Epilepsy Foundation of Australia @epilepsy_fdn
No one with epilepsy should go it alone. Visit our website for the latest research and training or to donate towards finding a cure. epilepsyfoundation.org.au Australia Joined July 2009-
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Closed roads. Fast, one lap courses. More than 20,000 runners descending on the streets, heading past some of Melbourne’s most famous landmarks. We're, of course, talking about #RunMelboure! Register today at runmelbourne24.grassrootz.com/epilepsy-found…
Grab a ticket by 11:59pm (AEST) Wednesday, 1 May to enter the bonus #EarlyBirdDraw. Visit playforpurpose.com.au/epilepsy-found…
Meet others with #epilepsy, hear from professionals and have a whole lot of fun when you join the #BeyondEpilepsyYouthConference! Details Date: 27 and 28 April, 2024 Venue: Mercure, Wagga Wagga or online Cost: Free Visit surveymonkey.com/r/BEYC_Wagga_2… to register.
Understanding is a vital part to promoting better quality of life for people living with #epilepsy. What do you wish more people knew about epilepsy? Place your answer in the comments.
This #volunteerRecognitionDay, we want to extend a heartfelt thank you to every single #volunteer who dedicates their time, energy, and passion to support the #EpilepsyFoundation.
Jacob and Oliver share a unique bond that extends beyond their familial ties as father and son — they both live with #epilepsy. Read Jacob and Oliver's story here: epilepsyfoundation.org.au/jacob-and-oliv…
Meet Adam! Adam is a fresh addition to the #EpilepsyFoundation, beginning as our #Education and #Training Delivery Coordinator in January. Visit our Facebook, Instagram and LinkedIn pages to read more.
#Win a $1,000 #Ritchies gift card and $5,000 for the #EpilepsyFoundation! Raising funds for #charity has never been easier! For more information, download the app and register today at bit.ly/3TJYKlo
#Stressmanagement doesn’t replace medication, but taking steps to reduce stress may help reduce your #seizure frequency. Some suggestions for how to reduce your stress levels are attached. For further information on #epilepsy and stress, please visit epilepsyfoundation.org.au/managing-epile…
This #WorldHealthDay, we celebrate the right to health and wellness for all, especially those living with #epilepsy. Under the theme #Myhealthmyright, let's recognise the importance of access to quality healthcare, treatment, and support services.
Researchers at #FederationUniversity are seeking adult #volunteers with drug-resistant temporal lobe #epilepsy who have not been #seizure-free for more than 21 days. If you would like more information, please contact Associate Professor Maryam Zoghi at [email protected]
Did you know that there's a strong link between #epilepsy and #autism? It is reported that approximately 20 percent of individuals with epilepsy also have autism, and vice versa. Learn more here: bit.ly/3IR6bTI
Have you heard? The new #PlayforPurpose #Raffle is open, giving you the chance to win big! Visit playforpurpose.com.au/epilepsy-found… to purchase your tickets and help support people living with #epilepsy.
The symptoms of #epilepsy are different for older people. Here are ten things you should know about caring for an older person with epilepsy. For further information about epilepsy in the later years, please visit bit.ly/3vsEJHv
We would like to extend a big #thankyou to everyone who has participated in #MakeMarchPurple 2024!
#GETMUCKEDepilepsy! #Sportsbet larrikins, @FelixHofe and @simonmarshall33 have taken on the #PurpleMuckChallenge to help raise awareness of #epilepsy. Nominated: @JaseRicho @HKhutchi Visit epilepsyfoundation.org.au/muck-challenge to take on the challenge.
Footy legends Nathan Buckley, Neil Balme and Brett Ratten told epilepsy to GET MUCKED by taking on the Purple Muck Challenge. Visit epilepsyfoundation.org.au/muck-challenge to take on the challenge or visit fundraising.epilepsyfoundation.org.au/2B0D93 to make a donation to Nathan's fundraising page.
What a sight it was last night to see so many iconic landmarks across the country light up #purple for #epilepsy! It's not too late for you to get involved and #MakeMarchPurple. Visit makemarchpurple.org.au/ef
Brain Ablaze @BrainAblaze
9K Followers 7K Following As people with Epilepsy, we raise awareness for Epilepsy and support anyone having seizures. | The Brain Ablaze Epilepsy Podcast | Blog | Support
Epilepsy Foundation o.. @EpilepsyFdn
39K Followers 2K Following #EpilepsyAwareness & Education | FREE #SeizureFirstAid Certification | 24/7 Helpline (1-800-332-1000) | Unwavering ally for people w/ #epilepsy & #seizures.
The Notorious EEG (M... @TheNotoriousEEG
10K Followers 2K Following Epileptologist/Head of Neurosciences @cookchildrens, I 💜 #HailState, buffalo wings, art, music & foremost Becky & my daughters. Views are mine, not my employer
ILAE @IlaeWeb
11K Followers 628 Following A preeminent association of healthcare professionals & scientists working toward a world where no person's life is limited by epilepsy *RTs are not endorsements
Prof Ingrid Scheffer @ingridscheffer
3K Followers 656 Following Laureate Professor of Paediatric Neurology at @unimelb, @theflorey, @austin_health, @RCHMelbourne. Research epilepsy, classn, genetics, speech & mentorship
Torie Robinson 🇺�.. @TorieRobinson10
6K Followers 2K Following @EpilepsySparks Insights Podcast Host & YouTuber 🧠🧬 | International Speaker | #Epilepsy & #MentalHealth Research fiend | @MaudsleyNHS Gvnr | All views my own
Dr. Tracy Dixon-Salaz.. @TracyDixonSalaz
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TalkAboutIt.org @TalkAboutItorg
8K Followers 6K Following DESTROYING STIGMA for epilepsy & other conditions! Co-founder: @GregGrunberg. https://t.co/VlYrkdNHa5 PODCAST: https://t.co/vL91AKrO7L…
Epilepsia @EpilepsiaJourn
10K Followers 231 Following Epilepsia is the world's leading journal of original scientific research and commentary in epileptology. A journal of the International League Against Epilepsy
𝐓𝐢𝐟𝐟𝐚�.. @TiffanyKairos
7K Followers 4K Following Founder @tenofficial | Epilepsy Advocate | Blogger | Content Creator | All views are my own
Stéphane Auvin @stephane_auvin
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Lance Fogan @lance_fogan
8K Followers 9K Following I am Professor of Neurology at UCLA School of Medicine. I teach neurology and examine brains. My novel DINGS tells of a family touched by epilepsy.
Allan Bayat, postdoc .. @AllanBayat
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Craig Fairclough @robinhood1972
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Ángel Aledo-Serrano @AledoNeuro
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BarabanLab @BarabanLab
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Vincent Blankenship @V_Blankenship
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Putu Gede Sudira @PGSudira
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Julie Jones @JulieJ92
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Qi Shu @QiShu153659
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DJ @TSCWarriorNova
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Judith Woodbury @woodbury3388
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Melaku Taye Amogne @MelakuTayeMD
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Dhia Chandraratna @dhia_chan
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Oxford-Harrington Rar.. @OHRareDisease
1K Followers 1K Following Rare Disease Centre @UniofOxford in partnership with @HarringtonDI_UH @UHhospitals, accelerating cures for rare diseases
Psychosocial surviver @GorretNamw19194
168 Followers 583 Following Mental health advocate/SRHR and UNCRPD advocate/peer educator/ mentor/ experienced psychosocial challenges
Haleigh Boyer @BelkBoyer892
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Brad Trakes @BradTrakesTakes
66 Followers 173 Following I'm a informed and educated person. I am absolutely mostly not serious. Epileptic brain go bzzzzt.
leah jewett @LeahLynnJewett
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Jaimie @JaimieAlexKay
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Kathy Petersen @kathype63786943
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Epilepsy ID @epilepsyid_com
12 Followers 42 Following Channeling my thoughts into creating an online medical ID card for people with epilepsy. https://t.co/sF3XsRsSzy
HaLeigh Boyer @HaLeighBoy24327
6 Followers 64 Following
Mr. I told you so🫡 @Coach_Frank82
2K Followers 4K Following 🏈 Coach/Mentor | CEO of @nighthawksca , a 501(c)(3) non-profit organization that promotes epilepsy awareness through sports 💜 | @nighthawk.football
Ahmed Abdelhafiz @AhmedMa18849610
71 Followers 2K Following
Fred Rowan @rowanvinski
379 Followers 669 Following Singer, writer, comedian. Worked as a comedian songwriter since 1991. Has recently started writing for theatre as well. Death of a Comedian produced 2012.
pathrunner @pathology242
26 Followers 182 Following MD2 Student Pathology Interest newbie to #pathtwitter
AlwaysForgets @allfrommybrain
57 Followers 154 Following Reluctantly certified MS Azure Geek. Disbraxia and Epilepsy are opportunities, not disabilities Watch out for the jumbled rubbish I post
Theo Pistorius @TheoP
155 Followers 221 Following Engineer, Amateur astronomer, Photography. Pro no-carbon energy options - including nuclear power. Mathematics, physics and engineering yes, fairy tales nope.
noel @ALIJENAB_NOEL
10 Followers 59 Following
Aj🏳️🌈💙�.. @Andrew643459
817 Followers 5K Following Britney Spears and Mariah Carey and Nicki Minaj fan
Michal Boneh @BonehMiki
71 Followers 90 Following Clinical Neuropsychology PhD Candidate currently investigating the clinical management of cognition post stroke. @turnerinstitute @monashuni
Shaun Stapleton @_shaunstapleton
283 Followers 2K Following
Amber @writeamberann
264 Followers 232 Following bird, elephant & ocean lover. animal welfare advocate. travel lover. sharing the plant-powered lifestyle. epilepsy awareness advocate & brain surgery warrior.
Brooke Fischer @BrookeFisch456
54 Followers 400 Following
Fletcher @thatfletcherguy
310 Followers 642 Following I’m that Fletcher guy | I like to laugh | Destiny FANZ | Australian 🇦🇺 | https://t.co/Cnl0MtM8VW
Sune .Jensen @SuneJen86464035
361 Followers 2K Following I am proud of being epileptic and about the desire to be operated.I am even now a Buddhist and like his quotes. I love to get help from persons who can help me
Cosas De Sanidad @CosasDeSanidad
449 Followers 417 Following FACEBOOK Cosas de Sanidad https://t.co/OcKRyRPTyq https://t.co/G6juX5ypoQ https://t.co/AXzEIRSQuq
Abraham DeLacey Giuse.. @FettRegoso
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Brain Ablaze @BrainAblaze
9K Followers 7K Following As people with Epilepsy, we raise awareness for Epilepsy and support anyone having seizures. | The Brain Ablaze Epilepsy Podcast | Blog | Support
Epilepsy Foundation o.. @EpilepsyFdn
39K Followers 2K Following #EpilepsyAwareness & Education | FREE #SeizureFirstAid Certification | 24/7 Helpline (1-800-332-1000) | Unwavering ally for people w/ #epilepsy & #seizures.
The Notorious EEG (M... @TheNotoriousEEG
10K Followers 2K Following Epileptologist/Head of Neurosciences @cookchildrens, I 💜 #HailState, buffalo wings, art, music & foremost Becky & my daughters. Views are mine, not my employer
American Epilepsy Soc.. @AmEpilepsySoc
14K Followers 721 Following Official account for American Epilepsy Society. We support research + education for professionals working towards a world without epilepsy. RTs ≠ endorsements.
ILAE @IlaeWeb
11K Followers 628 Following A preeminent association of healthcare professionals & scientists working toward a world where no person's life is limited by epilepsy *RTs are not endorsements
Prof Ingrid Scheffer @ingridscheffer
3K Followers 656 Following Laureate Professor of Paediatric Neurology at @unimelb, @theflorey, @austin_health, @RCHMelbourne. Research epilepsy, classn, genetics, speech & mentorship
Torie Robinson 🇺�.. @TorieRobinson10
6K Followers 2K Following @EpilepsySparks Insights Podcast Host & YouTuber 🧠🧬 | International Speaker | #Epilepsy & #MentalHealth Research fiend | @MaudsleyNHS Gvnr | All views my own
Dr. Tracy Dixon-Salaz.. @TracyDixonSalaz
3K Followers 975 Following Mom. Rare Disease & LGS Advocate. Neuroscientist. The largest most neglected healthcare resource, worldwide, is the patient. Executive Director @LGS_Foundation
Dennis Lal @LalDennis
3K Followers 329 Following Director of the Center for Neurogenetics; Associate Professor at UTH - Neurogenetics & Informatics - My opinions are my own & do not reflect my employer.
Ingo Helbig @IngoHelbig
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TalkAboutIt.org @TalkAboutItorg
8K Followers 6K Following DESTROYING STIGMA for epilepsy & other conditions! Co-founder: @GregGrunberg. https://t.co/VlYrkdNHa5 PODCAST: https://t.co/vL91AKrO7L…
Epilepsia @EpilepsiaJourn
10K Followers 231 Following Epilepsia is the world's leading journal of original scientific research and commentary in epileptology. A journal of the International League Against Epilepsy
AGE Program - Adult G.. @DrDaniAndrade
2K Followers 714 Following Professor of Neurology @UofT. Director, #AdultGeneticEpilepsy Program @UHN. Chair of @IlaeWeb #TransitionTaskForce #EpilepsyGenetics #neurotwitter
𝐓𝐢𝐟𝐟𝐚�.. @TiffanyKairos
7K Followers 4K Following Founder @tenofficial | Epilepsy Advocate | Blogger | Content Creator | All views are my own
Stéphane Auvin @stephane_auvin
2K Followers 865 Following Child Neurologist & Epileptologist. Professor at @univ_paris_cite. Dept Chair at @HopRobertDebre. Senior member 2021 @InstUnivFr. Deputy Editor @EpilepsiaJourn
Ana Mingorance @CNSdrughunter
3K Followers 1K Following 🧠 🧬 Neuroscientist. Looking for new medicines for CDKL5, SCN1A, SHANK3, DHPS and a few others.
Lance Fogan @lance_fogan
8K Followers 9K Following I am Professor of Neurology at UCLA School of Medicine. I teach neurology and examine brains. My novel DINGS tells of a family touched by epilepsy.
Allan Bayat, postdoc .. @AllanBayat
1K Followers 643 Following Pediatrician/translational researcher #epilepsy #genetics #precisionMedicine #raredisorders #neurotwitter #EpilepsyAwarenessMonth @UCPH_BRIDGE @UCPH_research
Brain @Brain1878
65K Followers 172 Following Brain: A Journal of Neurology. Publishing leading studies in neurological science since 1878.
Craig Fairclough @robinhood1972
2K Followers 2K Following An #epilepsy media awareness ambassador and fund raiser. I work in #safeguarding for @nottspolice
Graham Perrett @GrahamPerrettMP
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Laneway Festival @lanewayfest
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Transgender Victoria .. @transgendervic
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Kevin Nguyen @cog_ink
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Brianna Morris-Grant @JournoBrenn
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Alex Greenwich MP @AlexGreenwich
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NGV @NGVMelbourne
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OnlyMelbourne @OnlyMelbourne
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Martin Wilson @Martin_Newc_COO
4K Followers 791 Following COO @NewcastleHosps. Chair of Directors @CollabNewcastle, Founder @PLEXUSNorthEast. Proud Geordie, nurse, gay. He/him.
Uni Newcastle Researc.. @UON_research
5K Followers 1K Following A twitter account at the University of Newcastle, Australia dedicated to raising the profile and increasing the impact of our researchers.
North Tyneside Counci.. @NTCouncilTeam
21K Followers 466 Following Official local authority news, events and updates. Monitored Mon-Fri 9am-5pm. This account is not for reporting issues. For reports please use our website.
Sydney.com @sydney_sider
306K Followers 364 Following Official Sydney account of Destination NSW. Use #feelnewsydney to give us permission to share, and show us your #ilovesydney moments.
UTS @UTSEngage
21K Followers 581 Following News, research and discussion from the University of Technology Sydney. If you have an inquiry, go to https://t.co/RRvBak3mCc. CRICOS: 00099F, TEQSA PRV12060
Australia @Australia
822K Followers 2K Following Tourism Australia's official account. We're also @Australia on Instagram.
Our newest resource gives a brief overview of what clinical trials are. Great information for families considering being part of a clinical trial #SCN2A #clinicaltrials #research #raredisease Thanks to @Eden_Robertson for her partnership on this project. youtu.be/z9SqMSO405I
I have been in Canberra advocating for a National Strategy that empowers the epilepsy ecosystem to make impactful changes for those living with epilepsy. It is an honour to be advocating beside such dedicated people, whose sole goal is to improve the outcomes of PLWE #epilepsy
Yesterday I attended a function in support of an Australian Head of State: today I heard from The King. A big thank you to @epilepsy_fdn for the Parliamentary Friends of Epilepsy Purple Day morning tea. Wally Lewis and the rest of the panel told compelling personal tales.
Finding information on a rare disease is challenging but @Eden_Robertson with @emmagenetics has been looking at what best practice might look like through #genecompass. #DEE #raredisease #communication #information #research @SCN2AAustralia @geneticepilepsy @epilepsy_fdn
⭐NEW PUBLICATION📑: Acceptability and feasibility of an online information linker service for caregivers who have a child with genetic epilepsy: a mixed-method pilot study protocol. See video below for a quick overview 🔊bmjopen.bmj.com/content/12/10/… dx.doi.org/10.1136/bmjope…
Prof @brien_terence speaking on new drug therapies for the #IGEs and the invaluable work of the Australian Pregnancy Registry (epilepsy.org.au/apr-registrati…) in understanding the safety profile of some of these drugs during pregnancy. #ESA2022 #Adelaide @Action4Epilepsy
Tomorrow is the last day of my Walk for Epilepsy. Please help me & Epilepsy Foundation to help those living with epilepsy by donating to my page below. Thank you to all that have already donated 💜 #walkforepilepsy walkforepilepsy.org.au/s/2344/4546/t
Today is #DoubleDonationDay! We'd love for everyone to get out and donate to @epilepsy_fdn - it's a great cause that helps so many individuals and families. ❤️❤️❤️❤️❤️ x.com/epilepsy_fdn/s… ^dg
There’s no better time to show your support as this Thursday 20 October is #DoubleDonationDay. Thanks to our generous partners@NexonAP & @SeerMedical, all donations made will be matched (up to $22,000)! Every $1 donated on this day will have double the impact.
@epilepsy_fdn #SUDEP An article from my friend Lynn about her families experience 💔 #RememberingSam sudep.org/article/term-s…
@epilepsy_fdn Thank you for supporting #SUDEPActionDay2022 🧡 sudepactionday.org
Don't forget to log on tonight for our October webinar with Prof Emilio Perucca! @Austin_Health @UniMelbMDHS @MonashNeurosci @IlaeWeb @yesILAE @epilepsyaction @epilepsy_fdn
Not to be missed!! For the next ESA Webinar, Professor Emilio Perucca from @Austin_Health, @UniMelb and @MonashNeurosci will be talking to us about generic substitutions in epilepsy - smoke or fire? When? Wed 19 Oct @ 6pm AEDT Register here: us06web.zoom.us/webinar/regist…
During #InvisibleDisabilitiesWeek, remember not all disabilities are visible and some disabilities, like some forms of #epilepsy, may be invisible. Learn more about epilepsy at bcepilepsy.com and learn more about Invisible Disabilities Week at invisibledisabilities.org.
@epilepsy_fdn Such a great cause! Thank you @epilepsy_fdn for all you do. ❤️
Not to be missed!! For the next ESA Webinar, Professor Emilio Perucca from @Austin_Health, @UniMelb and @MonashNeurosci will be talking to us about generic substitutions in epilepsy - smoke or fire? When? Wed 19 Oct @ 6pm AEDT Register here: us06web.zoom.us/webinar/regist…
Privileged to present at the Paed Palliative Care Conference on the needs of DEE families @Pall_Care_Aus
1/2 “I extend that thanks to the specialist, primary health, acute care and community workers for also taking part online today...You are why Australia is consistently identified as a world leader in palliative care” - The Hon @Mark_Butler_MP at the opening of #22APPCC today.
“You can’t be diagnosed with your identity…and that is what this language is doing," says @rachelcallander at #22APPCC as she reflects on the negative effect that language can have, during high-stakes contexts such as the sharing of difficult information with families & carers.
Approx 1/10 people have a seizure in their lifetime and 1/25 Australians will go on to have a diagnosis of epilepsy. That is 1 million Australians! Support #walkforepilepsy today
Walk for Epilepsy is back! Join us again for Australia’s largest event for #epilepsy, as we make the whole country our walking track. Entry is FREE! This is a nationwide event so no matter where you are, you can join in the fun. Registrations are open at walkforepilepsy.org.au/1AJ5D8
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