CURE Epilepsy @CureEpilepsy
CURE Epilepsy is the leading nongovernmental funder of epilepsy research, with over 300 grants funded in 18 countries to date. CureEpilepsy.org Chicago, IL Joined March 2011-
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Understanding Sudden Unexpected Death in Epilepsy (SUDEP) and the ways to mitigate the risks of SUDEP can save a life.
Understanding Sudden Unexpected Death in Epilepsy (SUDEP) and the ways to mitigate the risks of SUDEP can save a life.
❗Register now for tomorrow's webinar. 💻 Post-stroke seizures are often associated with significantly increased mortality and severe disability in patients with a history of #stroke. Learn more in our #webinar. cureepilepsy.org/webinars/webin… #seizure #epilepsy #neurodegenerative
The epilepsy community needs your help! @AmericanBrainCo has created an opportunity for you to write your representatives at this critical time to ask them to sign on to support increased funding for the NIH BRAIN Initiative. americanbraincoalition.org/page/ContactCo… @NIH_NINDS
With @CureEpilepsy, we are thrilled to award @NaomiDirckx, PhD a one-year $100K research grant! Funded generously by CURE & by TESS donors Mary and Mark Stevens, the grant will enable Dr. Dirckx to better understand how SLC13A5 mutations affect metabolic processes in the brain.
❗Register now for our webinar on Tuesday. 💻 Post-stroke seizures are often associated with significantly increased mortality and severe disability in patients with a history of #stroke. Learn more in our #webinar. cureepilepsy.org/event_type/web… #seizure #epilepsy #neurodegenerative
Channing Seideman discusses the impacts of drug-resistant #epilepsy and the side effects of the numerous anti-seizure #medications that ultimately led to her trying the Vagus Nerve Stimulation (VNS). Learn more about the #VNS and other devices: cureepilepsy.org/for-patients/u…
Everyone's epilepsy journey is different. We're grateful to our Board Member, Steve Austin, for sharing his story on the What the Health podcast.
Everyone's epilepsy journey is different. We're grateful to our Board Member, Steve Austin, for sharing his story on the What the Health podcast.
Finding the right epilepsy treatment for you can take time. On the latest Epilepsy Explained, Dr. Nathan Fountain, MD, Professor of Neurology and Director of the Comprehensive Epilepsy Program at the University of Virginia, answers your questions. cureepilepsy.org/epilepsy-expla…
New research from featuring work by CURE Epilepsy Grantees, Drs. Edward Cooper and Jeffrey Noebels. The team examined a genetic variant of the KCNQ2 gene. cureepilepsy.org/news/study-rev… #epilepsyresearch #epilepsygenetics #geneticsresearch
Join Grammy winner Rick Springfield at CURE Epilepsy's upcoming Night of Discovery! This is our annual benefit to raise funds for #epilepsyresearch. Please consider making a gift & being part of our effort to find a #cure. e.givesmart.com/events/zGV/ #NightofDiscovery
Register for a webinar that will help viewers understand the history & development of epilepsy common data elements (CDEs) with a special focus on preclinical Sudden Unexpected Death in Epilepsy (SUDEP) CDEs. cureepilepsy.org/webinars/webin…
May 15-18, the Mario Negri Institute hosts the International Conference on Post-Traumatic Epilepsy, organized with @CureEpilepsy and promoted by the @NIH (National Institutes of Health). @ElisaEzanier 👇ic-pte2024.com
Today is #siblingsday, a day to recognize the amazing bond between #siblings. Learn more about the unshakeable bond of siblings even when #epilepsy is part of their family's daily life. bit.ly/4aJJ6y1.
🧠 Epilepsy researcher Dr. Nicholas Varvel discusses the connection between brain inflammation and #epilepsy and shares how research may provide therapies to prevent the onset of #seizures and comorbidities. cureepilepsy.org/seizing-life/i…
Laura Beretsky lived for decades with complex partial #seizures. Her journey through college, career, workplace discrimination, parenting, and life-changing surgery is chronicled in her recent memoir Seizing Control. Watch the full episode of #SeizingLife. cureepilepsy.org/seizing-life/o…
Register for an informative webinar that will explain what SUDEP CDEs are, what impact they could potentially have on the translational relevance of their preclinical investigations, & how the CDEs can be used in the context of daily preclinical research. cureepilepsy.org/webinars/webin…
Today is #WorldAutismAwarenessDay. Epilepsy and autism are often interconnected, with an estimated >30% of people with epilepsy also meeting the diagnostic criteria for autism. Learn more about the connection between #autism and #epilepsy today. cureepilepsy.org/event_type/wor…
Two captivating webinars on #genetic testing in #epilepsy are available for you to watch and learn from, right from the comfort of your own screen! 🖥️ Understanding Results: bit.ly/49phoVA Criteria for Adults and the Promise of New Treatments: bit.ly/49irpDZ
Praxis reports positive results from Phase 2a proof of concept study in a compound being developed for focal epilepsy. bit.ly/3vzsOIy
Epilepsy Foundation o.. @EpilepsyFdn
39K Followers 2K Following #EpilepsyAwareness & Education | FREE #SeizureFirstAid Certification | 24/7 Helpline (1-800-332-1000) | Unwavering ally for people w/ #epilepsy & #seizures.
Brain Ablaze @BrainAblaze
9K Followers 7K Following As people with Epilepsy, we raise awareness for Epilepsy and support anyone having seizures. | The Brain Ablaze Epilepsy Podcast | Blog | Support
American Epilepsy Soc.. @AmEpilepsySoc
14K Followers 721 Following Official account for American Epilepsy Society. We support research + education for professionals working towards a world without epilepsy. RTs ≠ endorsements.
The Notorious EEG (M... @TheNotoriousEEG
10K Followers 2K Following Epileptologist/Head of Neurosciences @cookchildrens, I 💜 #HailState, buffalo wings, art, music & foremost Becky & my daughters. Views are mine, not my employer
TalkAboutIt.org @TalkAboutItorg
8K Followers 6K Following DESTROYING STIGMA for epilepsy & other conditions! Co-founder: @GregGrunberg. https://t.co/VlYrkdNHa5 PODCAST: https://t.co/vL91AKrO7L…
ILAE @IlaeWeb
11K Followers 628 Following A preeminent association of healthcare professionals & scientists working toward a world where no person's life is limited by epilepsy *RTs are not endorsements
Epilepsy Society @epilepsysociety
31K Followers 2K Following Transforming lives through advocacy, research & care 💜[email protected] 01494 601 400📞Info- our website
Torie Robinson 🇺�.. @TorieRobinson10
6K Followers 2K Following @EpilepsySparks Insights Podcast Host & YouTuber 🧠🧬 | International Speaker | #Epilepsy & #MentalHealth Research fiend | @MaudsleyNHS Gvnr | All views my own
Meriem Bensalem-Owen,.. @bensalem_owen
4K Followers 3K Following Professor of Neurology | President @ACNS_org | President @efkentuckiana BoD | Division Chief Epilepsy @UKYneuroscience | Views mine #Kentucky #JiuJitsu #Tango
𝐓𝐢𝐟𝐟𝐚�.. @TiffanyKairos
7K Followers 4K Following Founder @tenofficial | Epilepsy Advocate | Blogger | Content Creator | All views are my own
Epilepsia @EpilepsiaJourn
10K Followers 231 Following Epilepsia is the world's leading journal of original scientific research and commentary in epileptology. A journal of the International League Against Epilepsy
that girl with epilep.. @kaileyh175
2K Followers 411 Following currently seizing the day. epilepsy & RNS advocate 💜 DM me about my support group on Discord! she/her • views my own
Prof Ingrid Scheffer @ingridscheffer
3K Followers 656 Following Laureate Professor of Paediatric Neurology at @unimelb, @theflorey, @austin_health, @RCHMelbourne. Research epilepsy, classn, genetics, speech & mentorship
Epilepsy Action @epilepsyaction
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Ana Mingorance @CNSdrughunter
3K Followers 1K Following 🧠 🧬 Neuroscientist. Looking for new medicines for CDKL5, SCN1A, SHANK3, DHPS and a few others.
Sandor Beniczky @SBeniczky
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Stéphane Auvin @stephane_auvin
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lisa @lisasophiaa
1K Followers 456 Following i complain about epilepsy a lot. had brain surgery january 2021. i smoke a lot of weed. my son and husband are my everything.
epilepsy facts & opin.. @guy_amv
899 Followers 43 Following i want to cover everything to do with epilepsy. the good, the bad and the ugly. even stuff you don't know im hoping it will help others with there struggles
Dr. Heather Mefford @hcmefford
3K Followers 948 Following Physician, scientist, mom, wife #genetics #epilepsy #pediatrics #raredisease @StJude @StJudeResearch formerly @UWMedicine
Meghan Daley @MDaleyfearless
4 Followers 15 Following Engineer, EpilepsyWarrior, CPT, Group X, Mental Illness Survivor, Narcissistic Abuse Survivor, Podcaster, Author, Nutritional Mentor
Bobby Platanella @Bplat18
17 Followers 50 Following
Karolína Liška @suchmankarolina
8 Followers 65 Following
Lisa Clayton @L_M_Clayton
2 Followers 16 Following
gina andaloro @AndaloroGi8256
0 Followers 14 Following
ISF HADRIAN FC @tini_louise
7 Followers 397 Following tiktok: @isf.hadrian.fc Instagram: ISF HADRIAN FC
Σωτήρης Ευσ.. @EfstathiouSot
10 Followers 69 Following
💜Angiesue @angiesue4748
2K Followers 2K Following I have Epilepsy/P.N.E.S./P.T.S.D./Fibro💜 . Life is too short, live and be happy.
Vincent Blankenship @V_Blankenship
96 Followers 917 Following Assistant Athletic Director/Head Football Athletic Trainer at WVU.
jenifer patterson @jenifermike
102 Followers 608 Following dedicated neuro nurse practitioner and busy soccer mom to 3 boys
ADDI. @rooshankashif
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Brian @bflomlbfan
276 Followers 2K Following
NATHANIEL STEPHENSON .. @nathaniel3737
2K Followers 5K Following JESUS LOVE YOU HE WANT TO SAVE YOUR SOUL GOD BLESS YOU http://[email protected]
Rabie @Rabie574543185
20 Followers 376 Following
Elsie Megan @poemsandparents
18 Followers 224 Following My cathartic and honest (poetic) ramblings about the ups and downs of parenting a child with severe learning disabilities.
Seizurefreedom🦄 @Seizurefree11
3 Followers 66 Following i have epilepsy 💜im an epilepsy advocate 💜 i also want to share my story ,ill never stop spreading awareness 💜🦄
Albert Vilella @AlbertVilella
21K Followers 8K Following Next-Generation Sequencing, Single-Cell and Spatial Biology, Next-Generation Proteomics, Synthetic Biology, Compute Acceleration in Biotech.
Con Koskinas @con_koskinas
1K Followers 7K Following
khamis jnr🇪🇭 $B.. @M_legend_H
162 Followers 1K Following Dont be bothered with things that happen to us. If its good its wonderful and if its bad its an experience. Life goes on
melinda hughie blaloc.. @Mmhblalock
31 Followers 594 Following mama • wife • advocate • fundraiser • medical mama • Epilepsy | ASD • thyroid cancer 🫀 TAAD • 💜neuroscience, epilepsy 🧠 philanthropy / St. Jude
Sindy Segovia @sindy_segovia
266 Followers 963 Following Pediatra, tratando de ser NeuroPed a la altura de las circunstancias🧠👶
Jennifer LoCascio @JenniferLoCasc5
26 Followers 706 Following
Mayra @Mkdominguezz
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Jessika Rodriguez @Jessika35826164
60 Followers 1K Following
Tara Hartman @tara_hartman409
171 Followers 251 Following Daughter of a Army Veteran 🇺🇸 Texas Girl Proud American Wife and mom of 2.
All in One Accessibil.. @wcag_accessible
24 Followers 640 Following AI based website accessibility solution for WCAG 2.0, 2.1, 2.2, Section 508 compliance!
Seizure Power @seizurepower
43 Followers 73 Following Powering people with #knowledge on #epilepsy, #seizures & #neurology. #EpilepsyAwareness helps those hungry for #health #education. Learn and seize your power!
Jo’s Bitesize @jotchambers
28 Followers 128 Following Woman / Wife / Mum / Professional / Menopausal / Normal
sillygoose @Vikingjanell
433 Followers 2K Following
Cassie Hicks @cassie_hic20030
0 Followers 4 Following
Robert Ninyesiga (Amo.. @ninyesigar
2K Followers 5K Following Serving @ngoforum I A bro @sport_svoleybal Gen. Sec @nafasicoop 🇺🇬
Cecilie G. Nome @CecilieNome
163 Followers 367 Following PhD student @GliaLab_UniOslo | Neurology resident @sykehusostfold
N.Crawford 🐈⬛.. @Caitshith
285 Followers 1K Following eco-socialist. disabled with moderate viral ME, neurodivergent with adhd + autism.
Katie Smith @Katie_Smith2712
29 Followers 107 Following
curefort @curefot
1 Followers 35 Following
Jelena @Radivojsha
9 Followers 115 Following
Aisling Loftus @aislingloftus_
3 Followers 55 Following
Maddie's Purple Squad @s_maddie83230
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Person123 @MannyFrancis
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Narinder Singh @Narinde204
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Darren @DarreLeck
194 Followers 412 Following
ARRE Foundation @arrefoundation
137 Followers 198 Following Supporting research and education to improve the quality of life for those living with ASXL-related disorders #BohringOpitz #ShashiPena and #BainbridgeRopers
MediTalk @MediTalkWorld
64 Followers 131 Following Leading healthcare research fieldwork agency 📧Email: [email protected]
Yosuke Niibori PhD @YosukeNRepair
12 Followers 112 Following 🔬 Scientist & Co-founder of Re:Pair Genomics in Toronto. Develop gene therapy products for 8 years. Raised 20k. Bring hope and change the world🌍
Tw @tw_a11
16 Followers 100 Following
Epilepsy Foundation o.. @EpilepsyFdn
39K Followers 2K Following #EpilepsyAwareness & Education | FREE #SeizureFirstAid Certification | 24/7 Helpline (1-800-332-1000) | Unwavering ally for people w/ #epilepsy & #seizures.
Brain Ablaze @BrainAblaze
9K Followers 7K Following As people with Epilepsy, we raise awareness for Epilepsy and support anyone having seizures. | The Brain Ablaze Epilepsy Podcast | Blog | Support
American Epilepsy Soc.. @AmEpilepsySoc
14K Followers 721 Following Official account for American Epilepsy Society. We support research + education for professionals working towards a world without epilepsy. RTs ≠ endorsements.
The Notorious EEG (M... @TheNotoriousEEG
10K Followers 2K Following Epileptologist/Head of Neurosciences @cookchildrens, I 💜 #HailState, buffalo wings, art, music & foremost Becky & my daughters. Views are mine, not my employer
TalkAboutIt.org @TalkAboutItorg
8K Followers 6K Following DESTROYING STIGMA for epilepsy & other conditions! Co-founder: @GregGrunberg. https://t.co/VlYrkdNHa5 PODCAST: https://t.co/vL91AKrO7L…
ILAE @IlaeWeb
11K Followers 628 Following A preeminent association of healthcare professionals & scientists working toward a world where no person's life is limited by epilepsy *RTs are not endorsements
Epilepsy Society @epilepsysociety
31K Followers 2K Following Transforming lives through advocacy, research & care 💜[email protected] 01494 601 400📞Info- our website
Torie Robinson 🇺�.. @TorieRobinson10
6K Followers 2K Following @EpilepsySparks Insights Podcast Host & YouTuber 🧠🧬 | International Speaker | #Epilepsy & #MentalHealth Research fiend | @MaudsleyNHS Gvnr | All views my own
𝐓𝐢𝐟𝐟𝐚�.. @TiffanyKairos
7K Followers 4K Following Founder @tenofficial | Epilepsy Advocate | Blogger | Content Creator | All views are my own
Epilepsia @EpilepsiaJourn
10K Followers 231 Following Epilepsia is the world's leading journal of original scientific research and commentary in epileptology. A journal of the International League Against Epilepsy
that girl with epilep.. @kaileyh175
2K Followers 411 Following currently seizing the day. epilepsy & RNS advocate 💜 DM me about my support group on Discord! she/her • views my own
BarabanLab @BarabanLab
3K Followers 3K Following Translational epilepsy research in an academic setting | neuroscience, drug discovery, zebrafish, electrophysiology, cell therapy, precision medicine and more
Epilepsy Action @epilepsyaction
32K Followers 2K Following The UK charity creating a world without limits for people with epilepsy 💜
Stéphane Auvin @stephane_auvin
2K Followers 864 Following Child Neurologist & Epileptologist. Professor at @univ_paris_cite. Dept Chair at @HopRobertDebre. Senior member 2021 @InstUnivFr. Deputy Editor @EpilepsiaJourn
Dr. Heather Mefford @hcmefford
3K Followers 948 Following Physician, scientist, mom, wife #genetics #epilepsy #pediatrics #raredisease @StJude @StJudeResearch formerly @UWMedicine
Ingo Helbig @IngoHelbig
3K Followers 349 Following Child Neurologist, epilepsy genetics researcher, blogger
Mickie's Miracles @mickiesmiracles
7K Followers 7K Following A nonprofit dedicated to global Pediatric Epilepsy awareness, education and advocacy to help families get an urgent diagnosis and the highest level of care.
Lorrie @LorrieForseth
3K Followers 2K Following Love my fam • writer • blogger • invisible illness advocate • cfec ece 🎓 📚 • sports fan • https://t.co/ycxdggS1II
Chris Dulla @DullaChris
1K Followers 790 Following
The Patient-Centered .. @PCORI
22K Followers 639 Following An independent organization created to help people make better informed healthcare decisions. Links, RTs, favorite ≠ endorsements/advice.
Epilepsy Alliance Ame.. @AmericaEpilepsy
368 Followers 105 Following We’re a national collective of partners with one mission: providing support, resources, and hope to those with #epilepsy. Live your best life.
Association of Univer.. @AUCDNews
15K Followers 3K Following AUCD advances policies and practices for all people with disabilities, their families, and their communities.
FamilieSCN2A @FamilieSCN2A
2K Followers 1K Following Our vision is to find effective treatments and a cure for SCN2A disorders.
Catherine Christian-H.. @C_C_Hinman
898 Followers 989 Following Associate Professor of Molecular and Integrative Physiology & neuroscientist @UofIllinois. Cells, synapses, and circuits in neuroendocrinology & epilepsy.
Epilepsy Genetics Pro.. @BCH_PoduriLab
695 Followers 176 Following Multidisciplinary, translational #epilepsy #genetics clinical care and research team @BostonChildrens. Disclaimer: https://t.co/z1MUJBFDdD
robert hunt 🔥 @hunt_lab
2K Followers 2K Following Neuroscience lab @UCIMedSchool | We study disorders of brain development and injury | Director @UCI_EpiCenter | Grad Advisor @AnatomyNeurobio
Simon Privett @SimonPrivett
1K Followers 602 Following Epilepsy Advocate. 28 years experience of living w seizures. Epilepsy Awareness professional. PPI for #ExeterNurse MSci Course. Views my own.
Mitchell Butler @mpbutler639
285 Followers 1K Following Science enthusiast, book hoarder, linguaphile. MD/PhD Candidate at UIC College of Medicine. He/him
Joe Geraghty, MD, PhD @Geraghty_Joe
1K Followers 3K Following @PennNeurology resident | Interested in neurocritical care, SAH, Inflammation, Microglia, #MedEd | @AcadMedJournal Editorial Board | @JSCVD2 Editor
Susan Woolner, CPXP @susanwoolner
7K Followers 8K Following Chicagoan, neuro support for docs & pts in MI. Equity, diversity & inclusion, 3 sons, 2 w/#autism #hcldr #PtExp #neurotwitter #stage3aCKD
Weill Cornell Medicin.. @WCMPopHealthSci
3K Followers 1K Following Population Health Sciences at @WeillCornell: Advancing knowledge, practice, and policy approaches to improve the health of populations.
Zach Grinspan, MD MS @DrZachGrinspan
369 Followers 212 Following
Epilepsy Alliance Nor.. @EpilepsyNC
376 Followers 320 Following Supporting North Carolina by providing education, resources, and hope for people with epilepsy, their caregivers, families, and communities.
TeamEpilepsy @TeamEpilepsy
4K Followers 292 Following Team Epilepsy is dedicated to spreading awareness about epilepsy and advocating the importance of clinical research to find new treatments for epilepsy.
H.E. Hinson, MD MCR F.. @HollyEHinson
2K Followers 580 Following UCSF Neurointensivist, TBI Researcher, Founder AAN LGBTQI 🏳️🌈🏳️⚧️section, French Bulldog Fan. Tweets are my own. she/her
kenzie 🌈 ✨️ @mackenseize
4K Followers 1K Following Accessible Gaming & Living | just trying to have fun and not die
Ring14 USA @Ring14USA
312 Followers 372 Following Ring14 Syndrome, Rare disease, Rare epilepsy, nonprofit, support, advocacy, research
Analette @analette
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Autistic Self Advocac.. @autselfadvocacy
46K Followers 224 Following The Autistic Self Advocacy Network is a 501(c)(3) nonprofit organization run by and for autistic people.
Epilepsy Foundation O.. @ohioepilepsy
2K Followers 358 Following Our mission is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures and save lives.
Katie Helbig @katiehelbig
1K Followers 402 Following epilepsy, neurodevelopmental disorders, genetics 🧠 🧬 | #innovation for #RareDisease | champion of red wine and nacho connoisseur | opinions are mine
Cindy A @cindyangulo214
76 Followers 238 Following PROUD mama to a 👶🏻boy & an #epilepsywarrior 👧🏻 with #sturgewebersyndrome, #cerebralpalsy, #glaucoma, #portwinestain. Works @Salesforce.
theepilepticteacher @theepilepticte1
391 Followers 769 Following #FE and #HE tutor in Early Years. Blogger. Epileptic. Author of Brain Restarting, please wait.
Mike Adamle @runningback34
260 Followers 214 Following CTE Survivor. NFL veteran and Northwestern All-American, Big10 MVP. Ironman Triathlete. Married to Kim and Father to Brad, Courtney, Svetlana and Alexandra.
DEE-P Connections @DEE_Pconnection
757 Followers 412 Following Connecting families with severe developmental & epileptic encephalopathies to information, resources and each other
Gibi 🐝 @GibiOfficial
176K Followers 2K Following ASMR YouTuber, hobby cosplayer! ~ any pronouns ~ just here for the tingles bro New ASMR Every Sat! Daily uploads on Gibi Rest Stop co-owner of @ManaTalentgg ✨
Michael Platt @One4OneDesserts
491 Followers 104 Following Baker👨🏽🍳Food Justice Advocate💪🏾Speaker🎤 S4 KBC/Food Network. S1 BeOurChef/Disney+. A 1-for-1 co: Every dessert sold buys a dessert for someone in need!
Tom Mortimer @EpilpsyWarriors
53 Followers 75 Following Father, husband, zoo keeper, coach, aspiring ninja, and OCR junkie!!
Tristan Thompson @RealTristan13
631K Followers 253 Following
Brett Bader @BrettSBader
3K Followers 4K Following CEO, 👨⚕️ 👨🔬 Educator. Passion for Sport, 🌍 Education & 🚑. Fundraiser @epilepsyruk💜 @savetherhino🦏 Trustee @charityspoon @WCoEducators @GWR holder
The Hamilcast: A Hami.. @TheHamilcast
18K Followers 3K Following Est. January 2016 // Fun hangs and deep dives with the cast, crew, and creatives of @HamiltonMusical by @GillianWithaG (she/her) On the #HamApp // #TeamNoChill
Amy Aiello Lofgren @azsweetheart013
40K Followers 36K Following Fugitive Water Walker Nightengale Rose Aiello Instagram Amy Aiello Lofgren ENVIRONMENTAL ILLNESS SURVIVOR Arizona
Nils Lofgren @nilslofgren
143K Followers 18K Following Musician, songwriter, guitarist and member of Bruce Springsteen and the E Street Band and Neil Young and Crazy Horse. I married a warrior. Rebel Choir Boy
CureGRIN @CureGrin
773 Followers 350 Following CureGRIN is a parent-run foundation committed to improving the lives of people living with GRI disorder. #RareAsOne #GRIdisorder #raredisease
MDJ | Danielle Jones,.. @MamaDoctorJones
80K Followers 318 Following Board Certified ObGyn • YouTuber: 1.3 Million 💪 • Expert: Periods, Pregnancy, Sex Ed • Nomadic Doctor: 📍Aotearoa/NZ • ⚠️: Sarcasm
Chicago Podcast Fest @ChiPodFest
810 Followers 197 Following Hear the city! 2019 Festival: Oct 16th-20th
Gemma Carvill, PhD @CarvillLab
1K Followers 646 Following rare disease geneticist | epilepsy | epigenetics | iPSCs | mentor & genetics MedEd | immigrant | tweets about science, lab fun & occasionally our tiny hooman
Debbie Drell @DebbieDrell
710 Followers 605 Following Director of Membership at the National Organization for Rare Disorders. My sister @flippymomof3 has pulmonary hypertension (rare pulmonary disease, dx 1998).
Michael Schultz @mschultz_CEO
63 Followers 46 Following Co-Founder & Chief Executive Officer at @chooseinfuse + @ourfairgrounds
International SCN8A A.. @SCN8AAlliance
763 Followers 467 Following The International SCN8A Alliance is working collaboratively with families, clinicians and researchers to advance the understanding of and treatments for SCN8A.
Ryann Redmond @ryannreds
6K Followers 536 Following •Actor•Singer•Coming to a 📺 screen & 🎥 theatre near you 🤩• Once was a lady snowman in @frozenbroadway & now a lady mechanic in @borderlandsfilm!
James Snyder @thejamessnyder
12K Followers 829 Following actor, father, husband. Solo music available digitally.
TRECO @treco27
3K Followers 328 Following Sober human. BahamaBoy 🇧🇸 Former yet sometimes and somehow still HamFam. lover. fighter. enlightener. enlightenee. striver for better than good person.While there isn’t a perfect way to prevent #SUDEP, there are factors you can control. Understanding SUDEP, its causes, and addressing these factors can save your child’s life. Learn about them here: rareparenting.com/what-parents-n…
For anyone interested in this session from our friends at @CureEpilepsy Webinar: Epilepsy and Neurodegenerative Disorders: The Relationship Between Stroke and Seizures cureepilepsy.org/event_type/web…
@NaomiDirckx @CureEpilepsy @TESSResearch Congrats @NaomiDirckx !! Well deserved! Looking forward to more SLC13A5 discoveries!
@NaomiDirckx @CureEpilepsy @TESSResearch Congrats @NaomiDirckx !
So honored to have received @CureEpilepsy and @TESSResearch partnership award! Excited to explore the role of Slc13a5 beyond bone! 🤩 Thank you Mary and Mark Stevens to help this important research move forward! #SLC13A5epilepsy #raredisease
With @CureEpilepsy, we are thrilled to award @NaomiDirckx, PhD a one-year $100K research grant! Funded generously by CURE & by TESS donors Mary and Mark Stevens, the grant will enable Dr. Dirckx to better understand how SLC13A5 mutations affect metabolic processes in the brain.
With @CureEpilepsy, we are thrilled to award @NaomiDirckx, PhD a one-year $100K research grant! Funded generously by CURE & by TESS donors Mary and Mark Stevens, the grant will enable Dr. Dirckx to better understand how SLC13A5 mutations affect metabolic processes in the brain.
Epilepsy affects millions worldwide, yet misconceptions persist. Join What The Health as we talk with Stephen Austin of @CureEpilepsy about his journey and the latest advancements in treatment that are reshaping the landscape of patient care. LISTEN HERE: bit.ly/4aJaICD
May 15-18, the Mario Negri Institute hosts the International Conference on Post-Traumatic Epilepsy, organized with @CureEpilepsy and promoted by the @NIH (National Institutes of Health). @ElisaEzanier 👇ic-pte2024.com
ICYMI: We have been selected as a partner for a Rare Epilepsy Partnership Award by @CureEpilepsy! We are now eligible to co-fund a grant focused on the ARRE Foundation’s research priorities to accelerate progress in ASXL research. Stay tuned for a future request for application!
@CureEpilepsy hey, you are featured today! 👋 x.com/goodtoday/stat…
Epilepsy is affecting an estimated 65 million people worldwide. No cure exists, leading to lifelong challenges like stigma and discrimination. Let's make a difference! 👇 goodtoday.org/cause/epilepsy…
Join me and help causes related to #epilepsy on @GoodToday. Today's causes are @CureEpilepsy and the @EpilepsyFdn (also a @CharityMiles cause). goodtoday.org/cause/epilepsy…
Happy Purple Day®! This day was created as a way to bring the epilepsy community together and help raise #epilepsyawareness. We celebrated part of #PurpleDay on Saturday at the Purple Day Around the World Expo in Orlando, Florida. @PurpleDay @PurpleDayEvryDa @DannyDidOrg
My husband and I had the honor and privilege to sit down with Kelly Cervantes, Host of the well-renowned epilepsy podcast Seizing Life, to talk about love, epilepsy, and marriage! ♥️ @CureEpilepsy #purpleday #epilepsy Tap here: youtu.be/Mr5t8qxAOuc?si…
What are some of the other organizations you trust to help the #epilepsy community? Here is our short list: @YAWECoast @epilepsysociety @epilepsyaction @EpilepsyFdn @EpilepsySparks @AmEpilepsySoc @CureEpilepsy #epilepsyAwareness
I didn’t learn about #SUDEP until I found the #epilepsycommunity on social media. While I can’t hide how scary this is to me, I still would have liked to have been told about this by neurologist instead. 💜💜#EpilepsyAwareness #seizures
@fam177a1 @CureEpilepsy Huge news, congratulations to @fam177a1mamma and the team, this is a testament to your hard work and leadership. Great choice @CureEpilepsy, @fam177a1 is a high quality organization.
Save the date to join us on May 16 for our 26th annual Chicago Benefit, Night of Discovery. Sponsorship opportunities are now available! Tickets & tables go on sale March 20. cureepilepsy.org/event_type/nig… #NightofDiscovery
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