Suzanne D. Vernon @CPR4CFS
Scientific director for the CFIDS Association using citizen powered research to solve CFS solvecfs.org Joined September 2011-
Tweets429
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Followers202
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Following95
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Likes24
IOM and the Clinical Case Definition Committee – A Case for Hope bit.ly/1cdx0Yu
What would you do if you were well tomorrow? Here's what MECFS patients said: solvecfs.org/giving-tuesday/
For ME/CFS sufferers, “coming out” to family and friends about their illness can be a tremendous challenge,... fb.me/2z0qZJEHz
NIH mouse study finds gut microorganisms may determine cancer treatment outcome nih.gov/news/health/no…
Because of your positive response, there was an increase in study enrollment - only a few more study participants... fb.me/24PONagpz
Paywalls hide knowledge and stifle innovation, help map their impact and get the research you need. #oabuttonlaunch thndr.it/1atMFSK
It's hard to grasp the experience of being a patient kevinmd.com/blog/2013/07/h… via @kevinmd
Just because medical tests do not reveal patient has other illness, does not mean patients are not ill. #MECFS Don't ignore us. We are ill.
After much controversy and a long silence, the CFSAC has finally released answers to many questions about the IOM... fb.me/2L6DfTrih
Designated Federal Official for CFSAC answers questions about the IOM CFS case definition committee solvecfs.org/?p=3991
Meet our new President & CEO! youtu.be/-R8qFXgEKNs
The next CFSAC meeting will be on December 10-11 through a webinar. Learn more about how to participate here. ow.ly/qQCZt #cfs
Time=Lives. NIMH Director Dr. Insel blogs about delivering new cures faster through innovative research models: 1.usa.gov/17udMwg
Watch these 4 girls destroy the female stereotype like monsters, by the awesome @DCyouthSlam (via @Upworthy) upworthy.com/watch-these-4-…
If we have a good heart and concern for others, our actions will be positive.
Objective Evidence - Half of Fibromyalgia Patients May Have Small-Fiber Polyneuropathy painmedicinenews.com/ViewArticle.as…
Jen Brea brings much needed attention and awareness to ME @PlzSolveCFS abcnews.go.com/Health/nj-woma…
Cort rocks, reporting all sides cortjohnson.org/blog/2013/10/2…
Diagnostic Criteria for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome shar.es/IsYKP via @theIOM

Patient-Led Research ... @patientled
26K Followers 661 Following Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions!
Simon Del Favero @simondelfavero
118 Followers 241 Following
PwME 4 bioMEdical res... @ValeBodi
5K Followers 3K Following Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/MEdical apolide/gnarled Pacer
ahmed rouizi @AhmedRouizi
409 Followers 6K Following
Jason Statham @JasonStath77299
47 Followers 1K Following näyttelijä ja avioliittotaiteilija🎬. toimintatrillerielokuvissa 📽️
Anja L Sundberg @AnjaLSundberg
2K Followers 2K Following Krisrådgivare, medietränare & moderator. Vice ordf i @covidforeningen. Pressekreterare i förra regeringen samt mångårig nyhetsjournalist på tv & radio.
Sleynare @SleynaregKY
7 Followers 161 Following
Julian Van @Julianvan579
215 Followers 3K Following
Howard brown @Howardbrow83761
49 Followers 304 Following
Dizzyme @hello_dizzyme
281 Followers 4K Following
Sarah @SarahLizzyLou
3K Followers 2K Following She/her. Physio student with #longcovid #MEcfs since Oct 2021. #CognitiveDysfunction 🧠♿️ #FBLC
Neenyah Ostrom @neenyahostrom
490 Followers 1K Following Editor, ghostwriter, author--America's Biggest Cover-Up: 50 More Things Everyone Should Know About the CFS Epidemic & Its Link to AIDS, 2nd Edition on Amazon
Mandy Schlachter @mandalynn_s
46 Followers 175 Following Wife. Mother. Holistic Health Practitioner. Advocate for chronic illness and patient-centered care—because being heard shouldn’t be rare.
GNY Range Report @GnyHighlights
1K Followers 3K Following Harnessing AI & blockchain to deliver powerful, accessible predictive tools for the trading community.
Joe Connolly @joec_chicago
676 Followers 7K Following
Sylvia @SylviaIversen
3 Followers 237 Following
Claudine Prud’homme... @CPrudhommeAQEM
671 Followers 520 Following Mom of a 20 yrs old son with severe ME/POTS after Covid/ Membre du comité scientifique de @AQEM_SFC| vétérinaire avant d’être atteinte d’EM/SFC|
Fred @Fin84Fred
107 Followers 309 Following Data scientist. Positive person who hates toxic positivity.
Carbonara - #ME/CFS #... @BettinafightsME
2K Followers 3K Following after 20ys still suffering from #severeMECFS #ClimateChange #ClimateCrisis #StopAnimalcruelty #EndSpeciism #GoVegan #FuckRacism #FuckAfD
MEcfs together @MEcfsTogether
801 Followers 1K Following I retweet and initiate small community projects and bundle our voices to raise awareness 🇬🇧🇩🇪 / send valuable tweets via DM / #MEcfs #pwME #millionsmissing
Lori Madeira @MECFSWarrior
261 Followers 58 Following #MECFS Advocate who posts regularly on IG & FB with “How To Tips” to cope with chronic illness, Weekly News, ME/CFS Warriors and more. #PwME for 28 years
Carole Bruce @CaroleBruce17
7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
Jeri @jerikurre
74 Followers 875 Following
Karen Denmark @kmdenmark
2K Followers 3K Following Maternity RN ‘til #mecfs arrived. Admin at #MEpedia. Tried #Ampligen. #Abilify is helping. USAF Nurse Corp vet. Mostly tweet ME CFS news. Joined Jan 2015
FibroFarmhouse @FibroFarmhouse
2K Followers 5K Following Prescribing Creativity through Neuroaesthetics for Fibromyalgia | Where Art Becomes Medicine.
Dan Wyke 🦠➡️�... @Dan_Wyke
13K Followers 5K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
LightUpTheLandmarks @LightuptheLand1
327 Followers 3K Following Established in 2016 as a way for patients to visually raise awareness by inviting local buildings and landmarks to show support by lighting up at night
Joshua Lifted OLUSOLA @olusola4joshua
647 Followers 2K Following Educator ||Life Coach ||Facility Manager ||Mechanical Operations ||Material Handling Equipment Operations ||Maintenance & Facility Manager ||Father ||Preacher
Crystal @GemzME
1K Followers 1K Following
Emma @jemmamissing
17 Followers 110 Following
Je Banach @JeBanach
1K Followers 4K Following OG Yale Writers Workshop Faculty|@ParisReview @Granta @TIME @TheAtlantic @voguemagazine|100+ guides to world lit for PRH, S&S, HMH, HC, GA📚"Doesn't look sick"
Sharon Zahl @normanknights
475 Followers 788 Following Smile, it makes people wonder what you've been up to!
CFS4ME Iain @CFS4ME
443 Followers 1K Following 19 years with severe CFS/Me still counting, Slipped disc and a trapped nerve and over weight
Science for ME online... @s4me_info
6K Followers 265 Following We are an independent, patient-led, international forum for people with ME/CFS and the carers, clinicians, scientists and advocates who support us.
AQEM - Association qu... @AQEM_SFC
499 Followers 1K Following L’AQEM est un organisme à but non lucratif dédié à la reconnaissance de l'#EncéphalomyéliteMyalgique depuis plus de 30 ans | https://t.co/j3y8A02j4m | https://t.co/7tLKDthpDf
It's ME Francie @FrancieSaidSo
1K Followers 1K Following I've had M.E. for 26 years. Tweeting for ME research. Tweeting whimsy and science, too. #pwME Lists = Block.
17 Cytokines @ProfoundFatigue
888 Followers 1K Following Interested in peer-reviewed medical research on #MECFS. Follow the data. Also, I have more questions than answers. I want justice for Gulf War Syndrome victims.
Your Body Loves You @YBLY2016
83 Followers 404 Following Living, Loving and Sharing #Nature's Amazingness. Let #Vitality be restored! #health #nutrition #EFT #Tapping
Jesus Follower @LifeEternal4U
903 Followers 884 Following CA Christian Conservative from Berlin🇩🇪,communism & socialism survivor. Jesus saved me in Hollywood & from Hollywood, MECFS/Fibromyalgia/Sjögren's warrior.😷
Karina Wagenpfeil @ChronicKarina
499 Followers 292 Following Scientist turned ME/CFS, MCAS, POTS, and EDS patient. Interested in patient advocacy. Strong supporter of biomedical research. Blog when my health allows.
Kurt Rowley @kurtrowley
6 Followers 87 Following
Lauren Elizabeth @LKlutke
4 Followers 101 Following
Emma, thechronicsurvi... @chronicsurv1vor
56K Followers 43K Following Aspiring Author ✍🏼📖 |Singer/Actress, Trainee Therapist on hold due to #MECFS ♿️ for 6 years | #POTS / #IST✨Spiritual Awakening. Lessons from the void. 💖
Rochelle @rjoslyn
967 Followers 3K Following Immunologist, Recovered & relapsed #MECFS patient, Wife of @mattklein123, Mom, Seattleite, Feliphile #pwME #MyalgicE #MyalgicEncephalomyelitis
Action CIND @ActionCIND
517 Followers 2K Following Advancing recognition, empathy, treatment and support services for Chronic Immunological and Neurological Diseases (CIND) including ME, FM, ES/MCS, CFS
Tara Aims @tarajeannebean
54 Followers 287 Following
Zachary Apte @zacharyapte
15K Followers 7 Following Scientist finding creative solutions to the world's grand challenges. PhD @UCSF biophysics.
Medivizor @medivizor
77K Followers 67K Following Helping people coping with serious or chronic medical conditions make well informed decisions about their health by providing personalized info
Kevin Pho, M.D. @kevinmd
151K Followers 19K Following Physician | https://t.co/ymdHK4O5hQ | The Podcast by KevinMD
myPatientMatch @myPatientMatch
3K Followers 2K Following Find your patient match and share health experiences together. https://t.co/rJb08kODM8 (previously @AnyTreatment)
Angela Paints @Angelapaints
2K Followers 2K Following Artist, Observer, Imagines clean water, healthy food, healthy minds, peace, love,kindness, moral leaders, and companies who put people before profit. Dharma.
@invest_in_me (Invest... @Invest_in_ME
7K Followers 717 Following Invest in ME Research is an independent UK charity facilitating & funding a strategy of high-quality biomedical research into Myalgic Encephalomyelitis (ME)
National Institute of... @NIMHgov
1.1M Followers 368 Following The lead federal agency for research on mental disorders. Engagement ≠ endorsement. Privacy Policy: https://t.co/hfRcdhgmwY
Upworthy @Upworthy
413K Followers 2K Following Delivering you the best of humanity every day. [email protected]
NASEM Health @NASEM_Health
67K Followers 157 Following We help leaders in government and the private sector make evidence-based decisions on health policy and practice.
Dr. Esther Sternberg @DrESternberg
731 Followers 45 Following Research Director, Andrew Weil Center for Integrative Medicine Director, UA Institute on Place, Wellbeing & Performance
cAMP Öther @CampOther
1K Followers 2K Following Discussing tickborne infections, immunology, science, medical controversy, media portrayal of chronic illness, and the patient experience since 2010.
Unrest @unrestfilm
10K Followers 1K Following #UnrestFilm Sundance award-winning #mecfs film, made for anyone who has ever lived with or loved someone fighting chronic illness. @jenbrea
WordPress.com @wordpressdotcom
1.5M Followers 10K Following Basically, the best managed @WordPress hosting on the planet. Get support at: https://t.co/wL4RKkfrDu An @Automattic product.
TED News @TEDNews
808K Followers 15K Following News from #TED and its global community of passionate thinkers. Follow @TEDTalks for talks and ideas. Learn more about TED Membership: https://t.co/m0UtDvMp6I
Jennifer Brea🦒 @jenbrea
37K Followers 2K Following Filmmaker @4mmfilm @unrestfilm @longroadhomedoc. @MEActNet co-founder. Dropped out Harvard Poli Sci/Stats Ph.D after virus. #MECFS, #longCOVID
Inspire @InspireIsHealth
17K Followers 12K Following To patients, Inspire is the world’s largest health community. To life sciences companies, we are the leading patient engagement & real-world evidence platform.
Knight Foundation @knightfdn
141K Followers 3K Following Knight Foundation supports informed and engaged communities, which are essential for a more effective democracy. We invest in journalism, the arts and cities.
Marc @MarcLiberty16
4K Followers 4K Following America is freedom–freedom of speech, religion, enterprise... And freedom is special and rare. It's fragile; it needs protection. --President Ronald Reagan
Cort Johnson @CortJohnson
11K Followers 1K Following Founder of Health Rising /Phoenix Rising - Chronic Fatigue Syndrome (ME/CFS)/Fibromyalgia/Long COVID journalist/blogger - ME/CFS/FM patient for 40 plus years
irene/upa @upasbook
1K Followers 923 Following Fighting BAD MECFS,fibro,insomnia,migraines;now thyroid,POTS. Mom,wife,bookaholic,beauty junkie.Luved to garden,cook.Plz join blog 4 empowering info&laughter.
Its ME Matina @justask
2K Followers 2K Following #MyalgicE Patient Advocacy 4 better treatment & cure. UR life/dreams are gone before ur eyes! Federal Advocacy Research Education & Funding #Dysautonomia
HealtheHuman @HealtheHuman
6K Followers 8K Following HealtheHuman has shutdown. Thank you everyone for your support and for becoming a member. We wish you great health and happiness.
TEDMED @TEDMED
108K Followers 4K Following TEDMED bridges the gap between science and the public by sharing stories that inform, inspire, and provoke action inside and outside of medicine.
The Conversation - Au... @ConversationEDU
182K Followers 5K Following Independent news from the sharpest academic minds. Read: https://t.co/pXIyo0baiZ Subscribe for free: https://t.co/irKmzN4lcL Donate: https://t.co/kQf5W9e2CX
Rebecca Skloot (she/h... @RebeccaSkloot
39K Followers 2K Following Author NYT Bestseller IMMORTAL LIFE OF #HENRIETTALACKS, an Oprah film. New book forthcoming on #AnimalResearch #AnimalRights. Formerly Twitter Blue Checked.
Linea @lindaavey
13K Followers 5K Following GP Humain Ventures/Co-founder 23andMe/ Board of Fellows Stanford Med/Director Human Immunome Project/Advisor Autism Impact Fund, Giant, Colossal Bio
WSJ Health @WSJhealth
652K Followers 53 Following Health, healthcare, biotech, new drugs & medicine coverage from @WSJ. Subscribe to our newsletter: https://t.co/cQnYWjubx7
CDC Genomics & Precis... @CDC_Genomics
13K Followers 272 Following Follow @CDC_NCBDDD for information on genomics and precision public health.
Global Genes @GlobalGenes
29K Followers 6K Following Empowering the Next Generation Rare Disease Advocate. Merged with RARE-X Dec. 2022. #CareAboutRare
Marion Koopmans, publ... @MarionKoopmans
80K Followers 3K Following https://t.co/x3zIbMPDg5 Public Health virology, Viroscience Dpt, WHO collaborating centre EID
Sanofi US @SanofiUS
80K Followers 6K Following An R&D driven, AI-powered biopharma company committed to improving lives. For U.S. residents only. Interactions must comply with terms: https://t.co/D3HnfO1Ymt
Juhan Sonin @jsonin
2K Followers 1K Following Creative Sandpaper, MIT 2.009, pretending to design the future of healthcare at https://t.co/khC1yxGXrj, lives #opensource, [email protected]
Robert West, PhD ✝�... @westr
19K Followers 9K Following @SUNY Emeritus via @Harvard @ucdavis. #PersonalizedMedicine AI and 🧬 of Disease. #Arachnoiditis: #neuropathicpain #paraplegia. Pic: St. Marks, FL
Genomera @genomera
2K Followers 1K Following Participant-driven health studies & digital clinical trials. Breaking open bottlenecks in health research. Democratizing research, accelerating therapies. n=we.
Wisdom of the Crowds @CrowdWiseMD
48 Followers 45 Following A portal for medical students and healthcare professionals on crowdsourcing and its impact on the client-physician relationship.
Health Affairs @Health_Affairs
165K Followers 4K Following At the intersection of health, health care, and policy. Follows/Tweets/RTs ≠ endorsements.
Paul Winter @kaazoom
1K Followers 499 Following I'm Married. Suffer from the neuro-immune disease #MECFS . Enjoy #writing #songwriting #family #politics #internet I'm a #Christian but won't preach at you!
PatientsLikeMe @patientslikeme
27K Followers 8K Following The world’s largest personalized health network that helps people find new options for treatments, connect with others & take action to improve their outcomes.
Jørgen Jelstad @DeBortgjemte
712 Followers 426 Following Journalist og forfatter av boken De Bortgjemte.
Maansi Shah @breezybiker122
181 Followers 923 Following Streaming for you sensitive & scientific news; and sharing dialogues around genetics research & policy, maternal & child health, and cultural adaptation.
Rich Carson @RichCarsonsDeal
7K Followers 4K Following Founder of ProHealth, an optimist and leading voice for ME/FM patients everywhere, and a proponent for longevity: Live long enough to heal and fully recover.
Lisa Lorden Myers @LisaLordenMyers
35 Followers 1 Following Writer with Chronic Fatigue Syndrome & Fibromyalgia, striving to live a full and meaningful life despite chronic illness, and to help others do the same.
Christy Collins @_chrisco
1K Followers 1K Following Founder @mcmdotnet, M-CM is caused by PIK3CA mutations. Freelance web developer. Stubborn and hopeful. she/her
The Sheridan Group @SheridanGroupDC
501 Followers 691 Following Helping the good do better by creating social change through public policy. Find us on LinkedIn and Instagram @sheridangroupdc
Mark Wanner @markgenome
1K Followers 447 Following Science writer, genomics research follower, and endurance athlete pursuing the various paths to better health on the coast of Maine. Views expressed are my own.
Complete Genomics @CompleteGenomic
5K Followers 306 Following Complete Genomics is an established world leader in genome sequencing technologies with its proprietary sequencing instrumentation, chemistry and software.