Lisa O'Leary @lisaoleary524
Lawyer. Writer. Widowed. Brain tumor advocate #BTSM. Axial spondyloarthritis/hemicrania continua/Sjögren’s syndrome. Peloton addict 💚 #LisaOL. surrendertolive.com San Luis Obispo, CA Joined April 2017-
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This International Women's Day, 🌍 WeTrials celebrates the incredible women 👩🎓👩🏭👩💼 who are more than just individuals achieving their own goals. You are the architects of inclusion 🏗️🤝, day in and day out, building a world where every woman can thrive 🌸. Across the globe 🌐,…
Looking for more? Tune in to Brain Tumor Support Conversations—a virtual support group w/@lisaoleary524, @AdamHayden & @shawncarey8—on Sun, Mar. 17, at 4pPT/7pET. Patients, care partners, any brain tumor type, any stage of treatment can join! braintumor.org/take-action/br… #BTSM
T1.B Writing about my grief experience helped me process it but it took several years to be able to share about it publicly. I wrote a post several years ago about all the things I wish I had known. surrendertolive.com/blog/the-truth… #BTSM
T1 I didn't see the tweet with T1 but found someone else's reply... I guess I would say I knew nothing about grief before, had no idea it was individual to every person, that there is no timeline, that it becomes a part of you and isn't something to "get over"... #BTSM
Lisa here. Former care partner to my husband Patrick who died as a result of GBM on 7/11/2015. Lawyer turned chronic illness patient - not a brain tumor, but a drastically life changing experience. Member of #BTSM organizing team.
FYI: #BTSM chat on March 3. We will be chatting at a *NEW TIME* of 4pm Pacific/7 pm Eastern.
Unlock the Power of Unity this Rare Disease Day: Our latest blog delves into the heart of the global movement striving for change. Discover the profound challenges faced by the 400 million people living with rare diseases worldwide, including delayed diagnoses, limited treatment…
🎧 In this essential Black History Month feature on our WeTrials podcast 'Health and Hue', Dr Tonya Wright delves deep into the critical importance of patient education and advocacy in addressing healthcare disparities for people of color and underprivileged groups. "Why do…
Our next tweet chat is officially just a week away! Join us on Sunday, March 3 at our *NEW TIME* of 4pm PST/7 pm EST. We will be taking an unscripted approach to grief and breaking down societal norms. We hope to see you there! #BTSM
Discover the Stories Behind the Care: Join @WeTrialshub in Celebrating National Caregivers Day 2024 by tuning into our special podcast episode. Explore the journey, challenges, and triumphs of caregivers with us. 🔗youtube.com/watch?v=723g1Q… #CaregiversDay #GBM
If we moved the #btsm chat up by an hour to 4pm PT / 7pm ET, would you like this better? Please vote!
Please join us! #BTSM
T3 With respect to frequency, I loved monthly chats, but with how things have been going for me bi-monthly works well. As for topics... well, I'm here to listen to what the community wants! I always like talking about "the feels," but also come here for the research updates #BTSM
T2 I have been dealing with my own chronic illness issues which consume most of my time and energy. I haven't had a lot to give in the last few months. #BTSM
T1 I join to connect with other care partners and patients who have been through this uniquely challenging experience, and to share my insight from my time as both a care partner and an advocate for the brain tumor community. #BTSM
Hi everybody, Lisa here. Happy 2024! Former care partner to my late husband Patrick who died from GBM in 2015. Now an advocate and part of the #BTSM team, running the chat tonight with @Sabine_NJ.
Don’t forget the bi-monthly #BTSM chat is tonight at 5pm PT/8pm ET. Take that nap now so you won't be tired tonight.😴 We can’t wait to see you there and listen to what you have to say.
Haven't participated in the #BTSM chat in a while? Please consider joining us tomorrow to help us understand our community’s needs and wants regarding the chat. Let's shape the future of our community!
Liz Salmi @TheLizArmy
9K Followers 1K Following Be one, do one, teach one. Co-Investigator for @myopennotes at @BIDMChealth. Bringing punk rock to health care. @thelizarmy on all platforms.
St_Molly_AgentofChaos @Lifeiskitsch
4K Followers 1K Following “quirky, defiant, messy, odd, & absolutely charming”- me, according to my 6th grade teacher #BTSM #HeadfortheCure #EndWell #ABTA #Beans4Brains #HBTCStrong
National Brain Tumor .. @NBTStweets
12K Followers 2K Following National Brain Tumor Society (NBTS) is a nonprofit organization committed to finding a cure for brain tumors.
Terri Armstrong @Tsarmstrong01
3K Followers 565 Following Senior Investigator & Deputy Chief , Neuro-Oncology Branch, Associate Director, Patient Outcomes, CCR, NCI,NIH. Tweets my own
Thanks Cancer! @ThanksCancer
18K Followers 10K Following Cancer is growth that I never wanted: the podcast!
Mark Lewis @marklewismd
88K Followers 39K Following Director, GI Oncology, @Intermountain. Interests: neuroendocrine tumors, cancer syndromes, empathy (even had a Whipple myself). Tweets my own.
Cancer Final Girl @CancerFinalGirl
4K Followers 2K Following My life is a real life #horror story. 3 time primary #cancer haver. The killer is inside the house & I'm still fighting. Currently battling #Astrocytoma.
Rachel G Greenberg @ConnectionsHope
7K Followers 2K Following Widow (before her time!). Bringing hope to all those who have lost a loved one. Hope is on the way. You are not alone. https://t.co/wNlij0TpZQ
LibbyMBC @LibbyMbc
37K Followers 2K Following young mom fighting metastatic breast cancer and advocating for all fighting terminal cancer. Located in Canada 🇨🇦 my link tree: https://t.co/7JO9CaAx8y
Dr. rer. pol.Sabine S.. @Sabine_NJ
1K Followers 1K Following Patient Advisor @MSKCancerCenter @theABTA @count_me_in @covid19nCCC; @BTSMchat organizer; @epicxperience BOD. 10year old mom, rock climber, chocolate lover🍫
Widowed Dad @DadWidowed
3K Followers 2K Following Adventures of a fifty something widowed empty nester. Exploring possibilities, making friends, living life. Runner, skier, sky gazer, wanderer. INFP-Dreamer.
I Live Now Rachel �.. @KickBrainTumors
4K Followers 4K Following God's love will never fail us☀ His mercy follows us through Life's journey⛅ All the days of our Lives☀Uplifting words👩🏾💻 Love🧠 Hope🧠Faith☀Surviving☀Thriving⛵
NCI Neuro-Oncology Br.. @NIHBrainTumor
8K Followers 389 Following Official Twitter account of @theNCI's Neuro-Oncology Branch at the National Institutes of Health (@NIH). Privacy Policy: https://t.co/QamKebns0j
Edjah Nduom, MD (he/h.. @EKNduom
11K Followers 3K Following A Neurosurgical Oncologist, scientist, and patient advocate. I cut out brain and spine tumors and try to cure them with the immune system. Tweets are my own.
Pediatric Brain Tumor.. @PBTF
4K Followers 1K Following The Pediatric Brain Tumor Foundation leads the way in funding research, supporting families and advocating for policies to end childhood brain cancer.
Alireza Mansouri @DrAMansouri
2K Followers 1K Following Neurosurgeon, Scientist. Focused on clinical trials for brain cancer and ways to simplify the process for patients. Opinions my own
Justin Lathia, PhD �.. @JustinLathia
6K Followers 2K Following Lab studying cancer from a stem cell and cell-cell interaction perspective, #cancerstemcells, #glioblastoma, #GBM. Tweets are my own. @DrexelUniv @NIHOxCam alum
Jared Rubenstein, MD @DrJRubenstein
8K Followers 5K Following Pediatric palliative care doctor and fellowship director. I help people talk about hard things. Views are my own. My videos and writing on website below. he/him
Joshua Budhu @JoshuaBudhu
4K Followers 2K Following Neuro-Oncologist @MSKCancerCenter | DEI editor @greenjournal | I treat CNS tumors and advocate for an equitable healthcare system | #Knicks | opinions my own
Danielle D. Leach, MP.. @DanielleDLeach
667 Followers 1K Following Patient advocate, mom, & nonprofit professional working to empower & engage all stakeholders to conquer cancer. All opinions expressed my own & not my employer
Young Adult Brain Tum.. @YABrainTumor
5 Followers 49 Following For young adults with brain tumors and cancers to share their stories and find support
amanual Hiwet @AHiwet82049
30 Followers 215 Following
JCandelescu, LCSW @Jennife58685806
1K Followers 5K Following she/her ☮️ Psychotherapist 👥️ Clinical Social Worker⛑️ Naturalist 🌱 #AxialSpA #AnkylosingSpondylitis Warrior♿ #HLAB27🧬 Handcrafter 🧶🧵🎨📿
Kimberly Marrs @Kimberly_Marrs
82 Followers 217 Following
Nicole Molligan @NicopdMolligan
0 Followers 59 Following Pump up yоur аcсоunt https://t.co/Fuk2nO3Wid
Becca @tanshoe
249 Followers 1K Following
Derrick @Derek_HSL1
18 Followers 250 Following
HSC @lonelyplanner
449 Followers 4K Following 화려하고 빛나는 미래를 기대하지 않으면서 현재를 만끽하는 포만감이야 말로 밝은미래의 약속이라 믿는다 따라서 순간의 만족이 이어지면 늘기쁨은 지속될것 이다.
John Erik Stacy @fjellrotta
104 Followers 111 Following
John Stolz @JohnStolz189297
2K Followers 5K Following fighting the good fight and living for Jesus!🙏🏻
Hamdan bin faz @Hamdanbinf93310
155 Followers 2K Following
BethAnn Telford @Telford_WMCabc2
405 Followers 1K Following Brain cancer survivor. @braincancercure ambassador. 2017 World Marathon Challenge participant. #selfeet #defeatbraincancer #befearless
Rachel @Rachel591652155
92 Followers 386 Following Shanghai native / Currently living in New York / Enjoys making friends and playing sports / Please do not sell me any investments.
Richard Orna @RichardOrna
37 Followers 66 Following
Sal T @Sal789000
158 Followers 262 Following Sister to Rick who was diagnosed Nov 22 with glioblastoma stage 4 brain tumour. Fundraising for immuno-oncological treatment as standard treatment isn't working
Nigel Forrester @nigelpaulf
2K Followers 5K Following
Xin (Chelsea) Fan @Chelsea202201
154 Followers 785 Following Global Product Marketing Manager at Standard BioTools
escape fromaddiction @EFromaddiction
5 Followers 31 Following
Carla Gallegos @Cegalle1
159 Followers 2K Following
GILBERT KORIR,MD @GILBERTKORIRMD
2K Followers 4K Following ➡️Medical Doctor ➡️SURGEON..Neurosurgery.🧠 🇸🇰🇺🇲 @Medshronline.
George @johnkoval07
187 Followers 1K Following 🚧🚧👷♂️ Civil Engineer, Ukrainian 🇺🇦🇺🇲🇻🇪 Arizona 🌵🌵 proud Dad of 1💪🥰🥰
Mr. Barry & Mrs. Jill.. @BarryJillBaynes
660 Followers 2K Following Happily married couple trying to figure twitter out, deal with Barry's stroke and Jill's brain tumor! Survivors! Trump supporter,☠️no WhatsApp private chat
Anne Llewellyn @AnneLlewellyn
2K Followers 2K Following Healthcare leader specializing in care coordination, patient advocacy, case management and patient empowerment. Author of NursesAdvocates.
Jun Kim @Jun_kiim
1K Followers 926 Following Virotherapy and Immunotherapy for Glioblastoma, Harvey W. Cushing Neuro-Oncology Laboratories, @harvardmed @bwhneurosurgery @massgenbrigham
WeTrials @WeTrialshub
90 Followers 165 Following Empowering patients. Advancing research. That's what we do at WeTrials. Join us in revolutionizing clinical trials, making them accessible and patient-centric.
Brain Cancer Canada @braincancercan
503 Followers 664 Following Brain Cancer Canada is a national charity that supports people diagnosed with primary malignant brain tumours by funding research, technology and treatment.
Jill Barnholtz-Sloan,.. @NCIJBSloan
2K Followers 2K Following Official NCI account of Dr. Jill Barnholtz-Sloan, CBIIT Informatics & Data Science Associate Director; DCEG Sr. Investigator, part of @NIH. https://t.co/7z9wLvc4Id
Tumor Discovery @TD_ASP
202 Followers 1K Following Tumor Discovery is a peer-reviewed and open-access journal that aims to present new cancer research with strong emphasis on fundamental and translational studie
Megan Bergum @mizonz79
0 Followers 2 Following
Tori Best, PharmD, BC.. @torileighbest
81 Followers 236 Following Mother’s daughter. Associate Director of Community @NBTStweets. Advocate for person-centered care & #HAPC. Board Certified Geriatric Pharmacist. Tweets my own.
Richie @RichardAse80027
209 Followers 1K Following Know matter the situation will be, there is hope 🙏...!
Savannah Mason @Sav_Mason_
17 Followers 108 Following
Survivor Network CA @survivornetca
8K Followers 8K Following Canadian Cancer Survivor Network | Promoting the very best standard of care, support, follow up and quality of life for cancer patients and survivors.
Cryptids_In_Knit_Caps @BrakemanRd
290 Followers 502 Following Take good care with each other. Opinions expressed are my own.
Marianna Aloia-Ramire.. @parchastella
6 Followers 324 Following
WorldAiArthritisDay @AIArthritisDay
2K Followers 2K Following World #AiArthritisDay | Annual AUTO-themed awareness event for AUTOimmune and AUTOinflammatory arthritis diseases. Hosted by @IFAiArthritis
Dawn Femmino @DawnF64
4 Followers 40 Following
Katja 4 COA @CoaKatja
92 Followers 244 Following COA founding chair at ISPOR, Parexel service line lead, Dr for Psychology, TBI survivor, brain lesion, researcher, consultant, pharmaceutical industry support!
COBRA KAI, NEVER DIE .. @gregtl1967
34 Followers 232 Following
Patty T CNP @PattyT_NP
400 Followers 908 Following Chronic Care/ Rheum/ House Calls NP. Love my job, my old ppl and love/ hate w/ politics. She/her. Stay engaged! My own opinions
Lucy C @lucyfruitc
83 Followers 753 Following
Laura @laurabaker_3
52 Followers 486 Following
Marissa M @Maris68668842
2 Followers 16 Following
Patricia Etter @83rnbaby
213 Followers 831 Following
Wendy Fallon-Williams @Wendy195fwWendy
427 Followers 2K Following There’s only one of me 🤷♀️…….and I’m a wonderful travel agent https://t.co/h1aEgDDxsu Check and see what I can find just for you
Greatful children's o.. @enock_musaazi
271 Followers 1K Following I am 20 years old, On a mission to bring hope & healing to the needy through the love of Christ,Proverbs 19:17NIV #Education📚#Home🏡 #Medical♿️#Donate🎗
Liz Salmi @TheLizArmy
9K Followers 1K Following Be one, do one, teach one. Co-Investigator for @myopennotes at @BIDMChealth. Bringing punk rock to health care. @thelizarmy on all platforms.
St_Molly_AgentofChaos @Lifeiskitsch
4K Followers 1K Following “quirky, defiant, messy, odd, & absolutely charming”- me, according to my 6th grade teacher #BTSM #HeadfortheCure #EndWell #ABTA #Beans4Brains #HBTCStrong
National Brain Tumor .. @NBTStweets
12K Followers 2K Following National Brain Tumor Society (NBTS) is a nonprofit organization committed to finding a cure for brain tumors.
Terri Armstrong @Tsarmstrong01
3K Followers 565 Following Senior Investigator & Deputy Chief , Neuro-Oncology Branch, Associate Director, Patient Outcomes, CCR, NCI,NIH. Tweets my own
Thanks Cancer! @ThanksCancer
18K Followers 10K Following Cancer is growth that I never wanted: the podcast!
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Mark Lewis @marklewismd
88K Followers 39K Following Director, GI Oncology, @Intermountain. Interests: neuroendocrine tumors, cancer syndromes, empathy (even had a Whipple myself). Tweets my own.
Rachel G Greenberg @ConnectionsHope
7K Followers 2K Following Widow (before her time!). Bringing hope to all those who have lost a loved one. Hope is on the way. You are not alone. https://t.co/wNlij0TpZQ
LibbyMBC @LibbyMbc
37K Followers 2K Following young mom fighting metastatic breast cancer and advocating for all fighting terminal cancer. Located in Canada 🇨🇦 my link tree: https://t.co/7JO9CaAx8y
Dr. rer. pol.Sabine S.. @Sabine_NJ
1K Followers 1K Following Patient Advisor @MSKCancerCenter @theABTA @count_me_in @covid19nCCC; @BTSMchat organizer; @epicxperience BOD. 10year old mom, rock climber, chocolate lover🍫
Widowed Dad @DadWidowed
3K Followers 2K Following Adventures of a fifty something widowed empty nester. Exploring possibilities, making friends, living life. Runner, skier, sky gazer, wanderer. INFP-Dreamer.
I Live Now Rachel �.. @KickBrainTumors
4K Followers 4K Following God's love will never fail us☀ His mercy follows us through Life's journey⛅ All the days of our Lives☀Uplifting words👩🏾💻 Love🧠 Hope🧠Faith☀Surviving☀Thriving⛵
Dr. Kimryn Rathmell @NCIDirector
29K Followers 1K Following Official account of W. Kimryn Rathmell, MD, PhD (she/her/hers), Director of @theNCI. Follows & retweets are not endorsements. Privacy: https://t.co/AxsApipSxJ
NCI Neuro-Oncology Br.. @NIHBrainTumor
8K Followers 389 Following Official Twitter account of @theNCI's Neuro-Oncology Branch at the National Institutes of Health (@NIH). Privacy Policy: https://t.co/QamKebns0j
Edjah Nduom, MD (he/h.. @EKNduom
11K Followers 3K Following A Neurosurgical Oncologist, scientist, and patient advocate. I cut out brain and spine tumors and try to cure them with the immune system. Tweets are my own.
Pediatric Brain Tumor.. @PBTF
4K Followers 1K Following The Pediatric Brain Tumor Foundation leads the way in funding research, supporting families and advocating for policies to end childhood brain cancer.
Alireza Mansouri @DrAMansouri
2K Followers 1K Following Neurosurgeon, Scientist. Focused on clinical trials for brain cancer and ways to simplify the process for patients. Opinions my own
Justin Lathia, PhD �.. @JustinLathia
6K Followers 2K Following Lab studying cancer from a stem cell and cell-cell interaction perspective, #cancerstemcells, #glioblastoma, #GBM. Tweets are my own. @DrexelUniv @NIHOxCam alum
Jared Rubenstein, MD @DrJRubenstein
8K Followers 5K Following Pediatric palliative care doctor and fellowship director. I help people talk about hard things. Views are my own. My videos and writing on website below. he/him
Joshua Budhu @JoshuaBudhu
4K Followers 2K Following Neuro-Oncologist @MSKCancerCenter | DEI editor @greenjournal | I treat CNS tumors and advocate for an equitable healthcare system | #Knicks | opinions my own
World Journal of Onco.. @WJON_Journal
3K Followers 1K Following PubMed/PubMed Central/Scopus/EMbase/Web of Science (ESCI) indexed, JCR Impact Factor 2022: 5.2. Editor-in-Chief: Prof. Kazuaki Takabe, New York, USA
BethAnn Telford @Telford_WMCabc2
405 Followers 1K Following Brain cancer survivor. @braincancercure ambassador. 2017 World Marathon Challenge participant. #selfeet #defeatbraincancer #befearless
WeTrials @WeTrialshub
90 Followers 165 Following Empowering patients. Advancing research. That's what we do at WeTrials. Join us in revolutionizing clinical trials, making them accessible and patient-centric.
Anne Llewellyn @AnneLlewellyn
2K Followers 2K Following Healthcare leader specializing in care coordination, patient advocacy, case management and patient empowerment. Author of NursesAdvocates.
Jun Kim @Jun_kiim
1K Followers 926 Following Virotherapy and Immunotherapy for Glioblastoma, Harvey W. Cushing Neuro-Oncology Laboratories, @harvardmed @bwhneurosurgery @massgenbrigham
Brain Cancer Canada @braincancercan
503 Followers 664 Following Brain Cancer Canada is a national charity that supports people diagnosed with primary malignant brain tumours by funding research, technology and treatment.
Tori Best, PharmD, BC.. @torileighbest
81 Followers 236 Following Mother’s daughter. Associate Director of Community @NBTStweets. Advocate for person-centered care & #HAPC. Board Certified Geriatric Pharmacist. Tweets my own.
Survivor Network CA @survivornetca
8K Followers 8K Following Canadian Cancer Survivor Network | Promoting the very best standard of care, support, follow up and quality of life for cancer patients and survivors.
Cryptids_In_Knit_Caps @BrakemanRd
290 Followers 502 Following Take good care with each other. Opinions expressed are my own.
WorldAiArthritisDay @AIArthritisDay
2K Followers 2K Following World #AiArthritisDay | Annual AUTO-themed awareness event for AUTOimmune and AUTOinflammatory arthritis diseases. Hosted by @IFAiArthritis
Terri Major-Kincade, .. @drterrimd
2K Followers 2K Following Neonatologist & Pediatrician| Best-Selling Author|Speaker| Health Equity & Perinatal Health Disparities Expert|HBCU GRAD|Giver of Light & Hope for the Journey
Vigilante Legal @Vigilante_Legal
2K Followers 6 Following Not a law firm & shouldn’t be taken as legal advice. Professionals fighting for justice. For media inquiries, email [email protected].
Mckenna Bell @mckennamorin
290 Followers 411 Following freelance photojournalist | insta: @ mckennamorinpics | PLU alumni | 🇦🇶🇨🇦🇨🇳🇦🇷🇯🇲 | she/her
Swagger Society @SwaggerSociety
4K Followers 405 Following Robin Arzón launched the first lifestyle membership club in Web3 🚀 Come level up your life with us! 💪🏼
Taylor Swift @taylorswift13
95.4M Followers 0 Following All’s fair in love and poetry... New album THE TORTURED POETS DEPARTMENT. Out now 🤍
Taylor Nation @taylornation13
3.1M Followers 875 Following Straight from THE TORTURED POETS DEPARTMENT. #TSTTPD out now! 🤍
Your Own Backyard Pod.. @YOBPodcast
21K Followers 77 Following A documentary podcast series investigating the 1996 disappearance and murder of Kristin Smart 🤙🏼💜 MEDIA CONTACT: [email protected]
The Tribune @SLOTribune
32K Followers 619 Following News and information for SLO County on California's Central Coast. Send your news tips, story ideas, photos and videos to [email protected].
The Caffeinated Thera.. @bellabee13
17K Followers 1K Following MSW, LICSW. Crowned Therapist Twitter Prom Queen by @drdoylesays. Musician, hockey fan, runner, dreamer. Probably talking about trauma or Taylor Swift.✨ she/her
Dr. Catharine Young @catgyoung
23K Followers 17K Following Neuroscientist || Immigrant || White House Science and Technology Policy @WHOSTP || #CancerMoonshot || @TEDFellow, @PLSProgram, @NewVoicesNASEM || 🇿🇦+🇺🇸
Mioara Larion, Ph.D @LarionMioara
532 Followers 883 Following Investigator at Neuro-Oncology Branch of National Cancer Institute in Bethesda, Maryland. Private account. All views are my own.
Elizabeth Broden, PhD.. @ebronurse
715 Followers 2K Following PICU RN, nurse scientist, explorer of grief, post-doctoral fellow @DanaFarber
Dr_H @AlanHawxbyMD
17K Followers 14K Following Dad. Transplant Surgeon in Denver. @HopkinsSurgery fellowship alum. @Okstate and @Mizzou grad. Nat’l Park fan. The man who is actually in the arena.🎸🥾📚🏋🏻
Dr Neil Pender BM MSc.. @DrNeilPender
16K Followers 17K Following Consultant in Palliative Medicine, Tameside and Glossop Integrated Care NHS Foundation Trust. VIEWS ARE MY OWN. Retweets are not necessarily endorsements.
NEJM Evidence @NEJMEvidence
30K Followers 2K Following NEJM Evidence, a new journal from NEJM Group, presents innovative #OriginalResearch and fresh, bold ideas in #ClinicalTrial design and clinical decision-making.
Jenn Jones @JennLeighJones
66 Followers 228 Following
Gabriel Zada, MD, MS @DoctorZada
4K Followers 1K Following #BrainTumor #Pituitary #Neurosurgeon. Professor of #Neurosurgery @KeckMedUSC. Surgical Director @USCBTC
Dana M. Lewis | #Open.. @danamlewis
14K Followers 3K Following Created #OpenAPS (https://t.co/ef23rZjOLr), “PERT Pilot”. Moderated #hcsm. Wrote #APSBook (https://t.co/8NwKVKdZGU) + others. Researcher, developer, author
dacejames @dacejames
128 Followers 269 Following 🧠 brain cancer survivor + peer mentor 📸 photographer of many things 🤕🌱 post-traumatic growth
Jeri Burtchell @FingoHead
2K Followers 2K Following @HealthiVibe Dir. Patient Initiatives, #ClinicalTrial Awareness Activist, #MS Advocate, #MedX 2016-17 ePatient, 2015 @biogenidec #hackMS winner, my views
Lady Glaucomflecken (.. @LGlaucomflecken
70K Followers 672 Following Speaker. Podcaster. Writer. SCA lay responder. Co-survivor of cancer/SCA/med school/marriage to @DGlaucomflecken. https://t.co/6O5U57OkTg
Katie Ringer 🏳️�.. @KatieRingerEsq
311 Followers 689 Following #defendrtc, #evictionfreenyc, #cureviolence, #GoodCause, tenant lawyer, criminal defense lawyer at @LegalAidNYC
Eli Gerber @eli_gerber
852 Followers 943 Following He/him. Opinions are mine. Go Bills, Go Blue! #insulin4all
Human @CGconfessions1
1K Followers 3K Following former caregiver to wife with #mbc #brainmets. Trying to figure out how to move forward.
Gerry Tye @GerryTye
2K Followers 3K Following Children's Cancer Advocate & Father to a DIPG Child Lost in 13 Weeks - Brain Cancer Sucks - Making Changes - #DIPG #DIPGReseach
Robert Gergely, MD @rgergelymd
3K Followers 5K Following Decentralized Medical Record System Inventor/owner of Patent Pending #17107389. UNIVERSALLY ACCESSIBLE PERSONAL MEDICAL RECORDS. [email protected]
Andrew Johnstone, MD @pallbro
10K Followers 1K Following just an emergency and palliative doc and his fluffy idiot dog. and his cat. he/him/his🌈
Editor - Neuro-Oncolo.. @EditorNeuro
1K Followers 344 Following Dr. Gelareh Zadeh - Editor-in-Chief of the Neuro-Oncology Advances Journal https://t.co/DIZeqLXgdx @gelarehzadeh
Karen Haas @caringcancermom
1K Followers 1K Following Wife, mom, UCalgary Alum, SickKids FAN. Research Family Partner. Kids & AYA Cancer Advocate - esp malig brain tumours & Epithelioid Hemangioendothelioma Sarcoma
Kevin Johnson @Kevin_C_Johnson
529 Followers 645 Following Brain tumor genomic scientist with @roelverhaak @YaleMed | Views are my own
Jill Barnholtz-Sloan,.. @NCIJBSloan
2K Followers 2K Following Official NCI account of Dr. Jill Barnholtz-Sloan, CBIIT Informatics & Data Science Associate Director; DCEG Sr. Investigator, part of @NIH. https://t.co/7z9wLvc4Id
David Heyting @dheyting
490 Followers 600 Following CPA: Partner @cpahsa Father of two awesome boys, a climber and hiker, living with brain cancer
Matt Wilpers @MattWilpers
31K Followers 263 Following Former NCAA Division I Cross Country + Track Distance Runner | RRCA Certified Running Coach | Triathlete | Peloton Run, Row and Cycle Coach
Jennifer Douglas @mmejendouglas
5K Followers 4K Following Author of “A Breast Cancer Journey: Living it One Step at a Time.” Breast cancer patient advocate, #dcis, #bcsm, wife, mom, francofile.
@T-Rex @TRexSanDiego
1 Followers 5 Following Old enough to experience Young enough to mostly rememberThis International Women's Day, 🌍 WeTrials celebrates the incredible women 👩🎓👩🏭👩💼 who are more than just individuals achieving their own goals. You are the architects of inclusion 🏗️🤝, day in and day out, building a world where every woman can thrive 🌸. Across the globe 🌐,…
@lisaoleary524 Nearly 3 years into my grief (not counting the anticipatory grief post-DX) & still processing. Thanks for reminding us to give ourselves permission for our own timeline.
@lisaoleary524 Writing is very healing. I recommend that my clients journal (pen to paper). Your writings @lisaoleary524 are beautiful as you invite so many into your journey. #BTSM
Looking for more? Tune in to Brain Tumor Support Conversations—a virtual support group w/@lisaoleary524, @AdamHayden & @shawncarey8—on Sun, Mar. 17, at 4pPT/7pET. Patients, care partners, any brain tumor type, any stage of treatment can join! braintumor.org/take-action/br… #BTSM
Yes. During the day, there is often no room or space for grief. In a busy clinic, you may give terrible news to someone and then move right into another room. Over time, this takes a toll. #btsm
T3 for researchers and clinicians: Do you find it difficult to express feelings of grief in your profession? How do you develop your relationship with clients when working through your own grief? #btsm
@lisaoleary524 I'm still thinking about writing about what I experienced. Just haven't pulled the trigger. #btsm
@CNMnopatchouli Formal counseling from my therapist was vital to overcoming my initial feelings of grief after my mom died, @CNMnopatchouli. It has made a tremendous difference in my grief journey. #btsm
@Sabine_NJ @BTSMchat In my experience, it's what you do with that time. In one year, my husband was fighting a GBM, had to retire from the fire department, and lost his mom. We use guided meditations, affirmations, gratitude etc to navigate the day to day. 💕 #BTSM
@hgainsboro @BTSMchat Sure - the biggest “changes” has been memory loss, cognitive decline - I’ve had some pretty bad experiences as a result of me forgetting something. I’m certified gifted & was always proud of the beautiful, sharp mind I was blessed with. My confidence has taken a big hit #btsm
@subatomicdoc @BTSMchat @UTSWNews I'm dealing with a malignant transformation (now gr 4 astro IDHm) - had 2nd crani, re-rad, and now PCnoV...yet am very lucky to still feel really well. Still able to work (a job I really like), volunteer, take care of my puppy, etc. So yes, tremendously fortunate! #BTSM
T1 for patients and care partners: What do you want our community to know about your grief journey and how can sharing your story and feelings help you?
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