Susannah Fox @SusannahFox
Author, "Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care" (@MITPress 2024) She/her SusannahRFox on🧵 susannahfox.com/rebel-health/ Nacotchtank territory Joined December 2008-
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Imagine being a little kid and facing not only serious illness, but also blood draws, IV placements, & scans. @hopeforhenry to the rescue! The #RebelHealth spirit is strong in @lauriestrongin :) susannahfox.com/2024/04/26/wow…
ICYMI: Watch our EmPOWER M.E. roundtable event, “How to Build and Work with Your Care Team," featuring keynote speaker @SusannahFox & panelists Dale Bolger, @AshantiRN, @amymooney145, Sanna Stella, & Emily Taylor. ow.ly/ZnkU50Rotkh
"Empathy doesn't mean that you agree with everything someone says or believes, but as human beings, we need to be able to recognize when others are in pain." - @Surgeon_General the.ink/p/vivek-murthy…
Millions of American men are lost, caught between an old and discredited model of masculinity they were raised on and an emerging one they are struggling to learn and adopt. @Surgeon_General Vivek Murthy believes it’s a public health crisis. the.ink/p/vivek-murthy…
Why do some health movements - like #wearenotwaiting - take off and others don’t? @claudiawilliams and I discussed it and I’d love to get more input: susannahfox.com/2024/04/22/the…
Check out The Other 80 latest episode with @SusannahFox, author of Rebel Health. The book is a deep dive into the expert network of #patients, survivors and #caregivers who are charting a new path of innovation and research in #healthcare. Listen: podcasts.apple.com/us/podcast/the…
Just got my copy of @SusannahFox’s Rebel Health! Thanks for the recommendation @joannakempner !
It's Advocacy Week 2024 Social Media Action Day! Follow the link to use our Social Media & Remote Action Kits and educate Congress w/ emails, phone calls & social posts. #StopTheLongHaul. Please share posts btwn 12-1 pm PT for #MEAwarenessHour visibility! ow.ly/I3Se50RinH6
I think you'll enjoy this convo w/ @SusannahFox as much as I did Her book "Rebel Health" is a deep dive into the expert network of patients & caregivers who are charting a new path of innovation & research Listen here: theother80.com/the-patientled…
First live event for MicroSkills: Small Action, Big Impact is at main branch New York Public Library @nypl; April 17th! Moderated by Jill Schlesinger CFP, Emmy & Gracie Award Winning @CBSNews Business Analyst. @ResaELewiss @jillonmoney @nyplEvents eventbrite.com/e/author-talk-…
Looking forward to Friday's @PlzSolveCFS virtual event. Here's to the #MECFS #RebelHealth alliance! solvecfs.org/susannah-fox-w…
Advocacy Week 2024 kicks off on Monday, April 15, with actions for every energy level--from social media posts to virtual meetings with congressional leaders. Use our Remote Action & Social Media Tool Kits for emails, social posts, & phone calls. ow.ly/XTKF50Rft45
Finally got the chance to publicly thank @adrane for letting me use her brilliant phrase REBEL HEALTH as my book title. Listen now to the conversation that @halletecco & I had on @hoh_pod about health care's hidden growth engine: patients heartofhealthcarepodcast.com/episodes/susan…
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7K Followers 3K Following Fighting to improve health, increase opportunity, and end social and economic isolation for people most impacted by mental illness.The Life Raft Group @Liferaftgroup
2K Followers 1K Following Enhancing survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts.Ohh, this has me teary! Thank you for reading my book, @SusannahFox. This means the world to me, as I look up to you as a role model and mentor. Thank you for all you do to support and elevate patient voices!
I saved the final chapter of WIDE AWAKE AND DREAMING for this morning, Boston Marathon Day, and was in tears reading how @RemRunner overcame all obstacles, including narcolepsy, to finish.
Spent the afternoon in lovely DC advocating for @NIH @NIHFunding on the Hill with @GeneticsSociety. Great experience, esp shared w/ past (Brendan Lee), current (Bruce Gelb) and future (@SarahTishkoff) ASHG presidents!
We're thrilled to announce that @SusannahFox, health and technology strategist, former HHS Chief Technology Officer, and author of "Rebel Health," will join National Health IT Coordinator @mickytripathi1 as a #DirectTrust2024 keynote speaker! Read more: directtrust.org/blog/news/dire…
Excellent discussion with @KellyIsWorking + @Tidepool_org team, informing #ArgonautProject on CGM-to-EHR writes. youtu.be/jMXY3vNOA3k covers: - Reimbursement for remote monitoring - Population dashboards - Periodic & on-demand writes - Provisioning devices/accounts @HL7 #FHIR
Thank you, @SusannahFox, for your fabulous contributions to EmPOWER M.E. yesterday. Your keynote presentation was a highlight of #SolveAdvocacyWeek2024! #StopTheLongHaul
"Thank you for recognizing and verbalizing professionally how invisible and insignificant some of us feel and what many of our experiences/situations are." - a @PlzSolveCFS patient advocate, writing what is now my favorite quote about #RebelHealth
@SusannahFox @PlzSolveCFS It was so nice to meet you yesterday on the presentation. I hope our paths cross again as we advocate for individuals with ME/CFS and Long COVID.
#RebelHealth “We can and must do better” 💯 Hear, hear!
I wrote #RebelHealth to help people step into their power as patients, survivors, and caregivers. And to help the rest of the world see the suffering of people who are currently outside mainstream systems. We can and must do better.
@SusannahFox @PlzSolveCFS Thanks for speaking yesterday on Solve ME panel!
Just got my copy of @SusannahFox’s Rebel Health! Thanks for the recommendation @joannakempner !
The Amazon pavilion definitely one of the highlights — if it was on Prime I’d have it shipped 😭#MilanDesignWeek
Check out The Other 80 latest episode with @SusannahFox, author of Rebel Health. The book is a deep dive into the expert network of #patients, survivors and #caregivers who are charting a new path of innovation and research in #healthcare. Listen: podcasts.apple.com/us/podcast/the…
Congratulations, @VirusesImmunity! Thank you for your dedication to the cause and the millions who suffer. #StopTheLongHaul #LongCovid #MECFS #IACCIs
TIME's list of the 100 Most Influential People in the world is out. I'm honored, delighted, and grateful to be a part of this incredible group #TIME100 🙏🏼🙏🏼🙏🏼 @TIME time.com/6964230/akiko-…
@SusannahFox @dpatil @cwclub I missed the event, but thanks for sharing the video info! Looking forward to catching up on the insights.
If you are a perimenopausal/menopausal person with sleep problems, we need your input - please share your opinions to help guide the design of a research study to treat insomnia in menopause - bit.ly/3U0fNQu - and feel free to share and retweet!
As we are half way through #ParkinsonsAwarenessMonth, I wanted to share the blog post by Dr. Liz Ferluga, one of the amazing movement disorder specialists at @synapticure. As Liz says in her post "you are not alone." synapticure.com/blog/10-things…
Can you join us? eventbrite.com/e/author-talk-… @AdairaLandryMD and my MicroSkils: Small Actions, Big Impact @nypl @nyplEvents author talk is this Wednesday @ 6:00pm @jillonmoney HT @TheCompoundNews moderates!
Philosopher, Helen De Cruz, explores the transformative role of wonder and awe in an uncertain world, and why we practice magic. hubs.ly/Q02sN-2x0 #philosophy #philosopher #magic #hope @Helenreflects
.@Liz_ORiordan is a role model to us all. No matter what happens, she is a leader. She’s a surgeon, she leads. She’s living w/ #breastcancer, she leads. Her mom gets #sarcoma, she leads. She struggles with #mentalhealth, she leads. So proud of you, friend. So proud. #MedTwitter
As new research reveals women with mental health struggles are twice as likely to die of the disease... I survived breast cancer but was floored by depression and just six sessions of CBT saved my life @MailOnline dailymail.co.uk/health/article…
@SusannahFox @Cluster_buster I’m glad it was useful! Have you seen @Catherineoscopy’s new book? It really helped me think through how patients find their way into alternative health movements.
@SusannahFox Happy to have found your new book! Helps me understand my own research better, including the patient-led group @Cluster_buster who are forced to develop innovative ways to dx/tx/fund/research cluster headache, including (but not only) psychedelic protocols.