Hannah Davis @ahandvanish
Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked hannahishere.com Joined September 2010-
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If they ask you if you are dangerous, do not disavow your own power‼️ Say: YES, WE ARE DANGEROUS. WE ARE A DANGER TO THE DEATHMACHINES. WE ARE A DANGER TO ALL THIS DEATHMAKING. WE ARE A DANGER TO THIS ANTI-LIFE ORDERING OF THE WORLD. AND NOW WHAT. NOW WHAT?
*Japan has entered the chat*
Students at Northeastern University block police vans from leaving with arrested students. You love to see it.
please do not come to encampments ill. please take a rapid nose + throat/pcr. please wear a high qualify respirator. at least wear a medical. please.
Would people in NYC attend free, outdoor COVID-safe DIY workshops? Like basic construction(using a screwgun etc), tying knots, basic electric work, knowing how to use small hand tools? I feel like these skills are needed in community-led spaces
This is breathtaking: almost all Latvian classrooms' CO2 levels can be checked online. This is what world-leading actually looks like. More info: eng.lsm.lv/article/societ…
This is breathtaking: almost all Latvian classrooms' CO2 levels can be checked online. This is what world-leading actually looks like. More info: eng.lsm.lv/article/societ…
“Critically, the trail was flat and groomed—carefully selected since one participant was a wheelchair user…” That was me. And it was an amazing outing. What else could I do if others made a fraction of the effort Ed did to make this outing accessible? audubon.org/magazine/new-b…
“Dr Simon Williams.. said the findings indicated an absolute public health crisis” “If 5 years ago, we were to imagine a completely new disease can cause.. disabling symptoms in approx 3% of the population.. we would be enormously concerned.” #LongCovid theguardian.com/society/2024/a…
If anything concerns me about the #H5N1 outbreak, it’s this: “@USDA knows much more than they’re sharing … for a reason.” Certainly can’t rule out unpreparedness or incompetence, but there are also economic incentives to keep things hidden.
New study!! Lots in this paper but interesting takeaway - #LongCovid patients with higher blood viral load had lower immunometabolism scores (meaning the interaction between the immune system and metabolism). LC patients also had significantly decreased lymphocyte activation!
New study!! Lots in this paper but interesting takeaway - #LongCovid patients with higher blood viral load had lower immunometabolism scores (meaning the interaction between the immune system and metabolism). LC patients also had significantly decreased lymphocyte activation!
#LongCovid is complex to diagnose and treat, so we need #biomarkers! 1. to confirm viral persistence, and 2. to map the failing/overactive immune response. So we tried to hit two birds with one stone using digital transcriptomics 👇👇 (1/n) thelancet.com/journals/lanmi…
It's a short paper so details are in the Appendix 🤓 Look below at the very homogeneous controls (green) and the wild variation among #LongCovid patients: some are similar to controls but half are "deficient" in lymphocyte activation and immunometabolism -> higher viral load!
@resiapretorius Immune status in #LongCovid is neither hyperinflammation nor immunodepression BUT we find lower lymphocyte activation (yellow dots above) and lower #immunometabolism (blue dots) =similar to findings @RobWust team (but we find lower IDO1 not higher IDO2) pubmed.ncbi.nlm.nih.gov/37506544/
I love this so much! "The real data set': a case of challenging power dynamics and questioning the boundaries of research production." Looks at power dynamics in knowledge creation wrt community expertise & academia, very relevant for patient-led research too! Amazing @vee_etc!
I love this so much! "The real data set': a case of challenging power dynamics and questioning the boundaries of research production." Looks at power dynamics in knowledge creation wrt community expertise & academia, very relevant for patient-led research too! Amazing @vee_etc!
I received a broken wheelchair from a company I thought was legitimate but is actually predatory as f. And now I’m suing them and I’m soooo tired from this and the disability insurance battles and medical collections appeals. Flaring again from all the stress.
When mass organizing occurs very quickly it’ll bring a lot of new folks and faces that may not have participated in such an event before. Here are a few quick tips to remember:
My book, #RebelHealth: A Field Guide to the Patient-Led Revolution in Medical Care, is available as a hard cover, digital, or audiobook, wherever books are sold susannahfox.com/rebel-health/
If I hosted a pod mapping session for pwME would people wanna join? It might be a little emotional but I also feel it’s super helpful for crisis responding in emergencies. More on pod mapping : batjc.wordpress.com/resources/pods…
Did you know there's a type of anxiety specific to autism that isn't explained by any of the anxiety disorders currently included the DSM? Researchers are referring to this type of anxiety as "Distinct anxiety" because it's distinct to autism and tied to autistic traits.
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQsProf. Akiko Iwasaki @VirusesImmunity
220K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII President of @ImmunologyAAIResia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammationPutrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.Dr Satoshi Akima FRAC.. @ToshiAkima
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20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]laurie allee (retired.. @laurieallee
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6 Followers 51 FollowingMANZI Ndamukunze @MNdamukunze
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32 Followers 364 FollowingR.grid @researchgrid
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11 Followers 115 FollowingAl 🥀 @al_lawson20
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5 Followers 104 FollowingFacultad Farmacia UCM @ffarmaciaUCM
890 Followers 888 Following Perfil ofical de la Facultad de Farmacia de la Universidad Complutense de Madrid (antigua Universidad Central) desde 1804.LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQsProf. Akiko Iwasaki @VirusesImmunity
220K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII President of @ImmunologyAAIResia Pretorius @resiapretorius
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34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.Dr Satoshi Akima FRAC.. @ToshiAkima
34K Followers 3K Following Nephrology & Internal Medicine. Immunothrombosis incl DIC. @ISTH Member. No Conflicts of Interest. Views my own etcShaney Wright @ShaneyWright
15K Followers 493 Following @WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLCJonas R. Kunst (@kuns.. @KunstJonas
17K Followers 723 Following Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Founder @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]laurie allee (retired.. @laurieallee
26K Followers 8K Following ✌😷 Account is archive. See pinned tweet for most useful Covid threads, including duplication website. I do not check messages here. Off all social media.Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKEDBinita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |Michael A Osborne @maosbot
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20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med adviceChris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.Gez Medinger @gezmedinger
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3K Followers 662 Following Pediatrician/pedsID working on #longcovidkids, #TB, #congenitalinfections☀️funder of surf4children no profitTom Wallach, MD @md_wallach
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368 Followers 419 Following Catalyzing scientific collaboration and discovery to find cures for chronic, multisystem disorders.Yann @yann_mecfs
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212 Followers 197 Following Artist, Long Covid, ME/CFS, POTS, previously Data Scientist. Life on pause due to #longcovidPeg Aloi @themediawitch
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2K Followers 3K Following The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ire for all patientsgisela @giselanutella
394 Followers 1K Following Mystical and strange, covid long hauler, writer/producerJhourney @jhanatech
3K Followers 279 Following Data-driven education for blissful meditation. Check out our upcoming meditation retreats -- IRL and Online, accessible globallyDr. Johnathan Flowers.. @shengokai
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8K Followers 3K Following Georgia Disability Caucus Chair. Candidate for GAHD 158. Guide Dog Handler, Social Scientist, Business Owner, Activist. 🇺🇸🇮🇪 Get Mad.ConCiencia ECAI @ConCiencia_ECAI
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3K Followers 3K Following Journalist covering chronic disease for @statnews.Alexis Cutchins, MD @alexiscutchins
377 Followers 138 Following Cardiologist with Emory Healthcare specializing in women and heart disease.Bernie Sanders @SenSanders
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17K Followers 3K Following Deputy Health Policy Director, U.S. Senate Committee on Health, Education, Labor, and PensionsL., MA @leslieleeiii
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338 Followers 276 Following Postdoc researcher investigating the mechanisms of Long Covid @imperialcollegeJon Favreau @jonfavs
1.4M Followers 2K Following The other one. @PodSaveAmerica, @CrookedMedia, https://t.co/mKXKFl0EF4, https://t.co/zvWhe0ETFEcarrie dalton @cazd45
1K Followers 1K Following Associate Professor of Neuroscience and Genetics @BMRC_News Theme Lead for Living Well with Chronic Disease @SHU_AWRCAmy DeBellis @lapis_lazuli11
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6K Followers 918 Following ⋆.•🪷 𓅼˚⁺ lover-in-residence :: https://t.co/iOedn1qFLP https://t.co/4DVpvsVWYH https://t.co/RMY6yE0n1sChris #Unite2Fight �.. @ungenesbar
763 Followers 420 Following LongCovid & ME/CFS activist // Core Member of @U2Fight_World // creator of https://t.co/O3DTXjWiPd // gayRadical Graffiti @GraffitiRadical
114K Followers 1K Following Just sharing pics of anti-capitalist, anti-authoritarian and anti-colonial graffiti, stickers and streetart seen around the world.sarah | ISO TS NOLA �.. @sunfl_0wer
475 Followers 765 Following i'm here, i'm queer, i'm a(n aspiring) cybersecurity engineer // @LSUCyber // long covid since 7/2020 // she/herPostX @TeamPostX
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80K Followers 2K Following editor @mcsweeneys Mother of: 👦🏼👶🏼🐈⬛🐈🐠🐌 Writer? Hungry. Tired.Bee, in a Mask 🍉�.. @beeimacat
470 Followers 2K Following Ready to find and spread peace #BlackLivesMatter #AbolishICE #DefundThePolice #OccupyICELA - she/her #LongCovid #MCAS #POTS #EDS #BipolarMegan Stevenson @MeganTStevenson
7K Followers 986 Following economist & legal scholar studying criminal justice. UVA law prof. w/long covid. research: https://t.co/kkj5xtHIjgAtlanta Long Covid Co.. @LongCovidATL
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120 Followers 491 FollowingSalamāsina (she/her) @salamasinamusic
4K Followers 1K Following Free Palestine! 🇵🇸/covid safety advocate 😷/bisexual menace🏳️🌈/half Samoan🇼🇸 🎶stream NOT FAIR🎶longcovidstudies @lcstudiesdotnet
287 Followers 0 Following Long Covid Studies makes it easy to find Long Covid research studies near you.If they ask you if you are dangerous, do not disavow your own power‼️ Say: YES, WE ARE DANGEROUS. WE ARE A DANGER TO THE DEATHMACHINES. WE ARE A DANGER TO ALL THIS DEATHMAKING. WE ARE A DANGER TO THIS ANTI-LIFE ORDERING OF THE WORLD. AND NOW WHAT. NOW WHAT?
"In the eyes of our enemies in the belly of the beast, we are all outside agitators." Reflections and questions from Within Our Lifetime on Encampments, Escalation, and the ongoing struggle to Defend Gaza and Free Palestine. Read the full statement here: wolpalestine.com/encampments
*Japan has entered the chat*
パレスチナ連帯キャンプを開始@東京大学 Started the Palestine solidarity camp at Univ. of Tokyo コロンビア大学をはじめとし、いくつかの学園でパレスチナ解放の直接行動が始まっている。 イスラエルはガザにある全ての大学を破壊した。…
“There are no universities left in Gaza. At Howard, we have $90M contract w/Dept. of Defense. As students across the DMV, we do not support campuses, which are supposed to be spaces of learning, to have relationships w/these genocidal entities” Howard U. students at GWU Protest
Can anyone without dysautonomia or POTS tell me what your heart rate is when you stand up? I just want to compare. Thanks!
Are any of the encampments showing the documentary Crip Camp? I’m just throwing that out there as an idea
Students at Northeastern University block police vans from leaving with arrested students. You love to see it.
an easy, non-violent way for universities to stop students protesting on their campuses would be if they divested from arms manufacturers
.@nycHealthy It's been 2 months since NYC wastewater was updated on NY State's website. You mentioned on April 2 you expected to resume uploading data to website at the start of this month. Do you know when NYC wastewater data will be updated? Thank you! covid.nywastewatcher.io
@myrabatchelder Hi there! We are still actively monitoring SARS-COV-2 viral load in NYC’s wastewater. Due to a change in methods, there is a pause in uploading data to New York States’s website. We expect to resume uploading SARS-CoV-2 viral load data in the next few days to that site.
please do not come to encampments ill. please take a rapid nose + throat/pcr. please wear a high qualify respirator. at least wear a medical. please.
Sharing this again since a lot of you, mostly fellow ⚪️, still don't get that masks are a necessity at protests and everywhere else. Your Covid safe comrades are NOT feds/cops for asking you to practice community care during a pandemic. Covid damages your organs and ages you
“But feds want you to cover your face” 🥴
Would people in NYC attend free, outdoor COVID-safe DIY workshops? Like basic construction(using a screwgun etc), tying knots, basic electric work, knowing how to use small hand tools? I feel like these skills are needed in community-led spaces
@t_NYC Honestly, I would love a community skill-share situation. I would love to teach people about how to make an HOCl Generator, do C-R box tutorials, teach basic circuitry, sewing, cooking, food storage, etc.
This is breathtaking: almost all Latvian classrooms' CO2 levels can be checked online. This is what world-leading actually looks like. More info: eng.lsm.lv/article/societ…
@ukhadds @mdc_martinus @erbrooker You can check almost all latvian classrooms here. co2.mesh.lv
“Critically, the trail was flat and groomed—carefully selected since one participant was a wheelchair user…” That was me. And it was an amazing outing. What else could I do if others made a fraction of the effort Ed did to make this outing accessible? audubon.org/magazine/new-b…
“Dr Simon Williams.. said the findings indicated an absolute public health crisis” “If 5 years ago, we were to imagine a completely new disease can cause.. disabling symptoms in approx 3% of the population.. we would be enormously concerned.” #LongCovid theguardian.com/society/2024/a…
If anything concerns me about the #H5N1 outbreak, it’s this: “@USDA knows much more than they’re sharing … for a reason.” Certainly can’t rule out unpreparedness or incompetence, but there are also economic incentives to keep things hidden.
These missing data are very important to be able to look at a “pandemic clock” to know the time, if clock is ticking, & how fast. The risk of human exposure has increased significantly from info learned over past week (mind you, very little if any real data have come from USG…
@ahandvanish Thanks Hannah! 😭 means so much coming from you. I am hoping to one day use some of these ideas to start writing more about patient-led research in medicine, especially for pwME and LC
#LongCovid is complex to diagnose and treat, so we need #biomarkers! 1. to confirm viral persistence, and 2. to map the failing/overactive immune response. So we tried to hit two birds with one stone using digital transcriptomics 👇👇 (1/n) thelancet.com/journals/lanmi…