The Sick Times @thesicktimes
Non-profit news site chronicling the #LongCovid crisis. Founded by @betsyladyzhets and @mileswgriffis. Donate: https://t.co/YBFRSWzcJx thesicktimes.org The Wayside Joined September 2023-
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So excited that @NYAmNews has partnered with @betsyladyzhets and @thesicktimes to report on NYC's progress treating #LongCovid and how much more still needs to be done. amsterdamnews.com/news/2024/04/1…
Is anyone aware of blood donation bans for Long Covid or ME besides the UK? I'm looking to speak with pwLC for @thesicktimes who have donated or been denied because of Long Covid, or if you have thoughts on the subject! Contact me at: miles@thesicktimes.org
hello sharks… i present to you a project @ObjectiveJrn & @thesicktimes is working on that’s deeply important to me — a guide for better covid19/long covid reporting! we’re seeking feedback from people living w/LC. form open for 2 wks, all qs voluntary!! docs.google.com/forms/d/e/1FAI…
Oak artworks as a form of remembrance. @Katricianh talks to poet and artist Alec Finlay about Scotland's Covid Memorial: a blend of loss, pathos, grief, fury, and wry humor that speaks to the complexity and burden of the ongoing pandemic. thesicktimes.org/2024/04/02/ref… @thesicktimes
The Sick Times: 'Sen. Bernie Sanders seeks feedback on $10 billion “moonshot” for Long Covid' 'People with Long Covid and their allies need to get ready to push for this legislation with their elected officials.' - Olenka Sayko thesicktimes.org/2024/04/16/sen…
Sen. Bernie Sanders has proposed draft legislation that would allocate one billion dollars a year for the next 10 years to #LongCovid research. Read what advocates are saying about the proposal and how you can share feedback with Sanders' office: thesicktimes.org/2024/04/16/sen…
Check out this amazing reporting! We're a little biased because it highlights work we're really proud of, but this article provides such a helpful lens to view the web of essential mutual aid that's keeping us safe these days!! ❤️
Check out this amazing reporting! We're a little biased because it highlights work we're really proud of, but this article provides such a helpful lens to view the web of essential mutual aid that's keeping us safe these days!! ❤️
NPR recently ran an esssay by the partner of an immunocompromised person about how annoying it was for him to still take COV precautions. My experience has been the opposite: my partner & I support *each other* in protecting ourselves. Here's my take: thesicktimes.org/2024/03/26/lon…
Today @thesicktimes: I wrote about a new project, by @ahhrrr, making clinical trials more accessible to the #LongCovid community. Ezra also shared his original analysis of the clinical trial landscape with me -- check out the piece for interactive charts! thesicktimes.org/2024/03/26/wan…
"Life with Long Covid has achieved something much more profound: my partner and I have been forged together, intertwined in care and protection and tenderness and devotion." Powerful essay by @LygiaNavarro in @thesicktimes ❤️🔥 thesicktimes.org/2024/03/26/lon…
🔊NEW: Some ME experts are calling for a retraction of the recent NIH intramural study on #ME, claiming errors, research omissions, and potential bias. @betsyladyzhets and I did a deep dive into it for @thesicktimes. Give it a read! thesicktimes.org/2024/03/19/err…
Today @thesicktimes: @mileswgriffis and I did a deep-dive on the recent NIH ME intramural study, exploring why some ME experts are highly critical of the paper -- some even calling for retraction. thesicktimes.org/2024/03/19/err…
In other encouraging news (as I near my own 4-yr #LongCOVID sickaversary saga) via @mileswgriffis of @thesicktimes: Sen. Bernie Sanders introduces resolution to formalize Long Covid Awareness Day thesicktimes.org/2024/03/15/sen…
…but on a much more serious note… It’s great to see so much action on the Hill today surrounding #LongCovid awareness. While senators/reps get in on the LC Awareness Day action, remember that people with LC/activists and @thesicktimes have been carrying this. 1/
…but on a much more serious note… It’s great to see so much action on the Hill today surrounding #LongCovid awareness. While senators/reps get in on the LC Awareness Day action, remember that people with LC/activists and @thesicktimes have been carrying this. 1/
🚨BREAKING: Today Sen. Bernie Sanders and @C19LH_Advocacy announced a resolution to formally designate March 15 as Long Covid Awareness Day. Read about it in @thesicktimes. thesicktimes.org/2024/03/15/sen…
NEW: Sen. Bernie Sanders has introduced a resolution to formally recognize #LongCovidAwarenessDay, in collaboration with @C19LH_Advocacy. thesicktimes.org/2024/03/15/sen…
If you've been infected with COVID in a healthcare setting in the US, please let me know! My advocacy group @CareNotCOVIDChi is trying to compile a list to hopefully get a journalist interested 😷
Friendly reminder that all donations to @thesicktimes are being matched, up to $15,000, during this #LongCovid Awareness Month! the-sick-times.fundjournalism.org/donate/
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1K Followers 985 Following Science journalist | Managing editor @Open_Notebook | Words at @NewsfromScience, @ScienceNews, @Spectrum + more (she/her)So excited that @NYAmNews has partnered with @betsyladyzhets and @thesicktimes to report on NYC's progress treating #LongCovid and how much more still needs to be done. amsterdamnews.com/news/2024/04/1…
Is anyone aware of blood donation bans for Long Covid or ME besides the UK? I'm looking to speak with pwLC for @thesicktimes who have donated or been denied because of Long Covid, or if you have thoughts on the subject! Contact me at: miles@thesicktimes.org
“Days like this make me feel like I’m in a dystopian society and have to beg the fascist authorities for basic protections” — @SFdirewolf at @sdaction1 Keep Masks in Healthcare action outside of @SF_DPH
@loscharlos @SFdirewolf @sdaction1 @SF_DPH Huge shout out to you all!!! @thesicktimes
@namiunreal @lovebugtx @michael_hoerger @thesicktimes also has a number of recent articles on this and Long COVID!
@betsyladyzhets @thesicktimes We look forward to be interviewed next time. The logic and nuance of all this is what’s most important. Would be good to present the sides and allow the Long Haulers to figure out what makes the most sense.
"Some people with ME and researchers who study it would like to see ME explicitly mentioned in the act. Many advocates have noted the NIH’s bias against ME, which has been largely underfunded by the institute." Thanks @mileswgriffis @BernieSanders thesicktimes.org/2024/04/16/sen…
@KatieKlocksin @thesicktimes @julia_doubleday I’m actually writing about it in greater detail - including my gynecological emergency that almost took my life. It’ll be a bit until it’s completed though. Would love to see Julia or The Sick Times talk about it too! So many people in the same boat.
@broadwaybabyto I hope we get a really good article about this from @thesicktimes or @julia_doubleday’s The Gauntlet. I can already envision telling people about this and not being believed. We need journalism to tell this story well & get it on the record.
You may have noticed a familiar name in the latest @thesicktimes newsletter this morning! (It’s us, and we need your help to collaborate on a new project to improve Long Covid and Covid-19 reporting!)
The Sick Times: 'Hidden disability: The quiet struggle with Long Covid in Kenya' H/T @thesicktimes thesicktimes.org/2024/04/09/hid…
@janelle_cpp @ObjectiveJrn @thesicktimes dream team @ObjectiveJrn + @thesicktimes 🔥🔥🔥
hello sharks… i present to you a project @ObjectiveJrn & @thesicktimes is working on that’s deeply important to me — a guide for better covid19/long covid reporting! we’re seeking feedback from people living w/LC. form open for 2 wks, all qs voluntary!! docs.google.com/forms/d/e/1FAI…
JaelBore reports on #LongCovid in Kenya & other areas of Africa in @thesicktimes. The world needs more coverage of Long Covid. The world needs more coverage of the world.
The Sick Times: 'Hidden disability: The quiet struggle with Long Covid in Kenya' H/T @thesicktimes thesicktimes.org/2024/04/09/hid…
Oak artworks as a form of remembrance. @Katricianh talks to poet and artist Alec Finlay about Scotland's Covid Memorial: a blend of loss, pathos, grief, fury, and wry humor that speaks to the complexity and burden of the ongoing pandemic. thesicktimes.org/2024/04/02/ref… @thesicktimes
This #longcovid essay I self-published at the start of April is *still* getting kicks in readership thanks to @Medium boosting it and @thesicktimes sharing it in their newsletter. 🦋My story has wings! 🦋I can't do much but I can do this. Thanks for reading!
Imagine that HIV/AIDS was spoken about in the media with the same denialist language that is often used to describe long COVID. Oh wait, you don't have to. 🙃 #longcovid #health #science #philosophyofscience #medicine medium.com/@frogsandstars…
The Sick Times: 'Sen. Bernie Sanders seeks feedback on $10 billion “moonshot” for Long Covid' 'People with Long Covid and their allies need to get ready to push for this legislation with their elected officials.' - Olenka Sayko thesicktimes.org/2024/04/16/sen…
Check out this amazing reporting! We're a little biased because it highlights work we're really proud of, but this article provides such a helpful lens to view the web of essential mutual aid that's keeping us safe these days!! ❤️
“I have no degree or experience doing any work similar to this,” mask bloc organizer N. says. “Why the fuck are we being more effective and doing more education [than leadership in institutions]?” By @brittashoot: thesicktimes.org/2024/03/12/how…
I appreciated the chance to catch up with @betsyladyzhets @thesicktimes about the NIH Intramural Study. There's plenty enough weird about conclusions drawn from paltry data gathered using a flawed process, along with apparent irregularities with the review process--retract it.
Many thanks to the experts and advocates who talked to us, including @exceedhergrasp1, @sunsopeningband, @Dysautonomia, @postviraltrials. Thanks also to @davidtuller1 and @julierehmeyer for providing feedback on a draft of the piece! thesicktimes.org/2024/03/19/err…
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