#BTSM chat @BTSMchat
All things Brain Tumor Social Media. Live chat 1st Sunday of the month every other month; 4p PT/7p ET. Connect with us all month long by adding #BTSM en.wikipedia.org/wiki/Brain_Tum… Next chat: Sun. May 12, 2024 Joined August 2014-
Tweets8K
-
Followers3K
-
Following509
-
Likes7K
Request for proposals is now open! BrainTumor.org/Funding #BTSM
Request for proposals is now open! BrainTumor.org/Funding #BTSM
Tonight's @BTSMchat transcript can be found here: #btsm symplur.com/healthcare-has… #btsm
Thanks for joining us this evening! We will be back in May for our next tweet chat. Until then, be sure to use #BTSM for any content relevant to the community.
Tonight’s #BTSM chat topics were created by @shawncarey8 & @hgainsboro. They were reviewed by @Sabine_NJ, @mcintose & @Project2Program.
Looking for more? Tune in to Brain Tumor Support Conversations—a virtual support group w/@lisaoleary524, @AdamHayden & @shawncarey8—on Sun, Mar. 17, at 4pPT/7pET. Patients, care partners, any brain tumor type, any stage of treatment can join! braintumor.org/take-action/br… #BTSM
A special thank you to @hgainsboro for joining us tonight and lending her expertise to our conversation! We encourage you to check out the Grief Support Conversations that she leads with @NBTStweets. Learn more here: braintumor.org/support-servic…
👏👏👏 #btsm
T4: How do you hope to experience life in the future as you continue with your grief journey? #btsm
Almost time for our final question. Let’s get ready for T4 in just 1 minute! #BTSM
A really important point from @Project2Program! 👇 #btsm
A really important point from @Project2Program! 👇 #btsm
T3 for researchers and clinicians: Do you find it difficult to express feelings of grief in your profession? How do you develop your relationship with clients when working through your own grief? #btsm
T3 for patients and care partners: Have you found lessons and/or tools along the way that helped you cope with the feelings of grief? #btsm
If you are here tonight to just listen, please tweet “#BTSM” so we know you’re in the audience. 👋
T2: What are some messages about grief you’ve learned or been told about? How do they reflect your own feelings? #btsm
T1 for researchers and clinicians: When you are working with patients and care partners, what do you wish people understood about your profession and your personal relationship with grief?
T1 for patients and care partners: What do you want our community to know about your grief journey and how can sharing your story and feelings help you?
Liz Salmi @TheLizArmy
9K Followers 1K Following Be one, do one, teach one. Co-Investigator for @myopennotes at @BIDMChealth. Bringing punk rock to health care. @thelizarmy on all platforms.National Brain Tumor .. @NBTStweets
12K Followers 2K Following National Brain Tumor Society (NBTS) is a nonprofit organization committed to finding a cure for brain tumors.SNO @NeuroOnc
10K Followers 507 Following A multidisciplinary society of healthcare professionals dedicated to promoting advances in neuro-oncology through research and education.Justin Lathia, PhD �.. @JustinLathia
6K Followers 2K Following Lab studying cancer from a stem cell and cell-cell interaction perspective, #cancerstemcells, #glioblastoma, #GBM. Tweets are my own. @DrexelUniv @NIHOxCam alumTerri Armstrong @Tsarmstrong01
3K Followers 565 Following Senior Investigator & Deputy Chief , Neuro-Oncology Branch, Associate Director, Patient Outcomes, CCR, NCI,NIH. Tweets my ownSt_Molly_AgentofChaos @Lifeiskitsch
4K Followers 1K Following “quirky, defiant, messy, odd, & absolutely charming”- me, according to my 6th grade teacher #BTSM #HeadfortheCure #EndWell #ABTA #Beans4Brains #HBTCStrongCraig Horbinski @CraigHorbinski
11K Followers 3K Following Director of #Neuropathology, Nervous System Tumor Bank, and Path Core at #Northwestern. My #NIH-funded laboratory studies #glioma and #meningioma.maria g castro @castro2355_mg
4K Followers 5K Following Working towards a cure for brain cancer @UMich 1st generation #Latina. Prof of Neurosurgery & Cell & Developmental Biology. Science & social justice advocate.Thanks Cancer! @ThanksCancer
18K Followers 10K Following Cancer is growth that I never wanted: the podcast!Dr. rer. pol.Sabine S.. @Sabine_NJ
1K Followers 1K Following Patient Advisor @MSKCancerCenter @theABTA @count_me_in @covid19nCCC; @BTSMchat organizer; @epicxperience BOD. 10year old mom, rock climber, chocolate lover🍫NCI Neuro-Oncology Br.. @NIHBrainTumor
8K Followers 389 Following Official Twitter account of @theNCI's Neuro-Oncology Branch at the National Institutes of Health (@NIH). Privacy Policy: https://t.co/QamKebns0jMark Lewis @marklewismd
88K Followers 39K Following Director, GI Oncology, @Intermountain. Interests: neuroendocrine tumors, cancer syndromes, empathy (even had a Whipple myself). Tweets my own.Brain Tumour Fdn @BrainTumourFdn
5K Followers 3K Following Reaching all Canadians affected by a brain tumour with advocacy, research, information, support, and education. #EndBrainTumours #BrainTumourWalk #HatsForHopeLiam Bergin thriving .. @liamdbergin
4K Followers 3K Following retired terminal brain getting very tiredbutytyping bergreencandidate local electionIvy Brain Tumor Cente.. @IvyBrainTumCtr
5K Followers 3K Following Largest #Phase0 clinical trials program in the world providing personalized treatment options for patients with #glioblastoma & other aggressive brain tumors.Annie Huang @DrAnnieHuang
2K Followers 1K Following Very proud Mom; 🇨🇦 Research Chair, Assoc Chair Peds @SickKidsNews @UofT, determined to change outcomes for infant & rare 🧠 tumors @RBTCSickKidsAlireza Mansouri @DrAMansouri
2K Followers 1K Following Neurosurgeon, Scientist. Focused on clinical trials for brain cancer and ways to simplify the process for patients. Opinions my ownNicholas Blondin, MD @NicholasBlondin
1K Followers 586 Following Neuro-oncologist practicing at Smilow Cancer Hospital and the Yale Comprehensive Cancer Center, dedicated to Hope and the pursuit of the Cure. Tweets are my ownAmerican Brain Tumor .. @theABTA
9K Followers 1K Following The ABTA provides resources to support the needs of brain tumor patients & caregivers and funds critical research in the pursuit of discovering breakthroughs.Cancer Final Girl @CancerFinalGirl
4K Followers 2K Following My life is a real life #horror story. 3 time primary #cancer haver. The killer is inside the house & I'm still fighting. Currently battling #Astrocytoma.زى الكتاب م�.. @mo71327340
508 Followers 2K Following زي الكتاب مابيحكي عن تاريخ اصيل وحضاره عظيمه وتطور العالم حوالينا هنا هنتكلمSeth Goodman @graphingparking
836 Followers 642 Following Local politics, especially parking, transit, and housing. A disabled architect who imagines a much better world.Young Adult Brain Tum.. @YABrainTumor
5 Followers 49 Following For young adults with brain tumors and cancers to share their stories and find supportJMT❤️ @HSBC74
125 Followers 179 Following currently living with with adevil’s testicle in my brain#Glioblastoma, #covid19 adverse reaction. NO MORE VAX. fighting for vaccine justiceGizmo Patterson @Gizmo_Patterson
12 Followers 66 FollowingDave Engh @DaveEngh
54 Followers 20 FollowingNyomanputridevi Mulya.. @nyomanputr69747
0 Followers 56 FollowingPutri Ni nyoman putri.. @PutriNinyo45676
0 Followers 5 FollowingJean-François All @JeanFrancoisAll
44 Followers 2K FollowingRhodolfo Ferreira @sfrfsr
0 Followers 103 Followingannie post @apwriter
6K Followers 6K Following #BlockedbyTrump Business Writer. Web/Graphic Designer, Publisher. https://t.co/8No1CbJhEsAri E. Marciscano, MD @AE_MarciscanoMD
1K Followers 2K Following Radiation Oncologist @MGHCancerCenter @harvardmed - all views my own3PuttBogey @3_Putt_Bogey_
529 Followers 1K Following Everything we hear is an opinion, not a fact. Everything we see is a perspective, not the truth.Andrew Caravello, DO @andrewcaravello
348 Followers 547 Following Your go-to guy for all things Emergency and Wellness! Not only do I save lives in the ER with a smile, but I also help you lose those pesky pounds ⚕️🖖 🚨 ⚕️Lisa🇺🇸🇺🇦 @LisainNJUSA
8K Followers 9K Following While my husband fights a Grade 4 GBM brain tumor, I fight those who have tried to destroy the cure for 💰. #CancerMoonshot #NWBO #DCVAX #GBMWIFE #VOTEBLUEMelissa Mitchell @Mkatemitch
2 Followers 5 Following Brain cancer survivor. Disability advocate. Avid reader.Jennifer Bernzott @JBernzott
80 Followers 674 FollowingDiakonos Oncology @DiakonosOnc
159 Followers 355 Following A new generation of immunotherapy. Unlocking the potential of the immune system.RASHI 🩷 @Ughrashii001
10 Followers 129 FollowingNuclear Medicine and .. @NMNSymposium
83 Followers 364 FollowingManjari Goenka @man82go
2 Followers 27 FollowingAxel Kornemann @KornemannAxel
24 Followers 103 Following Jeden Tag einen Schritt in die nachhaltige Energiewelt von Morgen machenWinsome Foderingham @__Winsome
784 Followers 5K Following Cross-sector strategist and process innovator. Creative systems thinker designing equitable strategies and sustainable solutions.Ryo Longwei @SeaMoonlight206
5 Followers 500 Following Dedicated H passionate about advancing knowledge in O. Committed to evidence-based insights and continuous learning.Zhaohui Wang, Ph.D. @ZhaohuiWang5
104 Followers 196 Following Assistant Professor and Director of Precision Medicine at the Terasaki Institute for Biomedical Innovation/Adjunct assistant professor at Duke UniversityJonathan C. Lau @jcla.. @jclauneuro
2K Followers 1K Following Neurosurgeon @WesternU @LHSCCanada. Anatomy • Informatics • Modulation • Surgery. AIMS Lab.🧠🎯 Collaborative Medicine. Collaborative Science. Multisport.🏊🚴🏃NP @learning060588
55 Followers 965 FollowingMichael Jacob @theMichaelJacob
1K Followers 275 Following Business owner, tech nerd, and big fan of the 2nd Ammendment.HSC @lonelyplanner
449 Followers 4K Following 화려하고 빛나는 미래를 기대하지 않으면서 현재를 만끽하는 포만감이야 말로 밝은미래의 약속이라 믿는다 따라서 순간의 만족이 이어지면 늘기쁨은 지속될것 이다.Stuart Selby @StupertInTO
98 Followers 261 Following In my 40s, married to a wonderful husband, living with incurable brain cancer. Publisher of IRL "Tearable Puns" in east Toronto. Pharma, Pun and Food geek.FirstWeBombedNewMexic.. @FirstWeBombedNM
203 Followers 740 Following An Award Winning Documentary Film following the @TBdownwinders quest for inclusion under the Radiation Exposure Compensation Act (RECA)LEGAL9 @LEGAL913
264 Followers 2K Following Civil Liberties.Private Securities Trader. Law. Anti Woke. Fight Anti Semitism. 3 STATE solution. Defeat Islamic Terrorism. Abraham Accords w Israel.Alvaro Vilches Chang @alvarovilches
132 Followers 848 FollowingAlexandrina @Alexandrina__
189 Followers 474 Following Meant to be a Paediatric ICU nurse but MIA. That's the thing about miracles, it’s really easy to be inside of one and have no idea it's even happening🌦️Gustavo Villalobos @gustavo941022
193 Followers 5K Following Medicine Neurosurgeon in training 🧠 San Carlos Hospital 🇪🇸Site View Story™ @SiteViewStory
187 Followers 2K FollowingTom Armstrong @PEEP_lab
1K Followers 1K Following clinical psychologist and liberal arts professor • interested in anxiety-related disorders, eye/mouse tracking, disgust/aversion • husband/dad/caregiverJohn Erik Stacy @fjellrotta
104 Followers 111 FollowingGia Sonata @RedGia
2K Followers 4K Following Vaxxed but not yet relaxed ;) Stage IV LC dx: 9/8/2014 - living life w/JOY!Ellie Mertz @EllieMertz1
3 Followers 32 FollowingBrooke Krabben @brooke_krabben
42 Followers 173 Following Patient/Youth Advisor at @ACHFKids❤️ Surviving and raising awareness to diffuse astrocytoma🎗leslie burnside @trixie1033
0 Followers 184 FollowingChirag Patel @CPatel_Lab
74 Followers 597 Following Physician-scientist in neuro-oncology @MDAndersonNews. Lab studies biophysical energy against cancer, cancer-neuronal interactions, and advanced neuroimaging.John Boockvar @johnboockvar
28K Followers 1K Following https://t.co/B1xHjin6T5 Featured #Neurosurgeon on @Netflix #EmergencyNYC & #LenoxHill; Vice Chair, #Neurosurgery #LenoxHill; #Braintumor & #GBM expertLiz Salmi @TheLizArmy
9K Followers 1K Following Be one, do one, teach one. Co-Investigator for @myopennotes at @BIDMChealth. Bringing punk rock to health care. @thelizarmy on all platforms.National Brain Tumor .. @NBTStweets
12K Followers 2K Following National Brain Tumor Society (NBTS) is a nonprofit organization committed to finding a cure for brain tumors.SNO @NeuroOnc
10K Followers 507 Following A multidisciplinary society of healthcare professionals dedicated to promoting advances in neuro-oncology through research and education.Justin Lathia, PhD �.. @JustinLathia
6K Followers 2K Following Lab studying cancer from a stem cell and cell-cell interaction perspective, #cancerstemcells, #glioblastoma, #GBM. Tweets are my own. @DrexelUniv @NIHOxCam alumTerri Armstrong @Tsarmstrong01
3K Followers 565 Following Senior Investigator & Deputy Chief , Neuro-Oncology Branch, Associate Director, Patient Outcomes, CCR, NCI,NIH. Tweets my ownSt_Molly_AgentofChaos @Lifeiskitsch
4K Followers 1K Following “quirky, defiant, messy, odd, & absolutely charming”- me, according to my 6th grade teacher #BTSM #HeadfortheCure #EndWell #ABTA #Beans4Brains #HBTCStrongCraig Horbinski @CraigHorbinski
11K Followers 3K Following Director of #Neuropathology, Nervous System Tumor Bank, and Path Core at #Northwestern. My #NIH-funded laboratory studies #glioma and #meningioma.maria g castro @castro2355_mg
4K Followers 5K Following Working towards a cure for brain cancer @UMich 1st generation #Latina. Prof of Neurosurgery & Cell & Developmental Biology. Science & social justice advocate.Dr. Kimryn Rathmell @NCIDirector
29K Followers 1K Following Official account of W. Kimryn Rathmell, MD, PhD (she/her/hers), Director of @theNCI. Follows & retweets are not endorsements. Privacy: https://t.co/AxsApipSxJThanks Cancer! @ThanksCancer
18K Followers 10K Following Cancer is growth that I never wanted: the podcast!Dr. rer. pol.Sabine S.. @Sabine_NJ
1K Followers 1K Following Patient Advisor @MSKCancerCenter @theABTA @count_me_in @covid19nCCC; @BTSMchat organizer; @epicxperience BOD. 10year old mom, rock climber, chocolate lover🍫NCI Neuro-Oncology Br.. @NIHBrainTumor
8K Followers 389 Following Official Twitter account of @theNCI's Neuro-Oncology Branch at the National Institutes of Health (@NIH). Privacy Policy: https://t.co/QamKebns0jRoel Verhaak @roelverhaak
5K Followers 487 Following Yale Neurosurgery prof studying brain tumors, husband, dad, football enthusiast, likes karaoke and drums. Disclosures: https://t.co/LZmv16girKMichelle Monje🎗️ @michelle_monje
18K Followers 1K Following Neuroscientist. Neuro-oncologist. Mom. @Stanford @HHMInews @CancerNeurosciBrain Tumour Fdn @BrainTumourFdn
5K Followers 3K Following Reaching all Canadians affected by a brain tumour with advocacy, research, information, support, and education. #EndBrainTumours #BrainTumourWalk #HatsForHopeEndBrainCancer Initia.. @EndBrainCancer
5K Followers 132 Following Our mission is to EndBrainCancer by providing patients immediate access to specialists, advanced treatments, and comprehensive support programs. Hope Award ⬇️🧠Alireza Mansouri @DrAMansouri
2K Followers 1K Following Neurosurgeon, Scientist. Focused on clinical trials for brain cancer and ways to simplify the process for patients. Opinions my ownNicholas Blondin, MD @NicholasBlondin
1K Followers 586 Following Neuro-oncologist practicing at Smilow Cancer Hospital and the Yale Comprehensive Cancer Center, dedicated to Hope and the pursuit of the Cure. Tweets are my ownAmerican Brain Tumor .. @theABTA
9K Followers 1K Following The ABTA provides resources to support the needs of brain tumor patients & caregivers and funds critical research in the pursuit of discovering breakthroughs.Cancer Final Girl @CancerFinalGirl
4K Followers 2K Following My life is a real life #horror story. 3 time primary #cancer haver. The killer is inside the house & I'm still fighting. Currently battling #Astrocytoma.Carolyn Pointer @CarolynAPointer
400 Followers 813 Following 🧠 tumor fighter, mom, wife, teacher, lawyer, professor, MLP builder, & advocate for policy change to implement pop sci driven health improvements. tweets mineHolly Gainsboro @hgainsboro
38 Followers 199 Following Grief Support Specialist/Coach, Grief Educator, Grief Recovery Specialist, Podcast Co-host, NBTS Brain Tumor Advocate/Chair Carolina Brain Tumor RaceStuart Selby @StupertInTO
98 Followers 261 Following In my 40s, married to a wonderful husband, living with incurable brain cancer. Publisher of IRL "Tearable Puns" in east Toronto. Pharma, Pun and Food geek.AdvocateCollaborative.. @AdvocateCollab
707 Followers 120 Following Advocates for Collaborative Education (ACE) Mission: To unite & empower cancer advocates via collaboration, education, and dissemination of leading practices.Benzi Kluger @BenziKluger
330 Followers 129 Following Human being, physician, researcher, writer, and advocate for love, joy, truth and kindness.Mathew Krick Gómez @MathewKrick
69 Followers 160 Following Costa Rica • Colombia • US | B.S. MCDBiology @yale | MPH Epidemiology @yalesphCarolann @88olpgirl
380 Followers 437 Following This song is the melody ..An open sky of redemption So take this small confession as my price to pay I've never been the kind to let go💙ThePepperPastor @lynnemorrow
600 Followers 1K Following #thriving with #stage4 #cancer, hybrid healing, wife, mother, former sales pro, #ELCA pastor, adoption, autism, interfaith, love #antiracism IL-FL-TX-NM-TX-ILPresident Biden @POTUS
34.8M Followers 5 Following 46th President of the United States, husband to @FLOTUS, proud dad & pop. Tweets may be archived: https://t.co/HDhBZBkKpU Text me: (302) 404-0880Smart Patients @smart_patients
2K Followers 328 Following An online community where patients and caregivers learn from each other. We believe patients are the most underutilized resource in healthcare.Ellen Landsberger, MD @EllenLands
264 Followers 878 Following Proud feminist and progressive. Retired MD who is proud of Dr Jill Biden and all others who get doctorates.Chris Chinn @Cwchinn
18 Followers 72 FollowingHeather Aldridge @Leigh26Heather
367 Followers 168 Following Mom of a brain cancer warrior. Astronomy & photography fanatic. Philippians 4:13Absent Pam Buck @goaliepam
169 Followers 250 Following It's the Pam Show! Loves black cats, Doctor Who, Peter Capaldi, and hockey! Laugh hard, run fast, be kind.Annie Heffernan @a_e_heffernan
22 Followers 25 Following MPH | Research Associate @BWHNeurosurgery | Low Grade Glioma Registry/OPTIMUM (@gliomaregistry)Ifeoma U. Perkins, MD @IfeomaPerkinsMD
304 Followers 127 Following AP/CP Pathologist | Dermatopathologist | Apex Path | University of Colorado School of Medicine QA / patient safety | Ethics & pathology| T/RT ≠ medical advicemichele.. @michele_502
669 Followers 982 Following A gal who works in forensics. Loves dogs, skincare, and travel. Vino Snob. Diagnosed with brain cancer 10/14/19. #braincancerawareness #astrocytomaLiveNOWLab @LiveNOWLab
217 Followers 450 Following Research lab at VCU’s Massey Cancer Center striving to support the QoL of patients with brain tumors and their families #LiveNOW Director:@AshleeLoughanAmy Heimberger, MD @HeimbergerAmy
1K Followers 264 Following Vice-Chair @NeurosurgeryNM; Int. Assoc. Director, Translational Research @LurieCancer @NUFeinbergMed; Scientific Dir. @BrainTumorInst #BrainTumor #ImmunologyAshlee Loughan, PhD �.. @AshleeLoughan
445 Followers 724 Following Clinical Neuropsychologist - Associate Professor Neurology - Director @LiveNOWlab - Dedicated to quality survival in neuro-onc #VCU #LiveNOW #MasseyCancerCenterKevin Johnson @Kevin_C_Johnson
529 Followers 645 Following Brain tumor genomic scientist with @roelverhaak @YaleMed | Views are my ownDiane Dunn @DoubleD2691
201 Followers 1K Following Wife, mother of 3, prolific baker, australian native bush lover, gardener, dog crazy, crime novel reader, CRPS sufferer and oligodendroglioma owner dx Nov 2016Marie Beausoleil 🇨.. @JustPlainMarieB
4K Followers 3K Following Foodie, blogger, writer, mom. #braintumour (2nd time now) general oddball. My opinions ... may change w/o warning. https://t.co/ac5yCM0KyDKaren DeBonis, author @KarenDeBonis
8K Followers 4K Following GROWTH: A Mother, Her Son, and the Brain Tumor They Survived-- out now! @nytimes @huffpost @thisisinsider @newsweek.com @today.com #peoplepleaserBJ Lee, MD @BenjaminBJLee
354 Followers 609 Following PGY1 @uw_neurosurgery | 2023 Graduate of @OUCollegeofMed | It takes no time to be kind | Researchgate: https://t.co/l24vDwAcZu…Beth E. Finn @Finnspiration
741 Followers 1K Following motivator, sky reacher, overachiever, activist, tech girl, connection maker, brain tumor survivor~advocate, @ElsevierConnect, @PADems, was: @Beth4PHL she/herChristina Lizaso @btrfly12
6K Followers 7K Following I build community. Patient Voice, Power of Story believer. Tweets: Cancer, Clinical Trials, Volunteerism, Gender, #patientchat. Co-mod #gyncsm. CHEK2 previvor🌟 Sherry Reynolds .. @Cascadia
22K Followers 10K Following Nat Dir Center4Health Innovation | Mentor #health startups in HX / #ptexp | Former @ONC_HealthIT #HIT10 #ptexp #HCLDRStanley Currier @stascurrier
487 Followers 2K Following Interests: yoga, media literacy, education, languages & vegan lifestyle. Living with #oligodendrogliomaVanessa Owen @vanessaowen25
4 Followers 7 FollowingJulib @JulianaGBarnard
4 Followers 6 Following I am a health services researcher who cares a lot about the wellbeing of people and their communities, as well as my amazing children, family and friends.Kathy Oliver @KathyOliverIBTA
913 Followers 558 Following Co-Director, International Brain Tumour Alliance (IBTA); advocate for brain tumour patients and caregiversShawn Carey @shawncarey8
443 Followers 654 Following Fearless advocate for GBM and brain tumors. #fightformoeDana M. Lewis | #Open.. @danamlewis
14K Followers 3K Following Created #OpenAPS (https://t.co/ef23rZjOLr), “PERT Pilot”. Moderated #hcsm. Wrote #APSBook (https://t.co/8NwKVKdZGU) + others. Researcher, developer, authorDr. Jenna Reno @JennaRenoPhD
368 Followers 2K Following @RTI_Intl Researcher. #HealthComm #SciComm #HealthEquity #STEMinist Outdoor enthusiast ⛰🏃🏻♀️ Ruthless, unapologetic coffee drinker ☕️ Opinions are my ownElizabeth Cooper @elizabeth_lee22
456 Followers 980 Following Postdoc in @Gilbertson_Lab at @CRUK_CI Cns immunity in childhood brain tumours #kiwi 🇳🇿Richard Phillips @Dr_RPhillips
566 Followers 391 Following Physician-Scientist at @UPenn. Brain Cancer Epigenetics. Tweets = mine.Khushboo Lohan @LohanKhushboo
58 Followers 66 Following Neuro Rehabilitation psychologist at BTSG AWARENESS FOUNDATIONMegan Mooney @MeganMooneyMSW
3K Followers 4K Following @DeathCafe US Lead & Social Media Manager, LMSW, Hospice SW,EOL &HPM Advocate.Andrea @BraveBosom
5K Followers 5K Following Security Researcher, BRCA1 Advocate, Founder of The Light Collective @BeLikeLight | https://t.co/j6EGKi1LlaCecil Halford @Mimosa48
815 Followers 2K Following Writer but not an author. Retired English teacher. World non-traveler.Chris Borstad @RogueChrisB
1K Followers 1K Following Mountain Man, Glaciologist,Snow Scientist ❄️🇨🇦❄️, Brain Cancer Patient 🤦♂️#btsm (diffuse astrocytoma; subtotal resection in 2020). Stroke survivorVaxed, mask-wearing g.. @bermudababe76
450 Followers 385 Following Wine. World traveler. Marathon runner. #CancerSucks #glioblastoma she/herChristine Choan, PhD .. @preopticarea
3K Followers 3K Following PERSONAL Account! Neuroscience PhD, Educator. W/Grd 2 Astrocytoma. My political views do not enter my classroom! Buddhist!🎂8/29. @[email protected] in MastodonHearing about #palliative care at @PHSAofBC #Patientexperience Symposium Presentation from @HawleyPippa @BCCancer
Stable!!! I don't think there's a more beautiful word than that for a brain cancer patient. #BTSM 🥲
So proud of the collective effort of all the stakeholders and community input that made this Agenda and RFP a reality. Please share with your networks to increase applications for brain tumor quality of life research.
NBTS is pleased to announce a request for proposals for #qualityoflife projects. This award will support innovative patient-centered QoL research designed to address critical problems or barriers to progress: BrainTumor.org/Funding @DanielleDLeach @BethanyKwan @TheLizArmy
@BTSMchat @hgainsboro @NBTStweets Thanks so much everyone, esp. the organizers! btsm
@BTSMchat @hgainsboro @NBTStweets Thanks, @hgainsboro!!! #BTSM
Much ❤️ to @hgainsboro who has mentored other advocates & families touched by brain tumors over the years. #btsm #advocacy
A special thank you to @hgainsboro for joining us tonight and lending her expertise to our conversation! We encourage you to check out the Grief Support Conversations that she leads with @NBTStweets. Learn more here: braintumor.org/support-servic…
@BTSMchat @NBTStweets It was an honor. Thank you all for inviting me into your lives. #BTSM
@2nd_Chance2Live @BTSMchat @theABTA @2nd_Chance2Live You made meaning from those changes. High five to you. #BTSM
Hate to hijack the @BTSMchat, but if all the incredible GBM patients + caregivers could find a few minutes to fill out this survey, I’d be so grateful! ourbrainbank.org/survey/ #btsm
Yes. During the day, there is often no room or space for grief. In a busy clinic, you may give terrible news to someone and then move right into another room. Over time, this takes a toll. #btsm
T3 for researchers and clinicians: Do you find it difficult to express feelings of grief in your profession? How do you develop your relationship with clients when working through your own grief? #btsm
T1: there are days when we need to be able to have space for our own grief. Interestingly enough, some of my patients who know me well can see in my face what kind of day I'm having... they are quick to ask me about myself first. ❤️ #btsm
T1 for researchers and clinicians: When you are working with patients and care partners, what do you wish people understood about your profession and your personal relationship with grief?