Jo @cfs_jo
CFS(!) & POTS diagnosis, ME symptoms - trying to accept. Still me. Sense of humour intact. Also on Insta as JustJoHere and BlueSky as JustJo Yorkshire and The Humber, England Joined January 2019-
Tweets70K
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Followers3K
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Following1K
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Likes145K
This is a good explainer. Thanks Fiona @fionangreg
This is a good explainer. Thanks Fiona @fionangreg
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Jo retweeted
🚨 Reminder 🚨 Tomorrow, May 1, Sir @sajidjavid MP will be leading a Westminster Hall debate in the Houses of Parliament, 16.30-17.30 You can watch the debate live on Parliament TV: ow.ly/wxan50RsgYs
Jo retweeted
Nicola called in to tell Julia Hartley-Brewer about herself.
This
Jo retweeted
People living with M.E in #Wales. Please get in touch with @Llais_Wales if you are unhappy about M.E services/lack of services/complaint re 'treatment'. They need to know residents of Wales are unhappy with healthcare provision. Contact - llaiswales.org/in-your-area #pwME #MEcfs
Thanks to @MikesEUmaras for this amazing achievement Enabling biomedical research @CofEforME in @NorwichResearch and raising awareness around #Europe Our great thanks to Mike and his family justgiving.com/fundraising/mi… #mecfs @TheQuadram #research #philanthropy
🤭 @davro_t This morning’s gem
The responses to this will reaffirm that we know people are inherently good.
AirSpot - The Personal & Wearable Fresh Air Monitor on @Kickstarter kickstarter.com/projects/airsp…
Jo retweeted
Oh dear
Jo retweeted
ANNOUNCEMENT #BringMillieHome We want to give credit to @MEActNetUK & @meactionscot. We said on Friday that we had secured the question Cat Smith had asked in parliament over #MEcfs. It turns out that ME Actions were also working in the background, at the same time as us, on…
You’d think the very least Musk would do is to block anyone setting up an account here in his name. I’ve blocked half a dozen this evening.
Jo retweeted
Thank you so so much for all your go fund me donations 🥹 & shares….? Not long to go! I bought paint… progress. They open like old lockets, books. More to do gofund.me/83bcb3c6 ♥️
UC have messed rent up. I told them of increase on 1, 12 & 25 April and still not satisfied. They now want proof of how many bedrooms I have. I have lived here since 1994. Been claiming UC for rent since 2020. Do they think I’ve built an extension or knocked 2 rooms through 🙄
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Daniel Moore @Talmandaniel
5K Followers 4K Following Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
Alisontomyradio @arisonsned
3K Followers 5K Following ME MCAS Lyme.Still with humour.Satire Music.Dream of life without illness. Wanna ride my bike. Cat & Dog Botherer.YP Counsellor retired. Retweet not endorsement
Vlad Vexler @VladVexler
17K Followers 841 Following Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Born in Russia, home is London | Living with ME since 2003. | 🔗 🎥
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Crafty Miss @CraftyMissB
5K Followers 3K Following I'm Beth, embroidery & craft are my buzz. #socialist #pwme #disabled insta: thecraftymissb https://t.co/H4UqOa9igd
Kirsty Schnickelfritz @KSchnickelfritz
3K Followers 1K Following Licensed to rest. Untapped resource, just mucking around.
Paula Knight @Paula_JKnight
5K Followers 4K Following Graphic memoir THE FACTS OF LIFE (2017) Kidlit books x3 author. Disabled. Bedbound 5.5yr v severe #pwME Submerging writer. Total Bedass. Print Disabled she/her
Tess Falor, Ph.D. | @.. @tessfalor
9K Followers 5K Following 🚀Space physicist➡️#MECFS researcher🧪 Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome ✨Serendipity Meets Preparation✨
davidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Sibylle Dahrendorf �.. @sibylle_berlin
6K Followers 3K Following Once a filmmaker now stuck in horizontal hell | #SmallFiber #BigPain #POTS #MCAS #CCI #Lyme #FQToxicity #ME I Stop denial of #ComplexChronicIllnesses I
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Tracey Burgess @TraceyABurgess
2K Followers 3K Following Mum to a trans daughter 🏳️⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼
BoomerRang @dsteigelman
2K Followers 3K Following 💙Retired Teacher 💙 Democrat 💙Animal Lover 🐾🐾 Vegetarian 🌱 Washington Commanders 💛 Reading is My Passion 💙 Imagine Peace 💙#resist
Georgi Parvanov @GeorgiParvanov4
2K Followers 1K Following Former life lover, current #LongCOVID sufferer. #FBLC
Goat Lover Club @GoatLoverClub
78 Followers 2K Following Welcome to @GoatLoverClub We share daily goat contents. Follow us if you really love GOAT.
krstevens 🇺🇸�.. @ksteven18644240
5K Followers 6K Following Vote Biden/Harris and BLUE !💙Women’s rights! Voting Rights and 🇺🇸!!! Yes, Resist!🌊🌊 Hopeful that our Country will survive! Boomer4Biden! ❤️Rescue Dogs!
MichelleS @Mitch222S
99 Followers 512 Following Egalitarian. Financial services dinosaur. Guardian reading, tofu eating, wokerati. #MECFS endurer. #SCADSurvivor.
Long COVID is a mass .. @lhaztknup
5K Followers 7K Following One of Millions Missing, had severe LC. Now its getting better. I want to help reaching attention f this TERRIBLE illness. No medical advice.
lucia ccc/ ME @CccLucia
69 Followers 213 Following Ik heb ME en fibro Reguliere middelen helpen niet of zijn te Duur gek op lezen, vega, dieren en natuurlijk genezen #ikverkoopopbol.com
Loopy @Lulu_R81
582 Followers 1K Following ❤ all things legal & forensic 🎧Music is the answer 🎧 & gaming 🎮 #EDS #POTS #UKWIN #ToriesOut
Alexandra Alvida @Aelvidra
41 Followers 148 Following very severe ME CCI EDS mcas, insta: @alekpalek Gofundme: https://t.co/op7gGeiInu ⚠️please help if you can⚠️
Luce @LucevsME
1 Followers 20 Following Housebound with ME/CFS, along with many other things. ND. she/her 🏳️🌈♿️
G R A C E 🌸 @withgrace___
88 Followers 292 Following 🥀 severe ME/CFS mama to baby son ❤️ heart full, body broken 🌻 INFJ
Rouha G. @roomcmoo
2K Followers 5K Following Research in Connective tissue/Osteoimmunol. Strive to apply Baha'i Faith. projects: @eds_hub @smbsltpodcast roomcmoo at universeodon dot com & blue sky
Pathogen Hunter @lymehater
837 Followers 5K Following Lyme disease advocate, tennis player, biomedical researcher, skier, reader, gourmet cook, antique hunter, world traveler, geek with varied interests.
AirSpot Health @airspothealth
669 Followers 2K Following Our smallest fresh air monitor! Combines with the AirSpot App to help optimise your AirHealth.
BEAP Community @beap_c
948 Followers 715 Following Well established community org & reg’d charity 1098088 in Bradford providing advice, support & services to communities | 01274 731020 | [email protected]
Anne Marie @annesmithmcc
2K Followers 3K Following Mum of two boys. Interested in education 🎓 and various other things. #FBLC
Equal Vision @EV_Merseyside
1K Followers 6K Following Our work is community-driven. We're Liverpool's independent youth research & policy body. Peer-led support for multiple morbidities is our other priority
OMFCharityMugs @BFWoodburn
10 Followers 163 Following Severe ME/CFS patient since 2006, fundraising for the Open Medicine Foundation, all proceeds from all sales go directly to OMF, Worldwide shipping🩵
Ade Couper 💙 @akc_0123
4K Followers 5K Following poetry, writing, disability issues....please do not add me to lists as I will block you
Becky A Robertson @AnciraBecky
4K Followers 6K Following Survivor. Proud mother. Teacher. Philanthropist. Activist. Trying to make a difference. #maskup #longcovidawareness #LCDC #March15 #ValueCognition
Darla Gregory @darla_gregory
3K Followers 6K Following Love all reality shows Especially BB love It. Blue wave 🌊🌊🌊💙💙💙👍
Glitter Resist 🏴�.. @Glitterresist
38 Followers 147 Following Improving healthcare for autistic people & others #autistic #actuallyautistic [email protected]
Ghost @LillyGho
31 Followers 215 Following
Natalie /\/¯¯¯¯¯.. @NatalieCapeTown
1K Followers 4K Following Mother, daughter, sister, aunt, cousin, niece, FP HOD, Gr1 teacher, colleague & friend living in the beautiful Mother City /\/¯¯¯¯¯\/\ experiencing #LongCovid
Lara Crowther @fillthewhole
5K Followers 5K Following BSc, MRes Neuroscience, BMedSci, PhD Med Ed (& life) on hold due to covid caused #longcovid #pots #mcas #adenomyosis #hypothyroid Ex PT & yoga teacher 😷
Maddox @Zelti_moon
119 Followers 701 Following WEAR A MASK 😷| #LongCovid Since 2022 | #ME #POTS #MC #ABDL #Hirschsprungs | Autistic, Anxiety Ridden, Somehow Managing🌻 | they/them 🏳️🌈
Linzi @linzi_mcintosh
364 Followers 5K Following Mother of multiple disabilities including Hypermobility, fibromyalgia, to mention a few. All daughter health struggles. EDS. Autism. Gillian Barre' syndrome
Michael Brooks (𝙏�.. @brooksmeatswift
2K Followers 4K Following It’s me, Hi! I’m the problem, it’s me! . ME patient & advocate - Decode ME Ambassador - 1 day at a time… My girls, my team, my music
Caitlyn Smith @SmithCaitl7900
151 Followers 446 Following Long Covid is the real disease. You may already have it. There is no escape. Eventually it will find everyone. #LongCovid #ZeroCovid
Matt Lazell-Fairman @mfairma
962 Followers 1K Following ME patient. Spouse with LC & ME. Fund marginalized diseases. Plow under suburbia. Build walkable, accessible towns and cities.
Meder Omuraliev @meder_o
1K Followers 5K Following Software Engineer into Medicine, Sports, History, Anime, Immunology, Microbiome/Health, Movement/Posture, Weightlifting, Clean Air
Tamara Jade @xTamaraJadex
492 Followers 2K Following Aspie mama of 1 amazing aspie teen girl ♥️...& 2 nutty Staffies🐾😂
Ruth Langford @Ruth_Langford
3K Followers 5K Following Dual Qualified Family Law Paralegal (England& Wales, and Scotland). #longcovid #pwME 👨🦼 Adult human female. All views my own.
Rete Long Covid Press @ReteLongCovid
145 Followers 1K Following Benvenuti nella Rete Long Covid Italia 💙 https://t.co/T6NThQfoQL
balaganista @balaganista
509 Followers 1K Following
Syd @fcknsyd
2K Followers 1K Following 24 year old who’s life is currently on pause because of #LongCovid since April 2022 #POTS #Dysautonomia #MECFS #hEDS @CadAgainstLC
Vijay Iyer PhD @vijayiyer312
3K Followers 2K Following Patient advocating science for #mecfs & #dysautonomia (incl via #longcovid & #postvac).👷🏾♂️Support #neuroscience users & use cases of @MATLAB. Tweets my own.
CrossbonesGT @Degradingseeker
126 Followers 416 Following Resident Evil / Music buff / Lover of anything horror / Analytical and fiction writer / ADHD & autistic "Remember me, and your true self as well..."
Cort Johnson @CortJohnson
10K Followers 1K Following Founder of Health Rising /Phoenix Rising - Chronic Fatigue Syndrome (ME/CFS)/Fibromyalgia/Long COVID journalist/blogger - ME/CFS/FM patient for 40 plus years
Dookielu @dookieloopyloo
756 Followers 2K Following parent to only one small angry version of myself now. lost without being a dementia/palliative carer. mostly a nice person but in grief rant mode for a while.
Diane Corrigan#floxed @DottyDee62
163 Followers 389 Following Iatrogenically harmed by #cipro Disabled, House/Wheelchair bound #fluoroquinolonetoxicity #floxed #fqad induced #mecfs #pots #tendinopathy #mcas #PSVT
Thomas Frere @ThespyFrere
1K Followers 1K Following Actor/Director/Trainer who plays #oboe, makes #labyrinths and grows veg. https://t.co/zXAPEfw51S @NLightsActorsM. Mastodon: @[email protected]
Rachel 44 @RachReynolds510
91 Followers 809 Following ME/CFS/Long Covid campaigner |Coeliac awareness| Get Tories Out
Renate-new account�.. @Renate834601
83 Followers 423 Following Myalgic Encephalomyelitis since -87,severeME,Bedbound, diagnosecriteria /name matters!separate ME from ME/cfs; use ICC -G93.3 for ME❤️#Enterovirus
Claire Hirst @claire_hir24347
18 Followers 111 Following Raising awareness and charting my journey with ME/CFS
👨🦽♿️ Nah.. @SpinaBifidaScot
573 Followers 2K Following Wheelchair user | Scottish | Highlighting the trials and tribulations of life with a disability and will always call out #ableism | #spinabifida #hydrocephalus
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Janet Dafoe @JanetDafoe
15K Followers 220 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Anil van der Zee © @AnilvanderZee
9K Followers 825 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
Daniel Moore @Talmandaniel
5K Followers 4K Following Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
Tom Kindlon @TomKindlon
14K Followers 578 Following With ME 35 years (29 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 27 yrs
Christoph Ströck @cstroeckw
7K Followers 455 Following Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founder
ME/CFS News @MECFSNews
15K Followers 712 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
Alisontomyradio @arisonsned
3K Followers 5K Following ME MCAS Lyme.Still with humour.Satire Music.Dream of life without illness. Wanna ride my bike. Cat & Dog Botherer.YP Counsellor retired. Retweet not endorsement
Sten Helmfrid 🇺�.. @StenHelmfrid
7K Followers 205 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Whitney Dafoe @DafoeWhitney
10K Followers 38 Following Severe ME/CFS patient and advocate. Photographer, filmmaker, artist, creative. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊
Vlad Vexler @VladVexler
17K Followers 841 Following Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Born in Russia, home is London | Living with ME since 2003. | 🔗 🎥
Martin Hippe @pausedME
7K Followers 474 Following East Westphalia by Nature ⎮Lawyer by Profession | #Musikrecht | #MECFS | @Mirame_Arts | No medical advice!
YouFibre @youfibre
2K Followers 36 Following Join the UK’s fastest growing ultrafast Internet service from as little as £21.99 a month. For support call 0330 822 2222 or Live Chat 24/7 at https://t.co/XbP15mgKLU
AirSpot Health @airspothealth
669 Followers 2K Following Our smallest fresh air monitor! Combines with the AirSpot App to help optimise your AirHealth.
Ror Preston @RorPreston
2K Followers 555 Following Lead Data Scientist @visible_health 💙 | Organiser @wecrunchme 🗺️ | #MECFS since 2018 | Own Opinions
Premier Inn @premierinn
93K Followers 18K Following Hello! 👋 From booking to bed, we’re here to help you rest easy. Give our support team a shout 8am-7pm, Mon-Fri. Book direct at https://t.co/Ws1builwty & rest easy
Scunthorpe United FC @SUFCOfficial
79K Followers 775 Following 𝕏 feed of the Iron 📧 [email protected] 🎟 https://t.co/CyJAb287fz 🛍 https://t.co/Wjd1dunOtI 💻📱 Follow us across social media @SUFCOfficial
ThePioneer @ThePioneer518
82 Followers 106 Following
Anne Marie @annesmithmcc
2K Followers 3K Following Mum of two boys. Interested in education 🎓 and various other things. #FBLC
Danilo.Buonsenso_Surf.. @surf4children
3K Followers 661 Following Pediatrician/pedsID working on #longcovidkids, #TB, #congenitalinfections☀️funder of surf4children no profit
Pierre Naoum @PCCC90
92 Followers 181 Following
Deborah Sanderson @DeborahClaireUK
218 Followers 41 Following Aviation & Meteorological data Skew-Ts : METARs : Tephigrams I also teach Chemtrail believers how to read and understand articles and documents.
Ruth Langford @Ruth_Langford
3K Followers 5K Following Dual Qualified Family Law Paralegal (England& Wales, and Scotland). #longcovid #pwME 👨🦼 Adult human female. All views my own.
Holly Stortholme @hollystortholme
3K Followers 242 Following COVID IS AIRBORNE, BSL 3 virus. Always masked indoors/outdoors. Breathe clean air. Covid is a vascular disease and maims immune system!!!
Başar SARIKAYA @basarsarikayamd
3K Followers 1K Following Associate Professor of Neuroradiology, University of Washington, PGY-24, G93.32
Sir Cole @ColeSheyi
1K Followers 535 Following in some motion pictures - Jason in @netflix The Beautiful Game ⚽️💙
Holy Crayons (That Cr.. @HolyCrayons
5K Followers 3K Following Fan of Profanity. Mother of Crotch Goblin 1.0™️ and Crotch Goblin 2.0™️. Wholesome fun for all the family. Probably wearing pyjamas. Bangs on about Bowie a bit.
Auschwitz Memorial @AuschwitzMuseum
1.6M Followers 2K Following Former German Nazi concentration & extermination camp Auschwitz. Official account. We commemorate victims, educate about history & preserve the authentic site.
NickyProctor @NickyProctor
1K Followers 4K Following Writing up my #PhD in coach learning & development @LeedsBeckett and campaigning for better healthcare #MEcfs #POTS
Janet Sylvester @JanetSylvester
54 Followers 147 Following
Matt Nisbet @MattNisbet6
820 Followers 830 Following GP, @HIOW_ICS Board member, Clinical Lead for #CovidVaccine, trying to juggle work, parenting, marriage, running, committed introvert
Fiona Finlayson Art @ffinlaysonart
10K Followers 6K Following Scottish needle felter - Edinburgh College of Art graduate - Kirstie’s Handmade Christmas 22 https://t.co/iOhhmTtTdY DM for details Obsessed with Orkney!
Woozle @WiredWoozle
118 Followers 1 Following The more we get sick, the sicker we shall be. ❤️everyone, 🚫obstinate bullying | #pwME | Not seeking followers
Renuka Dhinakaran @renudhinakaran
6K Followers 602 Following International Labour Lawyer Patient Advocate for #hEDS #POTS #LongCovid #rheumatoidarthritis #Dysautonomia Focusing on marriage, parenting & chronic illness
daringshift @daringshift
2K Followers 1K Following Complexly chronically ill 2015-2023. Recently achieved full remission of symptoms. Hoping to help others do the same.
CrunchME @wecrunchme
765 Followers 35 Following Mapping the scientific, tech & advocacy ecosystem around #MECFS, #LongCovid, and other infection-associated chronic illnesses 🗺️ | Organised by @rorpreston
Cauvery Madhavan @CauveryMadhavan
8K Followers 7K Following Novelist:Paddy Indian, The Uncoupling,The Tainted @hoperoadpublish @PenguinIndia, @AAKnopf @speakingtiger14. NEW BOOK: THE INHERITANCE Sept’24. ❤️Golf❤️
Snowy @SnowyPanthera
643 Followers 1K Following Animagus. Hearty but not hale. Celebrant of beautiful action. Likes bicycles. Note: The only time I post with my real name is in scientific journals.
Kyle @kylofone
502 Followers 931 Following used to spend a lot of time listening to loud guitars. now i mostly drink cinnamon tea. carer for my partner with very severe ME / Long Covid
Jeffie 💫♿️ @JeffiePlays
3K Followers 851 Following 18+ I'm not a babysitter ♡ She/Her 🏳️🌈 ♡ award winning disability activist & your worst nightmare ♡ @sootspritesTV ♡ Business email: [email protected]
C. J. Tudor @cjtudor
23K Followers 3K Following Bestselling author. Dog lover. Gin drinker. Tattoo enthusiast. New novel, THE GATHERING, out now. Order: https://t.co/2PeKtFVOUH.
Pammy @PamsyNut
12 Followers 48 Following Long term M.E., Treasure close family and friends, adore our Jack Russell, love watching nature and feeling the sun and wind on my face.
Kirsty Schnickelfritz @KSchnickelfritz
3K Followers 1K Following Licensed to rest. Untapped resource, just mucking around.
Bitch is still my Sup.. @JulieTheCranky
4K Followers 1K Following JulieTheCranky on Discord. SamuraiKnitter on Tumblr. Juvenile product of the working class. #BroochWarfare #FashionWatch #JewelryWatch She/her/they. #CRPS
George Galloway MP @georgegalloway
725K Followers 16K Following Straight talking, straight forward. @WorkersPartyGB Member of Parliament for Rochdale. Seven time Parliamentarian
Michelle Russell @MotherMRuss
7K Followers 5K Following Nurse.Reader.Square.Feminist.Truth teller.Tea drinker. Lost my job as NHS nurse Feb 2024 after reporting sexual assault by a male nurse.
Simon Elliott @SimonEllio75045
59 Followers 340 Following Stuff happens but the Lord knows why and brings light out of darkness.
Etta Loveday @EttaLovedayME
355 Followers 172 Following She/Her, Rising awareness for people living with severe/very severe ME! #ME #SevereME
Layne Norton, PhD @BioLayne
200K Followers 423 Following Dad. Natural Pro BBer. Nutritional Sci. PhD, 4x Powerlifting National Champ. Author: Fat Loss Forever. BS Crusher @carbondietcoach co-founder
Elizabeth Ansell @elizansell
685 Followers 2K Following Founder @njfatigue. Previously at Showtime and ABC News, among other places. Quit career due to #MECFS. This is #NotJustFatigue.
#NotJustFatigue @njfatigue
582 Followers 656 Following We are a 501(c)(3) sounding the alarm on ME/CFS through digestible, creative content. This is #NotJustFatigue
Donna @DonnaMerritt8
216 Followers 625 Following Ex Nurse Practitioner… 37 year career ended by #LongCovid #ME #Dysautonomia #POTS Nature 🍂 and Book 📚 Lover …Mum of one ❤️ Life on hold 🏡 🛌 since Sep 2020
Lovage Bites @lovagebites
1K Followers 2K Following When I’m the only damn person wearing a mask in a store, I feel like a scientist, a doctor and a goddamn genius. Tired of people Cosplaying 2019.
Sally @sallyann98745
4K Followers 556 Following ‘Survivor’, Activist, Chronic Fatigue/Pain warrior, Passionate about connection & safe spaces for sexual abuse survivors, justice searcher, Cat Mum 🐈, Arty
Joan McParland MBE-My.. @JoanMcparland
413 Followers 432 Following 1999 Sudden-onset virally induced, WHO classified Myalgic Encephalomyelitis - a multi-system chronic disease NOT tired/fatigued. Breakthrough Leader NICON2018
𝕵𝖔𝖍𝖓, �.. @JohninBucuresti
8K Followers 7K Following An Englishman in Romania. 🇹🇩🇪🇺🇬🇧 Teacher for 20+ years then worked in legal firm. Still UK taxpayer & voter. Now enjoying early retirement. #GTTO #FBPE
Jaymie Gill @JaymieGill
648 Followers 688 Following Design. Content. Tech. Investing. Fashion. Music. Instagram: @jaymie.gill Rest @ https://t.co/iKlqOVVhBF
Beach-Crow @ginadariel
398 Followers 619 Following Former Therapist, Artist, dancer of a life lost to ME 8+ years. Anti-Austerity Pro-Compassion. Invisible Rainbow, PHD, Nature.
Steve Craggs @stevecraggs84
75 Followers 236 Following Advanced guitar tuition available at the link below ⬇️ ⬇️A lovely wee dog was the subject for this needle felted portrait
So I came out the house at 5 am this morning to check if the car was frozen and I saw this bloke leaning on a wall with a walking stick I thought he must be out of breath just came out the door now at 6 40 and he's still there I shouted mate you alright then go no reply I walked…
So, we should hopefully be able to watch the debate tomorrow 4.30pm on BBC parliament tv on Sky And on Parliament TV 🤞🙏parliamentlive.tv/Event/Index/0c…
Huge thanks to Nicola for sending this well written message to @sajidjavid on behalf of us all as the ME community We’re all very grateful to the hard work of @TheChronicColab who really have gone above & beyond for Millie & Carla & their families. #BetterTogether ✊
#MEcfs Westminster Hall debate: We have sent your open letter to @sajidjavid and cc'd @actionforme @SonyaChowdhury in. The below is what we said - we hope it's OK #SaveCarlasLife #BringMillieHome: Good afternoon, Firstly, we would like to thank Sajid for convening the…
@Amal4Solutions They’ll do anything as long as it’s not a vaccine and a mask
This identification of people for removal is reminiscent of the darkest days of the early twentieth century. #C4News
First rest in my little garden retreat with dappled sunlight filtering through the leaves, a gentle breeze and a robin singing on a branch
When I do manage to get out, it feels surreal. Nippy and windy today as Summer rehearses. #Bath
@cfs_jo @fionangreg Bottom of page 19. "We want to think about working together more closely with local councils and the NHS. This would help us to make best use of our money." OUR MONEY !!!?
Would so love to be there with my family and loads of friends. Bloody #ME , bloody, bloody ME 😢
Johnny and @RobGMacfarlane's ‘River Calls’ UK tour begins tomorrow, starting in Leeds. These screen prints were made by Jon Mackay - swipe to see a video of Jon creating them. There will be T shirts, vinyl and other merchandise on sale.
Excellent article theguardian.com/commentisfree/…
not to be the kind of person who narrates her whole life but i leave the house so very rarely things in Manchester so far: -tiny dog with fluffy tail and pendulous belly -so many babies doing baby things -girls discussing doing jello shots at 4:30pm -the outdoors! it exists!
@CoastalK8 @girlnextshore Beggars belief not one person on a cancer ward has a mask on. I don’t have words.
The trouble is I persistently don’t think I am old. In my head I still have the same face I did age 26-29… The mirror no longer is prepared to humour me on this one.
@sueveneer That’s really shitty advice from Pam! What if the only way she can orgasm is through oral? No thought for the woman at all! I can’t wax or shave because of the itching that follows. My husband has never complained! He’s just glad to get at it! 😂🤣😂
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