivesuk
Martin Paul Eve @martin_eve
13K Followers 4K Following Principal R&D Developer @CrossrefOrg | Lit Prof @birkbeck_etc | Music on tici taci records | My books: https://t.co/OsmxBx7Bux | Personal account.
Dr. Deepti Gurdasani @dgurdasani1
143K Followers 6K Following Clinical epidemiology, machine learning, NLP, global health. Intersectional feminist. she/her. Also on @[email protected] @dgurdasani1.bsky.social
Prof. Christina Pagel @chrischirp
204K Followers 953 Following Prof Operational Research @UCL_CORU, health care, women in STEM. Member of @independentsage. Tweets personal. chrischirp at bluesky. https://t.co/nNW5zMenx2
ProtectPatients @ProtectPatient5
1K Followers 1K Following Tweet anything that raises awareness of #immunosuppressed abandonment by the U.K. GOV. RT not an endorsement just interesting. @protectpatient5.bsky.social
Stephen Griffin @SGriffin_Lab
28K Followers 10K Following Professor of Cancer Virology | Viroporins, Antivirals, Viral Oncology, Immunotherapy | Own views | @IndependentSAGE @LongCovidKids @projecthalo #VaccinesPlus
Daisy Cooper MP 🔶 @libdemdaisy
34K Followers 6K Following #StAlbans MP | @libdems Deputy Leader, Health & Care Spokesperson | 📧 [email protected] | Promoted by Liberal Democrats, 9 Hatfield Road AL1 3RR.
Nikola Brigden @NikolaBrigden
1K Followers 3K Following Straight talking Yorkshire Lass, Wife of a Stem Cell Transplant Warrior, Mother and Campaigner for the roll out of protection for https://t.co/4t8tGMQFvh
Steve Haywood @SteveHaywoodTog
140 Followers 121 Following Manchester and Chesire based portrait photographer
Blood Cancer UK @bloodcancer_uk
40K Followers 4K Following We're a community dedicated to beating blood cancer through research - leukaemia, lymphoma, myeloma.
Fiona Loud 💙 @FionaCLoud
6K Followers 2K Following Policy Director @KidneyCareUK, Co-author Kidney Health, UKKA fellow, Chair @westhertsNHS Organ Donation Ctee; living w Keith's kidney, TSC https://t.co/XgUc49tWru
Ros Scott @BaronessRos
3K Followers 299 Following Lib Dem Peer, Deputy Chairman HoL , Board Member National Archives , President National Association of Local Councils
Labour Muslim Network @LabourMuslims
12K Followers 236 Following The voice of British Muslims in the @UKLabour Party.
Independent SAGE @IndependentSage
172K Followers 370 Following An independent group of scientists providing transparent advice during the COVID crisis.
lee harpin @lmharpin
15K Followers 4K Following Journalist, crisis management, publicity and campaigns. views my own
Sarah Sackman @sarahsackman
10K Followers 3K Following Labour’s MP candidate in Finchley & Golders Green | Barrister | 📧 [email protected]
Will Quince MP 🇬�.. @willquince
24K Followers 4K Following Member of Parliament for Colchester. Former Health, Education and DWP Minister. Promoted by Will Quince MP of 4 Wyncolls Road, Colchester, CO4 9HU
The Media Leader @TheMediaLeader
9K Followers 681 Following We are a dedicated media industry publication that offers leading news, analysis and opinion about what matters most in media.
Tortoise @tortoise
103K Followers 2K Following Slow news, without the noise 🐢 |✉️ Get our daily Sensemaker email https://t.co/EWoazCFVpT | Download our audio app https://t.co/spvldekbBs
Thérèse Coffey @theresecoffey
45K Followers 485 Following Conservative MP for Suffolk Coastal. Please don't expect Twitter reply. Constituents please email me. Promoted by Thérèse Coffey of 4 Matthew Parker St SW1P 9HQ
Prof Sir Gregor Smith @DrGregorSmith
30K Followers 2K Following Chief Medical Officer for Scotland, Honorary Professor, University of Glasgow; Honorary Air Commodore 612 Squadron, Royal Air Force. #RealisticMedicine
Chief Medical Officer @CMOIreland
7K Followers 13 Following Prof Breda Smyth is CMO in @roinnslainte. Advising Department, Minister & Government on all medical & public health matters @healthyireland @slaintecare
David LV Bauer @DavidLVBauer
4K Followers 334 Following virologist ~ recovering biophysicist ~ aspiring bioinformatician ~ group leader @TheCrick :: RNA Virus Replication Lab
Macmillan Cancer Supp.. @macmillancancer
652K Followers 2K Following We do whatever it takes to support people with cancer; emotionally, physically, and financially 💚
BBCKatharineDaCosta @KatharineDC
2K Followers 2K Following Senior Reporter and Presenter @BBCSouthNews and @BBCNews email [email protected]
John Healey MP @JohnHealey_MP
37K Followers 345 Following Husband and Dad. Proud Yorkshireman. Labour MP for Wentworth and Dearne and Shadow Defence Secretary.
Harvard Medical Schoo.. @harvardmed
451K Followers 685 Following Official Twitter home of Harvard Medical School, featuring our advances in biomedical research, trends in medical education, and more.
Medscape @Medscape
258K Followers 37K Following Medscape provides breaking medical news and expert perspectives, drug and disease information, and free CME across 30+ medical specialties.
NICE @NICEComms
254K Followers 1K Following Official feed of NICE - National Institute for Health and Care Excellence. We produce evidence-based health and social care guidance. Tweets by the comms team.
Antonio Pagliuca @ProfBMT
2K Followers 2K Following Professor of Stem Cell Transplant @KingsCollegeLon | @KingsCollegeNHS |External Medical Adviser, @AnthonyNolan | Views are my own.
Steve Barclay @SteveBarclay
61K Followers 738 Following MP for North East Cambridgeshire, Secretary of State for Environment, Food & Rural Affairs. Promoted by Steve Barclay of MJS House, Wisbech Road, PE15 0BA.
My Voice Your Voice @MyVoiceYourVoi1
260 Followers 116 Following Founder of The Hive @hivetosurvive - Proud to host and facilitate The Hive in this Collaborative Project. All DMs for The Hive to this inbox please
IfYouTickleUs @ifyoutickleus
4K Followers 1 Following Live in Stamford Hill; Breathe the world "Infamous Jewish internet blogger"(Jewish Tribune) "N16 deep throat"; "key worker" (Norman Lebrecht, JC)
Wes Streeting MP @wesstreeting
199K Followers 10K Following Labour MP for Ilford North. Shadow Health & Social Care Secretary.
UK Covid Vaccine Rese.. @UKCovidVaxHub
253 Followers 127 Following https://t.co/rWOWO5RDEY Up-to-date news and insights on COVID-19 vaccines from UK research teams. Funded by the National Core Studies (Immunity) programme.
Lorraine @woolma_lamb
19 Followers 125 Following
Jagdeep Mishra @jagmishra
216 Followers 1K Following Business Change and Transformation Leader in UK | Immunocompromised Protections & Rights | Social Justice | #Evusheld #cev
Martin Landray @MartinLandray
12K Followers 249 Following Physician, epidemiologist & clinical trialist: https://t.co/PuSJzZsPC6 @oxford_ndph. Lead, Good Clinical Trials Collaborative https://t.co/Do4H97gzf0. CEO https://t.co/4YkPhZtWPG
Michelle Willicombe @mkwillicombe
2K Followers 983 Following Transplant Nephrologist. Proponent of Clinical Research. Transplant Nephrology Lead @ImperialNHS.
Gill Murphy 💙#Forg.. @GillyMurphus
754 Followers 1K Following Mum, wife, blood cancer patient, pt research representative, ex-biochemist (Dr) & research manager, Blood Cancer UK Ambassador, Anthony Nolan supporter, LFC fan
Iain Gilmour @ProfIainGilmour
690 Followers 244 Following Emeritus Professor, The Open University. Photographer and fly fisher.
Andrew Gwynne MP @GwynneMP
53K Followers 861 Following 🌹 Labour MP for Denton & Reddish | Candidate for Gorton & Denton | Shadow Social Care Minister | Husband, Dad, Grandad, owned by a Chihuahua | VIC20 user🕹👾
Vicky Foxcroft MP �.. @vickyfoxcroft
25K Followers 3K Following Labour MP for Lewisham Deptford & Shadow Minister for Disabled People. For enquiries/assistance, pls email [email protected] or call 020 8469 4638
The Vulnerable and Sh.. @the_shielding
690 Followers 56 Following Are you CEV, CV a Shielder - either past or present. We are not being represented, our place in this world is valid. Join us, share your story, be heard.
Ruth Cadbury MP 💙 @RuthCadbury
25K Followers 1K Following Proud Labour MP since 2015 for Brentford & Isleworth (inc Hounslow Osterley & Chiswick) For news & sign-up for regular updates please see my website 👇🏻
Abt Global Britain @AbtGlobalGB
2K Followers 394 Following Global leaders in research and implementation through equity and innovation. Thinking and working on climate and health, governance and sustainable development.
Leukaemia Cancer @leukaemiauk
3K Followers 2K Following Raising money devoted to the recruitment of bone marrow donors, research, education and patient care. Charity No. 1040984
Henny Braund @HennyBraund
2K Followers 1K Following Chief Executive @AnthonyNolan saving the lives of people with blood cancer. Trustee of The Mix (@TheMixUK) Trustee of AMRC (@AMRC). All views my own.Today we delivered a letter to Prime Minister @RishiSunak signed by 16 charities & organisations representing immunocompromised people across the UK. On this 4th anniversary of the first UK Covid-19 lockdown, we're calling for support for those facing continued risk & isolation.
@GwynneMP Lovely to finally meet you Andrew. A really great meeting. Looking forward to working with you in the future.
@_CatintheHat however they have also upheld an appeal by the NHS to delay further roll out to a cohort of approx 14m, for 15 months. meaning many who should get it wont. They will pay more storage charges on the drugs already bought and many will go out of date and have to destroyed
Great to meet with Mark and Nikola from @4gottenlivesuk this morning, for a really productive discussion. The immunosuppressed community has been badly let down by this government, putting endless hurdles in the way of accessing vital treatment, it's simply not good enough.
On the day Boris Johnson is interviewed on his decision making we are here @HouseofCommons asking for change for those who are still living indoors to shield from the ongoing threat of #COVID19 We need strategy & targeted support. More here: tinyurl.com/3vdtxskn @UniofBath
Today we begin week #8 of hearings for Module 2: Core UK Decision-making and Political Governance. We will hear from Boris Johnson (Former Prime Minister of the UK) youtube.com/@UKCovid-19Inq… 📺Watch live from 10:00 (with a three minute delay) on our YouTube channel 👇
Today @DrJoDaniels and I met in @HouseofCommons to present research with @APPG_VGP @4gottenlivesuk we hope will help improve life #mentalhealth #politicaltrust #representation of 1.2 million immunocompromised. Significant promised made. Thanks all 808 people who took our survey.
Pleased to be able to finally share our report ‘Forgotten but Engaged’ which goes live today and will be presented @HouseofCommons See below for report and thread for headlines tinyurl.com/uekr2fpk @BathPsychology @UniofBathNews @4gottenlivesuk @UniofBathIPR @APPG_VGP
Looking forward to going to @HouseofCommons tomorrow @Bernardi_L & @4gottenlivesuk we will be talking to @APPG_VGP MPs & stakeholders about our most recent research on effects of #shielding during the pandemic, including key policymaker recommendations tinyurl.com/532x92dh
@JeremyVineOn5 @bonsuman @estherk_k @alexisconran Lots of hospital trust are telling their staff not to test for covid if they are ill too. Shocking disregard for vulnerable patients and also their own staff. So yes we need masks in hospital settings. This is the one place that should be safe.
Why are we putting so many at risk? Why are so many ignoring basic principles We need more people to stand up like this and speak out Enough us enough. People are DYING @GwynneMP @libdemdaisy @willquince @carolvorders @SGriffin_Lab @DrFrancesRyan @Kit_Yates_Maths @danielgoyal
@ProtectPatient5 @SGriffin_Lab @labourlewis @cv_cev @4gottenlivesuk It beggars belief that Gov advice is contrary to the protection given by #NHS IPC teams. In my 42 years in the NHS I have never seen anything like this. How do we reconcile ‘do no harm’ with NHS guidelines that harm / kill vulnerable patients with nosocomial infections?
Preparing the haemodialysis machine for its first home run tomorrow. Freedom beckons. But I am also disappointed in myself. I made several silly mistakes during setup today on my last day in hospital. Nothing life threatening, but nonetheless frustrating.
British Jews: Write to your MPs in support for Israel. We have to make our voices heard. tinyurl.com/mr2rcbej
According to the Minister for Health, the #Forgotten500k campaign that I spearheaded last year with @NikolaBrigden, @MarkOak04974342, and @drlennardlee generated more political questions than any other matter in recent history.
Last Friday I posted about a very unpleasant experience I had. I was bowled over by the amazing reponse. It underlines that even if many people feel, & often are physically isolated we're not alone, not fighting a losing battle, no matter how much we are made to feel that way 🧵
Just had a really shocking & distressing experience. GP practice nurse came to my house to do a routine blood test. Comes to my house as the practice recognises I'm at high clinical risk & can't easily get to the surgery. I opened the front door & she came in with no mask on. 🧵
In England, if you test positive for COVID-19 you are no longer automatically contacted by the NHS to discuss treatment if you’re eligible. Click here to read the full article from the Guardian: bit.ly/3EPWRwv
We know that a blood cancer diagnosis can be more costly than other types of cancer, and that it's the most common type of childhood cancer. We support this important campaign from @YLvsCancer on travel costs & we look forward to seeing the Government’s response to the petition!
10 Downing Street, get ready to listen out for a knock on the door – we're ready to hand in our petition for a Young Cancer Patient Travel Fund #RunningOnEmpty
Recruitment has now opened for the #STRAVINSKYstudy Details below of how you can get involved 👇
We are opening participant recruitment for our #STRAVINSKYstudy. As we do so, we want to provide info on how you can find out more about our research & how to get involved 1/🧵 1. Visit our website & read our info on participant recruitment👉 immunology.org/partnerships/s…
Do listen to scientists bringing some light to the darkness to help take go the final mile. 😇I think @IndependentSage matters as it’s the last platform to hear scientists talk about what should happen this winter! I’m there for #immunocompromised @ those affected by cancer. 👍
🚨 Independent SAGE returns with its fortnightly briefings on 8th Sept. For our Autumn sessions, we return with a bit of a refresh on the format - "looking forwards with lessons learnt". Join us on the live next week!
Pleased to be involved in this important work with @APPG_VGP @UniofBath and @LivUni 👇 Please RT - we are looking to reach those who are clinically vulnerable so we can better meet need and lobby for change Clinically vulnerable? Please take part here: tinyurl.com/4e8ee6e4
The APPG is delighted to announce the launch of a survey, in partnership with @4gottenlivesuk, @DrJoDaniels Uni of Bath, @LivUniPol's Dr Luca Bernardi, @drlennardlee Oxford on the impact of C19 on mental health and political engagement on the clinically vulnerable. Links below..
We are delighted to announce the launch of a survey, in partnership with @APPG_VGP , @DrJoDaniels Uni of Bath, @LivUniPol's Dr Luca Bernardi, @drlennardlee Oxford on the impact of C19 on mental health and political engagement on the clinically vulnerable. forgottenlives.uk/1_survey.html
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