Suzanne D. Vernon @CPR4CFS
Scientific director for the CFIDS Association using citizen powered research to solve CFS solvecfs.org Joined September 2011-
Tweets429
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Followers204
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Following96
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Likes24
IOM and the Clinical Case Definition Committee – A Case for Hope bit.ly/1cdx0Yu
What would you do if you were well tomorrow? Here's what MECFS patients said: solvecfs.org/giving-tuesday/
For ME/CFS sufferers, “coming out” to family and friends about their illness can be a tremendous challenge,... fb.me/2z0qZJEHz
NIH mouse study finds gut microorganisms may determine cancer treatment outcome nih.gov/news/health/no…
Because of your positive response, there was an increase in study enrollment - only a few more study participants... fb.me/24PONagpz
Paywalls hide knowledge and stifle innovation, help map their impact and get the research you need. #oabuttonlaunch thndr.it/1atMFSK
It's hard to grasp the experience of being a patient kevinmd.com/blog/2013/07/h… via @kevinmd
Just because medical tests do not reveal patient has other illness, does not mean patients are not ill. #MECFS Don't ignore us. We are ill.
After much controversy and a long silence, the CFSAC has finally released answers to many questions about the IOM... fb.me/2L6DfTrih
Designated Federal Official for CFSAC answers questions about the IOM CFS case definition committee solvecfs.org/?p=3991
Meet our new President & CEO! youtu.be/-R8qFXgEKNs
The next CFSAC meeting will be on December 10-11 through a webinar. Learn more about how to participate here. ow.ly/qQCZt #cfs
Time=Lives. NIMH Director Dr. Insel blogs about delivering new cures faster through innovative research models: 1.usa.gov/17udMwg
Watch these 4 girls destroy the female stereotype like monsters, by the awesome @DCyouthSlam (via @Upworthy) upworthy.com/watch-these-4-…
If we have a good heart and concern for others, our actions will be positive.
Objective Evidence - Half of Fibromyalgia Patients May Have Small-Fiber Polyneuropathy painmedicinenews.com/ViewArticle.as…
Jen Brea brings much needed attention and awareness to ME @PlzSolveCFS abcnews.go.com/Health/nj-woma…
Cort rocks, reporting all sides cortjohnson.org/blog/2013/10/2…
Diagnostic Criteria for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome shar.es/IsYKP via @theIOM

Patient-Led Research ... @patientled
26K Followers 661 Following Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions!
Simon Del Favero @simondelfavero
119 Followers 242 Following
PwME 4 bioMEdical res... @ValeBodi
4K Followers 3K Following Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/MEdical apolide/gnarled Pacer
ahmed rouizi @AhmedRouizi
423 Followers 6K Following
Jason Statham @JasonStath77299
46 Followers 1K Following näyttelijä ja avioliittotaiteilija🎬. toimintatrillerielokuvissa 📽️
Anja L Sundberg @AnjaLSundberg
2K Followers 2K Following Krisrådgivare, medietränare & moderator. Vice ordf i @covidforeningen. Pressekreterare i förra regeringen samt mångårig nyhetsjournalist på tv & radio.
Sleynare @SleynaregKY
8 Followers 161 Following
Julian @cody_carlson579
158 Followers 2K Following
Howard brown @Howardbrow83761
49 Followers 305 Following
Dizzyme @hello_dizzyme
261 Followers 4K Following
Sarah @SarahLizzyLou
3K Followers 2K Following She/her. Physio student with #longcovid #MEcfs since Oct 2021. #CognitiveDysfunction 🧠♿️ #FBLC
Neenyah Ostrom @neenyahostrom
491 Followers 1K Following Editor, ghostwriter, author--America's Biggest Cover-Up: 50 More Things Everyone Should Know About the CFS Epidemic & Its Link to AIDS, 2nd Edition on Amazon
Mandy Schlachter @mandalynn_s
46 Followers 175 Following Wife. Mother. Holistic Health Practitioner. Advocate for chronic illness and patient-centered care—because being heard shouldn’t be rare.
GNY Range Report @GnyHighlights
1K Followers 3K Following Harnessing AI & blockchain to deliver powerful, accessible predictive tools for the trading community.
Joe Connolly @joec_chicago
671 Followers 7K Following
Sylvia @SylviaIversen
3 Followers 237 Following
Claudine Prud’homme... @CPrudhommeAQEM
672 Followers 521 Following Mom of a 20 yrs old son with severe ME/POTS after Covid/ Membre du comité scientifique de @AQEM_SFC| vétérinaire avant d’être atteinte d’EM/SFC|
Fred @Fin84Fred
103 Followers 306 Following Data scientist. Positive person who hates toxic positivity.
Carbonara - #ME/CFS #... @BettinafightsME
2K Followers 3K Following after 20ys still suffering from #severeMECFS #ClimateChange #ClimateCrisis #StopAnimalcruelty #EndSpeciism #GoVegan #FuckRacism #FuckAfD
MEcfs together @MEcfsTogether
800 Followers 1K Following I retweet and initiate small community projects and bundle our voices to raise awareness 🇬🇧🇩🇪 / send valuable tweets via DM / #MEcfs #pwME #millionsmissing
Lori Madeira @MECFSWarrior
261 Followers 59 Following #MECFS Advocate who posts regularly on IG & FB with “How To Tips” to cope with chronic illness, Weekly News, ME/CFS Warriors and more. #PwME for 28 years
Carole Bruce @CaroleBruce17
7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
Jeri @jerikurre
73 Followers 866 Following
Karen Denmark @kmdenmark
2K Followers 3K Following Maternity RN ‘til #mecfs arrived. Admin at #MEpedia. Tried #Ampligen. #Abilify is helping. USAF Nurse Corp vet. Mostly tweet ME CFS news. Joined Jan 2015
FibroFarmhouse @FibroFarmhouse
2K Followers 5K Following Prescribing Creativity through Neuroaesthetics for Fibromyalgia | Where Art Becomes Medicine.
Dan Wyke 🦠➡️�... @Dan_Wyke
13K Followers 5K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
LightUpTheLandmarks @LightuptheLand1
327 Followers 3K Following Established in 2016 as a way for patients to visually raise awareness by inviting local buildings and landmarks to show support by lighting up at night
Joshua Lifted OLUSOLA @olusola4joshua
650 Followers 2K Following Educator ||Life Coach ||Facility Manager ||Mechanical Operations ||Material Handling Equipment Operations ||Maintenance & Facility Manager ||Father ||Preacher
Crystal @GemzME
1K Followers 1K Following
Emma @jemmamissing
17 Followers 110 Following
Je Banach @JeBanach
1K Followers 4K Following OG Yale Writers Workshop Faculty|@ParisReview @Granta @TIME @TheAtlantic @voguemagazine|100+ guides to world lit for PRH, S&S, HMH, HC, GA📚"Doesn't look sick"
Sharon Zahl @normanknights
476 Followers 790 Following Smile, it makes people wonder what you've been up to!
CFS4ME Iain @CFS4ME
444 Followers 1K Following 19 years with severe CFS/Me still counting, Slipped disc and a trapped nerve and over weight
Science for ME online... @s4me_info
6K Followers 266 Following We are an independent, patient-led, international forum for people with ME/CFS and the carers, clinicians, scientists and advocates who support us.
AQEM - Association qu... @AQEM_SFC
497 Followers 1K Following L’AQEM est un organisme à but non lucratif dédié à la reconnaissance de l'#EncéphalomyéliteMyalgique depuis plus de 30 ans | https://t.co/j3y8A02j4m | https://t.co/7tLKDthpDf
It's ME Francie @FrancieSaidSo
1K Followers 1K Following I've had M.E. for 26 years. Tweeting for ME research. Tweeting whimsy and science, too. #pwME Lists = Block.
17 Cytokines @ProfoundFatigue
889 Followers 1K Following Interested in peer-reviewed medical research on #MECFS. Follow the data. Also, I have more questions than answers. I want justice for Gulf War Syndrome victims.
Your Body Loves You @YBLY2016
83 Followers 404 Following Living, Loving and Sharing #Nature's Amazingness. Let #Vitality be restored! #health #nutrition #EFT #Tapping
Jesus Follower @LifeEternal4U
906 Followers 885 Following CA Christian Conservative from Berlin🇩🇪,communism & socialism survivor. Jesus saved me in Hollywood & from Hollywood, MECFS/Fibromyalgia/Sjögren's warrior.😷
Karina Wagenpfeil @ChronicKarina
501 Followers 294 Following Scientist turned ME/CFS, MCAS, POTS, and EDS patient. Interested in patient advocacy. Strong supporter of biomedical research. Blog when my health allows.
Kurt Rowley @kurtrowley
6 Followers 87 Following
Lauren Elizabeth @LKlutke
4 Followers 101 Following
Emma, thechronicsurvi... @chronicsurv1vor
56K Followers 43K Following Aspiring Author ✍🏼📖 |Singer/Actress, Trainee Therapist on hold due to #MECFS ♿️ for 6 years | #POTS / #IST✨Spiritual Awakening. Lessons from the void. 💖
Rochelle @rjoslyn
970 Followers 3K Following Immunologist, Recovered & relapsed #MECFS patient, Wife of @mattklein123, Mom, Seattleite, Feliphile #pwME #MyalgicE #MyalgicEncephalomyelitis
Action CIND @ActionCIND
520 Followers 2K Following Advancing recognition, empathy, treatment and support services for Chronic Immunological and Neurological Diseases (CIND) including ME, FM, ES/MCS, CFS
Tara Aims @tarajeannebean
54 Followers 287 Following
Zachary Apte @zacharyapte
15K Followers 7 Following Scientist finding creative solutions to the world's grand challenges. PhD @UCSF biophysics.
Medivizor @medivizor
77K Followers 67K Following Helping people coping with serious or chronic medical conditions make well informed decisions about their health by providing personalized info
Leonia nyxz @r_prior
5K Followers 831 Following hii I'm Lena I'm looking for a 🌶️ content partner in your city. Message me on my main @lena_lifts12
Kevin Pho, M.D. @kevinmd
151K Followers 19K Following Physician | https://t.co/ymdHK4O5hQ | The Podcast by KevinMD
myPatientMatch @myPatientMatch
3K Followers 2K Following Find your patient match and share health experiences together. https://t.co/rJb08kODM8 (previously @AnyTreatment)
Angela Paints @Angelapaints
2K Followers 2K Following Artist, Observer, Imagines clean water, healthy food, healthy minds, peace, love,kindness, moral leaders, and companies who put people before profit. Dharma.
@invest_in_me (Invest... @Invest_in_ME
7K Followers 717 Following Invest in ME Research is an independent UK charity facilitating & funding a strategy of high-quality biomedical research into Myalgic Encephalomyelitis (ME)
National Institute of... @NIMHgov
1.1M Followers 368 Following The lead federal agency for research on mental disorders. Engagement ≠ endorsement. Privacy Policy: https://t.co/hfRcdhgmwY
Upworthy @Upworthy
414K Followers 2K Following Delivering you the best of humanity every day. [email protected]
NASEM Health @NASEM_Health
67K Followers 157 Following We help leaders in government and the private sector make evidence-based decisions on health policy and practice.
Dr. Esther Sternberg @DrESternberg
731 Followers 45 Following Research Director, Andrew Weil Center for Integrative Medicine Director, UA Institute on Place, Wellbeing & Performance
cAMP Öther @CampOther
1K Followers 2K Following Discussing tickborne infections, immunology, science, medical controversy, media portrayal of chronic illness, and the patient experience since 2010.
Unrest @unrestfilm
10K Followers 1K Following #UnrestFilm Sundance award-winning #mecfs film, made for anyone who has ever lived with or loved someone fighting chronic illness. @jenbrea
WordPress.com @wordpressdotcom
1.5M Followers 10K Following Basically, the best managed @WordPress hosting on the planet. Get support at: https://t.co/wL4RKkfrDu An @Automattic product.
TED News @TEDNews
810K Followers 15K Following News from #TED and its global community of passionate thinkers. Follow @TEDTalks for talks and ideas. Learn more about TED Membership: https://t.co/m0UtDvMp6I
Jennifer Brea🦒 @jenbrea
37K Followers 2K Following Filmmaker @4mmfilm @unrestfilm @longroadhomedoc. @MEActNet co-founder. Dropped out Harvard Poli Sci/Stats Ph.D after virus. #MECFS, #longCOVID
Inspire @InspireIsHealth
17K Followers 12K Following To patients, Inspire is the world’s largest health community. To life sciences companies, we are the leading patient engagement & real-world evidence platform.
Knight Foundation @knightfdn
141K Followers 3K Following Knight Foundation supports informed and engaged communities, which are essential for a more effective democracy. We invest in journalism, the arts and cities.
Marc @MarcLiberty16
4K Followers 4K Following America is freedom–freedom of speech, religion, enterprise... And freedom is special and rare. It's fragile; it needs protection. --President Ronald Reagan
Cort Johnson @CortJohnson
11K Followers 1K Following Founder of Health Rising /Phoenix Rising - Chronic Fatigue Syndrome (ME/CFS)/Fibromyalgia/Long COVID journalist/blogger - ME/CFS/FM patient for 40 plus years
irene/upa @upasbook
1K Followers 925 Following Fighting BAD MECFS,fibro,insomnia,migraines;now thyroid,POTS. Mom,wife,bookaholic,beauty junkie.Luved to garden,cook.Plz join blog 4 empowering info&laughter.
Its ME Matina @justask
2K Followers 2K Following #MyalgicE Patient Advocacy 4 better treatment & cure. UR life/dreams are gone before ur eyes! Federal Advocacy Research Education & Funding #Dysautonomia
HealtheHuman @HealtheHuman
6K Followers 8K Following HealtheHuman has shutdown. Thank you everyone for your support and for becoming a member. We wish you great health and happiness.
TEDMED @TEDMED
108K Followers 4K Following TEDMED bridges the gap between science and the public by sharing stories that inform, inspire, and provoke action inside and outside of medicine.
The Conversation - Au... @ConversationEDU
183K Followers 5K Following Independent news from the sharpest academic minds. Read: https://t.co/pXIyo0baiZ Subscribe for free: https://t.co/irKmzN4lcL Donate: https://t.co/kQf5W9e2CX
Rebecca Skloot (she/h... @RebeccaSkloot
39K Followers 2K Following Author NYT Bestseller IMMORTAL LIFE OF #HENRIETTALACKS, an Oprah film. New book forthcoming on #AnimalResearch #AnimalRights. Formerly Twitter Blue Checked.
Linea @lindaavey
13K Followers 5K Following GP Humain Ventures/Co-founder 23andMe/ Board of Fellows Stanford Med/Director Human Immunome Project/Advisor Autism Impact Fund, Giant, Colossal Bio
WSJ Health @WSJhealth
654K Followers 53 Following Health, healthcare, biotech, new drugs & medicine coverage from @WSJ. Subscribe to our newsletter: https://t.co/cQnYWjubx7
CDC Genomics & Precis... @CDC_Genomics
13K Followers 273 Following Follow @CDC_NCBDDD for information on genomics and precision public health.
Global Genes @GlobalGenes
29K Followers 6K Following Empowering the Next Generation Rare Disease Advocate. Merged with RARE-X Dec. 2022. #CareAboutRare
Marion Koopmans, publ... @MarionKoopmans
80K Followers 3K Following https://t.co/x3zIbMPDg5 Public Health virology, Viroscience Dpt, WHO collaborating centre EID
Sanofi US @SanofiUS
80K Followers 6K Following An R&D driven, AI-powered biopharma company committed to improving lives. For U.S. residents only. Interactions must comply with terms: https://t.co/D3HnfO1Ymt
Juhan Sonin @jsonin
2K Followers 1K Following Creative Sandpaper, MIT 2.009, pretending to design the future of healthcare at https://t.co/khC1yxGXrj, lives #opensource, [email protected]
Robert West, PhD ✝�... @westr
19K Followers 9K Following @SUNY Emeritus via @Harvard @ucdavis. #PersonalizedMedicine AI and 🧬 of Disease. #Arachnoiditis: #neuropathicpain #paraplegia. Pic: St. Marks, FL
Genomera @genomera
2K Followers 1K Following Participant-driven health studies & digital clinical trials. Breaking open bottlenecks in health research. Democratizing research, accelerating therapies. n=we.
Wisdom of the Crowds @CrowdWiseMD
48 Followers 45 Following A portal for medical students and healthcare professionals on crowdsourcing and its impact on the client-physician relationship.
Health Affairs @Health_Affairs
165K Followers 4K Following At the intersection of health, health care, and policy. Follows/Tweets/RTs ≠ endorsements.
Paul Winter @kaazoom
1K Followers 499 Following I'm Married. Suffer from the neuro-immune disease #MECFS . Enjoy #writing #songwriting #family #politics #internet I'm a #Christian but won't preach at you!
PatientsLikeMe @patientslikeme
27K Followers 8K Following The world’s largest personalized health network that helps people find new options for treatments, connect with others & take action to improve their outcomes.
Jørgen Jelstad @DeBortgjemte
712 Followers 426 Following Journalist og forfatter av boken De Bortgjemte.
Maansi Shah @breezybiker122
181 Followers 923 Following Streaming for you sensitive & scientific news; and sharing dialogues around genetics research & policy, maternal & child health, and cultural adaptation.
Rich Carson @RichCarsonsDeal
7K Followers 4K Following Founder of ProHealth, an optimist and leading voice for ME/FM patients everywhere, and a proponent for longevity: Live long enough to heal and fully recover.
Lisa Lorden Myers @LisaLordenMyers
36 Followers 1 Following Writer with Chronic Fatigue Syndrome & Fibromyalgia, striving to live a full and meaningful life despite chronic illness, and to help others do the same.
Christy Collins @_chrisco
1K Followers 1K Following Founder @mcmdotnet, M-CM is caused by PIK3CA mutations. Freelance web developer. Stubborn and hopeful. she/her
The Sheridan Group @SheridanGroupDC
502 Followers 691 Following Helping the good do better by creating social change through public policy. Find us on LinkedIn and Instagram @sheridangroupdc
Mark Wanner @markgenome
1K Followers 449 Following Science writer, genomics research follower, and endurance athlete pursuing the various paths to better health on the coast of Maine. Views expressed are my own.