Young Epilepsy @youngepilepsy
Epilepsy can be one of the most frightening and isolating conditions a child can experience. With your help, we can change that. Together we create possible. youngepilepsy.org.uk United Kingdom Joined September 2010-
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‘I had to leave the school I loved. It hurt me’ – Ruben. 1 in 3 children with #epilepsy like Ruben, are left without the crucial support they need at school. Let's demand change! Sign our #petition to ensure every child is safe and included in school - bit.ly/44aoA75
Every child with epilepsy deserves to be safe & included at school. Join our petition to ensure every child with epilepsy has an Individual Healthcare Plan for full participation in school life. Sign today & let's demand change: bit.ly/44aoA75 #UnderstandMyEpilepsy
Today we are hosting an event with @RoaldDahlFund nurses, focusing on epilepsy treatment for young people. We know the vital role specialist nurses play in young people and their families lives. We proudly support an event investing in the understanding of #epilepsycare.
Out now! Our Ketogenic Diet in Infants with Epilepsy (KIWE) webinar is available to watch on YouTube. Discover the intrepid findings of the KIWE Project, exploring unique ways to reduce seizures in infants. youtu.be/VbAnpt3W-go
Amazing #LondonMarathon2024 participants! Well done to Owen, and congratulations to Tom on his marathon debut. Thank you for being part of #TeamPossible.
Amazing #LondonMarathon2024 participants! Well done to Owen, and congratulations to Tom on his marathon debut. Thank you for being part of #TeamPossible.
Join us tonight at 6pm for an informative session on the #ketogenic diet in #epilepsy management! Our webinar covers the science behind the #keto diet, benefits for infants with epilepsy, & a parent's experience. Don't miss out! Register: youngepilepsy.org.uk/what-we-do/hea… #epilepsyResearch
📣 FIRST Project wants to hear about your experiences of treating prolonged convulsive seizures outside hospital. Caregivers of children/adolescents with #epilepsy, share your experiences by taking a short survey at paediatricepilepsy-caregiversurvey.com. Your voice matters!
Young Epilepsy have been working in partnership with Desitin Pharma Ltd and ChangeMed Ltd to produce the latest version of our guide to anti-seizure medicines booklet. If you’d like to request a copy visit – youngepilepsy.org.uk/anti-seizure-m… #EpilepsyAwareness #SeizureMedicines
Celebrate #NationalSiblingsDay with "Me, My Brother, and Epilepsy" by Mariska Peck & Elly Nichol. A heartwarming e-book on sibling bond amidst #epilepsy. Watch here: youtu.be/pXs1x7Gk0ic
📢 Exciting news! Our latest research on physical activity in children with #epilepsy has now been published. Discover the findings and insights that can make a difference in the lives of young individuals with epilepsy. Download full report here: youngepilepsy.org.uk/reports/accele…
Keto diet could help treat childhood epilepsy, study finds. Read more here - standard.co.uk/news/health/ke… Make sure to join our Keto webinar on 17 April - youngepilepsy.org.uk/what-we-do/hea… standard.co.uk/news/health/ke… #Epilepsy #Keto #Reserach
Friendly reminder that we're proud to partner with Shout! Shout’s trained volunteers can help with issues including anxiety, stress, loneliness or depression and are available 24/7 Simply text PURPLE to 85258 rb.gy/8j49v
Wearing purple in school today, to raise awareness of epilepsy and the barriers that people living with this condition face. The children have also had an assembly and discussions about this condition to aid their understanding @epilepsy @youngepilepsy #kindness #inclusion
💜As we mark #PurpleDay 2024, we're proud to share an updated collaboration with @youngepilepsy which shines a light on what epilepsy is, the symptoms and what help is available for children. Get involved this #PurpleDay: lnkd.in/eXWTCAmK bit.ly/3VvOb83
Today is Purple Day! Did you know over 80 Roald Dahl Epilepsy Nurse Specialists provide vital support for children and young people with epilepsy across the UK? #PurpleDay #EpilepsyAwareness #RoaldDahlNurses
On World Epilepsy Day #PurpleDay read about how Paediatric Epilepsy teams are using PKB to support their patients. Recognising all you do @youngepilepsy @usha_panchal1 @BLMKHealthCare @drcolindunkley @SFHFT vist.ly/tbmc #epilepsy #patientempowerment
🎉 Today is Purple Day! Over 60 schools, 30 community groups, & 10+ businesses unite, raising £26k through the 26 miles in 26 days challenge with 100+ fundraisers! Let's raise awareness & challenge stigma together! 💜 #PurpleDay #TeamPossible #EpilepsyAwareness
Thanks @jakelambertcom 💜
My boy deciding that for #purpleday he is not wearing his pe top, he is going in to school in Purple to start the conversation. Super proud of him. Not all hero’s wear capes 💜💜 @SudepAction @youngepilepsy @epilepsyaction @epilepsysociety @EpilepsyInst
And here’s a link to the show that Jay has done with Ian and Chris, also always nice to hear @youngepilepsy getting a shout out! podcasts.apple.com/gb/podcast/its…
And here’s a link to the show that Jay has done with Ian and Chris, also always nice to hear @youngepilepsy getting a shout out! podcasts.apple.com/gb/podcast/its…
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8K Followers 322 Following Home to Mental Health Awareness Training, AMBASSADOR OF HOPE + Mental Health App, HUB OF HOPE https://t.co/V43noqmAqR #MHEveryday
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Brain Ablaze @BrainAblaze
9K Followers 7K Following As people with Epilepsy, we raise awareness for Epilepsy and support anyone having seizures. | The Brain Ablaze Epilepsy Podcast | Blog | Support
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39K Followers 2K Following #EpilepsyAwareness & Education | FREE #SeizureFirstAid Certification | 24/7 Helpline (1-800-332-1000) | Unwavering ally for people w/ #epilepsy & #seizures.
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ILAE @IlaeWeb
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American Epilepsy Soc.. @AmEpilepsySoc
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Epilepsy Research Ins.. @EpilepsyInst
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jack @jackgarlovsky
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52 Followers 114 Following Epilepsy / Neurology Nurse. Love the Norfolk coast, my cats and books. All views are my own.
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15 Followers 24 Following specialist epilepsy nurse and mummy to five beautiful children
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424 Followers 764 Following NHS consultant neurologist, epileptologist and researcher, getting better at running!
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Well done to this one for her fund raising in support of @youngepilepsy @WroxhamSchool we presented her with this certificate in front of her class #feelingproud
Skittles week 3-7 June Horley Cricket Club in aid of Young Epilepsy. Email [email protected] to enter your team. @youngepilepsy @horleycricket
Thanks to @youngepilepsy for having our Special Projects Coordinator, Ben, and Digital Project Manager, Kezie along yesterday to talk about our important work in death prevention and bereavement support. To learn more about what we do: sudep.org #SUDEP #epilepsy
Today we are hosting an event with @RoaldDahlFund nurses, focusing on epilepsy treatment for young people. We know the vital role specialist nurses play in young people and their families lives. We proudly support an event investing in the understanding of #epilepsycare.
Player Support 🚨: @spencerjs3 is proudly supported by @youngepilepsy. #PUS #UTS #epilepsy #awareness 🏏🤝
Today, our Roald Dahl Epilepsy Nurse Specialists are joining @youngepilepsy for a seminar on epilepsy treatment for children and young people. It's fantastic to bring together our Roald Dahl Nurses and the Young Epilepsy team to learn and share experiences. Thank you!
Today we are hosting an event with @RoaldDahlFund nurses, focusing on epilepsy treatment for young people. We know the vital role specialist nurses play in young people and their families lives. We proudly support an event investing in the understanding of #epilepsycare.
I'm doing the Ride London 100 to raise money for Young Epilepsy as part of Team Jude. Check out my @JustGiving page and please donate if you can. Thank you! #JustGiving #ridelondon #youngepilepsy #teamjude #BeKindBeBraveAndNeverGiveUp justgiving.com/page/dom-bryan…
Dosbarth Rhossili had a purple day raising awareness for @youngepilepsy a special little girl close to us. We read a story called “Super Sydney and his amazing pals” to help us learn more. @epilepsyaction
This is my son Owen with his cousin Tom. Tom ran his 1st marathon yesterday for an #Epilepsy charity who have supported Owen in the past. Tom achieved under 3 hours and has raised over £1500. They are both superstars. #londonmarathon2024
Wearing purple for Epilepsy Awareness. We watched a video from @youngepilepsy to help us understand how to help someone having a seizure. #healthyandconfident
Let's celebrate Autism Awareness Month and the arrival of spring by highlighting the fantastic work being done by @youngepilepsy Their Outdoor and Woodland Learning Programme is making a huge difference in the lives of students with epilepsy, autism 1/3
@youngepilepsy and severe learning difficulties. The programme includes a horticultural centre, working farm, wetlands, sensory conservation area, and multi-skills programme, providing students with the opportunity to connect with nature and develop important skills. 2/3
@youngepilepsy This initiative is improving the health, wellbeing, independence, and physical development of the students, and we're proud to support their efforts. #AutismAwareness #OutdoorLearning #YoungEpilepsy #StPiersSchoolAndCollege 3/3
Thanks to everyone who has donated so far. Received a running top from @youngepilepsy this morning, big thank you to them. Can’t wait to get the challenge underway on the 6th June
I'm fundraising for @youngepilepsy . Check out my @JustGiving page and please donate if you can. Thank you! #JustGiving justgiving.com/page/emma-neil…
I am so proud of my colleagues but more than that, friends - @DonnaJBrayford and faye pass have ran the London Landmarks today, for @youngepilepsy in the memory of my boy Harvey whom Epilepsy took from me last year. I can't thank you enough I am so proud of you both x
Learn from experts from @microlink @geniuswithinCIC & @youngepilepsy Discover success stories & practical strategies. Don't miss the chance to embrace #DisabilityConfidence. microlinkpc.com/events/
Just a little reminder about my Mayoral Ball this Friday. I'm hoping to raise as much money as possible for #FriendsofHeronsbridgeSchool and @youngepilepsy It's going to be held at the beautiful @CoedyMwstwr and has a sparkle &shine theme... eventbrite.co.uk/e/sparkle-and-…
@Ring20UK @Dr_Rhys @sameermzuberi @epilepsysociety @epilepsyaction @youngepilepsy @RareEpilepsy @EpilepsySparks @RareRevolutionM @GenePeopleUK Very exciting news! We can't wait to take a look at the results. Please do let us know when they're available.
Save the date: 25/04, Disability Confident Leaders Share Best Practices! Learn from experts from @microlink @geniuswithinCIC & @youngepilepsy Discover success stories & practical strategies. Don't miss the chance to embrace #DisabilityConfidence. microlinkpc.com/events/
The last ten days have been a veritable purple haze, w/ feats of unhoped-for sporting endeavour & a flurry of fundraising activities for the @youngepilepsy charity under the #Scores4Cause banner. Here’s a few highlights….#PurpleDay linkedin.com/posts/tom-hadl…
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