SundasHashmi @sundashash1
Mom, proud immigrant, math/economics/public policy nerd, engineer in a past life, #BTSM New York, USA Joined December 2017-
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CAR-T for GBM? "One patient showed near-complete [recurrent #glioblastoma] regression on a scan done after 5 days... We’ve been surprised at how dramatic these tumor responses are" Read more at: deccanherald.com/science/tumor-…
Share your experiences with #Glioblastoma care. TAKE OUR SURVEY NOW: ourbrainbank.org/survey Read the full article, written by Sundas Hashmi, OurBrainBank board member, and related articles from our latest series on @Forbes here: tr.ee/IitsINBxDT
Hate to hijack the @BTSMchat, but if all the incredible GBM patients + caregivers could find a few minutes to fill out this survey, I’d be so grateful! ourbrainbank.org/survey/ #btsm
Brain cancer clinical trials bring hope to millions of patients. Why are we failing them? My latest for @Forbes: bit.ly/49zjN0W @ourbrainbank @shitscaredmum @BTSMchat @NBTStweets @theABTA @glioblastomaorg #glioblastoma #gbm #cancer #brain
#GBM is a deadly disease with average survival of only 15 months - but 10 years later, @Sabine_NJ continues to thrive. Read my story about this extraordinary woman in @Forbes: bit.ly/3V0Z4P5 @ourbrainbank @NBTStweets @theABTA @BTSMchat @BrainTumourOrg #glioblastoma #btsm
We are lagging in the search for new treatments for brain cancer - a rare but lethal disease. We must do better. My latest for @Forbes: forbes.com/sites/forbeseq… @ourbrainbank @NBTStweets @theABTA @BTSMchat @BrainTumourOrg #GBM #glioblastoma #btsm
We're proud to partner with @Forbes on a new series. Executive Director Kelli Duprey writes about how we are failing to find new and better treatments for people who get the devastating diagnosis of #glioblastoma. RTs appreciated. #GBM #WeAreFailing forbes.com/sites/forbeseq…
Who does not like IRL meet ups?! The coffee date with @sundashash1 was long overdue, but we finally made it happen. We talked about parenting, bilingualism, advocacy, @ourbrainbank, fundraising, and of course #btsm, because that’s how we initially connected.
Year 3 of the #BT5K NYC for @theABTA! Pls join us in supporting ABTA to help find a cure for this terrible disease that has stolen so much from families like ours. Link here: give.abta.org/team/527670 @NBTStweets @BTSMchat #btsm #braincancer #cancer
10% of cancers are genetically linked. And 5% of #braintumors specifically. I suspect there’s a higher correlation. Important article from @Brabbott42 @ourbrainbank @NBTStweets @gliomaregistry @mbondy2 @theABTA #cancer #btsm wsj.com/health/healthc…
Remarkable story by @PamBelluck. I wonder if #AI can be used to help patients with aphasia & other neurological conditions speak also. #btsm @NBTStweets @theABTA @BrainTumourOrg nytimes.com/2023/08/23/hea…
Always in our hearts: my kind, impossibly handsome, giant-hearted brother Fawad Hashmi, whom we lost to #GBM at the age of 18. The world is poorer for his loss. We can and must do better. #GBMDay #Glioblastoma #GlioblastomaAwarenessDay #btsm #SiblingGrief @ourbrainbank @theABTA
On this #GBMDay I think of my brother, who was dx’d at 16 and whom we lost 2yrs later to this cruel, brutal disease. My heart is with all #GBM patients, caregivers & all the other bright lights we have lost - today and everyday. #GBMAwarenessDay #Glioblastoma @NBTStweets @theABTA
.@taraparkerpope, I had #aphasia after my #braintumor surgery. It’s a feeling of utter helplessness. Your brain feels crystal clear but your tongue has difficulty articulating simple words. #BruceWillis #aphasiaAwareness
.@taraparkerpope, I had #aphasia after my #braintumor surgery. It’s a feeling of utter helplessness. Your brain feels crystal clear but your tongue has difficulty articulating simple words. #BruceWillis #aphasiaAwareness
Those with multiple family members suffering from #braincancer specifically #gliomas, the #gliogene study led by Dr Melissa Bondy @StanfordMed is a godsend. Pls participate: youtube.com/watch?v=DzzZ2q… @gliomaregistry, @Sabine_NJ, @NBTStweets @ourbrainbank
The scariest thing in the whole #AllenVFarrow saga on @HBOmax is that Woody Allen went on to adopt two more girls with Soon-Yi. Someone pls check in on them 🙈 @HBO
“Does it hurt?" (said Harry.) “Dying? Not at all," said Sirius. "Quicker and easier than falling asleep.” #HarryPotterandthedeathlyhallows by @jk_rowling #HarryPotter
"It is the unknown we fear when we look upon death and darkness, nothing more." #Dumbledore in #HarryPotterandthehalfbloodprince by @jk_rowling #HarryPotter
"After all, to the well-organized mind, death is but the next great adventure." #Dumbledore in #HarryPotterAndTheSorcerersStone #HarryPotter
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Check it out… @HerveyJumper and I are experts on neurosurgery! For him, as the neurosurgeon. For me, as the active participant during neurosurgery. Join us at this session at #AANS2024 in Chicago. #neurosurgery #btsm
Join experts @HerveyJumper, @TheLizArmy for a unique 60-minute journey from consultation to theater with insights on optimizing tumor resection and enhancing recovery through neuroplasticity. Don’t miss this symposium on managing diffuse LGG! 🧠💡 ms.spr.ly/6014Y8kS0
We did it! & we’re still speaking! 3:50:18 - a reasonably respectable time for a couple of oldies. Thank you so much for all the support & the generous donations to @BrainTumourOrg Massive thanks to @GracieNuttall41 for being there to cheer us on All for you Laura darling ❤️
Look who came with me to the big 10 year scan😍 at @MSKCancerCenter. @schwab_msb has been by my side for every oncology appointment in the past decade, but I usually go to my mri appts on my own. #thankful he’s here with me today. # btsm
STABLE! 🥳 (minus the unknown spot that's likely scar tissue that's been there since 2021). I can't believe I made it to 10 years without recurrence. #btsm
Look who came with me to the big 10 year scan😍 at @MSKCancerCenter. @schwab_msb has been by my side for every oncology appointment in the past decade, but I usually go to my mri appts on my own. #thankful he’s here with me today. # btsm
Few things are as inevitable as the word “battle” appearing in the obituary for a patient who died of cancer But we need to reframe the disease in a manner that does not imply cowardice or ignobility for level-headed refusal of treatment theoncologist.onlinelibrary.wiley.com/doi/full/10.16…
Request for proposals is now open! BrainTumor.org/Funding #BTSM
This RFP is a culmination of NBTS’s efforts to develop a brain tumor-specific research agenda, with input from an in-depth community engagement process, that is intended to serve as a guide for research focused on quality of life (#QOL) for patients with #braintumors.
Well, #KingRalph couldn’t get “Ben-Hur” (1959) for free today, so we’re watching “The Ten Commandments” (1956) instead. Love us some Charlton Heston & Yul Brynner!
I have a question: WHY OH WHY do so many hotels now have frosted glass or paper-thin bathroom doors? Has ANYONE ever thought, "Phew! I'm SO thankful this door doesn't block out ANY sound! It'd be a shame if whomever I'm staying with couldn't hear EVERYTHING I'm doing in here!"
OurBrainBank Chair Ed Pilkington on the White House Cancer Moonshot and GBM: “It’s a strange sensation sitting at the keyboard and writing this sentence: I have a deep and personal connection to the President of the United states. But I do.” forbes.com/sites/forbeseq…
CAR-T for GBM? "One patient showed near-complete [recurrent #glioblastoma] regression on a scan done after 5 days... We’ve been surprised at how dramatic these tumor responses are" Read more at: deccanherald.com/science/tumor-…
80+ attendees & $7,500 raised so far! Have you signed up yet? 🩶🧠 Link to register: gbmresearch.org/projects/go-gr…
We had an uninvited guest in our ceiling over the last week. I setup a trap, and after a few days caught a momma possum with her youngsters. I’ve transported them to a more appropriate location. Welcome to spring in Austin, TX. Thank you @callahansgs for the trap.
2 yrs ago we held a fundraising ball in our indoor play centre @giddykips It sounds like an accident waiting to happen but it was the most brilliant night. Laura was really well & happy, she & @GracieNuttall41 looked so beautiful These memories are both precious & painful ❤️
OurBrainBank Chair Ed Pilkington writes in Forbes about his wife's glioblastoma and the White House Cancer Moonshot ourbrainbank.org/forbes-whiteho…
Share your experiences with #Glioblastoma care. TAKE OUR SURVEY NOW: ourbrainbank.org/survey Read the full article, written by Sundas Hashmi, OurBrainBank board member, and related articles from our latest series on @Forbes here: tr.ee/IitsINBxDT
The last 5 yrs have contained the worst days of my life but also, some of the best. I’ve learned so much about kindness & love, living in the moment & appreciating this life - I’ve also had my heart well & truly shattered Thanks @HarperCollinsUK @RMLitAgency for your faith in me