CERN Foundation @CERNfoundation
Committed to improving the care and outcome of people with ependymoma through community support and research efforts. cern-foundation.org (844) 237-6674 Joined March 2011-
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The delicate, beautiful #CERNButterfly was chosen to represent the spirit of the ependymoma community as a symbol of hope through change. Donate today in honor or memory of a loved one that has been impacted by #epENDymoma: secure.braintumor.org/site/Donation2…
For #epENDymoma Awareness Day on May 5, create your own #CERNButterfly to display in your neighborhood and take a photo to share on social media. Don't forget to tag CERN and @NBTStweets in your posts! Color a butterfly using our coloring sheet: cern-foundation.org/awareness/even…
Congratulations to @MRGneuroonc, Chair of the Neuro-Oncology Branch (@NIHBrainTumor), at the NCI/NIH (@theNCI), on his retirement. Dr. Gilbert has been a dedicated, compassionate, and thoughtful leader who leaves a lasting mark on the field of brain tumor research and care. (1/3)
Congratulations to @MRGneuroonc, Chair of the Neuro-Oncology Branch (@NIHBrainTumor), at the NCI/NIH (@theNCI), on his retirement. Dr. Gilbert has been a dedicated, compassionate, and thoughtful leader who leaves a lasting mark on the field of brain tumor research and care. (1/3)
#Ependymoma survivor Romien shares her Inspiration Story, "I have learned so much & still have so much to be grateful for. This is my journey with an ependymoma...which led to me being a disabled person. I now have a new normal & I AM HAPPY & CONTENT!" cern-foundation.org/awareness/stor…
As we lead up to BTAM, read the Outreach Report from last year to learn more about the importance of getting involved and creative ways to participate! Learn more here: cern-foundation.org/news/2023-epen…
How are you recognizing Ependymoma Awareness Day? Share your plans in the comments! #epENDymoma #CERNButterfly
This year Ependymoma Awareness Day will be held on May 5. Get involved by hosting an awareness event in your community or participating in a butterfly art activity at home! Learn more: cern-foundation.org/awareness/even… #CERNButterfly #epENDymoma #BTAM #epENDymomaAwarenessDay
Join the #ependymomaAwarenessDay – Virtual Community Gathering. As a part of EAD, @NBTStweets & the CERN Foundation invite you to gather virtually with other #ependymoma survivors & care partners at 1 p.m. ET on May 5 on Zoom. Registration is required: braintumor.org/research/initi…
🧠 Facing a #braintumor diagnosis? You may want to consider #fertilitypreservation before starting treatment. In honor of #NIAW2024, our new guide dives into fertility preservation options for men, women, and pediatric patients with #braintumors: braintumor.org/news/navigatin…
From home, we urge you to participate in an #epENDymoma awareness activity, helping to create a greater understanding of the disease. Show your support by sharing information about ependymoma with your friends and family: cern-foundation.org/education/epen… #CERNButterfly
The CERN Foundation is currently engaged in a range of community outreach programs & support efforts designed to have a positive impact on the lives of children & adults with #ependymoma. Please consider supporting these efforts by making a donation: cern-foundation.org/get-involved/f…
Symbolizing hope through change, live butterflies were released on campus yesterday to mark our commitment to advancing cures for pediatric #EpENDymomas. With the guidance of @CERNfoundation, the event also featured talks from @emacalate, Dr. Bertrand & inspiring patient families
NBTS is pleased to announce a request for proposals for #qualityoflife projects. This award will support innovative patient-centered QoL research designed to address critical problems or barriers to progress: BrainTumor.org/Funding @DanielleDLeach @BethanyKwan @TheLizArmy
This RFP is a culmination of NBTS’s efforts to develop a brain tumor-specific research agenda, with input from an in-depth community engagement process, that is intended to serve as a guide for research focused on quality of life (#QOL) for patients with #braintumors.
Celebrate the 30th year of the National Brain Tumor Ride on May 19 as we ride together to fuel the breakthroughs ahead. You can bike in person in Waltham, MA, or virtually from anywhere! Register by April 1 to receive a 2024 Ride jersey: BrainTumorRide.org
From May 5-7, join NBTS for three days, two events, and one mission in Washington, D.C., as the brain tumor community unites to raise critical funds, spread awareness, and take action for lasting change. Register today: BrainTumor.org/BTAM #Head2Hill #Race4HopeDC #BTAM
Join the #ependymomaAwarenessDay – Virtual Community Gathering: Opportunity to support, share, & connect in a welcoming space. As part of EAD, @NBTStweets & the CERN Foundation invite you to gather virtually with #ependymoma survivors & care partners: braintumor.org/research/initi…
Join us on April 4th at 7 p.m. for our monthly Grief Support Conversation. The group welcomes anyone who has lost a loved one to a #braintumor & provides the resources, space, & community to support individuals through their grieving process. Register: braintumor.org/support-servic…
Join fellow advocates like Savannah at Head to the Hill on May 6-7 in D.C. as we ask members of Congress to increase #braintumor research funding & prioritize patient-first policies. Sign up today before registration closes on April 1: BrainTumor.org/HeadtotheHill 🗓️ #Head2Hill
Ependymoma Awareness Day will be held on May 5 as a part of @NBTStweets events Race for Hope D.C. & Head to the Hill. EAD brings awareness to the diversity within the disease and the urgent need for better-targeted treatments: cern-foundation.org/awareness/even…
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2K Followers 647 Following Professor, Deputy Chair, Vice-Chair, Clinical Ops, Dept of #Neurosurgery, @MDAndersonNews, Job #1: Husband, Dad to 3 great kids. Tweets are my own.@CERNfoundation I raised butterflies at my home during Covid and will celebrate my 10 year anniversary fighting Ependymoma on Cinco de Mayo. Initial diagnosis 5/5/2014 to 5/5/2024 currently still moving forward.
So grateful to the 32+ years of mentorship and honored to be partners with him in his amazing work. You inspirational leadership has touched so many #btsm @NCIResearchCtr @MDAndersonNews @WinshipAtEmory @NeuroOnc @NRGonc @CERNfoundation @HeadfortheCure
Dr. Mark Gilbert (@MRGneuroonc) will retire this month after nearly a decade as chief of our @NCIResearchCtr Neuro-Oncology Branch. Thank you, Dr. Gilbert, for your outstanding leadership! Read about his pioneering neuro-oncology career: go.cancer.gov/td7ohcx
🧠 Facing a #braintumor diagnosis? You may want to consider #fertilitypreservation before starting treatment. In honor of #NIAW2024, our new guide dives into fertility preservation options for men, women, and pediatric patients with #braintumors: braintumor.org/news/navigatin…
Live butterflies were released on campus to mark our commitment to advancing cures for pediatric ependymomas - @DrAmarGajjar @CERNfoundation @emacalate @StJude #Cancer #OncoDaily #Oncology #PediatricEpendymomas #CancerTreatment oncodaily.com/51215.html
Symbolizing hope through change, live butterflies were released on campus yesterday to mark our commitment to advancing cures for pediatric #EpENDymomas. With the guidance of @CERNfoundation, the event also featured talks from @emacalate, Dr. Bertrand & inspiring patient families
This RFP is a culmination of NBTS’s efforts to develop a brain tumor-specific research agenda, with input from an in-depth community engagement process, that is intended to serve as a guide for research focused on quality of life (#QOL) for patients with #braintumors.
NBTS is pleased to announce a request for proposals for #qualityoflife projects. This award will support innovative patient-centered QoL research designed to address critical problems or barriers to progress: BrainTumor.org/Funding @DanielleDLeach @BethanyKwan @TheLizArmy
Celebrate the 30th year of the National Brain Tumor Ride on May 19 as we ride together to fuel the breakthroughs ahead. You can bike in person in Waltham, MA, or virtually from anywhere! Register by April 1 to receive a 2024 Ride jersey: BrainTumorRide.org
From May 5-7, join NBTS for three days, two events, and one mission in Washington, D.C., as the brain tumor community unites to raise critical funds, spread awareness, and take action for lasting change. Register today: BrainTumor.org/BTAM #Head2Hill #Race4HopeDC #BTAM
Join us on April 4th at 7 p.m. for our monthly Grief Support Conversation. The group welcomes anyone who has lost a loved one to a #braintumor & provides the resources, space, & community to support individuals through their grieving process. Register: braintumor.org/support-servic…
Later, @NBTSCSO closed the @GbmSummit by giving an overview of NBTS's mission-delivery programs and efforts to advance transformative treatments for patients with brain tumors
Today, NBTS CEO @dfarons joined @GbmSummit Chair @NBTSCSO and others for a panel discussion titled "How Can Investors & Companies Work Together to Save #GBM Funding" at the 5th Annual GBM Drug Development Summit.
GCAR CMO and GBM AGILE Global PI @TCloughesy with @NBTStweets @dfarons and @NBTSCSO at the 5th Annual #GBMSummit in Boston
Join fellow advocates like Savannah at Head to the Hill on May 6-7 in D.C. as we ask members of Congress to increase #braintumor research funding & prioritize patient-first policies. Sign up today before registration closes on April 1: BrainTumor.org/HeadtotheHill 🗓️ #Head2Hill
More than 215 #braintumor advocates from 39 states will be at this year’s Head to the Hill on May 6-7 in D.C. We need your help to ensure every single state is represented at Head to the Hill. Register today before the April 1 deadline: BrainTumor.org/HeadtotheHill 🔗 #Head2Hill
When Marcela was diagnosed with an ependymoma in her spinal cord, she found information through @CERNfoundation and by asking her neurosurgeon questions. "By understanding my sickness, it made it easier to deal with," she says. She shares her journey: go.cancer.gov/gwYkdRL
.@GbmSummit is next week! 🧠 Don’t miss the #GBMAGILE update by @GCAResearch CMO and GBM AGILE Global PI, @TCloughesy on March 27 and sessions by other GBM AGILE partners, leadership and investigators: @vigeotx, Polaris, @NBTStweets CEO @dfarons, @PatrickWen3, @MichaelLimMD,…
Do you have a poem or another form of creative expression that you would like to share with NBTS? Submit your art: braintumor.org/brain-tumors/s… 🎨
Christina C. turned to writing poetry moments after receiving her grade 3 #anaplasticastrocytoma diagnosis to try to process the whirlwind of emotions. Today, on #WorldPoetryDay, we share her poem entitled “What Tragedy Can Do.” #WorldPoetryDay2024
Three days, one mission! Join us in D.C. on May 5-7 as we unite to raise funds at Race for Hope DC, spread awareness, and take action on behalf of the brain tumor community at Head to the Hill. Register today: braintumor.org/events/brain-t… #Race4HopeDC #Head2Hill
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