Brain Ablaze @BrainAblaze
As people with Epilepsy, we raise awareness for Epilepsy and support anyone having seizures. | The Brain Ablaze Epilepsy Podcast | Blog | Support brainablaze.com California Joined February 2020-
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Everyone has experienced that moment where they forget the word that was the tip of their tongue. For some people with #epilepsy, it can become a common occurrence. -- Do you struggle with wordfinding? #epilepsyAwareness
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Do you feel your #epilepsy has made you more/less open to being vulnerable in your everyday life? #epilepsyAwareness brainablaze.com/blog/goldilock…
#NationalHonestyDay is a great reason to finally talk to family and friends about #epilepsy (or #seizures). #epilepsyAwareness
#NationalHonestyDay is tomorrow. What advice would you give to someone ready to divulge their #epilepsy to their friends and family? #epilepsyAwareness
While @IlaeWeb changed the nomenclature for seizure classification in 2017 to deprecate words like partial, complex, grand, or petit, many people (including doctors) still use them. Do you? #EpilepsyAwareness brainablaze.com/the-brain-abla…
Woo hoo! Please join us in congratulating @kaileyh175 on such a huge milestone! #EpilepsyAwareness
Woo hoo! Please join us in congratulating @kaileyh175 on such a huge milestone! #EpilepsyAwareness
According to the @cdc, one in four adults (or about 61 MILLION Americans) have a disability that impacts major life activities. -- Why don't you think #disability is not covered in our media, books, and film? #disabilityRights #EpilepsyAwareness
Experts suggest that one avoid screens for a couple of hours before bedtime. -- How good are you about getting quality #sleep so your seizures are not triggered? #EpilepsyAwareness brainablaze.com/go/sleep
Would it influence your buying decision if you knew one of two competing products (e.g. toothpaste) was made by a company that guaranteed that each of their employees learned proper seizure first aid? #EpilepsyAwareness
The sensations before, during, and after a #seizure are often unique. -- How would you explain what you go through during a seizure? #EpilepsyAwareness Here's is one person's explanation: brainablaze.com/the-brain-abla…
There is so much that is still not known about the human brain. Does it make you feel better there is an army of neuroscientists and neurologists who have made it their life's work to discover how the brain works. #EpilepsyAwareness
Brain Ablaze retweeted
@BrainAblaze I just had my 1st seizure for the first time in almost 3 1/2 years and I was wondering how many people tend to have seizures when riding/driving due to the sun flashing between trees? #EpilepsyAwareness #EpilepsyQuestion
We're live! 💜
Our Support Group meets virtually in about AN HOUR. Anyone who has #epilepsy (or cares for someone who does) is invited to share their story. #epilepsyAwareness Here are the details: brainablaze.com/go/pst
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@BrainAblaze Yes and sometimes Im very fluent but theres always a week struggling with that
@BrainAblaze Every sentence everyday, tiredness also plays a big role
@BrainAblaze But then we would have never have met & became twitter friends. It's ok 🙏🏽 Things happen for a reason 🫶
@BrainAblaze Yes. I struggle with this frequently. You can hear me stumble on stream, and I'll make a silly sound and just start again. It's frustrating, but it's life. #EpilepsyAwareness #epilepticstreamer #epilepticvtuber #vtuber
@BrainAblaze I have my meds shipped to me and in pill packs (SelectRx). It helps me remember.
@BrainAblaze after 15 myoclonic clusters three vns magnet swipes myoclonic seizure still going buccal madazalam
@SaanneG @BrainAblaze I attribute it to medication!!!
Yes...and in both languages, worse I have something of a lisp that's more pronounced in Spanish...
@BrainAblaze Yes all the time. I was diagnosed as memory deficent as well as my MRI showed the "vallys" in my frontal lobes are bigger. Idk im mostly sad. I googled it and it said it can develope inyo alzhimers or dimensita. Idk... i just wish i didnt have it
@BrainAblaze 🤔 I don't talk to people much at all anyways but. What should I tell people when this is happening?
@BrainAblaze It became worse after right temporal resection surgery in Nov 2019, but I’ve been told medications for epilepsy can also cause it.
@BrainAblaze Yup it's definitely a side effect some days I just tell myself to stop talking because I can't find the words but I can listen 🎧 to TV for hours and hours as a way to distress.
@BrainAblaze It depends. If it's a new word/phrase or one that's not used very much in daily life, then it can happen, yes but not that often.
@BrainAblaze Often and it’s so frustrating and embarrassing 🙈 I dread speaking or answering questions when the seizures begin 🥺😖
@BrainAblaze All the time. Sounds like I’m speaking gibberish sometimes.
@BrainAblaze Yeah, I call it my brain & my mouth not agreeing on what they want me to say 🤷♀️😂
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