Diane Dunn @DoubleD2691
Wife, mother of 3, prolific baker, australian native bush lover, gardener, dog crazy, crime novel reader, CRPS sufferer and oligodendroglioma owner dx Nov 2016 Meredith, Victoria Joined July 2017-
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Last week my MRI scan showed that my tumour was now exhibiting high grade features. I have been “lucky” to have had 8 years of watch and wait. I have completed the SOC t’ments. I’m interested to learn from my BT friends what they were offered in this situation. #BTSM #oligo
Happy birthday to the @BrainCancerCtr! It's been such an incredible support to our brain cancer research. Looking forward to seeing what the next year brings!
Happy birthday to the @BrainCancerCtr! It's been such an incredible support to our brain cancer research. Looking forward to seeing what the next year brings!
The “But you look so well” comment is hard to respond to. It may not be intended to confer this but for me it feels like “are you sure you’ve got cancer?” Yes & it’s terminal - just not yet. Sorry I don’t fit your stereotype of a dying person.
The “But you look so well” comment is hard to respond to. It may not be intended to confer this but for me it feels like “are you sure you’ve got cancer?” Yes & it’s terminal - just not yet. Sorry I don’t fit your stereotype of a dying person.
We are pleased to announce that the ARISTOCRAT clinical trial is open and has recruited its first patient in Leeds. The study will investigate whether an oral spray containing #cannabinoids could be used to treat #glioblastoma, an aggressive brain tumour.
As I approach my next scan I resonate with this research article on scans and anxiety. Living with 3 monthly scans comes with learning to accept the feelings they provoke. Once again though I must reiterate LGG consumers are “lucky” to endure these for many years #btsm #LGG
Yesterday I had the pleasure of having a meeting with the Health Minister Mark Butler and Senator Bilyk representing @BrainTumourAA, together with our chair Craig Cardinal. Raising awareness of the needs brain tumour patients is important!!!
I know people largely mean well but I bristle every time someone reminds me how well I look!
I know people largely mean well but I bristle every time someone reminds me how well I look!
Extent of resectability is often overlooked as a factor in OS, as is age at Dx. Overall survival of those living with an inoperable LGG are often compared with survival rates of partially or fully resected & this is not accurate!!
Extent of resectability is often overlooked as a factor in OS, as is age at Dx. Overall survival of those living with an inoperable LGG are often compared with survival rates of partially or fully resected & this is not accurate!!
Tx recs very for this tumor based on location, associated clinical pres, & extent of resection. RT +/- chemo has been used for yrs. Survival varies & is measured in years. cancer.gov/rare-brain-spi… 7/
Thank you for this thorough thread on LGG. Very informative. I love the analogies later in the thread! Living with a low grade glioma is like living with a ticking time bomb. That fact alone has SIGNIFICANT impacts on your QOL. #btsm #LGG #oligo
Love this!
For #BrainTumour Awareness Month, we celebrate our incredible #faculty and #residents’ groundbreaking #research and strides in helping #EndBrainTumours. We also support and applaud the resilience of our #neurosurgeons’ patients and families of those affected. @BrainTumourFdn
On the 2nd day of Go gray in May I’d like to remind people that whilst some sufferers may “look good” underneath there may be invisible symptoms. For me that’s noise sensitivity, trouble multitasking, struggling with directions. #BTAM #BTSM
Today is the 1st May - the beginning of a month of awareness raising for brain tumours. Did you know there is no cure for brain cancer. Did you know treatments have not changed in decades. Help spread the word that we need more money for research. #BTAM
The government must invest in communities, not fossil fuels. Add your signature to demand an end to fracking subsidies in the May budget! getup.to/Noxo4BTlwlSyvj…
Today we hosted a lab conference with our incredible consumers and collaborators @DrMistyJenkins @stephenqwong and co! Thank you to Diane @DoubleD2691 for sharing her #braincancer story and to @SaskiaFreytag for supplying a chocolate per question!
via @AnimalsAus animalsaustralia.org/latest-news/du… Please don't scroll past this. Use your voice to tell the Vic Government YOU don't support their decision.
Another scan another day. Can’t actually remember how many I’ve had. Must be at least 30, probably more. That means- 30 cannulations for gadolinium, 30 MRI scans @ 40 mins. 30 times waiting for results. It never gets easy & I am always circumspect. #btsm #livingwhilstdying
Wendy Santana @2nd_Chance2Live
385 Followers 616 Following #Blog featuring the #aFaceOfStrength #braintumor /#cancer awareness campaign. Also, Western Regional Community Manager @theABTA. All views expressed are my own.Claire Snyman @clairehsnyman
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4K Followers 3K Following retired terminal brain getting very tiredbutytyping bergreencandidate local electionCancer Final Girl @CancerFinalGirl
4K Followers 2K Following My life is a real life #horror story. 3 time primary #cancer haver. The killer is inside the house & I'm still fighting. Currently battling #Astrocytoma.Thanks Cancer! @ThanksCancer
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11K Followers 3K Following A Neurosurgical Oncologist, scientist, and patient advocate. I cut out brain and spine tumors and try to cure them with the immune system. Tweets are my own.michele.. @michele_502
669 Followers 982 Following A gal who works in forensics. Loves dogs, skincare, and travel. Vino Snob. Diagnosed with brain cancer 10/14/19. #braincancerawareness #astrocytomaCraig Horbinski @CraigHorbinski
11K Followers 3K Following Director of #Neuropathology, Nervous System Tumor Bank, and Path Core at #Northwestern. My #NIH-funded laboratory studies #glioma and #meningioma.Global Coalition for .. @GCAResearch
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4 Followers 797 Followinghetlyzdmqtsxg7qw @up5ybdt1vvp57
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873 Followers 123 Following Division Neuro-Oncology Associtate Professor Neurology and Neurological SurgeryThanks Cancer! @ThanksCancer
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11K Followers 3K Following A Neurosurgical Oncologist, scientist, and patient advocate. I cut out brain and spine tumors and try to cure them with the immune system. Tweets are my own.michele.. @michele_502
669 Followers 982 Following A gal who works in forensics. Loves dogs, skincare, and travel. Vino Snob. Diagnosed with brain cancer 10/14/19. #braincancerawareness #astrocytomaLow Grade Glioma Regi.. @gliomaregistry
2K Followers 876 Following Study run by Dr. Elizabeth Claus (@YaleSPH/@BWHNeurosurgery) to learn about the effects of low grade glioma tumors and their associated treatments on daily lifeSt_Molly_AgentofChaos @Lifeiskitsch
4K Followers 1K Following “quirky, defiant, messy, odd, & absolutely charming”- me, according to my 6th grade teacher #BTSM #HeadfortheCure #EndWell #ABTA #Beans4Brains #HBTCStrongNational Brain Tumor .. @NBTStweets
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5K Followers 3K Following Largest #Phase0 clinical trials program in the world providing personalized treatment options for patients with #glioblastoma & other aggressive brain tumors.WeTrials @WeTrialshub
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72K Followers 1K Following Welcome to the "Tweets of Dogs" This is a place to share your animal love!JAMA Oncology @JAMAOnc
46K Followers 545 Following JAMA Oncology is a member of the JAMA Network, a consortium of peer-reviewed, general medical and specialty publications.JessicaGenetics @JessicaGenetics
24K Followers 222 Following Nutrition, Fertility, Mitochondria | Information on biochemistry, hair health & hair growth @fountainheadLTDKirk Tanner @NBTSCSO
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2K Followers 52 Following 🤍 Digital women’s sexual health clinic (formally Pique) 🗞 As seen in: Well+Good, Axios, Femtech Insider, and more 🩺 Led by CMO @ashleygwinterAnimal Justice Party .. @AJP_Victoria
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662K Followers 430 Following High Performance Coach To Entrepreneurs | Helping 1 million transform their lives by 2027. Tweets on health optimization. Sign up for a free strategy call 👇🏽Steve Rubin @othercword
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14K Followers 210 Following CoMedical Director @MelanomaAus. Surgical Pathologist RPAH. Conjoint Prof @Sydney_Uni. 2024 Australian of the Year. Editor @WHO Skin (4th ed).Wendy Hasson MD @WendyHassonMD
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34 Followers 147 FollowingSandra Jorgensen @SandraJorgense4
488 Followers 959 Following Animal rights advocate, equine podiatrist, researcher of causes + risk factors of lameness and catastrophic deaths of racehorses.Monash STM Neuroscien.. @STMneurosci
2K Followers 922 Following The Department of Neuroscience has 28 research groups with over 200 staff and graduate research students. Mentorship, Expertise, Translational researchChris Borstad @RogueChrisB
1K Followers 1K Following Mountain Man, Glaciologist,Snow Scientist ❄️🇨🇦❄️, Brain Cancer Patient 🤦♂️#btsm (diffuse astrocytoma; subtotal resection in 2020). Stroke survivor@susiesbookrevs Get them on a Kindle? So she can dip in & choose anywhere, minimum hassle, and you & her can add to the collection over the years, in an easy & portable way!
I wrote this in 2019, drawing on the lessons I've learned from having a disabled son + fighting for inclusion his whole life. These principles of inclusion can be applied to patient engagement. So true patient engagement is about belonging. /FIN suerobins.wordpress.com/2019/07/06/how…
Get harassed -it's only banter Wary of strange men -uptight Wary of familiar men -paranoid Friendly with guys -a slut Trusting of guys -stupid Report -a liar Don't report -part of the problem Dress up-asking for it Dress down-ugly and lazy When isnt it our fault?
This essay is dedicated to all the patient + caregiver advocates out there. I see you. And this is HARD WORK. Keep going. But also take rests. We must shoulder this burden of advocacy together. /FIN suerobins.com/post/the-dark-…
Strong parents raise strong kids. 8 traits of strong parents (a thread):
Parents have to choose their battles. 8 fights worth picking with your kids:
We did it! & we’re still speaking! 3:50:18 - a reasonably respectable time for a couple of oldies. Thank you so much for all the support & the generous donations to @BrainTumourOrg Massive thanks to @GracieNuttall41 for being there to cheer us on All for you Laura darling ❤️
👇👇👇🤣🤣🤣
Jeeze, Donnie, you’re lookin’ awful these days! I’ve seen better looking cadavers! Sleeping in court! I mean I get it, who hasn’t done it, but not at your own trial!
@wendy_harmer Agreed. We try. The MSM is MIA.
OK I just finished. I'm just stunned. That was an amazing judgement. Just absolutely forensic. I hope it brings Higgins some comfort, though she's been put through more than most people would ever be able to bear. We always believed you. Always.
This is ECOCIDE Ban these factory ships now from China Norway and elsewhere that are taking the krill food from Antarctica marine life Krill also sequester a huge amount of carbon slowing global warming
The effects are becoming painfully clear: #Humpback whale pregnancies dropping, chinstrap penguin populations plummeting by 53% in four decades, and fur seals losing nearly 10% of their body mass due to krill scarcity. It's a stark wake-up call!. #StopThePlunder. 🚫🦐
@ShereleMoody If you don't know that men who use us as prostitution are misogynist, you are ignoring the epicentre of misogyny!
Lot’s of speculation about the incident in Sydney. Best we wait for the full police report. One fact is clear. It was a man. As it is every 15 days in this country.
I remember Shorten tried and we ended up with Scott Morrison.. Not that simple Fuknuckle. #auspol #HousingCrisis
Almost 4 in 10 people taking out a mortgage to buy a house in Aus are now investors, having jumped 20%! in the last year. Why? Because Labor refuses to scrap the massive tax handouts for property investors that are denying millions of renters the chance to buy a home.
@ThanksCancer Okay, but the bus isn't waiting at the end of their street.
The Libs have a ‘woman’ problem. The Nats have a ‘drinking’ problem. Australia has a Libs and Nats problem.
Good to see the Minister for Woodside wanting to protect a painting of a sea lion… Actual marine creatures being decimated by Woodside’s seismic blasting… not so much
The worst thing about cancer is… I’ll start. This week it’s the fear of the unknown. It’s the inability to plan. Or at least the reluctance to plan. Next week it’ll be something else. What’s the answer for you today?