davidtuller @davidtuller1
Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients. San Francisco, California Joined September 2012-
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@davidtuller1 Thanks David. I felt so disheartened by Australia’s backward stance on ME/CFS when I read that appalling update I wrote some thoughts of my own. Now I’m thinking I was a little too polite about it considering how angry I felt.
@davidtuller1 Thanks David. I felt so disheartened by Australia’s backward stance on ME/CFS when I read that appalling update I wrote some thoughts of my own. Now I’m thinking I was a little too polite about it considering how angry I felt.
Seems like Australian GPs are still bonafide members of the GET cult. They have apparently learned nothing in recent years and continue to parrot nonsense--and even cite the fraudulent PACE trial as "evidence" for something. virology.ws/2024/04/25/tri…
I am in the same position, except I worked on a kibbutz after college, and I agree.
I am in the same position, except I worked on a kibbutz after college, and I agree.
I posted this interview with Guardian columnist @GeorgeMonbiot a week ago. It's gotten almost 5,000 views, which is a lot for me. Here it is again: youtube.com/watch?v=GC5i3v…
It's really nonsense. What is RACGP thinking? Or maybe they're just not thinking at all...
It's really nonsense. What is RACGP thinking? Or maybe they're just not thinking at all...
Wow, that's very disturbing! Shameful, really. Any trial in which participants were "recovered" on a key variable at baseline, as in PACE, clearly meets standard definitions of research misconduct. The PACE trial is fraudulent.
Wow, that's very disturbing! Shameful, really. Any trial in which participants were "recovered" on a key variable at baseline, as in PACE, clearly meets standard definitions of research misconduct. The PACE trial is fraudulent.
More nonsense from HANDI in Australia, still promoting discredited GET--rechristened as "incremental physical activity." @ElizaCharley provides the low-down.
More nonsense from HANDI in Australia, still promoting discredited GET--rechristened as "incremental physical activity." @ElizaCharley provides the low-down.
And for those who haven't seen it, here's the video of my interview with @GeorgeMonbiot about the "national scandal" involving the decades-long mistreatment of patients with ME/CFS: youtube.com/watch?v=GC5i3v…
And for those who haven't seen it, here's the video of my interview with @GeorgeMonbiot about the "national scandal" involving the decades-long mistreatment of patients with ME/CFS: youtube.com/watch?v=GC5i3v…
Last week I spoke with Guardian columnist @GeorgeMonbiot about his scathing rebuke of the biopsychosocial brigades and their bogus research into ME/CFS and Long Covid, the so-called "Science Media Centre," etc. Here's an edited transcript of our convo: virology.ws/2024/04/23/tri…
As I pointed out recently, the trial website still has a FAQ page that says "coming soon." This trial has been going on for a while. How can anyone take a trial seriously when the investigators don't even bother to write up a FAQ page to explain it?? virology.ws/2024/04/10/tri…
As I pointed out recently, the trial website still has a FAQ page that says "coming soon." This trial has been going on for a while. How can anyone take a trial seriously when the investigators don't even bother to write up a FAQ page to explain it?? virology.ws/2024/04/10/tri…
My interview with @GeorgeMonbiot has had 2500 views since I posted it two days ago. I'm going to post an edited transcript later, but for now here's the video again: youtube.com/watch?v=GC5i3v…
My message about the treatment of Severe ME patients in NHS hospitals: patients, families, carers feel stuck between a rock and a hard place. #SaveCarlasLife #ExposeMENow
1/ Pls consider this: I’m genuinely sorry about this; it must be distressing, and I condemn it. I & others were on receiving end of foul, unhinged online abuse & defamation by a prominent psychologist who had weight of prestigious institutions behind him. thoughtsaboutme.com/2016/02/29/has…
1/ Pls consider this: I’m genuinely sorry about this; it must be distressing, and I condemn it. I & others were on receiving end of foul, unhinged online abuse & defamation by a prominent psychologist who had weight of prestigious institutions behind him. thoughtsaboutme.com/2016/02/29/has…
What the hell is going on here??? Something needs to happen so these young women don't die! thecanary.co/uk/analysis/20…
Adam, thanks for doing this!!
I completely agree. I have zero interest in engaging with him again, especially after he accused me of "lying" about the fraudulent PACE trial. But criticizing his bogus claims is one thing. Attacking him personally for being gay is disgusting, shameful and totally out-of-bounds.
I completely agree. I have zero interest in engaging with him again, especially after he accused me of "lying" about the fraudulent PACE trial. But criticizing his bogus claims is one thing. Attacking him personally for being gay is disgusting, shameful and totally out-of-bounds.
TBC: I disagree with almost everything this person posts. If I'm honest, I've even come to dislike him for the beliefs/opinions he holds. But I would never hate him for who he is fundamentally as a person. Harassment like this is never acceptable. Zach I'm sorry this happened.
TBC: I disagree with almost everything this person posts. If I'm honest, I've even come to dislike him for the beliefs/opinions he holds. But I would never hate him for who he is fundamentally as a person. Harassment like this is never acceptable. Zach I'm sorry this happened.
I spoke earlier today with The Guardian's George Monbiot about his recent scathing column on a "national scandal"--the longstanding mistreatment of those with the illness (or cluster of illnesses) currently known as ME/CFS. Thanks @GeorgeMonbiot! virology.ws/2024/04/18/tri…
Amazing! This brings tears to my eyes!!!
Amazing! This brings tears to my eyes!!!
@sunsopeningband @davidtuller1 @PutrinoLab @dysclinic Please help by sharing. We need all eyes on this heartbreaking abuse of #MECFS patients in the UK.
@sunsopeningband @davidtuller1 @PutrinoLab @dysclinic Please help by sharing. We need all eyes on this heartbreaking abuse of #MECFS patients in the UK.
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Sten Helmfrid 🇺�.. @StenHelmfrid
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Dan Wyke 🦠➡️�.. @Dan_Wyke
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Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
S Blitshteyn MD, FAAN.. @dysclinic
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Dr Keith Geraghty @keithgeraghty
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Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
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TikiaJan Autodéfense.. @grevepaysbasque
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37 Followers 90 Following Mother/Carer of Very Severe M.E sufferer of 7yrs. Daughter is @FrickerAlice
GermanCucumberCT24 @GermanCucumber1
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Maddy Corper🦼🚂�.. @BRTractorDrver2
36 Followers 107 Following Mother, wife, ex-locomotive engineer, singer, learner bass player, long hauler/pwME and amateur virologist!!
Franz von Hahn @FranzvomHuhn
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[email protected].. @flossieallenya1
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Touché Turtle @ToucheTurtlez
138 Followers 182 Following
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G R A C E 🌸 @withgrace___
87 Followers 292 Following 🥀 severe ME/CFS mama to baby son ❤️ heart full, body broken 🌻 INFJ
True M.E. Uncensored @TrueMECFS
30 Followers 2 Following Uncensored personal comments and understanding of the Neurological Medical Condition/s Myalgic Encephalomyelitis (ME/CFS) and LongCovid (LC).
not here @legitg00blin
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Paylz @paylzdig
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Graeme Murray @grm_uk
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Ros 🇬🇧 @ros_tinkler
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Anita White #DidIMent.. @RealAnitaWhite
5K Followers 6K Following Medical Practitioner, retired. Prevention is core to Public Health #KeepN95InHealthcare #CleanAir for schools now! RT/Like not endorse. Personal opinion only.
Kath masked to the ma.. @Kath64867268
604 Followers 1K Following justice for refugees standing with First Nations people #paytherent https://t.co/mvf7rGvELt furious at the abandonment of sane public health mitigations
Gaby @gabypsilonGaby
485 Followers 2K Following former blue check @[email protected] #EBV #LongCovid #severeMECFS #PoTS #MCAS
B @OnLeePhan
31 Followers 125 Following
Soph @Sophs0123
612 Followers 898 Following Health professional/evidence-based researcher. *PREVENTION* over INFECTION. pwME & MdDS. Opinions my own. “Good health is an essential right”
Kathleen Dallest @KDallest94503
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Nora Lennox @NoraLMartin
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SERRARANO @Aroju111
390 Followers 4K Following This is my backup account. Drop your CashApp tag 🏷️ Ask me for blessing you can also dm with your trust wallet inbox me now for your blessings ❤️💐💯💰💵💸💲
Sam @sam_twitt3rs
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The Vigilant Fox🦊 @VigilantFox34
528 Followers 711 Following Editor-in-Chief @VigilantNews. Writer, video clipper, and pro-freedom citizen journalist with 12 years of healthcare experience. Inquires: My backup Account
Dystopianne @saminalberta
819 Followers 2K Following Neurodivergent grad student doing my best to undermine the systemically ableist, sexist, racist & colonialist structures that are ubiquitous in 🇨🇦 (she/her)
Donna Elena Gliana @Donnagliana888
4K Followers 5K Following Loves horses,dogs and fram life!Kindness matters most of https://t.co/OLGWsMbh1S DM’s unless it’s about your account. #Resist #Equality #BLM #LGBTQ+ Me Too😍
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Bilge Cetin @CetinBilge
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Christine Loriol #Dav.. @ChristineLoriol
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Deb (parody) #LeagueO.. @deborahbrian
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Nina Bradshaw @ninabrad5678
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Janet Dafoe @JanetDafoe
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Hannah Davis @ahandvanish
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Jonas R. Kunst (@kuns.. @KunstJonas
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It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
ME/CFS News @MECFSNews
15K Followers 712 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
Anil van der Zee © @AnilvanderZee
9K Followers 823 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
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Sten Helmfrid 🇺�.. @StenHelmfrid
7K Followers 205 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Christoph Ströck @cstroeckw
7K Followers 455 Following Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founder
Adam @ABrokenBattery
6K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
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S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
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Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
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Alan Baxter ♛ @AlanBixter
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Lisa Guerrero 💃�.. @4lisaguerrero
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Fiona Wood ♿️💙.. @fionangreg
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NickyProctor @NickyProctor
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Nicole C Rust, PhD @NicoleCRust
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Keith Edwards @keithedwards
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C.H. Romatowski @CHRomatowski
508 Followers 791 Following Account used sporadically to engage with research. Tweets delete.
Cheri Jacobus @CheriJacobus
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General Mike Flynn @GenFlynn
1.6M Followers 18K Following Faith, family, freedom, Twice a best selling author. Former National Security Advisor to 45th POTUS. 🏄🏻♂️ 🌊 🇺🇸
Republicans against T.. @RpsAgainstTrump
636K Followers 5K Following Pro-democracy conservatives Republicans fighting Trump & Trumpism. Please support our work: https://t.co/FkmisNic4X
Mindy Kitei: journali.. @CFSCentral
214 Followers 456 Following I'm a science reporter who's covered ME/CFS since 1994 in print and on CFS Central, & co-author of Sugars That Heal: The New Healing Science of Glyconutrients.
JeanneWrites @JeanneMcArdle
878 Followers 1K Following Studying Narrative Medicine @ Columbia. Cornell MPS Communication. Chronic dynamic illness/Disability: cEDS, Graves’, hyperPOTS. #Writer.
Danielle Beckman @DaniBeckman
24K Followers 6K Following Neuroscientist 🇧🇷 at the @CNPRCresearch working with primates. I like taking pictures of weird things happening in the brain 🧠🔬. #NeuroCovid is real.
Hugo Lowell @hugolowell
238K Followers 8K Following Political investigations reporter @Guardian covering Trump and the Justice Dept. Formerly sports politics and Russian doping. [email protected]
Daniel Missailidis, P.. @DanMissailidis
782 Followers 360 Following Researching ME/CFS and Long COVID at La Trobe University in Melbourne, Australia. Papers/info at the following: https://t.co/fSVtdrjrfl
Francisco Westermeier @fcowester
887 Followers 536 Following Biochemist/Physiologist interested in metabolic and cardiovascular abnormalities in ME/CFS. Deputy Editor in Cardiovascular Diabetology
Jan L Wade Esquire @JanLWadeEsquire
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CEBM @CebmOxford
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The Boudica @BoudicaThe
2K Followers 2K Following Former Mental Health Professional, complex health condx, witnessing historical levels of corruption in plain sight. The personal is the political...VOTE.
Lock him up ☮⚖☯.. @LILLIES007
19K Followers 19K Following WokeAF • Dad was Army WW2 • Kindness matters • ProChoice • Blm #bluecrew Ally for 🏳️🌈 Peace for 🇺🇦 Hillary was right about everything
Ondine Sherwood 💙 @selkieO
1K Followers 918 Following IT professional. Recent graduate @UCLSELCS MA PPE of Health. @HRA_latest REC member. Campaigning for rights of those with #LongCovid @LongCovidSOS
Dr Tom Maden-Wilkinso.. @TMadenWilkinson
3K Followers 5K Following Assoc Prof as part of @SHU_PAWPH. Research Interests in Skeletal Muscle, Imaging, Ageing and Strength Training @strength4_life. My opinions only.
Michael Alexander @Michaeltikus
956 Followers 2K Following I like animals 🐙 Zoology/Psych PG interested in nature connections, diving and tapirs. Member @Long_Covid / @RenegadeRes Lead contributor @wecrunchme LC-PLAN
Claire Jones @Claire145
848 Followers 620 Following BCUHB Consultant Physiotherapist. Long Covid Physio Disability & Safe Rehab Committee Member. DProf Student at Uni of Chester. Views are my own.
Jenny Meagher @JennMeagher
1K Followers 1K Following Life stolen by Myalgic Encephalomyelitis. Waiting to be rescued by science. Science waiting to be funded by governments. #MECFS
Mia Farrow 🏳️.. @MiaFarrow
471K Followers 1K Following “I've learned that people will forget what you said, people will forget what you did, but people will never forget how you made them feel.”. - Maya Angelou ♥️
Chris Palmer, MD @ChrisPalmerMD
94K Followers 740 Following Harvard #psychiatrist working at the interface of #metabolism and #mentalhealth. Author of Brain Energy, available now! https://t.co/bZ0wRxj2Yk.
Marco Wetzel (is figh.. @Gmwetz
2K Followers 831 Following Founder of @U2Fight_world // #UniteToFight2024 // #LongCovid and #MECFS advocate // #longcovid patient
James Dalton @jardalton
345 Followers 271 Following Computational biologist. Interested in long covid, persistent Lyme disease and fluoroquinolone-associated disability (FQAD). Views my own, not medical advice.
ME Accountability @No_ME_Denialism
54 Followers 269 Following Working to dispel myths & refute lies about Myalgic Encephalomyelitis. No harassment, doxxing, stalking, or threats. Don't care about your politics.
Tara Setmayer 🌻 @TaraSetmayer
177K Followers 3K Following 🏴☠️Sr. Advisor @ProjectLincoln, @Center4Politics Resident Scholar @HarvardIOP Fellow alum,Fmr GOP Comms Dir, @CNN alum, Emmy nominated, Sane conservative
Kristy Greenberg @KGreenberg_
5K Followers 130 Following @MSNBC Legal Analyst. Former SDNY Criminal Division Deputy Chief. Diehard Detroit Lions, NY Knicks and NY Yankees fan. Wife and Mom.
allyann @me_allyann
2K Followers 5K Following Living with & advocating for ME, POTS & FM, ex IT. Homebound & at times bedridden. I regularly delete tweets. @allyann.bsky.social #mecfs #pots #fm #endo
Kamran Abbasi @KamranAbbasi
19K Followers 541 Following Editor in chief, The BMJ @bmj_latest | @EditorJRSM | i: @kamran_abbasi_bmj | Cricket writer: Dawn | https://t.co/Z5D0jqLAde | Book: ‘Englistan’ via Amazon@davidtuller1 Thanks David. I felt so disheartened by Australia’s backward stance on ME/CFS when I read that appalling update I wrote some thoughts of my own. Now I’m thinking I was a little too polite about it considering how angry I felt.
My thoughts on @RACGP's latest update of their HANDI guidance on #MECFS chronic fatigue syndrome, graded exercise therapy being disguised as incremental physical activity & what that means for people with #PEM & well defined #MyalgicEncephalomyelitis amandafrancey.medium.com/wolf-in-sheeps…
Why don't these people realise that being selective with the truth is little different from outright lying?! #PostOfficeInquiry
NIHR study finds a raft of inflammatory blood plasma markers in Long-Covid patients. No surprise to the ME/CFS researchers. SO is exercise a cure of chronic immune activation - no; is CBT, no, but may be helpful to adjust and reduce stress. nihr.ac.uk/news/nihr-fund…
Brain Fart @davidtuller1
It's really nonsense. What is RACGP thinking? Or maybe they're just not thinking at all...
@davidtuller1 @GeorgeMonbiot I’ll say it again, WATCH IT EVERYONE PLEASE
@LongCovidAdvoc @davidtuller1 @GeorgeMonbiot When I saw Prof. Tony Pinching at Barts in the late 1980s, he gave me the validation I so dearly needed. I was 22. I have ME. Since then, I learned to keep quiet after awful medical misogynistic abuse and gaslighting. I'm 58 and wise now. All allies appreciated. 💜
@davidtuller1 @GeorgeMonbiot Thanks, David: I struggle with videos longer than a few minutes. And thanks, George: I really look forward to your investigation of the Science Media Centre.
@davidtuller1 @GeorgeMonbiot Thanks for your work and dedication 🙏
@davidtuller1 @NickyProctor @GeorgeMonbiot 🤣 we are restraining ourselves.
@davidtuller1 @deborahbrian @PutrinoLab @MVGutierrezMD Oh yes, and especially blame the patients!
@davidtuller1 @mhornig @PutrinoLab @MVGutierrezMD Perhaps you're not using the right search terms. Try realigning your effort preference to GoGET'em or GASLIGHT and see if that yields better results 😎🤓😎
@davidtuller1 @mhornig @PutrinoLab @MVGutierrezMD 🙄 Try harder, you may have childhood trauma blocking your progress 😬
@davidtuller1 @PutrinoLab @MVGutierrezMD You’re obviously not trying hard enough!! 😵💫
@PutrinoLab @MVGutierrezMD David, I know you're feeling apprehensive about your tendon issues, but I'd strongly encourage you redirect your effort preferences. I believe your inflammation is real - but focusing on what you CAN do instead of what you can't will help you find the courage and motivation to…
@davidtuller1 @DavidJoffe64 I hope to see that quote on the back cover of Andrew’s memoir.
@davidtuller1 @NickyProctor @GeorgeMonbiot It's fantastic. We are slightly in love with both of you here at Cambridge ME Group... 😊
@davidtuller1 @GeorgeMonbiot Well, we know where to find him in case we go extinct....nowhere! And on a serious note, thanks from the bottom of our 'fatigued' hearts for being on our side, not theirs.
@davidtuller1 @GeorgeMonbiot Was looking forward to this, everything is on point, am not disappointed! Just slightly worried about what else Georde might write about & cause 😅 (M...mass extinction?)
@JKBurmeister Grinning Zachary is a troll receiving more attention than deserved. He is nobody important. On Coyne, shocking. FYI I'd rather be represented by a "crazy lawyer" than a misogynistic institutional bully. Thanks for your years of excellent advocacy. At great personal cost.
@davidtuller1 Hahaha! Note to self; don't tweet at the end of the day when you start crashing, you might forget to add a few words 😂 I'm not a swifty, but I would love to hear about all those topics from the two of you! But I especially love everything about ME and LC 😉!
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