Search results for #pwME
The @DWPgovuk has published a Green Paper exploring a review & reform of PIP, with options including changes to eligibility criteria & redesigning the PIP assessment. Read more & find out how to respond to the consultation, here: actionforme.org.uk/news/dwp-green… #pwME #Welfare #PIP
Foggy is going to spend a few more days in #Ontario. It's an AWESOME person's birthday on Thursday and a certain globetrotting adventurer can't say no to birthday cake! *Foggy* I am going to give @JoyK8 the bumps!! 😊🐶 justgiving.com/page/mefoggydo… #pwME #pwME
Thank you to Amanda Francey for writing this. #ME #pwME #ChronicIllness amandafrancey.medium.com/within-four-wa…
Any donation you are able to make will help our dear friend + fellow advocate Anne get closer to her goal to pay her co-pay $ for cancer treatment. Much appreciated 🙏🙏❤️ #pwME #MyalgicEncephalomyelitis #BreastCancer givesendgo.com/annespacecoast
@dysclinic this! for 20+ yrs my migraine dx has never been dismissed or questioned by literally dozens of doctors, nor has its impact on my life been minimised or psychologised But mention my #MECFS dx? 90% of doctors visibly and verbally react with a level of disdain reserved for #pwME 🤬
Dear #pwme, a women from my #bladderproblems bubble is looking for help to get #MEcfs diagnosed in #Canada. Has anybody a tip where to go for a diagnosis? Doctor or Clinic? Please retweet. #myalgicencephalomyelitis
@KCSteckel indeed, but that systemic bias is precisely why I think an indisputable biomarker is so important for #pwME - to convince recalcitrant doctors that ME is definitively biological (I know *we* all know this, and I know we'll still get marginalised, but I think it'd be a big help!!)
@JennieJacques1 / how is the fight going? Found any good contacts or any advice/guidance/treatments etc to share? Anything from @NHSEngland? My perspective, post exertion malaise and brain fog have got worse the last year #pwME #MECFS
@JennieJacques1 / how is the fight going? Found any good contacts or any advice/guidance/treatments etc to share? Anything from @NHSEngland? My perspective, post exertion malaise and brain fog have got worse the last year #pwME #MECFS
Please help support ME Awareness Month 2024, add a #Twibbon now! twibbon.com/support/me-awa… #meawarenessmonth #pwme #mecfs #MyalgicEncephalomyelitis #postcovid #longcovid #severeme #millionsmissing @MEActNet @MEActNetUK @MEAssociation @actionforme @MEResearchUK @Invest_in_ME
THIS!!! 👇👇👇 I’ve tried just about everything since I got #ME almost 29 years ago. If something was out there for the majority of #pwME, we’d have found it.
@DafoeWhitney Oh-oh, you’ve been reading my mind!! I’ve been sucked into so much crap. 🥴💙 I hate to think how many $$$ I’ve spent over almost 3 decades. #ME #MyalgicEncephalomyelitis #pwME
We have spent the last 5 days focusing on one action your can take for #MillionsMissing #TeachMETreatME. Today we will go over some general social media tips to go along with those actions. Everything can be found in the Show Up From Home Toolkit at bit.ly/HomeMM2024. #pwME
If you’re feeling inspired by the London Marathon, then we have your next challenge! Run the @Great_Run on September 8 2024 for #TeamActionForME & help us to provide support to #pwME across the UK. The AJ Bell @Great_Run is the world's biggest Half Marathon.
Dear #MECFS community. Can anyone recommend some noise cancelling headphones or inserts that are reasonably priced? I'm in the UK. #pwme #MyalgicEncephalomyelitis #chronicillness #chronictwt
Last day to vote for Jessica's book! Only takes a min to do but helps a lot. #PwME #MedTwitter peoplesbookprize.com/summer-2023/a-…
Time sensitive! #pwME & #pwLC @TheChronicColab need your help. 18 more signatures required to reach 1,500 for the open letter to @sajidjavid. Please sign if you haven't already done so or share with healthy allies. #SaveCarlasLife #BringMillieHome
Time sensitive! #pwME & #pwLC @TheChronicColab need your help. 18 more signatures required to reach 1,500 for the open letter to @sajidjavid. Please sign if you haven't already done so or share with healthy allies. #SaveCarlasLife #BringMillieHome
🌟 Mike Harley! 🌟 I’ve only just clicked that this was you and I’m sure you didn’t mention you were doing this in our last catchup!! 😂😂 A-M-A-Z-I-N-G human 💜 Thank you for all you are doing as an ally for #pwME 🙏 🙏🙏🙏🙏🙏
🌟 Mike Harley! 🌟 I’ve only just clicked that this was you and I’m sure you didn’t mention you were doing this in our last catchup!! 😂😂 A-M-A-Z-I-N-G human 💜 Thank you for all you are doing as an ally for #pwME 🙏 🙏🙏🙏🙏🙏
Jeff Winuk @pwme
15 Followers 9 Following
Hayley West #FreeTibe.. @Hayleywest8
2K Followers 2K Following Mum of 2 kids, 2 dogs & 1 husband. Supports Dalai Lama, Tibet & Jeremy Corbyn. Has M.E. #pwME #FreeTibet
PwME 4 bioMEdical res.. @ValeBodi
4K Followers 2K Following Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/MEdical apolide/gnarled Pacer
🇪🇺 🇮🇪 #pw.. @chaostocosmos
1K Followers 433 Following Woke leftie snowflake, disabled, ME/CFS, C-PTSD, likes cats, genealogy, model trains. Speaks English, Spanish and Rubbish. Writes in last of those.
とーま @PWME3vfbnS66061
152 Followers 14 Following
Ruby E...w/ LC & ME �.. @RubyEngel1
1K Followers 2K Following Surviving Covid is NOT the same thing as recovering from Covid #FBLC #LongCovid #LongHaulers #CountLongCovid #MECFS
Mary Tynan Actor pwME.. @marytynan
987 Followers 1K Following #pwME #OnlineArts specialist #actor #director #creative #Gaeilgeoir #writer #coder #Art Dir of https://t.co/BXp42wTMur #PG Student #queer
Kags ❇ 😷 #LongVZ.. @Klang764
1K Followers 2K Following ME (not cfs) for 24 years,severe for the last 4. Socialist, despise Tories with every fibre of my being.
Nicholas @Nicholas_pwme
695 Followers 1K Following 40s, Severe ME/CFS 18+yrs;95% bedbound. A dog, a yacht and a wide open space=🙂.🇬🇧♥️🇪🇺🌍🌌
Jen Simmons @jensimmons
107K Followers 2K Following Apple Evangelist on the Web Developer Experience team for Safari & @Webkit. Member of CSS Working Group. #PwME • Find me at https://t.co/3gojIWgQy4
pâmela @pwmeIa
1K Followers 1K Following
ExposingME.com @exposing_pwme
437 Followers 453 Following
Orla PWME @PwmeOrla
315 Followers 179 Following ME patient since 1998. Interested in scientific progress in the area, and in countering quackery and over-inflated claims for treatments.
dSavannah = #disabled.. @dSavannahCreate
3K Followers 4K Following #spoonie FT sick since 12/2014 #ChronicFatigue #ChronicPain When brain & body behave: #blogger & #advocate #DogCatTurtleWrangler #wife #feminist #ally she / her
รับงาน �.. @YZMAJ5PWME20jDv
191 Followers 0 Following
Rachel (Tala) #pwME @RachelKayWeiner
819 Followers 950 Following (she/her) neophyte mycophile; student of philosophy & Afro-Asiatic languages; existentialist. Activist, it seems. #Harvard #PeaceCorps #SCA #ChosenFamily
LoSan. 💙 #pwME #Fi.. @LoSan_LambChop
741 Followers 1K Following Socialist. Lover of books, history, music .Ancient and tired. I don’t say much ‘cos of ME/Fibro but I can still think and RT!
Claire Cozler🌻Safe.. @ClaireCozler
3K Followers 4K Following Labour Town/City Councillor🌹Chair Morecambe Town Council/CLP DO MEP Cand. 2019🌹Campaigning/Disability/Community/Women's/Europe/Arts She/her. Views my own🌹
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
finley ʚ❤︎ɞ #pw.. @vigilantebatz
280 Followers 411 Following ⨂|| maul’s bf || crippunk || 20 || he/him || #pwme ||⨂
smartgirllisa 🇪�.. @smartgirllisa1
1K Followers 3K Following ME/CFS & 1st Wave Covid Long-Hauler. We need monoclonal antibody treatment in UK / Biochemist/ Rare Vintage Fashion Collector #evusheld4theUK #EnoughIsEnough
Movilización Persist.. @CovidVictimas
3K Followers 4K Following Pacientes + familias #EncefalomielitisMiálgica + #CovidPersistente unidos y movilizados para denunciar el abandono
One of those #pwME @93punkt3
204 Followers 162 Following ME/CFS || ICD-10 G93.3 || Tweets for Awareness || often more questions than answers
PwME Sandra @smellthelilacs_
177 Followers 246 Following Wife, cat mom, former systems consultant, #MECFS #spoonie & advocate. Not enough energy to live AND tweet.
Action for M.E. @actionforme
14K Followers 2K Following We take action to end the ignorance, injustice & neglect faced by the 250,000 #pwME in the UK. Online: Mon-Fri 10-4. Helpline: 0117 927 9551 Mon-Fri 10.30-3pm
chelle@-allabout #PWM.. @Chelle_pwME
289 Followers 972 Following #PWME #Graves Disease #Endometriosis #Vitiligo Warrior ❤
ez @ezchili
8K Followers 1K Following https://t.co/VbxjEQf4fe ME/CFS, science, history of ideas, board games, words, photography, film, chili peppers, forever curious, disabled. #MEcfs #pwME
วิ สมมุ�.. @xNFukMgvhPhPWme
140 Followers 427 Following
petronella perret #pw.. @fuzzydacious
330 Followers 2K Following Bad girl gone good. Woman of the world, taking on the world, but no longer looking to take over the world. Adventures welcomed, especially if there are cats.
ּمۘــﯟﯟنۨ�.. @3tfoqQdd08PwmeY
24 Followers 6 Following أنت تستلطف كل الناس ومعنى ذلك أنك لا تبالي بأحد.💛💛✨
DecodeME the ME/CFS S.. @DecodeMEstudy
7K Followers 748 Following The world's largest study ever into #MEcfs. #pwME [email protected] - 0800 196 8664 #DecodeMEStudy #pwME #MillionsMissing
PwME @Sophia77884329
55 Followers 58 Following
สุวัฒน์.. @NAVBtlBxwPwme6c
5 Followers 4 Following
FIONA SHAW Ⓥ🌱 �.. @FALCON678
3K Followers 4K Following Socialist, Unite Community, Ex Labour, Vegan, Supporter of human and animal rights,Nature lover.
cat power ❄🐯💕.. @catpowerart
41 Followers 399 Following ▫ I scribble & sometimes they move ▫ she / they / her / 그분 / 저 surviving w/ #mecfs #chronicpain ･ﾟ✧.🌸💜
Claire 🧠🔥 #pwME.. @Naylor007
2K Followers 5K Following ME, FM, OH, MCAS, TMJ, OSA, DDD, TOS, hypothyroid stole too much from me. Doing everything I can to take back what's mine💪 I will do what i can to help others
paul edsall @PWME3
35 Followers 66 Following
Paul Evans @pwme1000
7 Followers 0 Following
FionaPWME (fiona.me@b.. @FionaPWME
2K Followers 3K Following Was a journo/writer/editor. #MECFS has crushed my life for 13+ years. (Profile pic: excerpt of cartoon by @KorneliaPaulson.)
mysmile💚 @pwme_27
4 Followers 16 Following
The Light House Keepe.. @RoloTom07159561
15 Followers 67 Following CFS/ME 30 years and counting. Corporate Gaslight Survivor. £13 million fine...😂😂
คนตัวดำ @9LD87S91jtiPWMe
14 Followers 68 Following
Hugh Lewis @ProfHughLewis
4K Followers 1K Following Member of the Astronautics Research Group at the University of Southampton with interests in space debris, NEOs, modelling and AI. Also a #pwME
きなこきなこ @aG0cPWME5q44507
0 Followers 2 Following
ぬ @8vD5S5PWME92105
0 Followers 0 Following
pwme @pwme11
2 Followers 1 Following
イーサン「二等.. @obsse76bhTsPWME
119 Followers 237 Following 趣味はサバゲー、サイクリング、映画鑑賞 多分ほとんどのツイートがサバゲーになると思いますがよろしくお願いします あとサバゲー歴は約4年くらいになります
עוז בן אהרו�.. @NgUOUOhPwme0rao
8 Followers 39 Following
كاروان @fPWME08IQiskl5I
12 Followers 59 Following
ゆに @0PWME3yELE0mznG
1 Followers 3 Following
Kenrya Rankin @kenrya
2K Followers 2K Following KEN-ree-yuh. Author. Consultant. Freedom Dreamer. Homie. | she/her | Editor @Mozilla | Knobler Fellow @TypeMediaCenter | #pwME #POTS #EDS | https://t.co/4JMjSkeUzf
やさん @lNoP2PWMe49leTE
0 Followers 4 Following
fadra tedesco @318Fadra
1K Followers 2K Following Long time PwME, and parent of PwME fighting for better access to care and treatments. Hope begins in the heart.
เด่น @5pwmeOZesG0UxpP
2 Followers 3 Following
菅野浩史 @Rv0WTmcoOvPwme4
1 Followers 2 Following
يحيى الطلي @ofdCvfXXQxPWme8
2 Followers 2 Following
PW_ME_2020 @PWME20201
22 Followers 0 Following
فجر💚💚الج�.. @VGjSw6M7Pwme1EA
3 Followers 7 Following
やめます @xzE5W1w75pwmeLx
22 Followers 34 Following
Cornelious @turgerset9pwme1
1 Followers 122 Following Merakla beklemek değil, Sabırla beklemek gerek.. Cahit Zarifoğlu
ゴロさと @EZsbQTNyPwmeZ2Y
0 Followers 4 Following
#PwME 4 bioMEdical re.. @4Pwme51365
1 Followers 0 Following
Вячеслав @BshJxmmPWmeYNIh
0 Followers 0 Following
ビビビッとヅき.. @Tq6pwme3FBsUC9o
2 Followers 444 Following
منذر النقرو.. @PwmeWn1GeasScbC
0 Followers 1 Following
Emma Lewis @emmalewis
856 Followers 2K Following Senior newsroom developer @FT / closet writer / covert musician / unfortunate dancer. #pwME https://t.co/Mw9XCVjSEf
ไอซ์ ’แ�.. @csXkPWME9fnV83E
1 Followers 7 Following
こ @U7D7spPWME6M4kY
3 Followers 18 Following
អ៊ឹង ឧត�.. @61vu3o96xPWmeDP
0 Followers 24 Following
SEMO DE ANA @hsHrPWmeCwVfFI6
2 Followers 0 Following
Sylvie Knox ETH @pwme38lndg50489
0 Followers 2 Following Currently living in the future, according to my outdated calendar.
RaøuF @Hsum4D66PWMeTSF
3 Followers 34 Following
حسين علي @99pwme8AuSzm3IM
0 Followers 1 Following
ทาคิซาว.. @Rx5PWMeQlyxzfxl
0 Followers 1 Following
ミカリン @J7PwmeRNfzSmqOc
0 Followers 1 Following
❕ @pwme_u
0 Followers 19 Following
나랑놀래 @pwme_kr
2 Followers 28 Following
コト @4Yyp1Fu0PwmeY7B
0 Followers 0 Following
佐保薫子 @byEdH5PwmeS5h7l
0 Followers 0 Following