Lizzy H @hopefullizzy
29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨ Bristol Joined April 2013-
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Yes, prime minister, it’s a scandal so many of us are signed off work. Maybe you Tories should stop making us ill - The Guardian apple.news/AgRsF_JVFTgO0l…
We should add that after the SpO2 reading dropped to 71% (even though the nurse said Carla was 'deliberately' making noises like she was struggling to breathe) the hospital then removed the obvs machine entirely #SaveCarlasLife
As a consultant clinical psychologist, I stand against the psychologisation of #ME and with those fighting for justice and service provision. #ME patients face similar testimonial deflation as those given the BPD label, which costs and ruins lives. Solidarity X #SaveCarlasLife.
As a consultant clinical psychologist, I stand against the psychologisation of #ME and with those fighting for justice and service provision. #ME patients face similar testimonial deflation as those given the BPD label, which costs and ruins lives. Solidarity X #SaveCarlasLife.
Free online accessible events as part of @FestofNature Leigh Woods Online Walk, Monday 3 June, 4- 4.30pm. Pre-recorded, streamed on the FB page Moving Mountains: Writing Nature through Illness and Disability, Monday 3rd June, 7- 8pm w/ @LouiseKenward eventbrite.co.uk/e/moving-mount…
I feel very sorry for Huw Edwards. The S*n newspaper and the vindictive parents of that adult young man should hang their heads in shame.
I wish Huw Edwards and his family all the best for the future. Full of admiration and respect that a boy from South Wales soared so high, conquering a still stuffy Oxbridge BBC to be the nation's voice at key moments, and saddened how it ended. mirror.co.uk/tv/tv-news/bre…
Can we leave Huw Edwards alone now? The police have said no crime was committed and he has resigned from the BBC. I hope he's getting the help he needs.
Huw Edwards has resigned ‘Huw Edwards has today resigned & left the BBC. After 40 years of service, Huw has explained that his decision was made on the basis of medical advice from his doctors. The BBC has accepted his resignation which it believes will allow all parties to move…
This brand-new series follows the dedicated team at South Essex Wildlife Hospital as they work to save the lives of sick, injured, and orphaned animals – hoping to return them to the wild. #WildlifeRescue, 8pm on @Channel4
18 yrs ago, when I was first admitted, the dr had never seen someone who was bed bound with M.E.. This was the M.E. consultant at the hospital. So they went down the psych line, trying to put me in a locked ward. How has treatment still not improved? #SaveCarlasLife #ExposeMENow
Too pretty not to share, and balm for the soul, I hope.🌿💙 #pwME Taken from the upstairs window. (Mummy Collard Dove was just below me on her nest).
Another horrendous case. Is it me, or do the majority of these types of cases feature young women? Have there been any men detained? Obviously ME is more prevalent in women which will influence numbers, but just curious if this type of relentless medical ignorance has a theme?
Another horrendous case. Is it me, or do the majority of these types of cases feature young women? Have there been any men detained? Obviously ME is more prevalent in women which will influence numbers, but just curious if this type of relentless medical ignorance has a theme?
No clot showed on the scan. The clinician wouldn’t tell me anything else🤷🏻♀️ In fact she wasn’t very nice to me at all, or professional… have made a complaint. Have had stronger painkillers & am trying not to have a complete fricking paddy. #unexplainedsymptoms #complexhealth
🧵 ME and accommodations in hospital. (Small - to them - procedure under local. Day case - everyone turns up at 7.30 and waits their turn) 1. I told Consultant at initial consult about ME and didn’t need to explain why I would prefer an early slot. He understood & agreed ✔️
Scan today. Honestly so relieved to have not been kept in hospital, but absolutely shattered because I’ve been at the hospital or doctors 4 days out of 5 😭 Hopefully it either shows something or doesn’t an improves drastically somehow.
Can’t remember the Twitter names of folk I want to tag in this but hopefully you will see and enjoy it. #squirrel #birdfeeder
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]Dan Wyke 🦠➡️�.. @Dan_Wyke
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61 Followers 509 Following 📊📊 SENIOR ACCOUNT MANAGER AT BITCOIN MANAGING PLATFORM📉🛠️ DM TO START EARNING... 🛠️ NO SCAM❌❌Elon Musk @EMusk84439
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307 Followers 484 FollowingMilo Anthony Ventimig.. @Milo_anthony665
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21 Followers 189 FollowingVitamins Vites @VitaminVites
248 Followers 5K Following offer quality vitamins https://t.co/FpS0B7ROzi https://t.co/R5o58MgFsg https://t.co/MeUNk0lgWA keep https://t.co/b0MYawvs7c https://t.co/pmLhaPqrL1 https://t.co/S9HW8km1Km https://t.co/KDQ5Di4616 https://t.co/cqlfYNbWMeRachel 44 @RachReynolds510
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19 Followers 385 FollowingIt'sME(Jaime) @exceedhergrasp1
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2K Followers 1K Following Political Correspondent for @itvwestcountry 📺 Previously a producer for @itvnewspolitics RTs not endorsementsCollins Solicitors @Collins_Law
1K Followers 1K Following Collins Solicitors, founded in early 1995, we specialise in Clinical Negligence, Personal Injury, Family, Commercial and Property Law. #InfectedBloodScandal@TheChronicColab I just can’t believe that they are ignoring her stats and then removing the machine, this is just crazy. Is she on a drip, she needs to be getting plenty of fluids, many of us with ME/CFS and POTS need more fluids than normal.
@TheChronicColab It sounded like she was in laryngeal spasm. You can’t fake that noise. We just need one brave HCP to stand up for Carla! But any good staff will be intimidated by what the drs & sister/charge nurse say. They tend to fuel each others narrative rather than think for themselves
@TheChronicColab OMG. This is evidence of a cover up. Drs ignored photos of my low SpO2. I was told it couldn't possibly be accurate. When I felt I was on the verge of dying. Why are they so hellbent on trying to prove there is nothing seriously wrong? They could be investigating instead
@LilNic000 We are not sure if the hospital will allow this. But is definitely worth a try.
@TheChronicColab My recommendations is 1 that doesn't make a beep, and 1 that shows the PI which is often super low for pwME. Just checked mine...
@TheChronicColab When I had a very short stay in hospital for ME + Thyroid storm, my machine was going crazy bleeping for high BP & pulse and the nurses said that it was feeding my "anxiety" (before bloods came back showing thyroid), so they kept turning off & disconnected. Such bad practice.
@TheChronicColab They removed the obs machine - no doubt because evidence is getting in the way of their own false beliefs that ME is not a ‘real illness’ 🤬🤬🤬 They are now straying from ignorance & incompetence to wilful cruelty, negligence & malpractice IMO. What happened to medical ethics?
@TheChronicColab I can’t believe they can just remove the machine, because it shows how poorly she is doing. Is this legal? Could you get a lawyer or police involved?
We should add that after the SpO2 reading dropped to 71% (even though the nurse said Carla was 'deliberately' making noises like she was struggling to breathe) the hospital then removed the obvs machine entirely #SaveCarlasLife
@NHSEngland @Channel4News @GMB @thismorning @channel5_tv @C4Dispatches @BBCNewsnight @BBCHughPym @ITV @iEllieFry @SeemaMalhotra1
DON'T. LOOK. AWAY. #SaveCarlasLife #MEAwarenessHour Please meet Pierre, Carla's father. We cannot overstate how distraught he is by what is happening to his daughter. However, he wanted to speak to everyone directly. Please watch & share widely. She is running out of time 💚
We stand with you, Pierre. I'm so sorry your family are going through this.
DON'T. LOOK. AWAY. #SaveCarlasLife #MEAwarenessHour Please meet Pierre, Carla's father. We cannot overstate how distraught he is by what is happening to his daughter. However, he wanted to speak to everyone directly. Please watch & share widely. She is running out of time 💚
Carla, Millie, and how many other women are being harmed by a medical system that loves to call us crazy? It's terrifying. I have ME. I'm so afraid, for these women, for every other person with ME. The system has to change. #ExposeMENow #SaveCarlasLife #BringMillieHome
DON'T. LOOK. AWAY. #SaveCarlasLife #MEAwarenessHour Please meet Pierre, Carla's father. We cannot overstate how distraught he is by what is happening to his daughter. However, he wanted to speak to everyone directly. Please watch & share widely. She is running out of time 💚
@KenV54 @ProfRobHoward @SameiHuda @DrAnnieHickox @dawso007 @MarkLRuffalo Yet here we are today with yet another patient's life in danger in an NHS hospital. How many have died? x.com/TheChronicCola…
DON'T. LOOK. AWAY. #SaveCarlasLife #MEAwarenessHour Please meet Pierre, Carla's father. We cannot overstate how distraught he is by what is happening to his daughter. However, he wanted to speak to everyone directly. Please watch & share widely. She is running out of time 💚
"This is the biggest medical scandal of the century " Carol Monaghan MP.
DON'T. LOOK. AWAY. #SaveCarlasLife #MEAwarenessHour Please meet Pierre, Carla's father. We cannot overstate how distraught he is by what is happening to his daughter. However, he wanted to speak to everyone directly. Please watch & share widely. She is running out of time 💚
Dear @EdwardJDavey @LibDems Please help. Carla is another young woman with M.E #MyalgicEncephalomyelitis who is being mistreated on the NHS. Her parents are terrified & desperate for urgent help to save her life. No one is listening. Carla is in @WestMidHospital. #SaveCarlasLife
DON'T. LOOK. AWAY. #SaveCarlasLife #MEAwarenessHour Please meet Pierre, Carla's father. We cannot overstate how distraught he is by what is happening to his daughter. However, he wanted to speak to everyone directly. Please watch & share widely. She is running out of time 💚
@Shrink_at_Large Thank you Dr Watts for showing solidarity. It can be so difficult for people with ME to be heard and understood. Unfortunately it's causing ME patients enormous harm, as their physical illness can worsen if they exert themselves, over their limit. Patients need appropriate care.
@Shrink_at_Large Thank you so much for your support, it's hugely appreciated & desperately needed. Patients with ME urgently need many more Drs & HCPs who are willing to say this publicly.
As a consultant clinical psychologist, I stand against the psychologisation of #ME and with those fighting for justice and service provision. #ME patients face similar testimonial deflation as those given the BPD label, which costs and ruins lives. Solidarity X #SaveCarlasLife.
DON'T. LOOK. AWAY. #SaveCarlasLife #MEAwarenessHour Please meet Pierre, Carla's father. We cannot overstate how distraught he is by what is happening to his daughter. However, he wanted to speak to everyone directly. Please watch & share widely. She is running out of time 💚
@cfs_jo I try to long press words in my hard copy books like I can on my e-reader to look up definitions 😂