KatherineLWall @violettiger50
my old X was @violettiger47 I'm an old gal that has had #ChronicFatigueSyndrome since Aug 1997, diagnosis Jan 1998 I also have other #invisibleillnesses Joined February 2024-
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Can we push this really important open letter to 1,500 signatures in the next 90 minutes? #SaveCarlasLife #BringMillieHome
Can we push this really important open letter to 1,500 signatures in the next 90 minutes? #SaveCarlasLife #BringMillieHome
Been outside for a walk and tired out. It's a beautiful day in Bridlington, I sat at the old cenotaph to rest for half an hour before I continued my walk around the block. I'm resting now before dinner 🍽️😁 #MECFS #chronicillness
1426 people have signed this 💚💚💚 would be nice to get to 1,500 before midday tomorrow #SaveCarlasLife #BringMillieHome
1426 people have signed this 💚💚💚 would be nice to get to 1,500 before midday tomorrow #SaveCarlasLife #BringMillieHome
David Tuller DrPH @davidtuller1 says in a newsletter that a new crowdfunding will start at May 1st. This will secure the continuation of his important work s4me.info/threads/david-… #LongCovid #MEcfs 1/
🎧🎧🎶🎶 listening to music and dancing feet as I lay here on my bed, I can't seem to be sleep, though I am tired 😩🥱 #MECFS
I went outside for my usual walk, not raining as much but very windy. My brain fog is still bad, hard to type - thanks for predicted words- on the top of the keyboard. 😆 #MECFS #chronicillness
I went out early today for a walk, I only had an hour's sleep so getting very tired, hopefully after lunch I'll 😴
I'm still awake 😩🥱 tired out but can't find my way to settle down to sleep, irritating brain fog is keeping me busy in the head #MyalgicEncephalomyelitis #MECFS #chronicillness
#MyalgicEncephalomyelitis I'm awake so I am still listening to music, Greatest Hits Radiob& dancing in my head as I'm tired out finally 😁
Made this little infographic to help people understand how different “fatigue” or even “chronic fatigue” is from #ChronicFatigueSyndrome (or more aptly #MECFS) For me, this shows how “inefficient” the name #CFS is in designating this illness #NotJustTired #pwME #MEAwarenessHour
May 12 is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) International Awareness Day. It’s not just fatigue. ME/CFS is a serious, long-term illness. Those affected are unable to perform their usual activities and suffer from profound fatigue #chronicfatiguesyndrome
Thirty-three years ago today. The Wichita Eagle, US. 25th April 1991. #MyalgicEncephalomyelitis #chronicfatiguesyndrome #cfsme #mecfs #cfs.
My brain fog has been irritating 😞 today, even eating my tea was difficult, it was just a sandwich, but swallowing was difficult 🤮 but I'm back listening to music 🎶 trying to cancel out my feelings as I don't want to sleep yet #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
How come @5_News are courageously talking about this appallingly difficult story when other news outlets are too afraid. #MEAwarenessHour what is it that scares the others so much??
How come @5_News are courageously talking about this appallingly difficult story when other news outlets are too afraid. #MEAwarenessHour what is it that scares the others so much??
Hi everyone, I am currently putting together a flyer for #mecfs awareness day/week. If you have any comments or suggestions about info that should be on there or word etc, please leave a comment.
POTS is very real and an invisible illness, meaning there are many things you cannot see. You can’t see the tachycardia. You can’t see the brain fog and dizziness from the lack of blood to our head. You can’t see the vision dysfunction. You can’t see the dizziness. You can’t…
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Katie @theKMcDonald
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The Times and The Sun.. @thetimes
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I've deleted my M.E challenge post. I don't have the energy to reply to all comments today. My challenge for myself is to not use the word fatigue. #pwME
Here are some things that may cause Dysautonomia/POTS. Viruses and Infections Concussions Auto immune diseases Surgery Genetics EDS MCAS Pregnancy Vaccines Trauma to the body
There is something hilarious in this tweet that I hadn't noticed before.
FACT: #COVID19 is NOT airborne. The #coronavirus is mainly transmitted through droplets generated when an infected person coughs, sneezes or speaks. To protect yourself: -keep 1m distance from others -disinfect surfaces frequently -wash/rub your 👐 -avoid touching your 👀👃👄
. Tories plan to cut PIP disability benefits... You know what to do? Yes - vote the tories out at every opportunity including the Local Elections this Thursday! And Rishi Sunak we need a #GeneralElectionNow! #r4today #BBCBreakfast #GMB #KayBurley #PoliticsLive #ToriesOut663 .
Geoffrey Boycott tells #r4today that one of the reasons he supports Brexit is because he blames membership of the EU for being convicted of assault in France. Rather than the fact the assault actually happened in France. How sadly illuminating.
As I told #R4Today, if we don't win the no confidence vote, Labour faces a choice. Take ownership of the single worst British policy decision in peace time; or be brave and tell the country the truth: Brexit is a con that will make our problems worse.
Removing benefits from people who are depressed and anxious is hardly likely to make them less depressed and anxious. 🤷 #r4today
Do you know how you can tell that now is not the time to panic about bird flu?
The most common disease you’ve probably never heard of: ME/CFS 🧬 A soul-crushing condition. Here is a thread for those who might not know that they have it or would like to know more 🧵
13 years ago today! 📸 Millie Pilkington
Royal College of Physicians Edinburgh online event on ME/CFS & #LongCOVID for clinicians & students Tuesday 4th June 2024, 6.00pm – 8.30pm (BST) Speakers include @ClagueNjc36 , @exceedhergrasp1 , @PutrinoLab & Danny Altmann events.rcpe.ac.uk/rcpe-mecfs-and… #MEcfs #PwME
Those who have chronic illness will have fatigue, pain, tachycardia, dizziness and so much more. Yet some days they will still act completely normal and pretend everything is normal and say they are“fine”. Meanwhile everything is not fine. So please be kind.
Good news. They did my bloods whilst I was at the hospital so I didn't have to go back again. Let's hope something shows up. Last time my ana test was negative.
Can we push this really important open letter to 1,500 signatures in the next 90 minutes? #SaveCarlasLife #BringMillieHome
WESTMINSTER HALL DEBATE ON #MEcfs As promised please find below an open letter everyone can sign asking @sajidjavid to raise #BringMillieHome #SaveCarlasLife & more during 1 May's debate We will send it on 30 April. So get involved and get signing. LINK with a CW - suicide:…
Windows of the World - a thread 🧵 1. Venice, Italy
Not to brag, but I see my doctors more often than I see my friends.
Desperately need advice from #POTS #LongCovid community. Very severe LC patient with diagnosed but not controlled POTS (ivabradine not tolerated other beta bs tried but no luck). Uncontrolled vomiting despite strong anti sickness meds. Has now kept no food down in over 20dys
If you have had a "remission event" (defined as suddenly feeling remarkably better to the point of almost like a 'normal healthy' person over a period of a few HOURS) what was the trigger? Please describe your experience in comments. If you choose 'other' i.e. probiotics, diet…
So for a year, I have been shouting myself blue in the face talking about how children that I work with have been getting sicker and sicker with long term repercussions of Covid infections. I have been called a scaremonger, a liar, a bedwetter, a pharma shill, paranoid...
ANNOUNCEMENT #BringMillieHome We want to give credit to @MEActNetUK & @meactionscot. We said on Friday that we had secured the question Cat Smith had asked in parliament over #MEcfs. It turns out that ME Actions were also working in the background, at the same time as us, on…
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