Dan Wyke 🦠➡️🧠🔥 @Dan_Wyke
M.E. patient, advocate, person-centred counsellor (see link), recovering poet counselling-directory.org.uk/counsellors/da… United Kingdom Joined July 2011-
Tweets23K
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Followers13K
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Following6K
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Likes105K
"Here we present recent findings in ME/CFS research focussing on proposed disease pathologies shared with long COVID." #MECFS #LongCovid cell.com/trends/molecul…
Good to see this study of immune dysregulation in #MECFS studied participants at baseline and post-exercise. Immunological defects were found at baseline and further dysregulation after PEM had been provoked. cell.com/cell-reports-m…
The mistreatment of M.E. patients in hospital makes a mockery of talk about patients' rights and Martha's Rule. #r4today #MECFS #MyalgicEncephalomyelitis
This government is unsustainable and needs to be removed.
Conservative MP Mel Stride claims PIP benefit is thousands of pounds per month. No it is an absolute maximum of £720 a month, and most people only get about £250. Meanwhile he claims £1,250 a WEEK in rent on his expenses Lying, thieving b******
This is the latest update about Millie. #BringMillieHome
This is the latest update about Millie. #BringMillieHome
The "PIP bill" is insignificant compared to the money wasted by government incompetence and corruption. #r4today
It would be nice to live in a society where providing sick and disabled people with a decent quality of life was considered a desirable political objective. #r4today
David Tuller DrPH @davidtuller1 says in a newsletter that a new crowdfunding will start at May 1st. This will secure the continuation of his important work s4me.info/threads/david-… #LongCovid #MEcfs 1/
Removing benefits from people who are depressed and anxious is hardly likely to make them less depressed and anxious. 🤷 #r4today
I see government ministers are out targeting disabled people again today. 🙄 #r4today
Desperately need advice from #POTS #LongCovid community. Very severe LC patient with diagnosed but not controlled POTS (ivabradine not tolerated other beta bs tried but no luck). Uncontrolled vomiting despite strong anti sickness meds. Has now kept no food down in over 20dys
Wessely identified a deep-rooted cultural hostility towards people who don't recover from illness + exploited that prejudice with spurious academic authority. The psychosocial explanation of ME didn't even need to be convincing since society was already predisposed to accept it.
GET wingnuts know exercise is harmful/doesn't work, but they keep on researching and recommending it because it detracts from talking about the pathophysiology and other treatments. #MECFS #LongCovid
People have been suffering the long-term effects of infectious diseases for centuries and yet many HCPs still have a binary view of viral infection: you either get better or you die. Why won't they learn? Is their denial/ignorance symptomatic of a wider societal attitude? #MECFS
Bias: still persisting Myths: still going strong
Bias: still persisting Myths: still going strong
Please share my GF and Amazon wishlist... I really need the help. Im financially tapped out. Im dying. Im tired. Thank you 💗 #longcovid #NEISvoid #FBLC #MECFS amazon.com/hz/wishlist/ls…
Every day, for 4 years now, this has been happening. No one just decides one night to lock themselves in a room for years, trying every possible treatment unsuccessfully. I and many others are on the edge. The only way to escape from suffering is SUICIDE. WE NEED TREATMENTS
Every day, for 4 years now, this has been happening. No one just decides one night to lock themselves in a room for years, trying every possible treatment unsuccessfully. I and many others are on the edge. The only way to escape from suffering is SUICIDE. WE NEED TREATMENTS
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Jonas R. Kunst (@kuns.. @KunstJonas
17K Followers 724 Following Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Founder @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]
ME/CFS News @MECFSNews
15K Followers 712 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
Anil van der Zee © @AnilvanderZee
9K Followers 825 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
Christoph Ströck @cstroeckw
7K Followers 455 Following Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founder
Tom Kindlon @TomKindlon
14K Followers 578 Following With ME 35 years (29 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 27 yrs
Adam @ABrokenBattery
6K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Sten Helmfrid 🇺�.. @StenHelmfrid
7K Followers 206 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Martin Hippe @pausedME
7K Followers 474 Following East Westphalia by Nature ⎮Lawyer by Profession | #Musikrecht | #MECFS | @Mirame_Arts | No medical advice!
Whitney Dafoe @DafoeWhitney
10K Followers 38 Following Severe ME/CFS patient and advocate. Photographer, filmmaker, artist, creative. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
davidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Sibylle Dahrendorf �.. @sibylle_berlin
6K Followers 3K Following Once a filmmaker now stuck in horizontal hell | #SmallFiber #BigPain #POTS #MCAS #CCI #Lyme #FQToxicity #ME I Stop denial of #ComplexChronicIllnesses I
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Renata M Barnes @iRenatadotcom
44 Followers 260 Following I am a content writer, published author, digital marketer, and web designer. I help businesses grow.
BubbleBerni @berni_smith
352 Followers 2K Following Northerner. 100% health data nerd. Adores change. Private/Public/3rd. Will arm wrestle for facts. BA/PM/DBA/Stuff/SBO/L.Y.M.E
melog @melog987
2 Followers 2K Following
Brenda brenner @Brendabrenner11
240 Followers 1K Following life long RI, ocean state, pre-med / humanities, URI/Brown U , MA ;RIC MA counseling,; CAGS, RIC, administration/education; NIH fellow; Eisenhower delegate
Anastasia Tempest @Anastasia_T22
1K Followers 7K Following I have cerebral palsy. I was dumped on the doorstep of the National Children’s Home, (now Action For Children) from birth. I always try my best in life.
Rufus Greenbaum @RufusGreenbaum
360 Followers 970 Following Bio-hacker - Health, Fitness & Longevity Interested in: "How To Live Longer" W: https://t.co/ixjhocp4Lo E: [email protected] .
Helen Cressey @Hel155159Helen
174 Followers 545 Following
treehouse123 @treehouse1232
20 Followers 768 Following
Evvie Crowley @EvvieCrowley
43 Followers 233 Following Here’s a tip: Sometimes a lady likes to leave her blazer on.
Gwen B. with LC🦩�.. @PenGwenWithLC
5K Followers 5K Following P/w Long Covid, writer, nerd, ENM, loudmouth, green thumb, artist, queer, ND, & unstoppable! No alt text= no RT https://t.co/Hj2Dq2wRlJ #FBLC
Dom Carlos 1908 @DomCarlos1908
2K Followers 2K Following Curated selections for the contemporary world
IsItAnyWonder? #FBPE @IsItAnyWonder1
229 Followers 231 Following
HeRaymon @HeRaymon
53 Followers 150 Following Memoreert de helden Danny Jowenko, Arthur Gottlieb en Jeroen Denis (voor wie onafhankelijk onderzoek nodig is) | Wie bewaakt de bewakers? (Aristoteles)
Chris Buckley @buckers002
446 Followers 1K Following T & L consultant . SLE former SLT Early career support & Dev across a Trust examiner A level Pe. love netball tennis sailing walking pilates golf swimming
sarah 🕸♡ @VampireGhuleh
98K Followers 11K Following horror lover 🔪 dreamer ☁️ writer ✒️ neurodiverse 🧠
0 @ffpfr33
0 Followers 120 Following
Karolyn 🏳️�.. @KarolynLowe
2K Followers 2K Following queer. disabled. Earper. photographer 📸 married to @belfastearper #hEDS #faithfullylgbtq #WynonnaEarp
Rex McD (now part of .. @rexm123
7K Followers 7K Following fighter for Truth Justice and the American Way, between playing tennis golf and pickleball. (I really dislike Trump and friends) Sorry pretty ladies... no DMs
rachel @rachlke
38 Followers 367 Following books/writing/philly sports/drag race - bluesky/threads also rachlke
NoMedal4ME @NoMedal4ME
2 Followers 38 Following Just like all the healthy people who 'don't have time to be sick', neither do I; unfortunately, though, I don't have the health to be well. ME/CFS for 28 years.
Tara Munson @TaraMunson
672 Followers 2K Following Disabled Writer, Medical Researcher (EBV,CSFleak, HT,Spine Disabilities) Feminist,AntiEpidural,Nozempic #OPTOUT of epidural&spinal anesthesia during childbirth
Saffron @SwiftMary4
182 Followers 1K Following
Anna phylax @APhylax
1 Followers 26 Following
TikiaJan Autodéfense.. @grevepaysbasque
613 Followers 4K Following Autodéfense sanitaire ! anti eugenisme/care /DICV BPCO MAI etc....auto support SRARS COV2 Covid safe anti:fasciste/raciste islamophobie/antisémitisme retouit
Happy Elshohdi @Happy_elshohdi
190 Followers 477 Following
The Banker @lesleyannmacd
135 Followers 802 Following
Andréa Andersson @som_andrea_
74 Followers 515 Following Kommunikatören som pga neurologisk sjukdom fick kliva in genom fönstret och försvinna. Hoppas på forskningen och mina (förhoppningsvis) vilande energidepåer.
Sarah Perks (She/her) @SarsHeartSleeve
295 Followers 1K Following Social Worker, Beach runner 👙👣 Survivor FV, MH, AOD, CPTSD. Profile & self “under maintenance”. 🖤💛❤️collective, community, dedicated 2 healing me & 🌏
karrie s @karriepink
2K Followers 5K Following Love the Jazz Hands when I Talk! Colour is Life- Artist /Director Consultancy Co. Cared4 mum W/Alzheimer's/Sepsis.Am #LongCovidHauler sinceMarch 2020 #MECFS
snailsa @AilsaSnaith
932 Followers 2K Following Ex NHS doctor, neuroscientist, mountain/sea/desert dweller. Mentor/health/wellbeing @forceswiveschal @scot_psychres #neuroinflammation
Richard Kramer 🇺�.. @RichardKSense
15K Followers 8K Following Proud Chief Executive of brilliant @sensecharity @senseinternatl and Trustee of @CareTechFdn & @en4ei Based in Birmingham and London. Views my own.
Jenn @JennBrandice
140 Followers 396 Following
Shedrack Christopher @ShedrackCh85922
449 Followers 3K Following Shedrack Christopher is Tal by tribe, a Nigerian citizen from plateau State live in Jos North which parents are pastor attend high School, college / University
traumedyking @traumedyki31915
18 Followers 91 Following when comedy and trauma align, call it Traumedy. that is the genre of my life.
🌺 Allison Shapiro .. @ARShapiro68
981 Followers 559 Following Special educator disguised as a first grade teacher; closet techie; wino & foodie.
Jason Hartman @JasonHartm77534
15 Followers 43 Following
Michelle Dando 🫥 @MDando1
79 Followers 259 Following Worked in NHS. Was going to be a nurse. Now stuck in my bedroom due to #myalgicencephalomyelitis #millionsmissing #ME Best laid plans… Is this my life now?
AJ Yalch @ajdontquit
88 Followers 194 Following Mental health warrior, Long covid survivor, Libertarian Anarchist, MMA fan, BJJ blue belt, Animal lover, Tattoo collector, Truthseeker 🇮🇪🇺🇲@KillZoNeTTV
Bill Bennett @BillBen50947120
554 Followers 2K Following Proud to be a leftie! Pro EU, Anti Tory. Despise the Tories and what they’ve done to the country and the less fortunate. Dislike racism. No DM’s please.
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Janet Dafoe @JanetDafoe
15K Followers 220 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Jonas R. Kunst (@kuns.. @KunstJonas
17K Followers 724 Following Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Founder @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]
ME/CFS News @MECFSNews
15K Followers 712 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
Anil van der Zee © @AnilvanderZee
9K Followers 825 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
Christoph Ströck @cstroeckw
7K Followers 455 Following Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founder
Tom Kindlon @TomKindlon
14K Followers 578 Following With ME 35 years (29 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 27 yrs
Adam @ABrokenBattery
6K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Sten Helmfrid 🇺�.. @StenHelmfrid
7K Followers 206 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Martin Hippe @pausedME
7K Followers 474 Following East Westphalia by Nature ⎮Lawyer by Profession | #Musikrecht | #MECFS | @Mirame_Arts | No medical advice!
Whitney Dafoe @DafoeWhitney
10K Followers 38 Following Severe ME/CFS patient and advocate. Photographer, filmmaker, artist, creative. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
davidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Rebecca C 🏴�.. @plantingforbees
2K Followers 4K Following Mum. Cat slave. Coffee, crime fiction, politics & plants. Animals ≠ food/sport. #ME & FM.🥄Ovarian Cancer - know the signs. 🏴🇪🇺🇵🇱🇮🇳 No DMs.
fhronesis @fhronesis
338 Followers 2K Following #MECFS #EM😶🌫️ Sujet manquant EM = Encéphalomyélite Myalgique PEM/MPE= Malaise Post-effort
Fishupahill @Fishupahill
96 Followers 301 Following Listen to the waves, they form the tsunami that will wash away the persecuters of pwME and pwLC. Formerly many things. Now missing, but not gone.
leurah @leurah_
725 Followers 98 Following love love love 💜 March 2020...in USA LC'er IG: covid_longhaulers_supportgroup
Neurology Today @NeurologyToday
64K Followers 3K Following The official news source of the American Academy of Neurology, published by Wolters Kluwer.
snailsa @AilsaSnaith
932 Followers 2K Following Ex NHS doctor, neuroscientist, mountain/sea/desert dweller. Mentor/health/wellbeing @forceswiveschal @scot_psychres #neuroinflammation
Richard Kramer 🇺�.. @RichardKSense
15K Followers 8K Following Proud Chief Executive of brilliant @sensecharity @senseinternatl and Trustee of @CareTechFdn & @en4ei Based in Birmingham and London. Views my own.
Michelle Dando 🫥 @MDando1
79 Followers 259 Following Worked in NHS. Was going to be a nurse. Now stuck in my bedroom due to #myalgicencephalomyelitis #millionsmissing #ME Best laid plans… Is this my life now?
Tiff-Annie @Tiff__Annie_
740 Followers 998 Following Prof. Faculté de médecine | Médecine sociale & préventive +Sports betting/analytics
Lesley Watts @LesleyWattsCEO
3K Followers 31 Following Nurse by nature and proud CEO of Chelsea and Westminster and West Middlesex University Hospitals. All views are my own.
Bill Bennett @BillBen50947120
554 Followers 2K Following Proud to be a leftie! Pro EU, Anti Tory. Despise the Tories and what they’ve done to the country and the less fortunate. Dislike racism. No DM’s please.
Scope @scope
110K Followers 7K Following Scope = Equality for disabled people. We won't stop until we achieve a society where all disabled people enjoy equality and fairness.
Becky A Robertson @AnciraBecky
4K Followers 6K Following Survivor. Proud mother. Teacher. Philanthropist. Activist. Trying to make a difference. #maskup #longcovidawareness #LCDC #March15 #ValueCognition
Human @HeatherMit31708
191 Followers 1K Following Simone de Beauvoir quote. #NHS 25% French/Irish/Welsh/English #GTTO 🌹
Long Covid Moonshot @LCMoonshot
3K Followers 317 Following 18 million Americans suffering with Long Covid, and ZERO treatments. We need a moonshot for Long Covid research funding! Press: [email protected]
DeniseYP @DeniseYP5
1K Followers 4K Following Human rights, animal rights, social justice and equality for all. Not too much to ask...
Julie @julievandolah
666 Followers 3K Following Hospice nurse. I don’t freak out easily. I am really freaked out. I am here because I am trying to understand. Thank you for the education. ❤️
Sarah Spoor @SarahSpoorUK
2K Followers 1K Following Full time carer,part time advocate for justice,& budding activist-standing up for the rights of disabled,carers,& the less able. Articulate,fearless campaigner.
Caitlyn Smith @SmithCaitl7900
152 Followers 446 Following Long Covid is the real disease. You may already have it. There is no escape. Eventually it will find everyone. #LongCovid #ZeroCovid
Madeleine ThriftVIP® @ThriftVIP
531 Followers 1K Following Evolving ThriftVIP #Dissabled #MEFibro ☆Unique.Eclectic.☆ #Unique style online 🌎&👩🏽🦽👩🏾🦯👬🧍🏿#MyalgicE BEFORE PROFIT opinions my own #TryingToThrive
Toti @totidyle
371 Followers 2K Following disaffected millennial • gamer, potter, ecologist • #LongCovid #pwME • #Endometriosis • she/they 🇵🇸😷
Mary 🧡🇬🇧🇪.. @running4rights
5K Followers 6K Following Do-gooder. Bolivia born Brit. Lefty Catholic Rad Fem. Biology isn’t hate; gender is a prison. Brexit is a con. Rejoiner. Masked or outdoors. I don’t join cults.
Anne Marie @annesmithmcc
2K Followers 3K Following Mum of two boys. Interested in education 🎓 and various other things. #FBLC
Julia Marie @julia_doubleday
10K Followers 3K Following International and domestic politics; Deputy Director, Committee LLC; co-host @committeepro; Julie Oliver for Congress 2020, Beto for Senate 2018, Bernie 2016
Jo house @Drjohouse
1K Followers 612 Following Climate scientist, policy advisor, land use and forests, #IPCC. currently #longcovid. @long_covid advocate. stay safe #FBLC
Tamara Jade @xTamaraJadex
492 Followers 2K Following Aspie mama of 1 amazing aspie teen girl ♥️...& 2 nutty Staffies🐾😂
Disabled Doctor @DisabledDoctor
9K Followers 849 Following PhD. Fired from a postdoc for being disabled. Filed w/EEOC August 2021 — still waiting. Gamer. Gardener. Clinician-Scientist. EDS. ADHD. CCI. 🏳️🌈
Rachel Charlton-Daile.. @RachelCDailey
22K Followers 3K Following Who’s afraid of little old me? You should be. Author, columnist, activist, chaosist. Book rep: @portyliterary. She/they. #TheWeekInAbleistBullshit @thecanaryuk
Kerren Garner 💙 @KerrenGarner
618 Followers 2K Following Actress & Director on pause. #BHAFC & Politics. Trying to work out life with chronic illness
Başar SARIKAYA @basarsarikayamd
3K Followers 1K Following Associate Professor of Neuroradiology, University of Washington, PGY-24, G93.32
Private Eye Magazine @PrivateEyeNews
670K Followers 0 Following Britain's best-selling news and current affairs magazine with a unique mix of jokes and investigative journalism. https://t.co/YxU5lc50Tn. Subscribe: https://t.co/GtTmLGqEPj
Nature Neuroscience @NatureNeuro
407K Followers 268 Following News, commentary and research coverage from the international monthly journal publishing the highest quality of work in all areas of neuroscience.
Mary Broadbent @Mary2bOptim
31 Followers 61 Following Person with M.E. and advocate. Ex Positive Dog Trainer before becoming more seriously ill in June 2022.
Laura vs ME ♿ 🏳�.. @LauraCayuela7
395 Followers 309 Following Paciente de #EncefalomielitisMialgica muy severa. Luchando desde mi cama por nuestros derechos 🛌🏻📢 Investigación, formación y reconocimiento
AMoore @AMoore864
240 Followers 264 Following
Scott Daniska @scott_scientist
242 Followers 212 Following Scientist & chronic illness advocate raising awareness of environmental research for ME/CFS & more. Let's drive change together! #ChronicIllnessAwareness
LyndseyDoob 🌱 (Ve).. @Lyndsey37807060
13K Followers 14K Following 5ft 2 of unadulterated clumsiness. Animal and Earth lover; Hater of injustice, prejudice & ignorance. Kindness is underrated so spread that shit around. MECFS.
Gabrielle Crawford @Tweetiepie_2121
8 Followers 111 Following
baguels @baguels
36 Followers 250 Following caregiver for partner w severe ME/CFS, LC, & CCI… also rip cityyyyyy
Peanut @MrsProctor2010
1K Followers 1K Following 1st wave longhauler, living life in the slow lane 🐌 I like to do embroidery and tweet. Don't be a dick-Wear a mask! #MaskUp #LongCovid #MEcfs #CovidIsNotOver
Chronically Surviving @Chronically2784
113 Followers 83 Following Queer & Disabled. ME, POTS, Ulcerative Colitis. (she/her)
Prof Julia Lawton @Prof_J_Lawton
1K Followers 1K Following I am not here to self promote; I just want to connect with like-minded people who take (long) covid seriously and to keep up to date with the evidence base
Karen Hargrave @KarenLHargrave
1K Followers 2K Following Independent researcher & policy analyst tweeting on migration & displacement | Formerly @RedCrossPolicy @hpg_odi | Living with #LongCovid #ME|
Derya Unutmaz, MD @DeryaTR_
290K Followers 4K Following Professor, medical scientist, immunologist @jacksonlab research in aging & cancer immunotherapy. Interests: #longevity #robotics #AI #Scifi #tech #space🇺🇸🇹🇷
Ellie Fry @iEllieFry
3K Followers 1K Following Deputy Online Features Editor @DailyMirror | Previously @Independent | Contact: [email protected]
Living with Trauma & .. @RhiaCrewe
12K Followers 2K Following 💜I am a #survivor #warrior working with & through #CSA #SRA #DID #CPTSD #DV #FGM #CULTABUSE Qualified on paper but mostly by lived experience 💜
UniteToFight2024 @U2Fight_World
3K Followers 121 Following 100% crowdfunded LC & ME/CFS conference project. community-driven. independent. global.
LongLonghauler @sketchingwitht
120 Followers 200 FollowingNew 12-minute video: "I believe microglia are the primary culprit behind #fibromyalgia, #MECFS, #GulfWarIllness, #LongCOVID, and other #chronicpain & fatigue disorders. Here is a quick video on what I am trying to do to fix the problem. - Jarred Younger" youtube.com/watch?v=XggO__…
A belated thank @CatSmithMP for asking two questions on behalf of Millie that #MEAction UK helped draft. ow.ly/Ft5R50Rskzl @NHSuk @NHSEngland #SevereME #BringMillieHome #MyalgicEncephalomyelitis #VerySevereME
@Dan_Wyke Dan, you are a positive force in the patient community. I’m grateful for the wisdom and observations you post. If I could send more than good vibes and hopeful wishes for encouraging developments, I would.
The Irish ME/CFS Association is pleased to announce that a leading international ME Expert, Dr Nigel Speight, will give 5 free talks on ME during ME Awareness Month: meassociation.org.uk/a5ya #MECFS #MEAwareness @IrishMECFSAssoc
Air hunger - one of the many scary symptoms of very severe ME. When you exceed your anaerobic threshold just by eating, drinking, moving your arms or having someone in your room. It’s completely crazy but an everyday occurrence that no NHS GP would have a clue about.
ME Expert Dr Nigel Speight will give 5 free talks on #ME during #MEAwarenessMonth May 7 Carlton Hotel Dublin Airport May 9 Glasshouse Hotel Sligo May 11 Maldron Hotel Galway May 13 Great National South Court Hotel Limerick May 15 The Kingsley Hotel Cork imt.ie/events/irish-m…
Sixty-eight years ago today. The Record American. 30th April 1956. You might have heard of her.
"We don’t always know if a #symptom is related to our condition or if it’s a #sideeffect of #medication..have no idea if there’s a new issue. We just get so used to pain, tiredness & feeling unwell that it becomes #normal": buff.ly/41NQSCM by @DespitePainBlog #ChronicPain
My thinking is that VSL#3 has been developed for people with microbiome dysbiosis / disturbances So I am wondering if it would be more suitable for people with LC / ME/CFS who have a pathological microbiome state
VSL#3 is high potency and designed for people with IBS IBS patients have disturbed microbiomes, as seen below in species abundance data in paediatric samples from a Korean study analysing many IBS microbiome datasets (n=567 IBS and 487 HC) journals.asm.org/doi/10.1128/sp…
I'm going to try them. I have been taking a large selection of very high quality pre and probiotics for more than 2 months now and I feel better overall I see many patients saying that targeting the gut helped them more than anything
I have no affiliation but I recently saw a LC / ME/CFS patient saying they had a big response to the medical probiotic VSL#3 We know about gut dysbiosis in this disease, and this product is a medical supplement with high potency for treating IBS (which is an autoimmune disease)
@CraftyMissB @Dan_Wyke Just like his sleazy mate Andrew Lloyd in Australia. Here we are again, in 2024, having to fight yet another battle here. 😥😡
In 2018 I spent hours daily reading +listening to recovery stories. I avoided anything negative like the plague or made excuses why some never got better but I will get better. Fact is: recovery from real #mecfs is exceedingly unlikely. We URGENTLY NEED a medical breakthrough!!!
It's just ridiculous that no NHS expert can be found for something as common as M.E.... #MECFS #BringMillieHome
Update about Millie Petition change.org/p/save-millie-… #MillieSevereME #SevereME #pwME #saveMillie #BringMillieHome #DontLetMEDie #ExposeMENow
Good morning - we hope everyone is OK as can be. Great work on the community's open letter to @sajidjavid for the Westminster Hall debate on #MEcfs - over 1,100 people have signed. There's another 24 hours until we send it. So please keep going #BringMillieHome #SaveCarlasLife
WESTMINSTER HALL DEBATE ON #MEcfs As promised please find below an open letter everyone can sign asking @sajidjavid to raise #BringMillieHome #SaveCarlasLife & more during 1 May's debate We will send it on 30 April. So get involved and get signing. LINK with a CW - suicide:…
@Dan_Wyke @JustinBaileyart @Conservatives Because there are people who support it. My Dad is one of them! Even though he's seen how my own life has been destroyed by ME. I think it's part of a weird 'Dunkirk spirit' type psychosis. He repeats the gov lines 'but could you not do a little online work?' No Dad, I can't..
The osmotic laxatives took full effect in the night as I woke up at 11:30 & had a good empty! The signs of impaction stopped after that as the doctor said they should. Cannot tell you how relieved I am 😮💨 incredibly grateful it worked & I avoided hospital admission.
This just about sums up the state of ME care in the @NHSuk for the last few decades 👇🏻 “… they haven't been able to provide Millie with an NHS ME specialist doctor in nearly 13 weeks although they have provided 4 psychiatrists to assess her.” #BringMillieHome #SaveCarlasLife
Update about Millie Petition change.org/p/save-millie-… #MillieSevereME #SevereME #pwME #saveMillie #BringMillieHome #DontLetMEDie #ExposeMENow
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